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- 9 minutes ago
  
  Wanacure likes your comment at
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
- 10 minutes ago
  
  Wanacure likes your comment at
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
- 1 hour, 25 minutes ago
  
  Ahh Life likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
- 3 hours, 16 minutes ago
  
  ConnieT1D62 likes your comment at
  In your own words, how would you describe the feeling of a severe low?
  Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
- 3 hours, 22 minutes ago
  
  Modee likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
- 3 hours, 22 minutes ago
  
  Modee likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
- 3 hours, 24 minutes ago
  
  Modee likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
- 3 hours, 25 minutes ago
  
  Modee likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
- 3 hours, 34 minutes ago
  
  Samantha Robinson likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
- 3 hours, 39 minutes ago
  
  beth nelson likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
- 3 hours, 41 minutes ago
  
  beth nelson likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
- 3 hours, 42 minutes ago
  
  beth nelson likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
- 3 hours, 59 minutes ago
  
  Jeff Marvel likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
- 3 hours, 59 minutes ago
  
  Jeff Marvel likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
- 3 hours, 59 minutes ago
  
  Jeff Marvel likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
- 4 hours ago
  
  Jeff Marvel likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
- 4 hours ago
  
  Jeff Marvel likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
- 4 hours ago
  
  Jeff Marvel likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
- 4 hours ago
  
  Jeff Marvel likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
- 4 hours, 19 minutes ago
  
  William Bennett likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ‘delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
- 4 hours, 19 minutes ago
  
  pru barry likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
- 4 hours, 21 minutes ago
  
  pru barry likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
- 4 hours, 52 minutes ago
  
  Bill Williams likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
- 5 hours, 5 minutes ago
  
  Janis Senungetuk likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
- 5 hours, 14 minutes ago
  
  Richard Wiener likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I said 5 to 6 hours, with maybe 20min. of that time ordering G6 sensors and tSlim supplies. The remaining time was finding Novolog I could afford.
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Well, sure, we do want people to ask questions and try to learn more about type 1 diabetes. The problem…

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It’s a new year! When you live with T1D, setting realistic goals is important — just remember, every big goal…

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Research & Studies

Our Top Research Highlights of 2022

Sarah Howard, 1 month ago 0 4 min read

2022 has been an amazing year for progress and growth for the T1D Exchange team. In the past year, the…

Questions of the Day

A Big Holiday Bolus This Season

Samantha Robinson, 1 month ago 1 3 min read

Happy Holiday’s from your friends at T1D Exchange! The holiday season can be overwhelming with type 1 diabetes (T1D). There…

Research & Studies

Our Research: Young People with T1D + Other Conditions Face Higher Risk of Severe Covid-19

Ginger Vieira, 1 month ago 0 2 min read

Our research — recently highlighted by the American Diabetes Association and Healio — continues to demonstrate that children and young…

Our team

Our Published Quality Improvement Research of 2022: Changing T1D Healthcare

Ginger Vieira, 1 month ago 0 9 min read

The T1D Exchange Quality Improvement Collaborative (T1DX-QI) published 18 manuscripts during 2022. This variety of robust and deeply impactful work…

Mental Health

Dealing with Grief and T1D Around the Holidays

Caitlin Kelly, 2 months ago 1 6 min read

The holiday season is supposed to be filled with a lot of great feelings. Warmth and coziness from a hot…

Open

For people with type 1 diabetes, medications like Ozempic and Trulicity can actually help compensate for the MANY hormones your body doesn’t produce beyond just insulin.

Learn more: LINK IN BIO.

#type1diabetes #t1d #ozempic

Open

Check out this months Top Question of the Day Highlights. Join the Online Community to answer our DAILY Question of the Day! 😊

🔗IN BIO TO JOIN & READ THE FULL BREAKDOWN

#Type1Diabetes #T1D #Glucagon #Lancet

Open

Parents, siblings, and adult children of people with T1D: We need to hear from you!

Researchers are interviewing T1D supporters to better understand the experiences and burdens that loved ones have when it comes to supporting an adult with T1D.

The virtual interview will last about one hour, and participants will receive an electronic gift card for $100 once the interview is completed.

See if you or your family members are eligible: LINK IN BIO!

#t1d #type1diabetes

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Our Experience: Taking GLP-1 Medications Like Ozempic & Trulicity with Type 1 Diabetes

Do You Ever Change Your Lancet?

Tidepool Loop FDA Clearance: Chatting with CEO Howard Look

Mark Cuban’s Cost Plus Drugs Tests New Insulin Program

Articles

Connected Insulin Delivery Devices

Automated Insulin Delivery Systems

7 Things People Say About Type 1 Diabetes That Drive Us Crazy

Your T1D Goals for 2023!

The Six Dysfunctional Hormones of Type 1 Diabetes

What We Learned from the Online Community in December

5 Habits That Help Me Thrive with Type 1 Diabetes

Our Top Research Highlights of 2022

A Big Holiday Bolus This Season

Our Research: Young People with T1D + Other Conditions Face Higher Risk of Severe Covid-19

Our Published Quality Improvement Research of 2022: Changing T1D Healthcare

Dealing with Grief and T1D Around the Holidays

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Our Experience: Taking GLP-1 Medications Like Ozempic & Trulicity with Type 1 Diabetes

Do You Ever Change Your Lancet?

Tidepool Loop FDA Clearance: Chatting with CEO Howard Look

Mark Cuban’s Cost Plus Drugs Tests New Insulin Program

Articles

Connected Insulin Delivery Devices

Automated Insulin Delivery Systems

7 Things People Say About Type 1 Diabetes That Drive Us Crazy

Your T1D Goals for 2023!

The Six Dysfunctional Hormones of Type 1 Diabetes

What We Learned from the Online Community in December

5 Habits That Help Me Thrive with Type 1 Diabetes

Our Top Research Highlights of 2022

A Big Holiday Bolus This Season

Our Research: Young People with T1D + Other Conditions Face Higher Risk of Severe Covid-19

Our Published Quality Improvement Research of 2022: Changing T1D Healthcare

Dealing with Grief and T1D Around the Holidays

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