TEH – T1D Exchange

Activity
- 3 days, 6 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
  I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
- 5 days, 18 hours ago
  
  Karen Newe likes your comment at
  Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
  I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
- 6 days, 23 hours ago
  
  KarenM6 likes your comment at
  If you use an insulin pump, do you currently have a protective case on your pump or PDM?
  I am rough on insulin pumps and cracked 2 minimed pump cases. I found the bare T:slim pump too slippery. I use the MEDmax silicone case. I put that in a AGOZ case with a belp clip. But I don't like the clip. It's too sharp and too stif. Looking for a belt for night time use.
- 1 week, 2 days ago
  
  Jen Farley likes your comment at
  The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
  I told my PA I wanted to change from Minimed to Tslim X2. We also discussed Omnipod but that was not an option because Medicare does not cover it because it is covered under prescription drug plan. My plan did not cover it so it was off the table.
- 1 week, 6 days ago
  
  Kathy Hanavan likes your comment at
  Has a stranger ever approached you to talk about your visible diabetes device(s)?
  I have quite a few times. I have approached others wearing a pump or Dexcom 6 or 7. Most recently a young lady wearing an Omni pod.
- 3 weeks, 1 day ago
  
  Lawrence S. likes your comment at
  Do you have any programmed diabetes-related “reminders” on your phone or other technology? For example, a reminder to take your long-acting insulin every night at 10 p.m., or a reminder to bolus every day at 1 p.m.?
  I do that too. I also have a recurring calandar reminder for cartridge/infusion sets for every 2 1/2 days. Then adjust it and future entries depending on exactly when i do change.
- 3 weeks, 2 days ago
  
  Anneyun likes your comment at
  Do you have any programmed diabetes-related “reminders” on your phone or other technology? For example, a reminder to take your long-acting insulin every night at 10 p.m., or a reminder to bolus every day at 1 p.m.?
  I do that too. I also have a recurring calandar reminder for cartridge/infusion sets for every 2 1/2 days. Then adjust it and future entries depending on exactly when i do change.
- 1 month ago
  
  KarenM6 likes your comment at
  If you use an insulin pump or CGM, has anyone ever mistaken your device(s) for any of the following? Select all that apply!
  TSA always asked me to take my cell phone off. Then when I told them it was an insulin pump I won bonus screening.
- 1 month, 3 weeks ago
  
  Becky Cain likes your comment at
  If you use a Tandem insulin pump with Control IQ, which of these options best describe your use of the “Sleep” activity setting? Select all statements that apply to you.
  I hadn't considered using sleep mode 24/7. I might try that. Thanks to all that commented.
- 1 month, 3 weeks ago
  
  Russell Buckbee likes your comment at
  Overall, how do you feel using a CGM affects your stress related to T1D management? If you’ve used one in the past, reflect on that experience to answer the question.
  I picked both. I am less stressed sleeping with CGM because it will catch lowes before they get too far. I get more stressed while driving. I can't easily get to my pump with my seat belt on. I use a phone holder in one vehicle but checking SG is destracted driving hence more stressful. Still much better than pumping blind.
- 1 month, 3 weeks ago
  
  KSannie likes your comment at
  If you use a Tandem insulin pump with Control IQ, which of these options best describe your use of the “Sleep” activity setting? Select all statements that apply to you.
  I hadn't considered using sleep mode 24/7. I might try that. Thanks to all that commented.
- 1 month, 4 weeks ago
  
  KarenM6 likes your comment at
  If you’re a person with T1D, after having multiple highs and lows over the course of a day, how affected do you most often feel – physically and emotionally – once your blood glucose levels are stable?
  I agree.
- 1 month, 4 weeks ago
  
  Jeff Balbirnie likes your comment at
  If you use an insulin pump, how happy are you with your current pump, on a scale of 1 to 5? Select the statement that is most accurate for you.
  #5 WHY DO WE HAVE 2 APPS! Tandem and Dexcom need to get their act together and integrate the two apps into one. Really? How hard can that be?
- 2 months, 2 weeks ago
  
  KCR likes your comment at
  In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
  For the first time this recurring question has come up, my CGM alarms did not wake me at all. I think it a convergence of the pump learning my evening patterns and how I can set up for a restful evening.
- 2 months, 3 weeks ago
  
  Jeff Marvel likes your comment at
  Have you ever changed diabetes healthcare providers because you did not agree on aspects of your T1D management? (E.g., disagreement about device choices, blood glucose goals, management decisions, etc.)
  My GP was of that same opinion when I was first Dx. He told me it was anecdotal.
- 3 months ago
  
  sweetcharlie likes your comment at
  If you have never participated in a diabetes research study, what stops you from participating? Select all that apply to you.
  I participated in one study about 7 years ago. It was for the T:slim X2, but I didn't know that then. I had 2 problems with the University that was running the test. They had me on the new pump and I was staying sequestered for 3 days. The first night I went low. They got up and offered me a snack but would not bolis for it. The snack was about 20 to 25 g of carbs. I warned them I would go high. I woke up the next morning with a SG of 300 they were alarmed and stopped my participation. At the exit interview the attending Dr told me I was pregnant. When a man gets the blood test that he may be pregnant, that may mean testicular cancer. Of course I was alarmed. I saw my GP and he reviewed the labs. He was concerned the charts were switched. He did another test that showed no signs of pregnancy or cancer. So long story short, I am more leary of trials that can be screwed up like mine was. I'm sure it was a one off, but what about the pregnant female?
- 3 months, 1 week ago
  
  KarenM6 likes your comment at
  Overall, how do you feel using an insulin pump affects your stress related to T1D management? (If you’ve used one in the past, reflect on that experience to answer the question.) Share more in the comments!
  The stress overall is less, but the one thing I didn't see in other comments was working around timing of replacing infusion set and resivor. Trying to make sure I take enough supplies when I travel and not wastig cartridges and infusion sets. It has been chalanging to get enough supplies to cover 3 monts for medicare regulated orders. I had to get my Endo to write 3 Rx to get to 4 boxes per order. It seems to be working now. We'll see at how many I have left at the end of July.
- 3 months, 2 weeks ago
  
  Kathy Hanavan likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Yeah. Totally agree! This is totally unnecessary and extremely annoying.
- 3 months, 3 weeks ago
  
  Lawrence S. likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Yeah. Totally agree! This is totally unnecessary and extremely annoying.
- 3 months, 3 weeks ago
  
  Janis Senungetuk likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Yeah. Totally agree! This is totally unnecessary and extremely annoying.
- 3 months, 3 weeks ago
  
  KarenM6 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Yeah. Totally agree! This is totally unnecessary and extremely annoying.
- 4 months, 1 week ago
  
  Wanacure likes your comment at
  Do you wear medical alert jewelry or something on your body to signify you have type 1 diabetes in case of an emergency?
  Thats why I ware a bracelet with the medalert symbol. Few out in the general population know what an insulin pump even looks like let know what to do. I would bet less than 50% of EMTs know. Less than 2 million type 1 out of 340 milion in the US. We are a very small percentage.
- 4 months, 1 week ago
  
  KCR likes your comment at
  What are three foods that raise your blood glucose the most dramatically despite your best efforts to count the carbs, pre-bolus insulin, and manage the impact?
  Breakfast cereal, bagels, Chinese food
- 4 months, 1 week ago
  
  Lawrence S. likes your comment at
  In the past 7 days, on how many days did you get at least 30 minutes of moderate aerobic exercise (e.g., brisk walk, swimming, light bike riding)?
  "Every time I think about exercizing I lie down until it passes" 🤔 JK! I get 15,000 + Steps a day walking the dog, doing yard work, doing chores.
- 4 months, 1 week ago
  
  Steven Gill likes your comment at
  In the past 7 days, on how many days did you get at least 30 minutes of moderate aerobic exercise (e.g., brisk walk, swimming, light bike riding)?
  "Every time I think about exercizing I lie down until it passes" 🤔 JK! I get 15,000 + Steps a day walking the dog, doing yard work, doing chores.
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101 Federal Street, Suite 440
Boston, MA 02110
Phone: 617-892-6100
Email: admin@t1dexchange.org

Name	TEH
About Me	I have used Insulin to treat my T1D for over 30 years.

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