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    • 1 hour, 26 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 12 hours, 8 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 13 hours, 35 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 13 hours, 35 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 13 hours, 35 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 15 hours, 48 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 49 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 15 hours, 49 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 16 hours, 31 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 17 hours, 54 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 52 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 17 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
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    Do you know the day and year that you received your T1D diagnosis? If you’re comfortable, share about your diagnosis in the comments!

    Home > LC Polls > Do you know the day and year that you received your T1D diagnosis? If you're comfortable, share about your diagnosis in the comments!
    Previous

    If you use a CGM, have you ever extended your sensor past its approved session duration?

    Next

    Does the health care practice you see for your diabetes care have an online portal where you can message your provider?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    127 Comments

    1. stillarobyn

      February 3, 2006

      2 years ago Log in to Reply
    2. Becky Hertz

      End of May/beginning of June 1974. For some reason I have always said June 1. Maybe that is the day but those medical records have long since been destroyed.

      2
      2 years ago Log in to Reply
    3. Danny

      1980

      2 years ago Log in to Reply
    4. jamesmpii

      Christmas morning, 2021 my doctor emailed with with the results of the blood-work which corroborated what I was already being treated for. A week earlier I had started taking insulin, based on symptoms. The actual diagnosis was perverse Christmas present.

      2
      2 years ago Log in to Reply
      1. pru barry

        ouch!

        1
        2 years ago Log in to Reply
      2. Ahh Life

        Jamesmpii — The perverse Christmas gift that keeps on giving . . .

        3
        2 years ago Log in to Reply
    5. Carrolyn Barloco

      April 1981

      2 years ago Log in to Reply
    6. Twinniepoo74

      I was diagnosed almost a year after giving birth to my twins April 12, 2000. Easter that year sucked cause I missed my babies first Easter cause I was stuck in the hospital.

      1
      2 years ago Log in to Reply
    7. pru barry

      September, 1954. Not only my link with becoming a teenager, but a double whammy! A little much at one time. Happily, I’ve learned all sorts of things, and one year short of a seventy year anniversary with the BigD, I am so accustomed to a life with diabetes, I come up at a loss when wondering how I would ever manage a cure (I mean, a life without it). I mean that seriously. If you do something long enough, it really can start to feel as if there’s hardly any effort.
      I am still committed to promoting a cure for all who don’t have diabetes baked into their bones. It truly is a time consuming endeavor, one that requires constant vigilance and understanding, and a lot of gritting of teeth. I wonder sometimes, what else I might have been able to accomplish were it not for that part of my brain being used to manage the disease.
      I try really hard not to let it get in my way, short of doing the things required to stay healthy. My kids are all nearing their 60’s. That, for me, is the real prize!

      5
      2 years ago Log in to Reply
    8. Lee Johnson

      1977, my wife then was an RN, but not a very good rn as she never recognized the symtoms!!

      1
      2 years ago Log in to Reply
    9. Phyllis Biederman

      I mark July 4th, 1966 as when I was diagnosed at age 7 years old. I remember seeing the fireworks from the Yale New Haven hospital.

      1
      2 years ago Log in to Reply
    10. Stephen Woodward

      August 16, 1970

      2 years ago Log in to Reply
    11. Jen Farley

      I know it was 1982. No online portal’s, in fact the doctor is no longer practicing. I was in school so after September? Best guess.

      1
      2 years ago Log in to Reply
    12. Jneticdiabetic

      Don’t recall the exact date, but it was a Wednesday in Dec 1995 – right before my first quarter college finals. I wasn’t spilling ketones, so my MD let me wait until the weekend to be admitted to the hospital. They must have put me in the peds ward because Santa came by to visit. Then a priest and I was like uh oh, how serious is this? Haha

      1
      2 years ago Log in to Reply
    13. Ahh Life

      Being diagnosed in an era where cave man paintings on a wall were about the best historical communications possible, it is little wonder that people hadn’t even started counting years, much less BC and AD.

      Then the English language was invented. They started keeping records. But those were usually chucked after about three years.

      Truncheons and nunchucks were the weapons of the day. Sigh! 😌

      3
      2 years ago Log in to Reply
    14. Emily Meister

      September 1964

      2 years ago Log in to Reply
    15. Lindsey Whitnell

      2/22/2022

      2 years ago Log in to Reply
    16. Dahne Rodriguez

      July 15,1973

      2 years ago Log in to Reply
    17. Kayla Overcash

      I remember it was June 2001 on a Tuesday. I went to the doctor after getting back from vacation. My family had been at Kings Dominion and I showed symptoms.

      1
      2 years ago Log in to Reply
    18. Nevin Bowman

      1977. No finger sticks in this era, and we took pork and beef insulin. Times have changed, but A1Cs have not gotten any better. I had an A1C of 6.0 in the 70s without the aid of a CGM or fingerstick tester.

      1
      2 years ago Log in to Reply
    19. Katherine Kiger

      March 3, 1980. I was ten.

      2 years ago Log in to Reply
    20. Gary Rind

      I know that I started insulin in Dec 2003 (age 43) about 10 days before Christmas. Asked my endo if he could find the exact date and he did – Dec 12! Don’t celebrate it but I like knowing.

      Rehashed the diagnosis experience and I told him that I knew I was in trouble because they had 4 medical professionals in the room and I was the only appointment all morning!

      1
      2 years ago Log in to Reply
    21. Amber Dietz

      01/13/2003- I was 10

      2 years ago Log in to Reply
    22. Edward Geary

      July 1, 1974, two weeks after my 19th birthday. I spent the 4th of July holiday in the hospital.

      2
      2 years ago Log in to Reply
      1. eherban1

        Mine was July 2, 1981…2 days after my 11th birthday and also spent the 4th of July in the hospital.

        1
        2 years ago Log in to Reply
    23. Merry Woolsey

      February 1977

      2 years ago Log in to Reply
    24. Kristen Clifford

      April 3, 2008. Eight days before my 24th birthday.

      1
      2 years ago Log in to Reply
    25. David & Kaleo of Team Nani

      I was diagnosed after a bike accident when diabetes symptoms appeared followed a hard bump on the helmet-less head in 1995 (I was 25). I went to ER to check on stitches and blood sugar was around 250. “How long have you been diabetic?” the doc asked. “I’m not,” I said
      “Yes you are.” Game over, new reality. Never a clear explanation why.

      1
      2 years ago Log in to Reply
    26. Christine Gran

      The doctor whom my son saw was sure what was wrong with my son whose primary complaints were a headache and stomachache. He suggested doing blood work which was did. The results were known the following day but no one called us due to staffing issues. We received a call two days later on a Sunday telling us it wasn’t an emergency but that we needed to take him to the childrens hospital emergency room in a city 1 1/2 hours south of us. In those three days his blood sugars rose from just over 400 to 695. He was in DKA. After that I found him another GP.

      1
      2 years ago Log in to Reply
      1. Christine Gran

        *wasn’t sure

        2 years ago Log in to Reply
    27. eherban1

      July 2, 1981

      2 years ago Log in to Reply
      1. eherban1

        Mine was July 2, 1981…2 days after my 11th birthday and also spent the 4th of July in the hospital.

        1
        2 years ago Log in to Reply
    28. Katrina Mundinger

      1 May 1990. Just under two weeks before my Senior Recital at Conservatory. Still played the recital, only had to take one incomplete for another class (sent the paper by mid-June) and technically graduated on time. 😉

      1
      2 years ago Log in to Reply
    29. KIMBERELY SMITH

      05082023

      2 years ago Log in to Reply
    30. Ruth Schwartz

      I went to the ER with Blood Glucose of 650

      But the Hospital said “We don’t treat Diabetes, gave me a very low Prescription of Metformin, and sent me home. Telling me you need to Contact a Physician who treats Diabetes.

      0
      2 years ago Log in to Reply
    31. Jian

      six months post partum, blood sugar and BP fine (had toxemia during 2nd pregnancy) but maybe 4 – 5 months later had T1D.

      1
      2 years ago Log in to Reply
      1. Jian

        1978

        2 years ago Log in to Reply
    32. Lawrence S.

      July, 1977. Don’t remember the exact day. Started on pills for several days. They did not work. Then, went straight to Regular and NPH insulin, (Beef and Pork possibly?)

      1
      2 years ago Log in to Reply
    33. Mary Thomson

      2-28-2002

      2 years ago Log in to Reply
    34. Lisa Anderson

      11/25/1969

      2 years ago Log in to Reply
      1. Lisa Anderson

        I was 13 months old.

        2 years ago Log in to Reply
    35. Gary Taylor

      February 4, 1976. It was a long weekend at the college I was attending. I saw the campus nurse on Tuesday and a doctor in town on Wednesday who gave me the official diagnosis. That weekend, when serious symptoms started, I told my friends that I thought I had diabetes. The doctor only confirmed what I suspected.

      1
      2 years ago Log in to Reply
    36. Robert Holman

      1999

      2 years ago Log in to Reply
    37. Richard Vaughn

      I was diagnosed in Sept., 1945, a few days after my 6’th birthday. My birthday is 9/10. I am using 9/15/1945 as my diagnosis date.

      3
      2 years ago Log in to Reply
    38. mojoseje

      1969. Mom died Aug 1. The ER docs thought I was psychotic with grief. Had me on a couple of antidepressants. Went into a coma Oct. 31. Diagnosed 2 days later.

      1
      2 years ago Log in to Reply
    39. Jane Cerullo

      Was diagnosed in August 2004 with LADA. Graduated from nursing school (at 54 years young) got a new pcp and my fasting BS was 139. He ordered metformin and told me I was type 2. No metabolic syndrome and weighed about 120 lbs at 5’7”. Was pretty sure he was wrong. Took doctor 2 years for correct diagnosis. I really diagnosed self after reading everything i could on the subject.

      1
      2 years ago Log in to Reply
    40. TEH

      I remember it clearly: May 15, 1991. It was almost 1 year after my mother died of pancreatitis/pneumonia. I went to the GP’s office with what felt like a bad hangover after not drinking. I had all the symptoms. I had a pretty good idea. They did a finger stick, and it peged the meter at 600+. The GP was shocked I was still standing. Told me to go to the hospital right away. I went home called my wife at work and told her, got some cloths and travel bag and THEN went to the hospital.

      I was Sequested for 5 days. They started me on regular and NPH insulin injections based on my weight and showed me how to do injections. They gradually increased the levels until my BG dropped. This started the 10 year roler coaster that was my life untill was able to go on the pump in 2001.

      This was before laptops, and cell phones. I read everything I could find in the hospital on T1d. Asked every nurse what they knew about T1d. My wife brought a medical book with info and a health magazine to read.

      My GP worked with me after my release. He didn’t beleve it was “juvenile diabetes” until he did a C peptide test that showed my islet cells were gone.

      We have certanly come a long way. I am surprised I survived.

      (Sorry for the long post but it just all poured out.)

      5
      2 years ago Log in to Reply
    41. Judith Marged

      I was first diagnosed Labor Day Weekend, 1995.

      2 years ago Log in to Reply
    42. Amanda Barras

      I was 4, barely. So, year yes. But day, no way. I can narrow to a 2 month range, that’s it.
      April-May 1988

      2 years ago Log in to Reply
    43. Melissael

      I took my son to the pediatrician because I knew he was clinically depressed and needed help. She noted his 20 lb weight loss in 6 mo so did a bunch of blood work…the rest is T1D history

      1
      2 years ago Log in to Reply
    44. Aaron ardonthorn5

      1984. Not the day, but we (my family) have always joked that it was my 5th birthday present. So it was probably a month or so before.

      1
      2 years ago Log in to Reply
    45. Meghan Larson

      I will never forget the date- April 1st, 1997. I was diagnosed on April Fool’s Day. 🙁

      2
      2 years ago Log in to Reply
    46. Shelly Smith

      I, too, was a ten year old when diagnosed. I was sitting in the hospital learning about finger sticks, taking injections, and the like while my class mates were taking their field trip! My class mates did stop in to see me because their field trip was to the same town I was hospitalized in, that was special! I still remember that sinking feeling I got when I realized that this was for life, not something I was going to get over; in a little girls mind, you went to the hospital when you were sick and stayed there until you were well again. I count myself blessed, tho, because of the pediatric endo team I was assigned; they were very, very good! It was hard to adjust to adult care because by the time I was to that stage they were more than doctors and CDE’s, they were friends.

      1
      2 years ago Log in to Reply
    47. Meryl Ortiz

      Lost a lot of weight in a short time, was thirsty all the time and urinating constantly. Classic symptoms

      1
      2 years ago Log in to Reply
    48. Maureen Helinski

      Yes, November 1983, I was an adult, just returned from taking student to Germany, suddenly couldn’t see the students in the back of the classroom. A week later lost much weight, and was so thirsty I would drink from the shower while I showered. Saw a Hopkins doctor at night at his private practice. He took blood, called me the next day and gave me insulin and an orange to practice on. I felt he saved my life. The insulin felt so good!

      1
      2 years ago Log in to Reply
    49. Yerachmiel Altman

      I was two so only know story from parents as well as pedestrian. I do have copy of Dr notes from time frame including initial insulin dose (62 years ago 11 days ago)

      3
      2 years ago Log in to Reply
    50. jenn velez

      4/3/1990

      2 years ago Log in to Reply
    51. GLORIA MILLER

      1957

      2 years ago Log in to Reply
    52. lynda meyer

      May 12, 1953

      2 years ago Log in to Reply
    53. cynthia jaworski

      The diagnosis was a process, not a single event, back in 1962. I was 10. My mother, an RN, recognized the symptoms. The GP was a guy who went “by the numbers,” and insisted that the numbers say that kids simply do not get diabetes. Through much negotiation, the GP agreed to run a urine test (if my mom agreed to accept psycho drugs and counseling for her morbid imagination).
      At the time, I had never heard of diabetes. However, I knew that my poor tired body was very very sick, and I assumed that I was dying.
      A follow-up: when was I first taking short-acting insulin ahead of mealtimes, I began to notice shakiness and light-headed-mess right before the meal. The GP immediately prescribed a destaive since he was certain that I was having a psychosomatic reaction to injections. I soon learned about the symptoms of dropping blood sugar levels…….

      1
      2 years ago Log in to Reply
    54. Mark Schweim

      I know enough about my diagnosis date to know it was the Monday after Labor Day, September, 1991, but I don’t remember the exact day in September.

      At diagnosis, my BG was too high for the Hospital lab to get an accurate reading, and my Blood Acetone was nearly 3%, which caused the Doctors to say that I should have been going to the morgue instead of the Hospital because all their document sources told them that a Blood Acetone level of 2.5% was listed as being “100% fatal with survival highly unlikely to impossible.” Yet I never lost consciousness and thought it was funny when they’d come to get a blood sample and say they were refinishing furniture in the employee break room and needed to borrow more of my paint stripper.

      2
      2 years ago Log in to Reply
      1. William Bennett

        So… September 9, 1991 🙂

        2 years ago Log in to Reply
    55. jo

      05/05/2017 one month after my GP told me I had Type 2 diabetes. 2 days later I fell and got a concussion, so my blurry vision and every other sign I had for having type 1 was blamed on the concussion. I lost 30 pounds in one month and the Dr. told me I was lying to him about an eating problem. Big sis told me to go to an Endo, He listened to me , I told him about my brother and nephew with type1 and all the auto-immune diseases I had and the weight I lost and how I felt I was going blind. I thank God my sister told me to go to the endo.

      1
      2 years ago Log in to Reply
    56. Natalie Daley

      July 12, 1946, my 40th birthday.

      2 years ago Log in to Reply
    57. Robin Melen

      Sept 10, 2021. Was going to Sloan Kettering for a procedure before major lung surgery and was sick as a dog – thirst beyond thirst, fatigue beyond fatigue. Husband finally got me to Sloan and I threw up in a garbage can in the lobby! Turns out immunotherapy I’d had for lung cancer caused my pancreas to shut down. I had no idea – I thought it was just the treatment making me feel so awful. Don’t know what my BS was, but definitely over 500! Was there for 6 days. Rolling along now with a pump and a CGM and grateful! (Did go back a month later for procedure and surgery after that.)

      2 years ago Log in to Reply
    58. Keith LeMar

      12/28/1966

      2 years ago Log in to Reply
    59. Bruce Schnitzler

      December 1951. It has been quite a ride!

      2 years ago Log in to Reply
    60. Scott Doerner

      08/13/1978
      I remembered only the month and year, then years later my Father told me the date, because I was curious. Never forgot

      2 years ago Log in to Reply
    61. Marty

      I was diagnosed in 1991, my first year in my first job teaching molecular endocrinology in a medical school. I was trained as a biochemist and understood insulin structure and function in detail, but it took a diabetic colleague to recognize my blurry vision and weight loss as symptoms of diabetes. I co-taught the course with the physician who ran the endo clinic that took care of me. In subsequent years, I believe my teaching was enriched by being able to provide my students with a patient’s perspective.

      2 years ago Log in to Reply
    62. Conniekaycox

      Was dramatic misdiagnosed with type 2 ended up almost dying in icu for 4 days with dka

      2 years ago Log in to Reply
    63. rick phillips

      Lol boy do I ever. It was my 17th birthday. Happy Birthday buddy.

      1
      2 years ago Log in to Reply
    64. Dave Akers

      D-Day 01/15

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    65. Yaffa Steubinger

      I had a grandson with T1 so bought myself a glucose meter so I could understand a little of what he was dealing with. Then my blood sugar starting going up at each dr’s appt. Then I noticed I had lost weight and my blood sugar was in the 300-400s (after received a 5 day dose of steroids for poison ivy). The blood sugar never went down. Made an appt with an endocrinologist and told her I had T1. She ran the tests and confirmed. So fortunate that I was on top of the diagnosis and never was hospitalized. T1 became my 4th autoimmune disease in 2017 at age 66. Autoimmune diseases…the gift that keeps on giving.

      1
      2 years ago Log in to Reply
    66. James Cheairs

      I was incorrectly diagnosed with Type 2 diabetes at the age of 39 on 10/25/1995. After dropping a tremendous amount of weight over the next 10 months with continued high blood sugars, I was finally diagnosed with T1D. What is surprising is that this still happens frequently today to adults when a simple antibody test can circumvent what seems to be the use trial and error by the medical community. More education is needed for sure.

      1
      2 years ago Log in to Reply
    67. Angela Naccari

      Diagnosed in November 1961 at age 6. Sixty two years ago.

      2 years ago Log in to Reply
    68. lis be

      1981

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    69. Kris Sykes-David

      November 26, 2013. It was the day before Hanukkah/Thanksgiving. I had SO much cooking to do with family arriving the next day! We had moved to our current home just six months before when my husband had retired. So many new things in my life! For two weeks, I had been experiencing blurry long-distance vision and drinking ice water a lot and I felt terrible. My hubby had pre-diabetes at one point so he had a meter . He tested me and it was in the 400’s. He tested again. Well, off to my doc (no DKA) then ER. The hospitalist didn’t know what to do with my extreme reaction to the IV insulin. I knew I had T1D and NOT T2D . I went home, next morning off to diabetes educator and some basal insulin. And lots of crying with my sons over the diagnosis. Also, my doc was on call over the holiday, she got me through the first couple of days. I honeymooned for several months with just the basal then went to fast acting as well when my low carb-ish diet couldn’t handle it. I hate this disease so much, but I’m grateful for my family and friends who are good to me and the devices such as Dexcom and InPen. And a Diabuddy just down the street to rant to about our LADA!!!

      2 years ago Log in to Reply
    70. Sue Martin

      It was Friday, March 6, 1985. I was 18. It was my dad’s birthday. He was a doctor and had made the diagnosis. I had been very thirsty for about a month. I was working at his clinic and he had me get a blood test mid-afternoon. After celebrating his birthday with my grandma and her fiance he stopped by the office to pick up the results. My BG was ~450. He gave me oral medications which helped for about six months. Then I was taught to give myself insulin injections in the hospital in Paris, France.
      I’m very grateful for the 38+ years I’ve had with this disease. I hope for many more.

      2 years ago Log in to Reply
    71. Pauline M Reynolds

      December 29, 1986. I went to the doctor because I thought I was having a nervous breakdown. I soon found out I had diabetes. Before the A1c afterwards, I remember eating the last piece of fruitcake because I was sure I would not be able to ever eat sugar again! I was diagnosed as Type II because I was 45 years old. It took a long while of going through honeymoon period, then meds not working. Why didn’t someone just do a C- peptide test right away!

      2 years ago Log in to Reply
    72. Lisa Sierra

      It was a few days before my 25th birthday

      2 years ago Log in to Reply
    73. dwines54@gmail.com

      Tuesday, February 7, 1967. 7 th grade and only my 2,nd day out of school. I was going in and out of consciousness but heard out family doctor say diabetes. We had recently learned about it in Home Ec. Of course that accounted for about 0.001% of everything we needed to know about living with type 1 diabetes! They were scary times, but here I am almost 57 years since diagnosis and I’m doing fairly well… STILL learning.

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    74. Janis Senungetuk

      April 7 or 8, 1955. It was the second day of Passover and I was 8 years old. I had missed a lot of 3rd grade because in a three month period I caught whatever virus was circulating in my grade school (chickenpox, rubella, bronchitis, and measles). My mom didn’t want me to miss any extra school days so waited until school closed for Easter/Passover before taking me to the pediatrician. Very fortunately, my pediatrician knew my maternal grandfather and was aware that he had been dx with diabetes and used insulin. He tested my urine and told my mom to take me directly to the hospital. I was there a full month. During that month the doctors would only talk to my parents, so I was discharged without any knowledge about life with diabetes.

      1
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    75. Anita Stokar

      It was May of 1973. I was 9 years old. I was in school and must have really felt sick as I went to the office and they called my parents. They took me to an ER where I waited for some time before being seen. I lapsed into a coma and woke up in a hospital room (probably ICU) I believe to be the next day. A few days later I was moved to a regular room. I was in the hospital a week before coming home.

      2 years ago Log in to Reply
    76. Anthony Harder

      Late January, 1966. I was 7 years old and in the 1st grade.

      2 years ago Log in to Reply
    77. Melinda Lipe

      I know my diagnosis was in December of 1966, and from the calendar, I believe it was Dec 19.

      2 years ago Log in to Reply
    78. Kevin Stephani

      I was 45 years old, that was 8 years ago. I told them they had the wrong person. I’ve always been active, never a junk food or soda guy. As a matter of fact I eat “better” than most folks I know. This hit me like a ton of bricks. Been managing it w low carb. But the last 6 months experimenting w celebrating foods and my numbers have gone for the worse. I’ll either figure it out or clamp down on celebration.

      2 years ago Log in to Reply
      1. William Bennett

        Of course with T1, contracting it had nothing to do with your diet–it’s an auto-immune condition–and ultimately diet can’t control it. Even if you eat low-carb, your liver is designed to put out a flow of glucose into your bloodstream 24/7 for your body to run on, and without insulin you can’t metabolize. it. . The LADA variant creeps up slowly but basically your pancreas is crapping out and you have to deal with that or deal with the consequences, up to and including DKA. Just is what it is

        2 years ago Log in to Reply
    79. Justin

      A few days after my 22nd birthday in 2010.

      2 years ago Log in to Reply
    80. Kristi Warmecke

      I know mine, 01-05-1982 because we had gone out of state to an Aunt’s house for Christmas & New Years. My parents discussing if they should take me to a hospital there, stop at University Hospital on the way home and what happened waiting until we got home and calling our family doctor once they opened back up on Monday. Longest. Drive. Home. EVER. From Central Kansas to St. Louis, MO. Every rest stop and many gas stations later, we made it home.
      My brother was diagnosed in November 1972 at 7 months old. Was ‘sick’ from brith and thought to be a failure to thrive baby. Our parents made many trips to specialist that our Family Doctor sent them to, to try and find out what was wrong.

      2 years ago Log in to Reply
    81. Dennis Dacey

      Being one of the two most significant events of my life, I certainly know the month, day and year – and probably the hour.

      2 years ago Log in to Reply
    82. Antsy

      I know the month and year, but not the day.

      2 years ago Log in to Reply
    83. Bob Durstenfeld

      1956 –> I was 18 months old. My eldest son was Dx’ed at 8 months old in 1987.

      2 years ago Log in to Reply
    84. Modee

      February 10, 1970. I was 12 years old and was very thin. My teacher at school and my parents noticed that I didn’t seem to have much energy and was always thirsty. I stayed out of school that day and mom took me to our pediatrician. He came back into the room after doing bloodwork and told mom that I had diabetes. He wanted me to go straight to the hospital. I spent seven days in the hospital where I was taught how to give myself injections by practicing with saline and an orange! I went home with insulin and syringes, and a cute little plastic case that held a test tube, a dropper, and a place to put testing tablets that were used to test urine sugar. I gained 12 pounds in those seven days.

      2 years ago Log in to Reply
    85. Susan Wood

      August 1963

      2 years ago Log in to Reply
    86. Becky Lamont

      11/5/1966 is date I checked into the hospital to begin treatment.

      2 years ago Log in to Reply
    87. Paul McGuigan

      Year and month but not day. March 1984

      2 years ago Log in to Reply
    88. KarenM6

      I will come back to answer! The typing is too much for today and I want to honor everyone’s stories by reading each but I can’t do that today. Thank you all in advance for sharing your stories!

      2 years ago Log in to Reply
    89. David Hedeen

      Diagnosed Tu 1975, day after blood test at Hall Health college clinic. Sister in law worked in medical records & said symptoms were to similar to diabetic medical records

      2 years ago Log in to Reply
    90. Donna Condi

      I was diagnosed with T2 on February 12th, 1998 and put on Glucophage. I was 42. I went on insulin four years later (the pills weren’t keeping my bs low enough). Two years later and a new endocrinologist and I finally asked was I T1 or T2 and he told me I had always been T1.

      2 years ago Log in to Reply
    91. Barb Robertson

      Yes. I was told on my 10th birthday, 08/21/1962.

      2 years ago Log in to Reply
    92. Tim Moeslein

      January 17, 1980. 6 days before my 12th birthday. Happy Birthday to Me!

      2 years ago Log in to Reply
    93. Sherrie Johnson

      August 1961

      2 years ago Log in to Reply
    94. Molly Jones

      I know that my incorrect T2 diagnosis was changed to T1 and I went to the hospital to start insulin therapy Dec 22, 2001.
      I wouldn’t have remembered the day/year besides having a holiday and photos to remind me as I have memory problems due to seizures.

      2 years ago Log in to Reply
    95. Joan Benedetto

      My son was diagnosed at 18 mos of age on November 2,2013.

      2 years ago Log in to Reply
    96. Diane

      August 1977. I was in the hospital for 10 days (outlasted several roommates) and got out about 1 week before I started my senior year at college. I’ll always remember one of my hospital roommates telling me that Elvis Presley had died.

      2 years ago Log in to Reply
    97. Alyne Branson

      December 2, 1989! I was a junior in college and it was the week before finals. Between the student health center and my boyfriend’s family doctor, no one thought to do a blood test as I got weaker and sicker each day. Finally went to the ER and within a very short time they tested my blood and told me I had Type 1 Diabetes. I had lost about 15 lbs. Spent a few days in the hospital then when discharged I was signed up to go to a class at our local Diabetes Center. That was the lifesaver that put me on the right track for managing my diabetes. About to celebrate 34 years.

      1
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    98. Teri Morris

      It was April 1979….I’m thinking maybe the 14th?

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    99. Jennifer Bounds

      June 4, 1992

      2 years ago Log in to Reply
    100. KCR

      Last week of July 2014

      2 years ago Log in to Reply
    101. William Bennett

      I know the MONTH and YEAR but not the exact day. December 1983. Tried to find out a million years later when I heard of that whole “diaversery” thing. Doctor’s office was still there but they’d destroyed those old records. Had to have been just before Christmas break bc I was in grad school and I remember thinking the weird symptoms and awful feeling were end-of-term anxiety related. And I had to put in for an extension on a big seminar paper. So a couple weeks out from the term break–probably the first week of December. Funny thing is I have no memory of what that first T1 Christmas was like.

      2 years ago Log in to Reply
    102. Chester Oby

      It was February 1969. I was 11. I had lost a lot of weight and was drinking a lot of water. When to the doctor and wound up in the hospital for a week. At the hospital they showed me how to give myself injections. Also showed my mom how to clean glass needle.

      2 years ago Log in to Reply
    103. Bruce Johnson

      Rx 1966

      2 years ago Log in to Reply
    104. Ken Raiche

      I was not so lucky 13 years of age and I received the diagnosis on the 13th of December 1973. It’s the Christmas gift before Christmas that keeps on giving. I’ve got to admit though I can’t say that it truly bothers me that much plus I joined my older brother on the T1D train.

      2 years ago Log in to Reply
    105. PamK

      I was diagnosed in July of 1964, sometime in the 20’s I think. I don’t know the exact day though.

      2 years ago Log in to Reply
    106. Annie Wall

      June 9, 1980 at age 30. I’d been thirsty for about 6 months and thought that was “weird”. When a friend saw that I was drinking the whole glass pitcher of water at Durgin Park in Boston, she suggested I have my blood tested. I called my doctor for a physical and was told they were scheduling physicals for September (it was May) so I said I’d experienced an unexplained weight loss (I still thought being thirsty was weird) and they said “we’ll see you tomorrow”. It was an easy diagnosis for my GP since my BG was 450, though he was surprised that I got it at age 30. As he left the exam room, he turned to me and asked me if I had been thirsty! That’s when I learned about 3 key symptoms: excessive thirst, excessive urination, and unexplained weight loss. He sent me to the hospital lab for a glucose tolerance test the next day but when they tested my blood sugar, they told me the test would make me sick and that the doctor had enough for the diagnosis. It was a shocker for me since there was no diabetes in my family on either parent’s side and I knew no one who had diabetes. I have to say it’s reassuring to be able to communicate with other folks with diabetes. It was fascinating to read what people’s diagnosis was like.

      2 years ago Log in to Reply
    107. KSannie

      I was tested in December 1969 at the University Health Center, but did not get the result until I returned from Christmas break 2-3 weeks later, January 1970. It was my senior year at college.

      2 years ago Log in to Reply
    108. Cheryl Weaver

      Actually, it was in the summer of 1959 when I was diagnosed with T1D.

      2 years ago Log in to Reply
    109. KarenM6

      Somewhere around 24 Nov, 1971. (I used to think that was the precise day, but I’m not 100% anymore. I just know I was in the hospital for a month and was paroled on 24 Dec 1971.)
      I had just turned 5 and had all the symptoms. My Mom took me to a doctor who said I was faking being sick, that I was worried and just seeking attention.
      My Mom took me home, but had me sleep in her bed (Dad was away for military reasons) because I was breathing funny and she was worried I would die on her.
      She took me back to a doctor the next day (it was a military “we’ll give you who is next up” sort of deal) and he said the same thing. So, being that my Dad was an officer, she then took me to the flight surgeon. He was supposed to be a better doctor. He said I was lying and that it was all in my head.
      My Mom then took me back to the other doctor. He sent me for a chest XRay. A very kind orderly saw me trying to walk down the longest hallway on earth and went to get me a wheelchair. This orderly saw that something was dreadfully wrong, but the doctors didn’t. The test came back as a possible heart murmur, but the doc didn’t see anything else.
      After again calling me a liar, he said to my Mom, “no wonder she’s faking it as she has a hypochondriac for a mother.” My Mom then yelled at him that I WAS sick and that she wasn’t going to move until they figured out what was wrong with me. (While this is a fantastic, life-saving power-Mom move, at 5, it scared the bleep outta me.)
      So, then a senior doctor was called into the fray and he said, “get this girl to a hospital now!” (Well, he probably said “stat”… that’s more doctorly. ;p )
      So, off I went to the hospital which was an hour and 15 or 30 minutes from home.
      I remember the ambulance ride and being very annoyed with my Mom who was trying to keep me awake the whole way to the hospital. (The medical peeps had told her to do that.) I just wanted to sleep SO BAD.
      I was basically on my own in the hospital at 5. My Mom DID come to see me, but they didn’t let parents stay back then.
      A ladies group “gave” me a box of presents that I was allowed to open one each day. Then, they were taken away when I was released and I was told I couldn’t take them with me. I was allowed to choose one to take, but it was stolen by one of the other kids.

      Ah, fun times! *shakes head
      I feel like there are more details which will probably show up later on… but, that is the gist of my diagnosis experience.
      (Oh… I just now remembered the donuts… ok, there’s a bit about losing weight, not eating well, and two donuts… but, I’ll leave that for if there’s a question about eating donuts pre-diagnosis! ;p ;p jk)

      2 years ago Log in to Reply
    110. Melissa Childers

      October, 1984

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    111. Bonnie Lundblom

      Early December 1987 when our 5th child was about 6 weeks old. I was incorrectly diagnosed with gestational diabetes, correctly diagnosed when I went back to my OB/GYN MD who sent me immediately to an endocrinologist. That MD said I did not have gestational diabetes and had T1D.

      2 years ago Log in to Reply
    112. T1D4LongTime

      Somewhere around the first week of December 1966, but not sure of the exact date. I was very young and only remember getting out of the hospital a few days before Christmas. Mom was so relieved it was T1D and not leukemia.

      2 years ago Log in to Reply
    113. Megan S

      December 6, 1996

      2 years ago Log in to Reply
    114. Maurine Bowser

      April 1965 at 13 yrs

      2 years ago Log in to Reply
    115. Jenny Richardson

      December 27 1983. I had just turned 12.

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    116. Mike Plante

      April 18, 2003

      2 years ago Log in to Reply
    117. Patrick Burner

      December 28, 1983…University of Virginia Medical Center

      2 years ago Log in to Reply
    118. Steve Rumble

      June 6, 1970

      2 years ago Log in to Reply

    Do you know the day and year that you received your T1D diagnosis? If you're comfortable, share about your diagnosis in the comments! Cancel reply

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