Jian – T1D Exchange

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- 1 month ago
  
  KarenM6 likes your comment at
  In addition to T1D, do you live with an eating disorder or disordered eating habits? Please comment if you would like to share more.
  No disorder just have little spurts at times of wanting to eat something sweet for a couple days which while it is satisfying is hard on my blood sugars. also find I get little spurts of wanting to eat salty snacks which lasts for a few days but considering 47 yrs of type 1. I think that all of us have these don't we?
- 1 month ago
  
  Lawrence S. likes your comment at
  In addition to T1D, do you live with an eating disorder or disordered eating habits? Please comment if you would like to share more.
  No disorder just have little spurts at times of wanting to eat something sweet for a couple days which while it is satisfying is hard on my blood sugars. also find I get little spurts of wanting to eat salty snacks which lasts for a few days but considering 47 yrs of type 1. I think that all of us have these don't we?
- 1 month ago
  
  Sue Martin likes your comment at
  In addition to T1D, do you live with an eating disorder or disordered eating habits? Please comment if you would like to share more.
  No disorder just have little spurts at times of wanting to eat something sweet for a couple days which while it is satisfying is hard on my blood sugars. also find I get little spurts of wanting to eat salty snacks which lasts for a few days but considering 47 yrs of type 1. I think that all of us have these don't we?
- 1 month ago
  
  Patricia Dalrymple likes your comment at
  In addition to T1D, do you live with an eating disorder or disordered eating habits? Please comment if you would like to share more.
  No disorder just have little spurts at times of wanting to eat something sweet for a couple days which while it is satisfying is hard on my blood sugars. also find I get little spurts of wanting to eat salty snacks which lasts for a few days but considering 47 yrs of type 1. I think that all of us have these don't we?
- 1 month, 3 weeks ago
  
  Bea Anderson likes your comment at
  While CGM sensors are approved to wear for 7 to 14 days, how many days do you find your CGM sensor gives you the most accurate readings?
  I think I have been wearing a Dexcom sensor for at least 14 yrs and my sensors have lasted 10 days every time except one.
- 1 month, 3 weeks ago
  
  Marthaeg likes your comment at
  While CGM sensors are approved to wear for 7 to 14 days, how many days do you find your CGM sensor gives you the most accurate readings?
  I think I have been wearing a Dexcom sensor for at least 14 yrs and my sensors have lasted 10 days every time except one.
- 2 months, 2 weeks ago
  
  ConnieT1D62 likes your comment at
  How important is a strong knowledge of nutrition for T1D management?
  for person with Type 1or 2 as well as providers -essential for both
- 2 months, 2 weeks ago
  
  Lawrence S. likes your comment at
  How important is a strong knowledge of nutrition for T1D management?
  for person with Type 1or 2 as well as providers -essential for both
- 4 months, 3 weeks ago
  
  Karen Tay likes your comment at
  If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)
  I have a support group for type 1 women only and if someone in our group needs something we let the facilitator know and she keeps track of who might need supplies or have extra. you cannot advertise prescription items online for free or Facebook. may restrict you. so beware of that.
- 5 months, 1 week ago
  
  jo likes your comment at
  Do you know the day and year that you received your T1D diagnosis? If you’re comfortable, share about your diagnosis in the comments!
  six months post partum, blood sugar and BP fine (had toxemia during 2nd pregnancy) but maybe 4 - 5 months later had T1D.
- 5 months, 2 weeks ago
  
  Kristi Warmecke likes your comment at
  Who in your family lives with T1D? Select all that apply. Please share more about your family’s experience with T1D in the comments!
  3 brothers with type 1, 1 cousin 2 nieces, 2 daughters. We sure got an unusual family
- 6 months ago
  
  Diane likes your comment at
  If you use an insulin pump or CGM, how often do you ration your device supplies because you are concerned about running out of supplies before your next refill?
  if you are a Medicare patient, as I am, supplies are closely monitored and you never get extra. its down to the wire sometimes. I have bought sensors at an independent place several times because the supply company did. not agree with my usage and I would have had to go without, so I bought a few on my own so that would not happen. It sometimes depends on the person on the phone not understanding exactly what a sensor is or the need to have a constant supply Everyone misses occasionally on having the right amount on Medicare. it requires the prescription to be changed if you go through the doctor. sometimes that is a real time taker and hassle.
- 6 months ago
  
  Carol Evans likes your comment at
  If you use an insulin pump or CGM, how often do you ration your device supplies because you are concerned about running out of supplies before your next refill?
  if you are a Medicare patient, as I am, supplies are closely monitored and you never get extra. its down to the wire sometimes. I have bought sensors at an independent place several times because the supply company did. not agree with my usage and I would have had to go without, so I bought a few on my own so that would not happen. It sometimes depends on the person on the phone not understanding exactly what a sensor is or the need to have a constant supply Everyone misses occasionally on having the right amount on Medicare. it requires the prescription to be changed if you go through the doctor. sometimes that is a real time taker and hassle.
- 6 months ago
  
  Kristi Warmecke likes your comment at
  If you use an insulin pump or CGM, how often do you ration your device supplies because you are concerned about running out of supplies before your next refill?
  if you are a Medicare patient, as I am, supplies are closely monitored and you never get extra. its down to the wire sometimes. I have bought sensors at an independent place several times because the supply company did. not agree with my usage and I would have had to go without, so I bought a few on my own so that would not happen. It sometimes depends on the person on the phone not understanding exactly what a sensor is or the need to have a constant supply Everyone misses occasionally on having the right amount on Medicare. it requires the prescription to be changed if you go through the doctor. sometimes that is a real time taker and hassle.
- 6 months ago
  
  T1DGJ likes your comment at
  Do you currently have a kit containing the diabetes supplies you would need in case of a natural disaster or emergency?
  partially ready just have to grab insulin from frig and get sensors from a closet - expiration of things keep it sort of unready. but I could do in 2. minutes.
- 6 months ago
  
  Anita Stokar likes your comment at
  Do you currently have a kit containing the diabetes supplies you would need in case of a natural disaster or emergency?
  so sorry. One can never be prepared for this.
- 6 months ago
  
  Robin Melen likes your comment at
  If you use an insulin pump, for how many days do you usually wear one infusion set or pod?
  I dint know what your body is like but try to stay off your abdomen for several months. try about at the waist as far back as you can go - sometimes leaning to the side helps you bunch up a little area you will find. or your arms. After off your abdomen for several months I thin. you will find it works well again. I have had 46 yrs but over half injections so I understand your predicament
- 6 months ago
  
  Andrea Hultman likes your comment at
  When under stress, the body releases hormones that can trigger a rise in blood glucose levels. In which of the following types of situations have you seen a noticeable increase in your blood glucose levels? Please select all that apply to you.
  definitely with steroids. fir good 3-5 days
- 6 months, 1 week ago
  
  Marty likes your comment at
  Do you currently have a kit containing the diabetes supplies you would need in case of a natural disaster or emergency?
  so sorry. One can never be prepared for this.
- 6 months, 1 week ago
  
  jenn velez likes your comment at
  Do you currently have a kit containing the diabetes supplies you would need in case of a natural disaster or emergency?
  partially ready just have to grab insulin from frig and get sensors from a closet - expiration of things keep it sort of unready. but I could do in 2. minutes.
- 6 months, 2 weeks ago
  
  ConnieT1D62 likes your comment at
  When under stress, the body releases hormones that can trigger a rise in blood glucose levels. In which of the following types of situations have you seen a noticeable increase in your blood glucose levels? Please select all that apply to you.
  definitely with steroids. fir good 3-5 days
- 6 months, 3 weeks ago
  
  Mick Martin likes your comment at
  If you were misdiagnosed with another condition before being diagnosed with T1D, were you experiencing diabetes-related ketoacidosis (DKA) when you were eventually diagnosed with T1D?
  I was diagnosed as type 2 and dr wanted me to take glucotrol (1978) I refused (3 brothers with type 1 and I knew it was type 1 but Dr did not agree) so he said take 10 units of NPH and increase it by 2 units every so often if you still have sugar in your urine. Took me a while to get to 20 Units and losing weight before he acknowledged I was type 1.
- 7 months, 1 week ago
  
  Kristi Warmecke likes your comment at
  Does your health insurance offer benefits or cover services that adequately meet your needs?
  Medicare Advantage plans do cover those
- 7 months, 2 weeks ago
  
  Wanacure likes your comment at
  Has anyone from your T1D health care team discussed diabetes distress with you? (Diabetes distress is an emotional response to the burdens of living with diabetes and the self-care necessary to manage diabetes.)
  no but always ask if I have any concerns or issues to discuss. I feel very conformable and would be able to say if I was experiencing this. I have in the past several times when other issues occur on top of diabetes. I take action if I feel I need to see a. mental health provider
- 8 months ago
  
  Lawrence S. likes your comment at
  Has anyone from your T1D health care team discussed diabetes distress with you? (Diabetes distress is an emotional response to the burdens of living with diabetes and the self-care necessary to manage diabetes.)
  no but always ask if I have any concerns or issues to discuss. I feel very conformable and would be able to say if I was experiencing this. I have in the past several times when other issues occur on top of diabetes. I take action if I feel I need to see a. mental health provider
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Jian

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