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  • Activity
    • 4 hours, 18 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 4 hours, 18 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 6 hours, 14 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 6 hours, 30 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 17 hours, 41 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 29 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 21 hours, 32 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 14 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 22 hours, 14 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ‘delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 22 hours, 16 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 22 hours, 21 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 22 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 22 hours, 24 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 22 hours, 24 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 22 hours, 24 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 23 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 23 hours, 11 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 23 hours, 23 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 23 hours, 24 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    Clear All
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    Today is the first day of National Diabetes Awareness Month! In the comments, please share your personal connection with T1D (e.g., “I have T1D myself”, “I have a child with T1D”, etc.) and then answer the following: What is one thing you wish someone close to you (a romantic partner, a parent, a friend) better understood about your experience with diabetes?

    Home > LC Polls > Today is the first day of National Diabetes Awareness Month! In the comments, please share your personal connection with T1D (e.g., “I have T1D myself”, “I have a child with T1D”, etc.) and then answer the following: What is one thing you wish someone close to you (a romantic partner, a parent, a friend) better understood about your experience with diabetes?
    Previous

    If you drink alcohol, do any of the following types of alcohol cause a noticeable drop in your blood glucose, even if you do not bolus? Select all that apply to you.

    Next

    On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (5 = the most satisfied, 1 = the least satisfied)

    Sarah Howard

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    137 Comments

    1. Annie Simon

      I am a newly diagnosed T1D at the age of 56 in 2018. My family is extremely supportive and wouldn’t have made it this far without them. My diagnosis was most unexpected and sudden yet I give myself a lot of credit as I have been an exceptional patient and have followed my endocrinologist and diabetic team advice and have come a long way in understanding and controlling diabetes. My Freestyle Libre sensor has been a game changer for me personally and along with healthy eating, exercise and following my protocols with insulin I have been able to control my sugars and will continue to improve as I want to have the best quality of life even though I have been diagnosed with T1D. I’m up for the challenge!

      3 months ago Log in to Reply
    2. Steven Gill

      As a TYPE 1 erroneously diagnosed TYPE 2 24 years ago (understandably, obese workaholic who literally ate and drank everything) mysticly changed to TYPE 1 after a 3 year honeymoon. Single, living alone except with periods of time with roommates (relatives, tenants, and yes sweeties), always with pets: over 30 years had 2 dozen dogs in my shack… 10 I kept, 5 I bought from the neighborhood to get healthy/train/rehome. One I inherited to rehome, several strays I found their home, the rest my roommates. This is to say never bored or lonely.

      This is tough to answer, I don’t expect anyone to understand me. Living alone it’s literally all about me (and my herd), I’m as selfish as I want, as lazy as I can, and been known to have a mower carburetor on my work bench at 2AM cussing it out (and be at work at 7). What I wish another to know?

      Males in my family don’t see 70. Hope to beat that, I have 7 years to do it (unlike them am a non-smoker, light-drinker, pretty healthy and good cook: so hope to earn another year or two) but I figure to get all the living in I can. Ummm…. get out of my way?
      (had a black eye from a hypo, came to on the floor under my workbench, got stuck in a washer barely getting out to drink as hi-test coke, and carry cokes under a crawlspace at work and had to drink it to get out. But I’m winning?)

      1
      3 months ago Log in to Reply
    3. Tb-well

      3/8/90 is my diaversary.

      3 months ago Log in to Reply
    4. Yerachmiel

      Connection between blood sugar, mood, ability to understand and act

      1
      3 months ago Log in to Reply
    5. anj1832

      I wish my parents didn’t treat doctors visits and a1c checks as my report card. I wish they didn’t put so much pressure on me to fill out logs, because when I lied on them and my a1c was high (7s) they made me feel like I failed. It’s followed me to adulthood and I often break down crying during endo visits because I feel like I’ve failed.

      3 months ago Log in to Reply
    6. Marie Foster

      My 14 y.o. daughter has been type 1 for 13 years. I wish my work / work friends understood how much it actually consumes my life as well as hers.

      1
      3 months ago Log in to Reply
    7. Shelly Smith

      I have T1D myself. If I could get it across, the one thing that I wish was more understood: it takes time to be a diabetic. It takes time to change my set, time to test, time to count every bite of food that I eat, time to bolus, time to see doctors, etc.

      3 months ago Log in to Reply
    8. Donna Trast

      I have type 1 diabetes for 55 years now. I have 2 daughters with type 1, diagnosed at age 5 and the other at age 12. I now have my amazing granddaughter, who just turned 8 & was diagnosed with type 1 4 days after her birthday. I am heartbroken over this and angry that we all have it. I wish my siblings and close friends had an inkling of what it’s really like and all that’s involved with managing type 1 diabetes. Just because we all look fine doesn’t mean everything is easy.

      2
      3 months ago Log in to Reply
    9. PamK

      I have T1D myself – – for 58 years! I wish I could explain how much it bothers me when my husband gets upset because my blood sugar isn’t perfect. After 32 years together, he’s finally starting to get it!

      3 months ago Log in to Reply
    10. T1D4LongTime

      I’ve been a T1D for 56 years since the 1st grade. My husband is Type 2, so he is much more aware of how BG levels me and him too. I do wish he would realize that when I’m bolusing that I need to focus on the task and complete it (figuring extended bolus times,expected exercise, etc) rather than continue to talk to me and ask me questions. Especially frustrating when my BG is low and I’ve eaten, but I’m still low.

      3 months ago Log in to Reply
    11. wyndare3

      I am T1D. I would like my support person to experience dealing with a going low alarm/ situation to better understand the intensity. Maybe it’s just me but 77 and an arrow pointing straight down on my reader isn’t exactly a fun day at the park.

      3 months ago Log in to Reply
    12. K Ro

      I have T1D and so does my younger sister.

      3 months ago Log in to Reply
    13. davidgenesse@hotmail.com

      I have a child with T1D

      How I’m impress of my 14yo daughter with T1D, how impressive she are, how positive she stay even I feel she’s crushed inside sometimes.

      3 months ago Log in to Reply
    14. Nichole Pleisch

      I have T1D (and so does my Fiancé) I wish my family understood that I never get a break from diabetes and just having a little compassion would go a long way.

      3 months ago Log in to Reply
    « Previous 1 2 3

    Today is the first day of National Diabetes Awareness Month! In the comments, please share your personal connection with T1D (e.g., “I have T1D myself”, “I have a child with T1D”, etc.) and then answer the following: What is one thing you wish someone close to you (a romantic partner, a parent, a friend) better understood about your experience with diabetes? Cancel reply

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