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    • 52 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 53 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 8 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 9 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 3 hours, 29 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 10 hours, 38 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 10 hours, 39 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 12 hours, 35 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 12 hours, 51 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    What was your A1c at the time of your T1D diagnosis?

    Home > LC Polls > What was your A1c at the time of your T1D diagnosis?
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    47 Comments

    1. Melinda Lipe

      Really? I don’t remember getting an A1C until many years after diagnosis.

      2 months ago Log in to Reply
    2. LizB

      I don’t know any of my numbers from my time in the hospital, probably because they meant nothing to me at the time.

      3
      2 months ago Log in to Reply
    3. Lenora Ventura

      Never heard what my A1C was but my blood sugar was 856. I can only imagine what it was…..

      2 months ago Log in to Reply
    4. Teri Morris

      They said it was around 700, which would be over 33 mmol/l….I was slipping into a coma on the way to hospital. Very painful trip!

      2 months ago Log in to Reply
    5. ELYSSE HELLER

      A1c measurements were not around when I got diagnosed, but my BG was either 1200 or 1300.

      2 months ago Log in to Reply
    6. Robert Wilson

      My Blood Sugar was 688 in the USA. My A1c wasn’t done till 3 months later.

      2 months ago Log in to Reply
    7. Eva

      I don’t remember the exact number. I what I do remember is that my BG was starting to creep up as a result of pancreatic insufficiency. But my physician thought to hold off on the insulin as long as possible cause he didn’t want me to experience severe hypoglycemia.

      2 months ago Log in to Reply
    8. Robin Melen

      I was in DKA when I went to the hospital – sick as a dog! That was when I was diagnosed.

      2 months ago Log in to Reply
    9. Dennis Dacey

      Seventeen years after my diagnosis I participated in the project developing the glycated hemoglobin analysis which is called HgA1c / HbA1c. My blood sugar was estimated as “just over 1700” and I was heavily into acidosis poisoning.

      1
      2 months ago Log in to Reply
      1. JuJuB

        I was just shy of 4 years old, and my mother was told my bG was over 1600. I always say, “with the testing methods available at the time”, which was in 1970. I don’t know what those methods were, or if the same blood sample would measure differently today, but I have always found that number difficult to fathom.

        2 months ago Log in to Reply
    10. Grey Gray

      Amazing how much Diabetes management has changed. When 1st diagnosed I was peeing on glucose/ketone strips. Now your asking me about a test I find antiquated and less than usefull…. Time in range is my standard now.

      2
      2 months ago Log in to Reply
    11. AimmcG

      I don’t know what my A1C was but the doctor was shocked that I could even walk because my sugar was @800

      1
      2 months ago Log in to Reply
      1. KCR

        Same here!

        2 months ago Log in to Reply
    12. Philip Bunsick

      Interesting that the questions is really not what is done clinically. As most are saying no A1c, just a quick finger test showing 1500+. The diagnosis was not too difficult after that.

      2 months ago Log in to Reply
      1. Amanda Barras

        Mine was a urine test in office that was positive for ketones and off to the hospital I went to be admitted for a week. I’m sure they ran more specific labs there, but I was barely 4 years old so I don’t remember specifics.

        2 months ago Log in to Reply
    13. Patricia Kilwein

      I just remember a couple of lows (30). Pretty scary. Dr ordered a blood that had to be sent to COLORADO. Took 2 weeks for results, they came back with positive markers for T1D.

      2 months ago Log in to Reply
      1. Patricia Kilwein

        Blood test.

        2 months ago Log in to Reply
      2. Jneticdiabetic

        Hi Patricia. I also had a history of low blood sugars before my T1D diagnosis (about 6 years pre-diagnosis in my case). Have wondered if that was an early sign of beta cell dysfunction.

        2 months ago Log in to Reply
    14. Amanda Barras

      I do not know.
      I had just barely turned 4 years old at dx.

      2 months ago Log in to Reply
    15. Joan Benedetto

      10.4 with BG of 454. He was 18 mos old.

      2 months ago Log in to Reply
    16. Jim Andrews

      The A1C test didn’t exist when I was diagnosed 56 years ago.

      1
      2 months ago Log in to Reply
    17. Jeanne McMillan-Olson

      There was no A1c in 1955 when I was 9 yrs old. Myblood sugar was in the 400s. I was getting very drowsy when finally admitted to the Virginia Mason hospital. My current endo was involved in the research for the A1c. He now uses time in range. It is Medicare that requires an A1c every 3 months!

      1
      2 months ago Log in to Reply
    18. Jen Farley

      I do not know. I do know he did a test that came back with an over 600 for a reading of that moment. Close to a finger poke test now, but too way longer. I remember I had just gotten paid for a babysitting job and had bought candy I could never eat and was promised a cheeseburger and milkshake for going to the doctor. I was 13 yo and weighed 70lbs and glad now that nightmare ended before my death. So, test used, unknown, results, priceless!

      2 months ago Log in to Reply
    19. BARRY HUNSINGER

      I don’t know the mmo/ml, I do know it was 550 gasting at 8 in the morning.

      2 months ago Log in to Reply
    20. Randy Reed

      I was 20years into diabetes when A1C came uot

      1
      2 months ago Log in to Reply
    21. gary rind

      mine was 12.4. three months later, got it down to 7.0 so no pump for me!

      2 months ago Log in to Reply
    22. Virginia Barndollar

      1965 No A1c’s

      1
      2 months ago Log in to Reply
    23. Kevin McCue

      In 1992 at time of diagnosis I only remember the sugar numbers not the long term hba1c and don’t believe it was measured

      2 months ago Log in to Reply
    24. Trina Blake

      I don’t know, I was found in a DKA coma (not that I knew that at the time) by a nosy (thankfully, this time) neighbor who had a key to my house. She thought it best to call my day job to let them know I wasn’t coming in to work that day. Thank goodness my day job was with a large city Fire Dept. The dispatched EMS from HQ. Those guys saved my life.

      1
      2 months ago Log in to Reply
      1. Trina Blake

        AS a humorous side note, I had been feeling awful that weekend, decided to wear pj’s and go to bed. Thank goodness – the first responders were my co-workers. And in spite of the fact that in that job they see all sorts of people in all sorts of undress – these were my colleagues!!!!

        4
        2 months ago Log in to Reply
      2. AnitaS

        My cousin who was a type-1 (besides me), had EMS at her home often and because she would sweat when having a severe low, she would usually undress herself before becoming unconscious. One day when she was out and about, a paramedic greeted her and said “Joan, it is nice to see you with your clothes on!” šŸ™‚

        1
        2 months ago Log in to Reply
    25. Janis Senungetuk

      The test didn’t exist when I was diagnosed in 1955.

      1
      2 months ago Log in to Reply
    26. Steve Rumble

      I do not believe A1C measurements were available when I was diagnosed in 1970

      2 months ago Log in to Reply
    27. Marty

      I only remember that my diabetic friend who diagnosed me with his own BG meter was shocked and felt he needed to get me to the clinic ASAP. I didn’t really pay attention to any lab results, which didn’t mean anything to me at the time. I continued to believe it was all a big mistake and I’d get over it soon on my own. I firmly embraced denial until they put me in a room to learn how to do insulin injections about a week later.

      2 months ago Log in to Reply
    28. T1D4LongTime

      LOL! 1966 had no A1C, current sugars were thought to be known with testing urine. So inaccurate!

      2
      2 months ago Log in to Reply
    29. KarenM6

      A1c was still about 5 years away from becoming a tool.
      I don’t know my BS# either. I was 5 and I don’t think anyone thought I needed to know. *shrugs

      2 months ago Log in to Reply
    30. Chris Albright

      Too many years ago to recall……..

      2 months ago Log in to Reply
    31. Pauline M Reynolds

      At time of diagnosis, my fasting BG was 229.

      2 months ago Log in to Reply
      1. Pauline M Reynolds

        Oh, and I went to the doctor because I thought I was having a nervous breakdown!

        2 months ago Log in to Reply
    32. Kris Sykes-David

      I said I don’t know, actually, I don’t remember! Maybe in the sevens? Or nines.? I wasn’t in DKA, had a long LADA honeymoon, and caught it early.

      2 months ago Log in to Reply
    33. Thomas Cline

      I went to the doctor (GP) only because of severe leg cramps that actually caused me to collapse on the street while walking with some friends. I was oblivious to the fact that I had all the standard symptoms of Type 1 diabetes except for being 56 years old — in fact I had been delighted with the effortless weight loss! First thing she did was measure my blood sugar, but she had to look up what a reading of “high” meant on the meter (= >500 mg/dl). Then and there she (mis)diagnosed me as Type II simply because of my age. A few weeks later I saw my first endocrinologist who took one look at me and said I was likely Type 1 (he ordered an antibody test that cliched the diagnosis). I don’t know why as late as 2002 a young, smart doctor would not know that adults can get Type I. I hope medical education has caught up with reality since then.

      2 months ago Log in to Reply
    34. Molly Jones

      I don’t remember what my A1C or BG was.
      All the comments sparked my interest in the history of HbA1c
      I saw an article on pubmed.gov stating: “Using the HbA1c as a biomarker for monitoring the levels of glucose among diabetic patients was first proposed by Koenig et al.7 in 1976.”
      Due to all the tested dogs and patients before the discovery of insulin having sweet urine, I assumed it was earlier.

      2 months ago Log in to Reply
    35. RegMunro

      My bg after the glucose tolerance test was about 660 so that was that. I doubt AIC had been implemented here in South Africa back in 1966

      2 months ago Log in to Reply
    36. John Henninger

      I do not remember an A1C but my blood sugar was 640 with classic urination and water drinking issues. Added to it was Keto issues. The doctor told me about diabetes, and I said ok, fine and got up to go home. He stopped me and said, “I am admitting you to the hospital now” and they took me upstairs to my hospital bed. A vivid memory from many years ago.

      2 months ago Log in to Reply
    37. sweet charlie

      that test did not exist 70 years ago.

      1 month ago Log in to Reply
    38. Becky Hertz

      I was diagnosed in 1974. I don’t remember hearing about an A1c. Were they done then?

      1 month ago Log in to Reply
    39. Andrea Hultman

      We didn’t check my A1c to diagnose; we checked postprandial blood glucose. Had to hold up the reagent test strip to the color code on the Chemstrips container. Anybody else remember those old days? (1980s.) BG was around 240. Pretty obvious I had T1D.

      3 weeks ago Log in to Reply

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