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    • 1 second ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 hour, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 27 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 39 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 40 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 40 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 23 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 46 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 43 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 23 hours, 6 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 8 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 23 hours, 9 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 9 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 18 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    Today is the first day of National Diabetes Awareness Month! In the comments, please share your personal connection with T1D (e.g., “I have T1D myself”, “I have a child with T1D”, etc.) and then answer the following: What is one thing you wish someone close to you (a romantic partner, a parent, a friend) better understood about your experience with diabetes?

    Home > LC Polls > Today is the first day of National Diabetes Awareness Month! In the comments, please share your personal connection with T1D (e.g., “I have T1D myself”, “I have a child with T1D”, etc.) and then answer the following: What is one thing you wish someone close to you (a romantic partner, a parent, a friend) better understood about your experience with diabetes?
    Previous

    If you drink alcohol, do any of the following types of alcohol cause a noticeable drop in your blood glucose, even if you do not bolus? Select all that apply to you.

    Next

    On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (5 = the most satisfied, 1 = the least satisfied)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    137 Comments

    1. Teri Morris

      It is no one’s business but mine.

      3 years ago Log in to Reply
    2. ellencherry

      I have T1D. I think the hardest thing is the understanding that it’s serious. Sure I manage it, but it IS important that the people around me know what to do. I’m not being dramatic when I make sure someone in the house I’m sleeping in knows where the glucagon is when visiting relatives.

      2
      3 years ago Log in to Reply
    3. Jen Farley

      I have been a type 1 diabetic for 40 years. I do wish everyone would understand I have tried to educate and no one hears me. Since you can’t take the time trust my decisions on how I care for me! Thank you

      1
      3 years ago Log in to Reply
    4. Ahh Life

      An understanding of precision & responsible skepticism. ⛑️

      1
      3 years ago Log in to Reply
      1. pru barry

        Ahhmen!

        3 years ago Log in to Reply
    5. Sharon Schwartz

      I wish that people really understood how tough it is every single day to manage having diabetes.

      11
      3 years ago Log in to Reply
    6. Nevin Bowman

      It’s not going away anytime soon, or ever. And I live with that every day.

      2
      3 years ago Log in to Reply
    7. Stephen Woodward

      Sometimes life HAS TO STOP to deal with T1D stuff to stay alive.

      1
      3 years ago Log in to Reply
    8. Jana Venditte

      T1D 40 years kicking ass every day

      2
      3 years ago Log in to Reply
    9. Glenda Schuessler

      I have T1D. I wish others understood that this is a demanding 24/7 endeavor/lifestyle. Each hour of the day is a decision what to eat/avoid, how much to exercise or not, what medicines to take, what devices best support my health journey, how I balance diabetes education needs with the other time demands.

      5
      3 years ago Log in to Reply
    10. Nikki McDonald

      I have T1D myself. I wish my spouse understood the emotional toll it takes. Even when I have good BGs it’s something I constantly have to think about and manage.

      8
      3 years ago Log in to Reply
      1. karolinamalecki7@gmail.com

        Worded so well! I tried to say this but used many more words and couldn’t articulate well. Thanks for sharing!

        1
        3 years ago Log in to Reply
    11. Gary Taylor

      I have T1D. I think most people understand when I have to take a few moments throughout the day to deal with my diabetes/pump/sensor alarms. I wish people understand that there are some days when dealing with diabetes takes up more time than it should. But that is life with diabetes. In all things, God is good.

      3 years ago Log in to Reply
    12. vegarodenkirch

      My daughter has type 1

      3 years ago Log in to Reply
    13. Steven Jerdee

      I’ve had T1D for over 55 years

      1
      3 years ago Log in to Reply
    14. William Bennett

      T1D myself, dx’d 39 years ago, just after my 28th BD. Which I only discovered a few years ago is also International Diabetes Day. Not exactly sure how I feel about that, sharing my birthday with an awareness day for something I kinda wish I didn’t have ANY association with. But OTOH it’s also celebrating the BD of Dr Banting, and without his (actually there were several researchers involved) discovery of insulin I wouldn’t have had any more birthdays after age 28, so I’m ok with it from that perspective.

      1
      3 years ago Log in to Reply
    15. rick phillips

      I have had T1 for 48 years. The one thing I wish my wife to know every single day is that I still see her as the beautiful 17 year old that I saw 48 years ago.

      Yes that is not about disbetes per set, but it is. I met her her two months post DX and I thought ifvi could date her even with T1. She said no and I asked her more times. All nos. Then a year later she asked me out and 15 months later we were married.

      It has been 45 years since we got married and she has lived me more each day.

      So yes we found each other. She got diabetes and I got the best girl ever.

      2
      3 years ago Log in to Reply
    16. lenglish@cimginc.com

      I am reiterating what others have written…I wish for more understanding that this is hard! Yes, I make a lot of mistakes, but I like to think I make some good choices.

      2
      3 years ago Log in to Reply
    17. gary rind

      I have T1D. Frustrating as hell sometimes but could be much, much worse. Due to my age, I also know there won’t be a cure for me but I can deal with that reality.

      1
      3 years ago Log in to Reply
    18. Kathleen Begbie

      I have T1D. My brother had T1D and my male first cousin. Also a female first cousin of my mother’s.

      3 years ago Log in to Reply
    19. Tracy Hofmeyer

      Type 1 for 40 years. Every day is different and so many things can affect my sugars, outside of just insulin doses and what I eat. After many years, I’ve figured out what seems to work for me but our bodies change as we age, so what worked in the past may need fine-tuning and adjustment for today. It’s not a failure on my part when things don’t go perfectly, it’s just time to make new adjustments and carry on.

      2
      3 years ago Log in to Reply
    20. Hadley Horton

      Type 1 myself for 13 years. My partner is extremely supportive and aware that life needs to stop sometimes for T1D (often without having to make a big deal about it), however, I wish others did the same

      2
      3 years ago Log in to Reply
    21. Joan Fray

      I’ve had Type 1 for sixty years. Diagnosed age 12, 1962 or 3. Been married for 49 years. My husband has been the most amazing partner all those years. He accepts that I’m in charge of my own health in all aspects of life. We have gone scuba diving, mountain climbing, backpacking, traveled the world, we both worked until retirement, and we are still going reasonably strong. What i wish he understood better? That when I get discouraged, he can’t really make it better. But he sure tries!

      1
      3 years ago Log in to Reply
      1. cynthia jaworski

        My life has been similar (dx in 1962 at age 10) and my husband sounds similar, too. He truly understands that no matter what I am doing, I am also at some level keeping track of my type 1. He too respects my health decisions. Despite all this emphasis on the pervasive and constant nature of being type 1, I do not wish that to be the sole characteristic that defines me.

        1
        3 years ago Log in to Reply
    22. karolinamalecki7@gmail.com

      I have t1d. I wish people close to me understood that it’s always in the back of my head and how I can never stop thinking about it. They may remember when were being active “oh do you need a snack?” But they don’t know how largely it impacts EVERYTHING. And how could they? I didn’t know until I was diagnosed. At the same time, I hope none of my loved ones ever really have to understand it themselves because you truly can’t until you live it.

      6
      3 years ago Log in to Reply
    23. Steve Rumble

      I’ve been T1D since 1970. My family has been aware of T1D as long as they have been my family, so I am not aware of anything they could better understand my experience,

      3 years ago Log in to Reply
    24. Caitlin St. Jean

      I have T1D myself, diagnosed at 6 years old, have had for 33 years now. Just started on the Omnipod 5 last week and am super excited about how this new technology can help me manage the disease

      1
      3 years ago Log in to Reply
    25. George O Hamilton

      I am a Type 1 diabetic, diagnosed in 1963. My wife is a very understanding supporter of my efforts to manage daily care

      3 years ago Log in to Reply
    26. Marla Peaslee

      I have T1D myself. My son has T1D. I am very fortunate to be surrounded by family and friends who are very informed and aware of T1D. I couldn’t ask for anything more. T1D is a part of my life, I try to make good/informed choices in the management of a chronic condition. There is so much information about T1D available today. My most recent A1C was 6.8. Thank you Tandem and Dexcom. Fifty five years of living with T1D and still going strong. I should thank my mom for educating so many family and friends about T1D in the 1960’s on my behalf.

      3 years ago Log in to Reply
    27. Brett Crystal

      I have T1D myself and I’m fortunate that my wife is a pediatric endocrinologist. She was actually led to that career path as we started dating shortly after my diagnosis, and we learned about how to manage my diabetes together. She, and my other family members & friends, all seem to understand my diabetes and needs well. I can’t think of anything that those close to me don’t understand about my experiences.

      3 years ago Log in to Reply
    28. Selziixx95

      I have T1D myself. I wish the people close to me understood how much it all weighs on me and how I sometimes feel like giving up.

      6
      3 years ago Log in to Reply
      1. pru barry

        Do not give up! It doesn’t
        go away, sadly, but it doesn’t have to rock your boat so much that it sinks. I’m working through year 68, and have discovered that my whole brain doesn’t have to be engaged only in the I-am-a-diabetic trough. I agree, there are better (and lots) worse diseases to have. If you stick it out with a bit more care than most people have to deal with, old age will show that you’ve cared enough about things to be able to enjoy life. I’ve always believed that the things that require effort are the most rewarding.
        My 15 year old diabetic labradoodle died last week, and I’m heartbroken. He, too, was so much more than just a dog with diabetes.
        Take care of YOU.

        1
        3 years ago Log in to Reply
    29. Amy Jo

      I have T1D. I wish my spouse understood the mental toll managing this disease takes on me, and how exhausting it can be!

      7
      3 years ago Log in to Reply
    30. Tabatha Rush

      I have a 6 year old daughter that was diagnosed in January, 2021 (at 4 years old) and a stepson who was diagnosed at 3.5 (is now 25 years old). I wish my dad understood it better. I think he still thinks there is a cure and if she eats right, she’ll be fine.

      3
      3 years ago Log in to Reply
      1. AnitaS

        Unfortunately, many people think like that. People just don’t understand the difference between Type 1 & 2, and sometimes due diligence just doesn’t help people with type 2. I get so annoyed with advertisements that say they can “cure” diabetes.

        5
        3 years ago Log in to Reply
    31. Jen Serrano

      I have T1D myself

      1
      3 years ago Log in to Reply
      1. Jen Serrano

        I wish people understood how much of my brain has to stay dedicated to diabetes at all times.

        8
        3 years ago Log in to Reply
    32. Keith LeMar

      I’ve had T1D since 12/28/1966 and have a 39 year old son who got diagnosed in 2008. We’re both on Tandem Tslim X2 pumps.

      2
      3 years ago Log in to Reply
    33. Kristen Clifford

      I was diagnosed with T1D in April 2008, eight days before my 24th birthday. If there were one thing I wished others understood, it would be that others didn’t stare at me when my CGM goes off. Yes, I know it’s an annoying loud beeping sound. If you give me two seconds, I’ll take care of it.

      3
      3 years ago Log in to Reply
    34. Meerkat

      I have T1D. The work it takes to stay in control and stay healthy is a 24/7 job. Some days it is overwhelming!

      5
      3 years ago Log in to Reply
    35. Kathy Hanavan

      I have had t1d for 30 years and it is the rare person close to me who really gets the relentless, ongoing management and decisions that are needed 24hrs/day forever with NO BREAK!! That being said, I manage well most days.

      5
      3 years ago Log in to Reply
      1. Joan Fray

        Relentless is the perfect word!

        3 years ago Log in to Reply
    36. Scott Fearing

      I have T1D. I wish that people would understood that when my blood glucose goes low that it’s not because I want it to go low. It’s unplanned and I wish that my blood glucose didn’t go so low so quickly or as often as it does.

      5
      3 years ago Log in to Reply
    37. Mary Coleman

      I have T1D. My Mother had T1D. Altho my husband doesn’t really understand the disease process, he does understand how vigilant I have to be to keep on top of my numbers. I wish more people in my life really got how difficult T1D is to manage and that it’s a 24/7 job.

      2
      3 years ago Log in to Reply
    38. maorjoosw

      I am a t1d for 39 years, all alone in this journey, no one in family has it.

      2
      3 years ago Log in to Reply
    39. GLORIA MILLER

      I have had diabetes since 1957 as a young child. My spouse is very understanding of most things dealing with diabetes. Like others have said I do get tired of the constant 24/7 attention we all have to pay to our disease. Silly little things, like going to church or the symphony, and having to be watch the app closely that either the app or the PDM will alarm with a low is a bothersome. We can’t really relax and enjoy things without that being in the back of our mind.

      3
      3 years ago Log in to Reply
    40. Ginger Vieira

      I’ve lived with type 1 diabetes since 1999, almost 25 years ago.

      1
      3 years ago Log in to Reply
    41. AnitaS

      Type-1 since 1973 when I was 9 years old (almost 50 years). I really don’t know exactly what I would want anyone to understand. I really don’t think there is a way I can explain how difficult it can be sometimes to keep my blood sugar under control.

      4
      3 years ago Log in to Reply
    42. kalmay

      I have T1

      3 years ago Log in to Reply
    43. Bob Durstenfeld

      I have T1D, my dad had T1D, two out of three younger brothers have T1D, my eldest of three sons has T1D and my eldest of two granddaughters has T1D.
      The hardest thing for most people to understand is that each person’s experience with T1D is unique.

      5
      3 years ago Log in to Reply
      1. Joan Fray

        MY dad had T1D too. He got it 1943 (age 23) while on a Navy ship in WW2. So I figure I’ve lived with T1d since 1949, when he and my mom decided to go ahead and have a child even though that child (me)might get T1d. Thank goodness they did! I have one child, a son, age 45, not T1D. None of grandkids yet either.

        3 years ago Log in to Reply
    44. lis be

      type 1 myself, I wish people would understand how hard it is to constantly be the one responsible to myself and others for where those damn numbers are, and that no one can anticipate everything all the time..

      6
      3 years ago Log in to Reply
    45. jo

      I have type 1, I wish my family understood that I have many advantages with devices and advancements than my brother had who has passed. He was diagnosed in 1969, I was diagnosed in 2017. I also live a very different lifestyle, then he did.

      3 years ago Log in to Reply
    46. Ms Cris

      I have T1D myself.
      I wish I could get folks (and some doctors!) to understand that it’s an autoimmune disease, where the pancreas is attacked to the point of no longer producing and/or regulating six hormones.

      Without insulin, we die painfully over, what, a week? Longer if we starve ourselves and avoid all carbs. Too much insulin, we could die, too. It’s a lot of math.

      No, we cannot manage it with diet and food alone. No, I did not bring it on myself. No, the pump does not “do it all for me” so I can forget about it. No, I won’t turn off the beeping, it’s keeping me alive.
      *sigh*

      9
      3 years ago Log in to Reply
      1. Mick Martin

        @ Ms Cris. I agree with you, wholeheartedly, that SOME doctors … and other so-called medical personnel … should do some learning about different types of diabetes.

        I’ve had doctors telling me that diet alone would “cure” my diabetes as long as I exercise, AND that I “must” be Type 2 because of my age, even when I inform them that I developed Type 1 at the age of 22.

        4
        3 years ago Log in to Reply
      2. Ms Cris

        *diet and exercise alone.* Did I mention the brain fog? LOL!

        3 years ago Log in to Reply
      3. Ms Cris

        @Mick Martin, I developed it at 42! Luckily, while all the medical personnel in the ER kept taking blood not understanding what was going on, the ICU Doc (I was in DKA), pegged it right away and ran my AntiGAD – off the charts! As a teaching moment, they brought in like 12 residents “see, it’s autoimmune, any age sudden onset”. Then I found myself arguing with nurses that I was T1, not T2. 🙄

        1
        3 years ago Log in to Reply
    47. Mick Martin

      I have T1D myself.

      The one thing that I wish my partner better understood is that she does NOT know everything about diabetes, and she does NOT know better than medically qualified personnel. (I’d been admitted to hospital on one occasion when my blood glucose level was extremely low, but as I was ‘coming round’ after receiving treatment, I could hear my wife arguing with a nurse that one glucagon injection wouldn’t be enough to bring me round. She’s also argued with my brother about his medication … he’s a Type 2 diabetic … not being suitable for him, yet she knows very little, in my humble opinion, about the way that different oral medications work.)

      2
      3 years ago Log in to Reply
    48. Donald Cragun

      I have T1D myself.

      3 years ago Log in to Reply
    49. Claude Laforest

      A better understanding of the repeating alerts, once I have already eaten.

      3 years ago Log in to Reply
    50. Greg Felton

      I have had T1 diabetes for 40+ years. I wish people around me appreciated that while I should have it all figured out by now, diabetes has other plans sometimes, and it takes a lot of work.

      9
      3 years ago Log in to Reply
    51. James Hoare

      Diagnosed with T1D at 13, 62 years ago. When I think about what it has been like I find analogies helpful: it’s two careers and paths simultaneously; like a secret agent – always separate and hyper conscious of control, ‘seeming normal’; old enough to have owned more than one badly carburated car which could not be depended on for power when needed – I often compare my energy deprived self to them; cat with 9 lives etc but it is a bigger number considering how many times I have survived catastrophic lows ( extremely labile all this time ). I have often looked at obviously healthy folk and marveled at what they have, and may not appreciate. Had cancer this year but seem to have made it through, had open heart surgery then a heart attack following an extreme low at 5 am, got the heart disease. Lost vision in my right eye 38 years ago but laser technology saved my other eye the first year it was available to counter retinopathy. And this month I finally screwed up enough courage to have cataract surgery on my one working eye. Vision had gotten so poor I had my license revoked last month. But Holy Cow the operation was a great success – clear vision ( not perfect, no ) and the world is so much brighter! The milestones of technology for diabetics have appeared when I needed them most. The advent of disposable plastic syringes was so epic I left college to spend a year traveling in wild places with the rucksack. That put my parents through hell for sure. Should be said that when you see a good functioning T1D out there in the world you are most likely looking at a hugely successful and very hard working individual who most likely does not think they are. Did not mention depression but that has been part of the life too, along with optimism which might be delusional but heavy medicine. My best wishes to all.

      8
      3 years ago Log in to Reply
    52. GiGi

      I’ve had T1D since childhood. I was diagnosed in 1972. I was taught at an early age to take on full ownership of it. I don’t really have any issues with other’s understanding my T1D life.

      3 years ago Log in to Reply
    53. David & Kaleo of Team Nani

      I understand that it is hard and frustrating that lows can’t be instantly corrected w/ carbs and highs don’t go down five minutes after insulin.

      I’m not a light sleeper so high or low alarms that seem to inevitably happen just around 11 or 11:30 no matter how many adjustments I make to carbs, boluses, basals, post dinner walks…so I get that it’s disruptive and try to go to another room, but highs and lows happen at other times of the day and I deal with them and wish my partner could let me just roll with it rather than making it bigger than it is.

      1
      3 years ago Log in to Reply
    54. Sue Martin

      I’ve had T1D for 37 years. It would be nice if my husband understood how much I don’t want to have to think about it ALL the time. He’s more OCD than I am and would love to track all the data on me but I really don’t want to do that.
      I just feel like I need a break, but can’t take one.

      3
      3 years ago Log in to Reply
    55. Yaffa Steubinger

      I have T1 and two of my grandkids have T1. I don’t like it when my Dexcom alarm sounds and I get a lot of questions when friends are with me and then they’ll ask me a little later if my blood sugar is back to normal. I’ve got it. I don’t feel the need to explain, although I know they feel they’re showing concern.

      1
      3 years ago Log in to Reply
    56. mojoseje

      I am T1 and was diagnosed when I went into a coma 53 years ago on Halloween at the age of 7.

      3 years ago Log in to Reply
    57. Kristine Warmecke

      T1D for 40 years. That just because that person you know who has/had it, doesn’t mean that it will happen to me. We are all different, our bodies don’t act the same just because of T1D.

      1
      3 years ago Log in to Reply
    58. KCR

      My husband is a retired physician and he had to learn a lot about day-to-day life with diabetes, including how unpredictable it can be! He is a terrific support, for which I am very grateful.

      3 years ago Log in to Reply
    59. cmangels

      I have T1D myself.
      I wish other understood that even with the use of a pump and cgm, I will have unexplained high and lows at times, due to no fault of my own.

      8
      3 years ago Log in to Reply
    60. Melissael

      I am the mom of a T1D. I wish others understood that there is never a break from managing diabetes.

      4
      3 years ago Log in to Reply
    61. Becky Hertz

      T1D here. While I think my spouse has empathy for me, he really doesn’t get how highs (in particular) and lows affect my mood and emotions. Like someone in this site once said, you really don’t know unless you know.

      6
      3 years ago Log in to Reply
    62. Kim J

      I have Type 1.

      3 years ago Log in to Reply
    63. Lauren Carey

      I have T1D. I wish people knew how much I give up due to the cost of my medication and medical needs, due to guilt.

      1
      3 years ago Log in to Reply
    64. dave hedeen

      diabetes is a time dependent situation. there is always something affecting BG levels.

      2
      3 years ago Log in to Reply
    65. Pauline M Reynolds

      I have Type 1. Honestly, I can say that those close to me have been nothing but supportive throughout. It is probably because my husband and three of my children have Type 2.

      3 years ago Log in to Reply
    66. pennie228j@yahoo.com

      I have T1D, I was diagnosed in June 1977. I wish my husband understood how bad I can feel when I am low,

      3 years ago Log in to Reply
    67. Sarah Berry

      I have T1D myself, over 50 years.

      3 years ago Log in to Reply
    68. eherban1

      I have T1D myself

      3 years ago Log in to Reply
    69. melanie soroka

      I have a child with T1D. I wish people knew she can still eat anything she wants, I just need to cover it with insulin.

      1
      3 years ago Log in to Reply
    70. David Walton

      I have T1D and a nephew with T1D

      3 years ago Log in to Reply
    71. Tracy Jean

      I have T1D.

      3 years ago Log in to Reply
    72. Patricia Dalrymple

      I am LADA T1D. A diabetic from childhood once told my husband that he often doesn’t wake up on his own when he goes low. I wish first that the person had never shared that with my husband and second, I wish I could free my husband from that worry. I have been as low as 19 and nothing happened. I have never had a low that ended up with me in the hospital. I don’t like that he worries. And I don’t like that if he can’t tell if I’m breathing in my sleep, that he likes me and wakes me up 😍. But he’s a lovely support.

      1
      3 years ago Log in to Reply
      1. Patricia Dalrymple

        Correction: he pokes me.

        3 years ago Log in to Reply
      2. Mary Dexter

        My Dexcom helps a lot. My husband wakes up when the alarms sound, but he is now able to sleep more than he was sleeping. Before, he wasn’t sleeping at all, just in case.

        2
        3 years ago Log in to Reply
    73. Lynn Smith

      I have been a T1D for 55 years (since 1967). I think we can all wish that others in our life could understand what we all deal with on a daily basis. But, there is just no way someone without T1 could understand this beast of a disease. You have to have it to truly understand.

      2
      3 years ago Log in to Reply
    74. Eva

      To understand my relationship with diabetes is to understand my relationship with myself.
      To start, having diabetes means respecting my body, but especially my pancreas.
      Secondly, exercise does more than strengthen than my body. It sharpens my mind. Lastly, my experience with diabetes is a balancing act between my mind, body and soul.

      1
      3 years ago Log in to Reply
    75. Mary Ann Sayers

      I’ve had T1D for 68 years. Early years where hardest of all. I was 7 years old when dx.
      At 75, I realize only another T1D can UNDERSTANDI, but I try compare the changes that take place in me (when in a reaction) to changes that one MIGHT FEEL after a few drinks. Appearances can be deceiving–all I need is apple juice! I usually bring some with me wherever I go.

      1
      3 years ago Log in to Reply
      1. Joan Fray

        You are an inspiration for us all! Keep on keeping’ on, girlfriend!

        3 years ago Log in to Reply
    76. Amanda Barras

      I have T1D.
      I wish my spouse would t criticize when I struggle with lows as if they are my fault. Some times I’m actively adjusting dosing to accommodate but fixes to get it right doesn’t happen over night and it’s always trial and error. This he just assumes I’m doing something wrong. And that’s so hurtful when I feel terrible from the low and am frustrated too.

      2
      3 years ago Log in to Reply
      1. Lawrence S.

        Amanda,
        You’re not alone on this issue. I love my wife dearly, and she loves me. But, she gets very upset with me when I have low BG’s. She helps me when I need the help.

        3 years ago Log in to Reply
      2. Kathy Hanavan

        I can’t imagine that and it is really not ok to get criticized for something we often have no control over in the moment. Have you talked to him about how you feel about his comments?

        3 years ago Log in to Reply
    77. Robert L Nelson

      All of the mood swings that are associated with T1D!!

      3 years ago Log in to Reply
    78. Mary Dexter

      I have LADA. Just like too many others, I was first misdiagnosed as T2. When I wrote The Sweet Lowdown 10 years ago, the research I read said 20% were being initially misdiagnosed. The latest research says it’s 40 %. Since Theresa May, researchers worldwide have noted that the majority of those newly diagnosed with autoimmune diabetes are adults. We are going backwards.

      1
      3 years ago Log in to Reply
    79. Debbie Dallmann

      I have T1D myself. My husband was also married to a T1D, but she passed due to complications. He knows that I try hard (every day) to do my best, but it’s literally a struggle every single day. He is a wonderful support, but there are times I wish he could be just a little more understanding.

      3
      3 years ago Log in to Reply
    80. KarenM6

      I have T1D myself. Have had it for 51 years.
      I wish I were better at explaining it so that others without diabetes could understand.

      3 years ago Log in to Reply
    81. James Phelps

      I am a T1D and had to teach my wife the ups and downs of diabetes and that it’s not easy and frustrating and if sugar was high I would get angry and if it was low I would get angry and it’s the diabetes that gets me In a bad mood. So after 37yrs she understands my moods are towards the diabetes not her.

      1
      3 years ago Log in to Reply
    82. Janis Senungetuk

      I have lived with T1 diabetes for the past 67 years. It’s not my sole identity, so I don’t label myself. My spouse and I very recently celebrated our 40th anniversary. Over the years she has learned more and more re. the 24/7 challenge of life w T1. My one wish is that she continues to be my advocate.

      2
      3 years ago Log in to Reply
    83. Joan Fray

      Wow, aren’t we something! congratulations to all of you! Just staying alive is such an accomplishment! We are awesome!

      6
      3 years ago Log in to Reply
    84. Richard Vaughn

      I have T1D myself for 77 years.
      My wife was wonderful in helping me from 1964 until a few years ago. She understood diabetes very well.
      Now my wife has all the symptoms of Alzheimer’s disease and her memory is not good at all. I am on my own as far as my T1D is concerned.

      1
      3 years ago Log in to Reply
      1. Kathy Hanavan

        I am sorry about your wife and biggest supporter. It has to be SO hard!

        1
        3 years ago Log in to Reply
      2. pru barry

        You have been, and continue to be one of my inspirations.!
        pru

        1
        3 years ago Log in to Reply
      3. Ernie Richmann

        Sorry to hear about your wife.

        1
        3 years ago Log in to Reply
      4. Bea Anderson

        I think people would have to be mind readers! While hiking recently with my husband I had unexpected low. My alarms had been turned off for church and I forgot to turn back on! So I dug in backpack for fruit snack and put glucose tabs in pocket. I always reassure all is well. Gradually ate two tabs. Finally my husband asks if i can walk faster. I say I can try. Irritatedly he asks how low was I? I check and say 40. He then asked how I could still be walking and he would have been on the ground. He felt bad. I didn’t think clearly enough to describe situation. As we slowly hiked on he asked if I was feeling better. It took about 15-20 min to completely recover and enjoy the day. So, it is my t1 alone. But shared, too.

        3 years ago Log in to Reply
      5. Bea Anderson

        Sorry my main answer went under your comment Richard! And will always feel honored to meet your beautiful wife years ago. All my best to you!!

        3 years ago Log in to Reply
    85. Robin Melen

      I am 62 and have been T1D for just over a year. I am so lucky to have a husband who keeps tabs on me every day! He checks his Dexcom app and emails me when I’m high/low/good! We discuss my highs and lows, adjust the math on the pump, count the carbs together. Couldn’t do it without him!

      2
      3 years ago Log in to Reply
    86. Joan Plog

      I wish my husband would understand that even one bite of food affects me. He just doesn’t get it sometimes.

      1
      3 years ago Log in to Reply
    87. Hark87

      Mood swings 🙄

      1
      3 years ago Log in to Reply
    88. Mary Boudousquie

      I have T1D and my son does also. My friends think I do so well controlling it but they don’t live with me. My husband & son are my best advocates.

      3 years ago Log in to Reply
    89. Vivian Moon

      I have had T1D 50+ years

      1
      3 years ago Log in to Reply
    90. maggiemay7539

      I am the type 1 diabetic. I wish people understood I do my best to control it but some days are good and some are bad

      2
      3 years ago Log in to Reply
    91. Maureen Helinski

      My husband doesn’t understand how I can go HIGH or LOW with the equipment I have and this is after 40 years. I say no matter it sometimes goes crazy even with my knowledge.

      2
      3 years ago Log in to Reply
    92. ConnieT1D62

      A T1 PWD has to maintain diabetes self-awareness (what I refer to as diabetes consciousness) 24/7/365 for the rest of one’s entire life experience.

      2
      3 years ago Log in to Reply
    93. Kris van Bergen

      I wish that others close to me realized how much mental load I carry to coordinate insurance/supply orders/care coordination/worry/etc. on top of the daily 24/7/365 diabetes management I do as a parent of a kid with T1D. It’s exhausting, and frustrating, and some days I want to just give up, but can’t because there is literally a life on the line.

      3
      3 years ago Log in to Reply
    94. Ernie Richmann

      I have T1D myself. One thing I wish was that people I am eating with understand that I can’t wait much longer than 30 minutes after taking insulin to begin eating. Also if I am already low, maybe not take forever to decide a meal choice at a restaurant. Finally, I am used to moving after the meal so please understand if I get up before the conversation has ended.

      1
      3 years ago Log in to Reply
    95. Molly Jones

      My family is very supportive. I wish everyone in general could understand what we currently know of biochemistry and neurochemistry better. So many things people are blamed for….

      1
      3 years ago Log in to Reply
    96. Janice Bianchi-Lurati

      I have Juvenile Diabetes now known as Type 1
      Diagnosed in 1960
      My older brother was diagnosed in 1955
      My niece was diagnosed in 1982/83
      My great niece was diagnosed in 2013
      You can do everything perfectly ie. diet, medication, rest and exercise and all is good most of the time, however, there are days that it doesn’t work and there’s no rhyme or reason why. You must learn to live with it or become so frustrated you do more harm than good.

      4
      3 years ago Log in to Reply
    97. Melissa Childers

      I have T1 Diabetes. I wish my spouse understood how I feel when my blood sugar fluctuates.

      1
      3 years ago Log in to Reply
    98. John McHenery

      I have T1D. Guess I am lucky, my wife understands it pretty well and helps me look after myself.

      3 years ago Log in to Reply
    99. Linda Pease

      I am the only type 1 in my family but have several type 2 including both parents. My boys do not have it thank God. The thing I wish ppl would understand is I get tired of being told that I can diet my way out of needing insulin. I do not have any. I do have moments where I did everything correct and still experience a low or a high that wasn’t expecting its not that I did a no no I just happens.

      2
      3 years ago Log in to Reply
    100. jamesmpii

      Understanding that this is an autoimmune disease and not necessarily the result of life choices.

      3
      3 years ago Log in to Reply
      1. Sadie Robinson

        I wished my son understood my TID especially when I am hypoglycemic.

        1
        3 years ago Log in to Reply
      2. K Ro

        I wish people understood the extreme level of chronic fatigue I have. My control is good so that’s not the problem- i count carbs, correct highs, and do cardio and weight training. I am so exhausted ALL THE FREAKING TIME.

        3 years ago Log in to Reply
    101. Annie Simon

      I am a newly diagnosed T1D at the age of 56 in 2018. My family is extremely supportive and wouldn’t have made it this far without them. My diagnosis was most unexpected and sudden yet I give myself a lot of credit as I have been an exceptional patient and have followed my endocrinologist and diabetic team advice and have come a long way in understanding and controlling diabetes. My Freestyle Libre sensor has been a game changer for me personally and along with healthy eating, exercise and following my protocols with insulin I have been able to control my sugars and will continue to improve as I want to have the best quality of life even though I have been diagnosed with T1D. I’m up for the challenge!

      3 years ago Log in to Reply
    102. Steven Gill

      As a TYPE 1 erroneously diagnosed TYPE 2 24 years ago (understandably, obese workaholic who literally ate and drank everything) mysticly changed to TYPE 1 after a 3 year honeymoon. Single, living alone except with periods of time with roommates (relatives, tenants, and yes sweeties), always with pets: over 30 years had 2 dozen dogs in my shack… 10 I kept, 5 I bought from the neighborhood to get healthy/train/rehome. One I inherited to rehome, several strays I found their home, the rest my roommates. This is to say never bored or lonely.

      This is tough to answer, I don’t expect anyone to understand me. Living alone it’s literally all about me (and my herd), I’m as selfish as I want, as lazy as I can, and been known to have a mower carburetor on my work bench at 2AM cussing it out (and be at work at 7). What I wish another to know?

      Males in my family don’t see 70. Hope to beat that, I have 7 years to do it (unlike them am a non-smoker, light-drinker, pretty healthy and good cook: so hope to earn another year or two) but I figure to get all the living in I can. Ummm…. get out of my way?
      (had a black eye from a hypo, came to on the floor under my workbench, got stuck in a washer barely getting out to drink as hi-test coke, and carry cokes under a crawlspace at work and had to drink it to get out. But I’m winning?)

      1
      3 years ago Log in to Reply
    103. Tb-well

      3/8/90 is my diaversary.

      3 years ago Log in to Reply
    104. Yerachmiel

      Connection between blood sugar, mood, ability to understand and act

      1
      3 years ago Log in to Reply
    105. anj1832

      I wish my parents didn’t treat doctors visits and a1c checks as my report card. I wish they didn’t put so much pressure on me to fill out logs, because when I lied on them and my a1c was high (7s) they made me feel like I failed. It’s followed me to adulthood and I often break down crying during endo visits because I feel like I’ve failed.

      3 years ago Log in to Reply
    106. Marie Foster

      My 14 y.o. daughter has been type 1 for 13 years. I wish my work / work friends understood how much it actually consumes my life as well as hers.

      1
      3 years ago Log in to Reply
    107. Shelly Smith

      I have T1D myself. If I could get it across, the one thing that I wish was more understood: it takes time to be a diabetic. It takes time to change my set, time to test, time to count every bite of food that I eat, time to bolus, time to see doctors, etc.

      3 years ago Log in to Reply
    108. Donna Trast

      I have type 1 diabetes for 55 years now. I have 2 daughters with type 1, diagnosed at age 5 and the other at age 12. I now have my amazing granddaughter, who just turned 8 & was diagnosed with type 1 4 days after her birthday. I am heartbroken over this and angry that we all have it. I wish my siblings and close friends had an inkling of what it’s really like and all that’s involved with managing type 1 diabetes. Just because we all look fine doesn’t mean everything is easy.

      2
      3 years ago Log in to Reply
    109. PamK

      I have T1D myself – – for 58 years! I wish I could explain how much it bothers me when my husband gets upset because my blood sugar isn’t perfect. After 32 years together, he’s finally starting to get it!

      3 years ago Log in to Reply
    110. T1D4LongTime

      I’ve been a T1D for 56 years since the 1st grade. My husband is Type 2, so he is much more aware of how BG levels me and him too. I do wish he would realize that when I’m bolusing that I need to focus on the task and complete it (figuring extended bolus times,expected exercise, etc) rather than continue to talk to me and ask me questions. Especially frustrating when my BG is low and I’ve eaten, but I’m still low.

      3 years ago Log in to Reply
    111. wyndare3

      I am T1D. I would like my support person to experience dealing with a going low alarm/ situation to better understand the intensity. Maybe it’s just me but 77 and an arrow pointing straight down on my reader isn’t exactly a fun day at the park.

      3 years ago Log in to Reply
    112. K Ro

      I have T1D and so does my younger sister.

      3 years ago Log in to Reply
    113. davidgenesse@hotmail.com

      I have a child with T1D

      How I’m impress of my 14yo daughter with T1D, how impressive she are, how positive she stay even I feel she’s crushed inside sometimes.

      3 years ago Log in to Reply
    114. Nichole Pleisch

      I have T1D (and so does my Fiancé) I wish my family understood that I never get a break from diabetes and just having a little compassion would go a long way.

      3 years ago Log in to Reply

    Today is the first day of National Diabetes Awareness Month! In the comments, please share your personal connection with T1D (e.g., “I have T1D myself”, “I have a child with T1D”, etc.) and then answer the following: What is one thing you wish someone close to you (a romantic partner, a parent, a friend) better understood about your experience with diabetes? Cancel reply

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