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    • 8 hours, 52 minutes ago
      KarenM6 likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      It has been many, many years since I've seen a Certified Diabetes Care and Education Specialist.
    • 9 hours, 57 minutes ago
      jo likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      I had appointment today wasn't feeling good
    • 12 hours, 27 minutes ago
      Jeff Marvel likes your comment at
      If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
      I like Lyumjev too! Works faster for me.
    • 13 hours ago
      Robin Melen likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      Been at this for 40 years now. Not much a CDE can teach me at this point. More the reverse, actually.
    • 13 hours, 17 minutes ago
      MT likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      After 20+ years as a Type I, my appointments are with my endo, where I end up educating him on the latest research. Most endo's patient population is almost exclusively Type 2 and are not as plugged into Type 1
    • 13 hours, 30 minutes ago
      Mick Martin likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      7 video calls in preparation for going onto a closed loop system
    • 13 hours, 30 minutes ago
      Mick Martin likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      I really like my educator. She keeps me up-to-date on all of the new tech and helps communicate with the vendors and figure out insurance stuff. It's a nice morale boast too; we review Dexcom data and talk about specific highs or lows and different techniques to try. I see my doctor every 6 months and my educator every 6 months, but we're on a schedule so I see one of the two every quarter.
    • 13 hours, 31 minutes ago
      Mick Martin likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      My Diabetes Care Specialist is also a Nutritionist. I have found her advice and support vital to mastering T1 since my diagnosis 2 years ago
    • 14 hours, 6 minutes ago
      Ahh Life likes your comment at
      How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
      After 20+ years as a Type I, my appointments are with my endo, where I end up educating him on the latest research. Most endo's patient population is almost exclusively Type 2 and are not as plugged into Type 1
    • 14 hours, 18 minutes ago
      Samantha Walsh likes your comment at
      In honor of GivingTuesday, what are your favorite ways of giving to organizations you support? Select all that apply.
      Correction: Service to others is the rent you pay for your time on earth."
    • 14 hours, 42 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 14 hours, 43 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my diabetologist every 90 days to continue receiving pump and CGM supplies.
    • 14 hours, 43 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      This past year my doctor appts were my new social life!
    • 14 hours, 43 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 14 hours, 44 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I would prefer to see my endo twice a year. But insurance requires a visit once every 90 days to obtain an insulin pump and CGM, which is completely illogical. Insulin pump allows for better control soo....
    • 14 hours, 44 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 14 hours, 45 minutes ago
      Lawrence S. likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I saw my endocrine provider 6 times this year instead of the usual four because I was having pump insertion site absorption issues so she saw me two extra times for problem solving resolution.
    • 1 day, 1 hour ago
      Kris Sykes-David likes your comment at
      If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
      It helped me track when and how much insulin I had injected. It also would show me how much I had on board so if I needed to take additional insulin it would help me not to stack too much at a time.
    • 1 day, 1 hour ago
      Kris Sykes-David likes your comment at
      If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
      I love it! Can't live without one.
    • 1 day, 8 hours ago
      TEH likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 1 day, 8 hours ago
      TEH likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I would prefer to see my endo twice a year. But insurance requires a visit once every 90 days to obtain an insulin pump and CGM, which is completely illogical. Insulin pump allows for better control soo....
    • 1 day, 23 hours ago
      Janis Senungetuk likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 2 days, 4 hours ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      In July, I went on the only Medicare plan in my area that covered Afrezza. For 2024, no one is covering it. Like others, hate these formulary decisions by the Insurance providers.
    • 2 days, 7 hours ago
      Ahh Life likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 2 days, 7 hours ago
      Bekki Weston likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
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    Does the health care practice you see for your diabetes care have an online portal where you can message your provider?

    Home > LC Polls > Does the health care practice you see for your diabetes care have an online portal where you can message your provider?
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    Do you know the day and year that you received your T1D diagnosis? If you're comfortable, share about your diagnosis in the comments!

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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    17 Comments

    1. Trina Blake

      I upload my Tnadem/Dexcom devices (they’re integrated) monthly. I send a message to the Endo practice letting them know the data is there. What I especially appreciate about the portal is that with my monthly data dups, I don’t need in-person appts. Saves me a boatload of time and effort. I’ll get a followup phone call appt on occasion, but then they have to do that so that insurance will continue to cover my insulin.

      2 weeks ago Log in to Reply
    2. Lawrence S.

      I belong to a hospital network where I have access to all of my doctors through their portal. Occaionally, I message my providers.

      2 weeks ago Log in to Reply
    3. Jane Cerullo

      I use it I said often but truthfully sometimes a better choice. I get my labs via email from the lab so I always have them to compare to the prior month.

      2 weeks ago Log in to Reply
    4. Annie Wall

      I use my primary’s and endo’s portals very frequently. I message them whenever I have a question or problem. I can check my labs, my chart, pay my bills, etc. it’s very handy and I don’t have to worry about waiting on hold or waiting for an answer.

      2 weeks ago Log in to Reply
    5. Marty

      I rarely, if ever, use the portal to message my provider about a health issue, but I often use it to ask for prescription renewals, schedule visits, check labs, and other routine aspects of my health care.

      2 weeks ago Log in to Reply
    6. Mick Martin

      I have personal Work-Related email addresses for both my endocrinologist and my Diabetes Specialist Nurse (DSN), but I also have access to an online portal where I can check on appointments, blood test results, etc.

      2 weeks ago Log in to Reply
    7. Bob Durstenfeld

      I answered yes, sometimes, but I get better results sending an email to the front desk staff for things like prescription refills.

      2 weeks ago Log in to Reply
    8. Ernie Richmann

      I can call or send an email to the office.

      2 weeks ago Log in to Reply
    9. Pauline M Reynolds

      The nurse practitioner in endocrinoloty is very welcoming toward online messages. She checks my pump history and answers promptly.

      2 weeks ago Log in to Reply
    10. TEH

      Yes my Endo and GP have portals. I have messaged my GP only. I get the blood test results from my Endo’s portal.

      2 weeks ago Log in to Reply
    11. KIMBERELY SMITH

      In clinic

      2 weeks ago Log in to Reply
    12. Janis Senungetuk

      Yes, MyChart. Up until February of this year I used it frequently, to ask my endo what labs were needed before 90 day appointments. I also used it to send my tconnect data just before our appointments in addition to any questions/subjects I wanted to discuss at the appointment. I also used it to ask my Diabetes Educator pump and sensor issues. In February the business side of the healthcare organization began charging for all staff/patient contact that required access to the patient’s chart. Before any messages are sent to staff I’m required to agree to pay appointment charges. Since my use of the on-line message system requires more than a generic answer, even requesting a prescription renewal can be charged an appointment fee. So far, I haven’t been charged.

      2 weeks ago Log in to Reply
    13. lynda meyer

      I have a personal email for my endo.

      2 weeks ago Log in to Reply
    14. Antsy

      My last three END’s worked for the same hospital system so all used MyChart/Epic. The middle doc said they preferred communicating via MyChart, it was even on their on-hold announcement repeatedly asking we send a message instead of waiting in their phone queue. But they had signs all over their office stating patients should ask any questions before leaving, so they didn’t have to use MyChart. My other two docs were/are normal about it; they or their MA or RN get back to me quickly. The only thing I don’t like is the system logs me off quickly, and they recently added 2FI, which is good for security but tiresome if you’re logging in over and over.

      2 weeks ago Log in to Reply
    15. PamK

      I only use it when I feel I have to. I am not comfortable having my medical information online. I feel it is too big a risk, if they get hacked which can happen.

      2 weeks ago Log in to Reply
    16. KSannie

      My husband and I are using it increasingly because the nurses do not phone us back in a timely manner, but they do respond quickly to the portal questions and messages. Sometimes I have had to walk into the building and ask to see the nurse without an appointment if the question is urgent.

      2 weeks ago Log in to Reply
    17. Jeff Balbirnie

      Getting into the system, fairly easy. Getting ANY response, even their standard non-responsive generic one(s), almost non existent. A precise, detailed question requires some kin of intelligent, meaningful response. Even acknowledging our messages, would offer some kind of false hope(s).

      1 week ago Log in to Reply

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