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The T1D Exchange Registry

The T1D Exchange Registry is striving to become the most comprehensive research study of people with type 1 diabetes in the United States. If you live in the United States and have been diagnosed with type 1 diabetes, or are the parent/guardian of a minor child diagnosed with type 1 diabetes, your participation is needed!

By joining the Registry and sharing your voice, experiences, and data, you will help scientists and medical professionals expand their knowledge of type I diabetes, discover new treatments, and improve existing treatments and methods of care. The evidence collected can also impact policy and insurance coverage changes.

To enroll, just create a T1D Exchange Registry account on our mobile-friendly platform and complete a few screening questions. After confirming your eligibility, you will be asked to sign an online consent form. Once completed, participation is as simple as filling out an initial questionnaire and updating it annually. You can opt out at any point, and all information is confidential.

Once enrolled, opportunities to participate in additional studies related to type 1 diabetes will also be made available to you. Study opportunities may include answering surveys about your experiences with T1D, uploading health device data, or discussing T1D with expert researchers and medical professionals.

T1D Exchange research has led to a number of advances and improvements for people with T1D including:

  • Insurance coverage for blood glucose meter strips,
  • Changes in American Diabetes Association guidelines for pediatric A1c goals,
  • FDA expansion of Dexcom CGM labeling to include finger stick replacements,
  • Medicare coverage of CGM devices.

Be heard. Support the type 1 diabetes community. Drive research that matters.

For researchers

Interested in working with us? Medical professionals or researchers who wish to explore Registry data or conduct research with the Registry cohort can reach out to the study team at registry@t1dexchange.org.

FAQs

For more information about the Registry please the button below for our FAQs page or contact the Registry team at registry@T1DExchange.org or 617-892-6165.

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