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    • 6 hours, 11 minutes ago
      Lawrence S. likes your comment at
      If a study required temporary changes to your usual diabetes routine, how willing would you be to participate?
      I participated in a 6 month study where I had to switch cgm (Dexcom g6 to g7) and go from omnipod 5 back to mdi (using tresiba, I had used lantus when I was mdi previously). I found it very enlightening. I had heard terrible things about the g7 and found I loved it. For me it is very accurate, love the 12 hour grace period (use it to presoak the next one). I was happy to switch to the g7 after the study. I also found I wasn’t so crazy about tresiba. The best part was I feel like I have a better understanding of my basal and bolus settings and I now feel very comfortable switching between the pump and mdi when I want to take a break😊
    • 12 hours, 15 minutes ago
      atr likes your comment at
      If a study required temporary changes to your usual diabetes routine, how willing would you be to participate?
      I participated in a 6 month study where I had to switch cgm (Dexcom g6 to g7) and go from omnipod 5 back to mdi (using tresiba, I had used lantus when I was mdi previously). I found it very enlightening. I had heard terrible things about the g7 and found I loved it. For me it is very accurate, love the 12 hour grace period (use it to presoak the next one). I was happy to switch to the g7 after the study. I also found I wasn’t so crazy about tresiba. The best part was I feel like I have a better understanding of my basal and bolus settings and I now feel very comfortable switching between the pump and mdi when I want to take a break😊
    • 12 hours, 33 minutes ago
      Gerald Oefelein likes your comment at
      If a study required temporary changes to your usual diabetes routine, how willing would you be to participate?
      I participated in a 6 month study where I had to switch cgm (Dexcom g6 to g7) and go from omnipod 5 back to mdi (using tresiba, I had used lantus when I was mdi previously). I found it very enlightening. I had heard terrible things about the g7 and found I loved it. For me it is very accurate, love the 12 hour grace period (use it to presoak the next one). I was happy to switch to the g7 after the study. I also found I wasn’t so crazy about tresiba. The best part was I feel like I have a better understanding of my basal and bolus settings and I now feel very comfortable switching between the pump and mdi when I want to take a break😊
    • 12 hours, 37 minutes ago
      Sarah Berry likes your comment at
      If a study required temporary changes to your usual diabetes routine, how willing would you be to participate?
      I participated in a 6 month study where I had to switch cgm (Dexcom g6 to g7) and go from omnipod 5 back to mdi (using tresiba, I had used lantus when I was mdi previously). I found it very enlightening. I had heard terrible things about the g7 and found I loved it. For me it is very accurate, love the 12 hour grace period (use it to presoak the next one). I was happy to switch to the g7 after the study. I also found I wasn’t so crazy about tresiba. The best part was I feel like I have a better understanding of my basal and bolus settings and I now feel very comfortable switching between the pump and mdi when I want to take a break😊
    • 21 hours, 41 minutes ago
      AmyM likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I am unclear. Maybe you can explain what I am missing. The clinical studies I have done do not involve sharing data with social media. They are medical and are HIPAA protected.
    • 1 day, 10 hours ago
      Laurie B likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 1 day, 10 hours ago
      ChrisW likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      MDI and since FIASP is now covered under Medicare I wanted to try the inPen. They wanted over $600 for it so I said no thanks!
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Wish cost did not have to come into play but unfortunately it does.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      It isn’t that I can’t afford devices or meds, it’s more that I feel pharma is jacking up prices to see what the market will bare without conscience. Free enterprise does not work in most of the life sustaining medical community, particularly in the US.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Having to wait for the warrantee period to run out before switching pump manufacturers is the biggest restraint. I had to wait to switch from Minimed 770 to T:slim X2 several months. I am now considering going back to Minimed because of the improvements in their sensor and the problems Tandem is having with infusion set manufacturing. So I have to wait a year.
    • 1 day, 11 hours ago
      Steve Rumble likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 11 hours ago
      Kathy Hanavan likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 11 hours ago
      Marty likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 12 hours ago
      TEH likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 2 days, 5 hours ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 2 days, 10 hours ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 3 days, 11 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 22 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 3 days, 22 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 4 days, 5 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 4 days, 5 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 4 days, 5 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 4 days, 5 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 4 days, 10 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
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    Does the health care practice you see for your diabetes care have an online portal where you can message your provider?

    Home > LC Polls > Does the health care practice you see for your diabetes care have an online portal where you can message your provider?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    17 Comments

    1. Trina Blake

      I upload my Tnadem/Dexcom devices (they’re integrated) monthly. I send a message to the Endo practice letting them know the data is there. What I especially appreciate about the portal is that with my monthly data dups, I don’t need in-person appts. Saves me a boatload of time and effort. I’ll get a followup phone call appt on occasion, but then they have to do that so that insurance will continue to cover my insulin.

      2 years ago Log in to Reply
    2. Lawrence S.

      I belong to a hospital network where I have access to all of my doctors through their portal. Occaionally, I message my providers.

      2 years ago Log in to Reply
    3. Jane Cerullo

      I use it I said often but truthfully sometimes a better choice. I get my labs via email from the lab so I always have them to compare to the prior month.

      2 years ago Log in to Reply
    4. Annie Wall

      I use my primary’s and endo’s portals very frequently. I message them whenever I have a question or problem. I can check my labs, my chart, pay my bills, etc. it’s very handy and I don’t have to worry about waiting on hold or waiting for an answer.

      2 years ago Log in to Reply
    5. Marty

      I rarely, if ever, use the portal to message my provider about a health issue, but I often use it to ask for prescription renewals, schedule visits, check labs, and other routine aspects of my health care.

      2 years ago Log in to Reply
    6. Mick Martin

      I have personal Work-Related email addresses for both my endocrinologist and my Diabetes Specialist Nurse (DSN), but I also have access to an online portal where I can check on appointments, blood test results, etc.

      2 years ago Log in to Reply
    7. Bob Durstenfeld

      I answered yes, sometimes, but I get better results sending an email to the front desk staff for things like prescription refills.

      2 years ago Log in to Reply
    8. Ernie Richmann

      I can call or send an email to the office.

      2 years ago Log in to Reply
    9. Pauline M Reynolds

      The nurse practitioner in endocrinoloty is very welcoming toward online messages. She checks my pump history and answers promptly.

      2 years ago Log in to Reply
    10. TEH

      Yes my Endo and GP have portals. I have messaged my GP only. I get the blood test results from my Endo’s portal.

      2 years ago Log in to Reply
    11. KIMBERELY SMITH

      In clinic

      2 years ago Log in to Reply
    12. Janis Senungetuk

      Yes, MyChart. Up until February of this year I used it frequently, to ask my endo what labs were needed before 90 day appointments. I also used it to send my tconnect data just before our appointments in addition to any questions/subjects I wanted to discuss at the appointment. I also used it to ask my Diabetes Educator pump and sensor issues. In February the business side of the healthcare organization began charging for all staff/patient contact that required access to the patient’s chart. Before any messages are sent to staff I’m required to agree to pay appointment charges. Since my use of the on-line message system requires more than a generic answer, even requesting a prescription renewal can be charged an appointment fee. So far, I haven’t been charged.

      2 years ago Log in to Reply
    13. lynda meyer

      I have a personal email for my endo.

      2 years ago Log in to Reply
    14. Antsy

      My last three END’s worked for the same hospital system so all used MyChart/Epic. The middle doc said they preferred communicating via MyChart, it was even on their on-hold announcement repeatedly asking we send a message instead of waiting in their phone queue. But they had signs all over their office stating patients should ask any questions before leaving, so they didn’t have to use MyChart. My other two docs were/are normal about it; they or their MA or RN get back to me quickly. The only thing I don’t like is the system logs me off quickly, and they recently added 2FI, which is good for security but tiresome if you’re logging in over and over.

      2 years ago Log in to Reply
    15. PamK

      I only use it when I feel I have to. I am not comfortable having my medical information online. I feel it is too big a risk, if they get hacked which can happen.

      2 years ago Log in to Reply
    16. KSannie

      My husband and I are using it increasingly because the nurses do not phone us back in a timely manner, but they do respond quickly to the portal questions and messages. Sometimes I have had to walk into the building and ask to see the nurse without an appointment if the question is urgent.

      2 years ago Log in to Reply
    17. Jeff Balbirnie

      Getting into the system, fairly easy. Getting ANY response, even their standard non-responsive generic one(s), almost non existent. A precise, detailed question requires some kin of intelligent, meaningful response. Even acknowledging our messages, would offer some kind of false hope(s).

      2 years ago Log in to Reply

    Does the health care practice you see for your diabetes care have an online portal where you can message your provider? Cancel reply

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