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Conduct Custom Research

T1D Exchange can design, populate, and facilitate your research needs! We work with industry, academia, advocacy organizations, and other researchers to design, deploy, analyze, and report on custom research projects to help them meet their goals.

Our diverse team includes experienced research scientists, data scientists, and subject matter experts with advanced degrees, including seven PhDs, five MPHs, and two MDs. Nearly every member of our team either lives with T1D or has an immediate family member living with T1D, offering additional perspectives, expertise, and passion to our work.

We gather and analyze data to design and execute custom research projects, including:

  • Real-world evidence
  • Outcomes research
  • Market research

Our flagship initiatives give us access to:

  • EMR data on over 85,000 people with T1D
  • Longitudinal PROs on over 18,000 people with T1D

We can integrate external data sources, including:

  • CGM and device data
  • Claims data
  • EMR data
  • PRO data
  • Lab data

With our research partners, we carry out a wide variety of T1D research studies, including:

  • Interviews and focus groups
  • Online surveys
  • Virtual studies
  • Quantitative Analysis
  • Qualitative Studies and Analysis
  • Performance Improvement Analysis
  • Implementation Project Analysis

T1D Exchange has examined a range of important topics using our unique combination of patient and provider relationships and associated qualitative and quantitative data.

Examples of our custom research

We’ve worked with a wide range of academic and industry partners to conduct impactful research.

Tell us how T1D Exchange can support your custom research work!

Our network: how we populate custom research

Our ability to reach an extensive network of people affected by diabetes includes:

  • 18,000+ participants in our Registry
  • 50,000 in our Online Community
  • 100,000+ in our Quality Improvement Collaborative (T1DX-QI)

Research with our Registry: The Registry includes 18,000+ participants with or affected by T1D. The Registry’s long-term goals include ongoing longitudinal data collection and analysis, and introducing ancillary and external study opportunities to specific subgroups within our extensive cohort.

We can promote studies to a specific subgroup or to the whole Registry to assist in recruitment. Researchers can submit requests for certain datasets, shared as aggregate and de-identified, as well as the ability for studies to be displayed and completed through our platform.

Research with our Online Community: Reaching over 50,000 people affected by T1D, the Online Community is invited to answer our Question of the Day (QOTD) — survey questions that look at one aspect of life with T1D per day and are not part of an official research study.

By completing these surveys, members of the T1D Exchange Online Community have shown researchers their experiences, their preferences for future innovations, and their feedback on the current tools available to them.

Research with our Quality Improvement Collaborative: Clinics in our T1DX-QI network develop and disseminate best practices in T1D care. The T1DX-QI currently brings together 54 clinics across the United States that treat over 85,000 people with type 1 diabetes and 20,000 with type 2 diabetes.

The T1DX-QI has seen significant success in improving patient care and health equity. Learn more about the T1DX-QI here or contact us at

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