Mary Ann Sayers – T1D Exchange

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- 1 year, 10 months ago
  
  sweetcharlie likes your comment at
  For how many years have you been going to the health care practice where you currently receive your T1D care?
  My mom recognized something wasn't right because I was constantly thirsty. I was only 7years old when DX.
- 1 year, 10 months ago
  
  Bruce Schnitzler likes your comment at
  For how many years have you been going to the health care practice where you currently receive your T1D care?
  My mom recognized something wasn't right because I was constantly thirsty. I was only 7years old when DX.
- 1 year, 10 months ago
  
  mojoseje likes your comment at
  For how many years have you been going to the health care practice where you currently receive your T1D care?
  My mom recognized something wasn't right because I was constantly thirsty. I was only 7years old when DX.
- 1 year, 10 months ago
  
  pru barry likes your comment at
  For insulin pump users: On average, how often do you take insulin using a different method other than through your pump? (E.g., giving an injection, using inhaled insulin, etc.)
  ONLY when I haven't gotten my CGM!!! (Because my pre-approval was delayed 10 days!!!) I tested bgs 12times daily to make up partially from the loss of not having a CGM!!!)
- 1 year, 10 months ago
  
  jo likes your comment at
  For insulin pump users: On average, how often do you take insulin using a different method other than through your pump? (E.g., giving an injection, using inhaled insulin, etc.)
  ONLY when I haven't gotten my CGM!!! (Because my pre-approval was delayed 10 days!!!) I tested bgs 12times daily to make up partially from the loss of not having a CGM!!!)
- 2 years ago
  
  ELYSSE HELLER likes your comment at
  If you have T1D, have you also been clinically diagnosed with an anxiety disorder?
  I've been dx with depression, but I'm not sure if it includes any anxiety. T1D needs constant attention!
- 2 years, 1 month ago
  
  Janis Senungetuk likes your comment at
  If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
  THEY are not interested in being tested, but I, being a T1D, would like them to be tested.
- 2 years, 1 month ago
  
  MT likes your comment at
  If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
  THEY are not interested in being tested, but I, being a T1D, would like them to be tested.
- 2 years, 2 months ago
  
  ConnieT1D62 likes your comment at
  What advice would you give to a caregiver of a teenager with T1D?
  Remember your teen years and the influx of ideas that you contended with AND ADD T1D TO THE MIX! Think first she/he is a teenager and then add the T1D. Remembering to grow into adulthood WITH T1D takes a lot of courage. Praise him/her for being up to the challenge!
- 2 years, 3 months ago
  
  Samantha Hunter has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  What's interesting is that I've begun taking Adderall for ADHD, and my doctor and I are still trying to find the right dosage. Lately I've found that 20mg XR is just too much for me, and describing how uncomfortable and out of it I felt, my ex-cocaine user boyfriend said that's exactly what coming down from speeding feels like. But what's interesting is that it also feels exactly like a low blood sugar. I kept checking my CGM but my blood sugars were all fine, but I still felt shaky and spacey. So apparently a low blood sugar has the same feeling as coming down off of speed/drugs.
- 2 years, 3 months ago
  
  KMcKeon has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  I've never had a very severe low -- only been T1D for 7 months. But if I am dropping very fast, I usually get this weird tunnel vision where I feel like everything is converging and I feel unsteady. Then the shaking, clammy feeling starts. Usually takes 25-30 mins to feel normal again, even when my blood sugar returns to normal.
- 2 years, 3 months ago
  
  Eva has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  I classify a severe low as one where I become completely stupid - it affects my cognition first and then my peripherals - like shaking, and fast heart beat etc...
- 2 years, 3 months ago
  
  Sheri Marcus has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  I start getting a bit dizzy, hot, shaky, confused and very hungry and thirsty.
- 2 years, 3 months ago
  
  Eric Johnson has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  I feel hollow and have not ability to concentrate
- 2 years, 3 months ago
  
  Kelli Christiansen has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  I get confused. My thoughts are racing. Making no sense. Unbalanced and uncontrollable movements. Sweaty and cold.
- 2 years, 3 months ago
  
  Kelli Christiansen has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  My thoughts are everywhere, non stopping, but making no sense. Confused. Unbalanced, if I try to walk. Cold and sweaty. Jerky movements and involuntary movements sometimes.
- 2 years, 3 months ago
  
  Donna Condi has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  Before Dexcom it was in the middle of the night and my husband woke me up because he said I felt very clammy to him. I was sweating profusely. I could barely think to get out the words to him to go get my bottle of juice from the fridge. I asked him to get my meter so I could check my bs. And it was no surprise that the number 21 came up.
- 2 years, 3 months ago
  
  Don (Lucky) Copps has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  This question begs the another question "What is the fastest foods to reverse a low blood sugar?" T1D Exchange should blast this information to all T1D's. Also T1DS, don't hide behind the statement "must consult with your CDE. I use hard candy, orange juice and M&M's when at home. I sometimes refer to an app on my phone called My GI.
- 2 years, 3 months ago
  
  Don (Lucky) Copps has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  Try telling these well said horror stories to a non diabetic. Most don't get it. I identify with all your stories and I've lived through most myself. Another super scary one was being given beta-blockers after a heart stent in 2008. Come to find out beta-blockers also block the experience of an insulin reaction. So, after falling once and on a 2nd occasion just checking my bs to find it was 29!$#%& I began to read the label of my beta-blocker. Clear as a bell deep into the 15+ page description "can cause blocking of hypoglycemic episodes". I fired the cardiologist on the spot! Lesson learned, now I read everything about all drugs, supplements and food before I eat it.
- 2 years, 3 months ago
  
  Don (Lucky) Copps has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  Awful. It is scary as I know where I'm heading. The most nervous is behind the wheel of a car. Have also had this on golf courses & tennis courts. I carry hard candy with me in the driver's door/golf bag/tennis bag but have on occasion forgot to refill. Stopping at the nearest gas station and eating whatever they have is nerve racking. I've eaten the food while standing in line to pay on more than one occasion. It has gone away with the alarms and monitoring devices on my phone and watch but prior to those technologies it was difficult to predict w/o bs checks every 1/2 hour. Thank God those days are behind us. But, they could easily return.
- 2 years, 3 months ago
  
  Ardnfast has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  Debilitating.
- 2 years, 3 months ago
  
  Twinniepoo74 has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  I feel very sleepy and I start shaking from head to toe. Plus I am very moody
- 2 years, 3 months ago
  
  AnitaS has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  I have had that happen too. One time I felt slightly shaky so I tested my blood on a glucose meter (before I had a CGM) just to make sure if my sugar was low. Yep, in the 20's.
- 2 years, 3 months ago
  
  KarenM6 has commented in the same post you commented in :
  If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.
  Yes, indeed, sweetcharlie!! Thank you for your posts! :D
- 2 years, 3 months ago
  
  vbaum1956 has commented in the same post you commented in :
  In your own words, how would you describe the feeling of a severe low?
  Very good description.
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Mary Ann Sayers

101 Federal Street, Suite 440
Boston, MA 02110
Phone: 617-892-6100
Email: admin@t1dexchange.org

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