Mary Dexter – T1D Exchange

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- 2 months, 3 weeks ago
  
  Jeff Marvel likes your comment at
  If you were diagnosed with T1D as an adult, for how long did you notice symptoms before getting a T1D diagnosis?
  Initially misdiagnosed as T2
- 3 months ago
  
  Jeff Marvel likes your comment at
  Have you ever changed diabetes healthcare providers because you did not agree on aspects of your T1D management? (E.g., disagreement about device choices, blood glucose goals, management decisions, etc.)
  The previous endocrinologist had difficulty accepting that I could be an insulin-dependent autoimmune diabetic because I was not a child when I was first diagnosed.
- 3 months ago
  
  kenneth brooks likes your comment at
  Have you ever changed diabetes healthcare providers because you did not agree on aspects of your T1D management? (E.g., disagreement about device choices, blood glucose goals, management decisions, etc.)
  The previous endocrinologist had difficulty accepting that I could be an insulin-dependent autoimmune diabetic because I was not a child when I was first diagnosed.
- 3 months ago
  
  TEH likes your comment at
  Have you ever changed diabetes healthcare providers because you did not agree on aspects of your T1D management? (E.g., disagreement about device choices, blood glucose goals, management decisions, etc.)
  The previous endocrinologist had difficulty accepting that I could be an insulin-dependent autoimmune diabetic because I was not a child when I was first diagnosed.
- 4 months, 1 week ago
  
  ConnieT1D62 likes your comment at
  Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
  Dyspareunia polyneuropathy
- 6 months, 1 week ago
  
  Kris Sykes-David likes your comment at
  If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
  I wish, instead of worrying about testing family members who have yet to develop diabetes, that doctors were more likely to test for autoimmune antibodies in the adults they assume must be T2. 40 percent misdiagnosed is unacceptable.
- 6 months, 1 week ago
  
  cynthia jaworski likes your comment at
  If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
  I wish, instead of worrying about testing family members who have yet to develop diabetes, that doctors were more likely to test for autoimmune antibodies in the adults they assume must be T2. 40 percent misdiagnosed is unacceptable.
- 6 months, 1 week ago
  
  Janis Senungetuk likes your comment at
  If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
  I wish, instead of worrying about testing family members who have yet to develop diabetes, that doctors were more likely to test for autoimmune antibodies in the adults they assume must be T2. 40 percent misdiagnosed is unacceptable.
- 6 months, 1 week ago
  
  Jneticdiabetic likes your comment at
  If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
  I wish, instead of worrying about testing family members who have yet to develop diabetes, that doctors were more likely to test for autoimmune antibodies in the adults they assume must be T2. 40 percent misdiagnosed is unacceptable.
- 6 months, 1 week ago
  
  Lauren Carey likes your comment at
  If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
  I wish, instead of worrying about testing family members who have yet to develop diabetes, that doctors were more likely to test for autoimmune antibodies in the adults they assume must be T2. 40 percent misdiagnosed is unacceptable.
- 6 months, 1 week ago
  
  Karen Newe likes your comment at
  If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
  I wish, instead of worrying about testing family members who have yet to develop diabetes, that doctors were more likely to test for autoimmune antibodies in the adults they assume must be T2. 40 percent misdiagnosed is unacceptable.
- 6 months, 1 week ago
  
  Jeff Marvel likes your comment at
  If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
  I wish, instead of worrying about testing family members who have yet to develop diabetes, that doctors were more likely to test for autoimmune antibodies in the adults they assume must be T2. 40 percent misdiagnosed is unacceptable.
- 7 months ago
  
  pru barry likes your comment at
  Recent advancements in insulin pens have led to the availability of “smart” insulin pens, pen caps, and other attachments with higher tech features compared to standard insulin pens. Do you currently use any of the following smart insulin pens/caps, or smart attachments?
  I put the needle caps into a French yogurt jar and write the dose in my paper logbook. To determine whether I took the dose, I count the caps.
- 7 months ago
  
  jo likes your comment at
  Recent advancements in insulin pens have led to the availability of “smart” insulin pens, pen caps, and other attachments with higher tech features compared to standard insulin pens. Do you currently use any of the following smart insulin pens/caps, or smart attachments?
  I put the needle caps into a French yogurt jar and write the dose in my paper logbook. To determine whether I took the dose, I count the caps.
- 7 months ago
  
  William Bennett likes your comment at
  Which of the following best describes your connection to the diabetes community? Select all that apply!
  I ticked both T1 and LADA because LADA is a form of T1 (definitely not T2)
- 7 months ago
  
  AnitaS likes your comment at
  Which of the following best describes your connection to the diabetes community? Select all that apply!
  I ticked both T1 and LADA because LADA is a form of T1 (definitely not T2)
- 7 months ago
  
  Brett Jorgensen likes your comment at
  Which of the following best describes your connection to the diabetes community? Select all that apply!
  I ticked both T1 and LADA because LADA is a form of T1 (definitely not T2)
- 7 months, 4 weeks ago
  
  Vicki Breckenridge likes your comment at
  Health care providers may prescribe type 2 diabetes medications that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider currently prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply.
  Every few years I have to ask that my medical records say that I am T1/LADA because some fool doctor has changed it to T2 based on my not being a child. The fight for continued access to insulin and CGM is ongoing.
- 7 months, 4 weeks ago
  
  jo likes your comment at
  Health care providers may prescribe type 2 diabetes medications that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider currently prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply.
  Every few years I have to ask that my medical records say that I am T1/LADA because some fool doctor has changed it to T2 based on my not being a child. The fight for continued access to insulin and CGM is ongoing.
- 7 months, 4 weeks ago
  
  KarenM6 likes your comment at
  Health care providers may prescribe type 2 diabetes medications that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider currently prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply.
  Every few years I have to ask that my medical records say that I am T1/LADA because some fool doctor has changed it to T2 based on my not being a child. The fight for continued access to insulin and CGM is ongoing.
- 8 months, 1 week ago
  
  T1D4LongTime has commented in the same post you commented in :
  If you use a CGM, how many times in the past month have you had to change your sensor more than 24 hours before its session expired?
  My G6s always last 10 days. Only if I ripped the sensor off by accident, do I change it early
- 8 months, 1 week ago
  
  Randell Cole has commented in the same post you commented in :
  Are there certain times of the day during which you consistently need more insulin than your average amount of insulin? Please select all the timeframes during which you routinely need more insulin to avoid high blood glucose levels.
  Not that I can tell
- 8 months, 1 week ago
  
  Susan Brinkhaus has commented in the same post you commented in :
  When you (or your child) were diagnosed with T1D, for how long were you in the hospital?
  Diagnosed at a Dr visit. No hospitalizations
- 8 months, 1 week ago
  
  Lori Smith has commented in the same post you commented in :
  What have you learned about life with T1D this year?
  It's still hard. Yes you have to watch everything you eat, drink and how your stress levels are. Stress can definitely affect your Blood Sugars. You can have a Normal life and do whatever you want to do. Hopefully, there will be a Cure
- 8 months, 1 week ago
  
  Lori Smith has commented in the same post you commented in :
  Did you have any diabetes-related achievements or milestones in 2022? Share what you’re proud of in the comments!
  I have been losing more weight and trying to exercise more
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