Robin Melen – T1D Exchange

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- 3 months, 2 weeks ago
  
  Ahh Life likes your comment at
  If you use an insulin pump, how often do you experience a “bad site” after putting on a new pump or infusion site?
  Used to be more common for me but once I gained a little weight, it's much less so LOL :)
- 5 months, 1 week ago
  
  Marty likes your comment at
  Happy World Diabetes Day – Share a T1D-related accomplishment you have experienced!
  Two+ years in, and I figured out how to NOT be woken up in the middle of the night with highs and/or lows! What a relief!
- 6 months ago
  
  Andrea Hultman likes your comment at
  For CGM users: If you were to spend 4 hours away from home but still in your local area (e.g., an afternoon of running errands around town, or going out for dinner and a movie), would you bring a backup glucose meter with you?
  I answered No, but realized that i do always have a meter with me. The whole kit (and kaboodle) comes with me everywhere, no matter how long I'm away from home.
- 6 months, 1 week ago
  
  KCR likes your comment at
  Do you currently have a kit containing the diabetes supplies you would need in case of a natural disaster or emergency?
  Same here - supplies are in a travel bag (3 of everything). Just have to grab insulin and a smaller cooler and I'm outta there!
- 6 months, 2 weeks ago
  
  Joan Benedetto likes your comment at
  For CGM users: If you were to spend 4 hours away from home but still in your local area (e.g., an afternoon of running errands around town, or going out for dinner and a movie), would you bring a backup glucose meter with you?
  I answered No, but realized that i do always have a meter with me. The whole kit (and kaboodle) comes with me everywhere, no matter how long I'm away from home.
- 6 months, 3 weeks ago
  
  Lawrence S. likes your comment at
  In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
  I didn't pull over, but I definitely downed a couple of orange sugar pills at the next light!
- 6 months, 3 weeks ago
  
  Anneyun likes your comment at
  In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
  I didn't pull over, but I definitely downed a couple of orange sugar pills at the next light!
- 7 months, 2 weeks ago
  
  KCR likes your comment at
  Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?
  Totally agree! Those days are tough, but we hang in, don't we?
- 7 months, 2 weeks ago
  
  Kathy Hanavan likes your comment at
  Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?
  Totally agree! Those days are tough, but we hang in, don't we?
- 8 months ago
  
  TEH likes your comment at
  If you use an insulin pump or CGM, has anyone ever mistaken your device(s) for any of the following? Select all that apply!
  Just a few people have asked, one actually knew what it was - she had one too! Mostly I keep it hidden but I think people look scared when they do see it - like I'm a robot! LOL
- 8 months ago
  
  ELYSSE HELLER likes your comment at
  CGM users: The last time you had a sensor fail or fall off before its session was supposed to be over, how early did you have to change your sensor?
  Having that trouble as we speak! This sensor is giving me such a hard time - not due to change it until Monday, but by last Wednesday it was telling me "no readings, wait three hours" at least three or four times a day. It's always come back, but it's very annoying. I refuse to get rid of it so early! I changed the transmitter at the same time, so hoping it's not the transmitter.
- 8 months ago
  
  Robin Melen likes your comment at
  CGM users: The last time you had a sensor fail or fall off before its session was supposed to be over, how early did you have to change your sensor?
  Having that trouble as we speak! This sensor is giving me such a hard time - not due to change it until Monday, but by last Wednesday it was telling me "no readings, wait three hours" at least three or four times a day. It's always come back, but it's very annoying. I refuse to get rid of it so early! I changed the transmitter at the same time, so hoping it's not the transmitter.
- 8 months ago
  
  Lawrence S. likes your comment at
  CGM users: The last time you had a sensor fail or fall off before its session was supposed to be over, how early did you have to change your sensor?
  Having that trouble as we speak! This sensor is giving me such a hard time - not due to change it until Monday, but by last Wednesday it was telling me "no readings, wait three hours" at least three or four times a day. It's always come back, but it's very annoying. I refuse to get rid of it so early! I changed the transmitter at the same time, so hoping it's not the transmitter.
- 9 months ago
  
  Shelly Smith likes your comment at
  Do you feel that T1D limits your travel? Select all statements that are true for you.
  For short road trips close to home, it's fine. But I tend to worry about longer trips and esp flying. Tomorrow, we're heading to Alaska for 9 days - some not-so-populous areas that are not likely to have fridges in the rooms. What happens if something goes kerflooey with my Dexcom or my pump? How much extra insulin do I bring? How do I keep it cool until I open it? How many site changes do I bring? So much to worry about!
- 9 months ago
  
  Carol Evans likes your comment at
  Do you feel that T1D limits your travel? Select all statements that are true for you.
  For short road trips close to home, it's fine. But I tend to worry about longer trips and esp flying. Tomorrow, we're heading to Alaska for 9 days - some not-so-populous areas that are not likely to have fridges in the rooms. What happens if something goes kerflooey with my Dexcom or my pump? How much extra insulin do I bring? How do I keep it cool until I open it? How many site changes do I bring? So much to worry about!
- 10 months ago
  
  sweetcharlie likes your comment at
  Although it may vary based on different circumstances for you, on a typical night, in which of these blood glucose level ranges would you most prefer to be before going to sleep?
  I aim for a high number before bed so that I don't bottom out before 5 or 6 am, which invariably happens. And since that's generally wake-up time, I'm not losing sleep! So if I'm at, say 160 before bed, I might have a PB cracker to bring myself up a little.
- 10 months ago
  
  KarenM6 likes your comment at
  Although it may vary based on different circumstances for you, on a typical night, in which of these blood glucose level ranges would you most prefer to be before going to sleep?
  I aim for a high number before bed so that I don't bottom out before 5 or 6 am, which invariably happens. And since that's generally wake-up time, I'm not losing sleep! So if I'm at, say 160 before bed, I might have a PB cracker to bring myself up a little.
- 10 months, 3 weeks ago
  
  Dennis Dacey likes your comment at
  If you use an insulin pump, do you currently have unexpired backup long-acting insulin at home?
  I do have long-acting in my fridge, but wonder what happens when it expires... do I order more just in case?? Is it worth it?
- 10 months, 3 weeks ago
  
  Jeff Marvel likes your comment at
  If you use an insulin pump, do you currently have unexpired backup long-acting insulin at home?
  I do have long-acting in my fridge, but wonder what happens when it expires... do I order more just in case?? Is it worth it?
- 11 months ago
  
  jo likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  First time two years ago when I was diagnosed with T1D! Was in DKA and had no idea why I was so sick. Six days! Second time just overnight when I couldn't get my sugars down (I was still in that early learning phase). And at least one stop of a couple of hours at the ER - same reason - high sugars I couldn't figure out. Luckily I seem to have all figured out now! Whew!
- 11 months, 4 weeks ago
  
  Becky Hertz likes your comment at
  How often do you typically change your insulin dosage settings outside of T1D-related appointments (e.g. basal rates, insulin-to-carb ratios, etc.)?
  Only once a month, on weeks that I have chemo - it messes up my sugars so I need to increase my basals for about 4 or 5 days. Then I go back to normal.
- 1 year, 1 month ago
  
  sweetcharlie likes your comment at
  Which of these symptoms of hypoglycemia do you frequently experience during a low? Please select all that apply.
  I cannot work with numbers no matter what! LOL
- 1 year, 1 month ago
  
  Janis Senungetuk likes your comment at
  Which of these symptoms of hypoglycemia do you frequently experience during a low? Please select all that apply.
  I cannot work with numbers no matter what! LOL
- 1 year, 2 months ago
  
  Samantha Hunter has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  What's interesting is that I've begun taking Adderall for ADHD, and my doctor and I are still trying to find the right dosage. Lately I've found that 20mg XR is just too much for me, and describing how uncomfortable and out of it I felt, my ex-cocaine user boyfriend said that's exactly what coming down from speeding feels like. But what's interesting is that it also feels exactly like a low blood sugar. I kept checking my CGM but my blood sugars were all fine, but I still felt shaky and spacey. So apparently a low blood sugar has the same feeling as coming down off of speed/drugs.
- 1 year, 2 months ago
  
  KMcKeon has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  I've never had a very severe low -- only been T1D for 7 months. But if I am dropping very fast, I usually get this weird tunnel vision where I feel like everything is converging and I feel unsteady. Then the shaking, clammy feeling starts. Usually takes 25-30 mins to feel normal again, even when my blood sugar returns to normal.
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Robin Melen

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Boston, MA 02110
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