In order to identity the most effective ways to improve outcomes and quality of life for people with type 1 diabetes, T1D Exchange has built extensive partnerships in the research community via our Quality Improvement Collaborative (QIC) and our T1D Exchange Registry cohort of individuals with type 1 diabetes.
These research partnerships have led to increased insurance coverage for blood glucose meter strips, changes in American Diabetes Association guidelines for pediatric A1c goals, FDA expansion of Dexcom CGM labeling to include finger stick replacements, and Medicare coverage of CGM devices.
Partner with the T1D Exchange Registry
The Registry’s long-term goals include ongoing longitudinal data collection and analysis, and introducing ancillary and external study opportunities to specific subgroups within our extensive cohort.
By partnering with the T1D Exchange Registry, we can promote studies to a specific subgroup or to the whole Registry to assist in recruitment. In the future, we will have the ability for researchers to submit requests for certain datasets, shared as aggregate and de-identified, as well as the ability for studies to be displayed and completed through our platform.
If you are interested in historical data from the T1D Exchange Registry or would like more information on datasets currently available, please contact email@example.com or visit https://public.jaeb.org/t1dx/stdy.
Become a member of the Quality Improvement Collaborative
Clinics in our QIC network develop and disseminate best practices in T1D care. QIC currently brings together 19 clinics across the United States that treat 29,000 (needs update) type 1 diabetes individuals.
QIC has seen significant success in improving patient care across member clinics, including a 15% increase in the acceptance and use of continuous glucose monitoring, and a 64% increase in depression screening.
Help drive research that matters
The T1D Exchange Registry is striving to become the most comprehensive data set of individuals with type 1 diabetes in the United States. Learn more today about how you can help.