Tb-well – T1D Exchange

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- 2 months ago
  
  Lawrence S. likes your comment at
  Diabetes-related stigma can range from one-off negative and misinformed comments to more pervasive experiences that lead people to feel they need to hide their T1D. In what situations have you experienced diabetes stigma? Select all options that apply to you.
  For diabetes stigma, I’ve been diabetic for 33 years. I’ve heard whispers I am a drug user, I’ve heard resteraunt staff make comments, I’ve had bosses, friends etc make comments. We have to educate people on what we are and what we do. You will notice no tv shows actively show diabetics being diabetics. There is no told show called my diabetic life. We have to educate others.
- 4 months, 2 weeks ago
  
  Wanacure likes your comment at
  Have you ever used inhaled insulin?
  No, the initial study showed cancel in 95% of participants who had ever smoked. I smoked over 20 years ago, but it isn’t worth the chance of getting cancer.
- 8 months ago
  
  Ramaswamy K. has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  I am a type 1 diabetic for about 40 years. I follow intensive insulin therapy. I have noted that that weather conditions affect the insulin intake quite drastically. Has there been any research findings on this?
- 8 months ago
  
  Lori Smith has commented in the same post you commented in :
  What have you learned about life with T1D this year?
  It's still hard. Yes you have to watch everything you eat, drink and how your stress levels are. Stress can definitely affect your Blood Sugars. You can have a Normal life and do whatever you want to do. Hopefully, there will be a Cure
- 8 months ago
  
  Lori Smith has commented in the same post you commented in :
  Did you add, remove, or change T1D devices in 2022? Select all that apply!
  In 2022, I was in the hospital 3 times, in which they took my pump away and had to wait till i got it back. Have it now and am Happy
- 8 months ago
  
  PamK has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Why is a cure so difficult to find?
- 8 months ago
  
  Randy Campbell has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  What are the causes of increases in blood sugar levels that are not connected to food or activity. My blood sugar levels will just increase while I'm sitting & If I don't catch it, it will go into the 200s. Very frustrating
- 8 months, 1 week ago
  
  KarenM6 has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Hi Don - I didn't find an HCT number that Jneticdiabetic mentioned on the UVA school of medicine site. But, I did see an HSR# of 220300. Then I went to "clinicaltrials.gov" (thanks to Jneticdiabetic!!) and searched. This website does list the study you are looking for with the 220300 being an NCT# (not HSR as listed on the "med.virginia.edu" website.) In my opinion and if it were me, I would think it is legit. But, that is me. I hope that helps!
- 8 months, 1 week ago
  
  Jneticdiabetic has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Hi Don. All clinical trials in the US need to be registered at clinical trials.gov and are assigned an NCT number. You can search that website using key words, study site, etc to confirm legitimacy. The website will provide an overview of the study. If you are interested in possible participating in the study, you will be asked to sign a detailed consent form that spells out the details so you can make an informed choice if you want to proceed. Hope this helps! 😊
- 8 months, 1 week ago
  
  Molly Jones has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Autoimmune conditions can be prevalent but variant in families. No one else has type 1 diabetes in mine, but many others: Addisons, Lupus, MS, we all share thyroid conditions. Would there be a way to genetically test and prevent this from happening at birth?
- 8 months, 1 week ago
  
  Don (Lucky) Copps has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Is the University of Virginia (UVA) Study Title: Adaptive Behavioral Control (ABC) in a Closed-Loop System: A Randomized Crossover Clinical Trial legitimate? I was approached today via email about a 6 month clinical study. The person I spoke with indicated I would receive 6 months of Dexcom CGM Transmitters and sensors. When I asked why I had to use those supplied by UVA her answer was "it is a controlled study." It sounds legitimate, but I'm a little unsure? Does the name Principal Investigator: Sue Brown, MD ring a bell with anyone? There is a payment to participants of $400/6 month study with partial payment if I drop out during the study. UVA will download an app onto my phone allowing UVA's WIP application to download my Dexcom readings and suggest tweaks to my basal and bolus settings. My readings will be reviewed with suggested adjustments every 14 days. This is all in the name of tighter control. Can anyone verify this study?
- 8 months, 1 week ago
  
  KarenM6 has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  I agree with you GiGi. (And, I'm sorry you spent so long taking a medication you didn't need.) We know that studies can be problematic if there isn't a variety of people involved, but how to fix that is a huge question. I tried to sign up for some studies a long time ago but was turned away because of my diabetes. So, whatever study it was had no data for diabetics. And, each of us is SO different in SO many ways! It's annoying to be placed in an actuarial table and made to conform to something that doesn't fit!
- 8 months, 1 week ago
  
  KarenM6 has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  How do scientists choose what problems/questions to study?
- 8 months, 1 week ago
  
  lis be has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  if you cure type 1, how will big pharma top executives pay for their luxury sports cars and condos?
- 8 months, 1 week ago
  
  lis be has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  #3
- 8 months, 1 week ago
  
  Wanacure has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Last I heard about beta cell transplants was that they last about three years, and then the same auto-immune problem kicks in, and it’s time to consider whether you can afford another transplant operation. Why not use CRISPR gene editing to solve the auto-immune problem? Is any research being done for T1Ds in this area?
- 8 months, 1 week ago
  
  sara92 has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Do you think that stem cell transplants (becoming new islet cells) will cure T1D in the next 25 years?
- 8 months, 1 week ago
  
  Wanacure has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  People exposed to radiation from nuclear power plant failures and from nuclear bomb tests and nuclear weapons frequently cite high rates of cancer and diabetes.
- 8 months, 1 week ago
  
  Wanacure likes your comment at
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  If we are using crispr to modify cells for implantation in a bag why can’t we code them as liver cells and implant them in the liver as the recipients cells instead of them needing a bag to live in?
- 8 months, 1 week ago
  
  Coy Kouba has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Do you think we'll ever get to a fully automated, closed-loop glucose delivery and CGM system? Is an artifical pancrease something that we could really see within the next 25 years?
- 8 months, 1 week ago
  
  Kristen Clifford has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Are we any closer to making pancreas transplants not only a regular treatment, but an affordable one?
- 8 months, 1 week ago
  
  Mike McMullen has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Is there research to do that could minimize mood swings due to low blood sugars?
- 8 months, 1 week ago
  
  sweetcharlie has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Yes. that happened to me for sure!!
- 8 months, 1 week ago
  
  sweetcharlie has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  To Irine, Me also !!
- 8 months, 1 week ago
  
  sweetcharlie has commented in the same post you commented in :
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  I have been useing old school methods for 70 years without any major D problems... why ???... I am 90 years OLD.
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