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    • 4 hours, 13 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 4 hours, 14 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 4 hours, 15 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 4 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 1 day, 23 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 1 hour ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 2 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 2 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 2 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 3 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 4 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 2 days, 15 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 20 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 2 days, 20 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 13 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 13 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 3 days, 20 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 3 days, 20 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
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    What was your A1c at the time of your T1D diagnosis?

    Home > LC Polls > What was your A1c at the time of your T1D diagnosis?
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    Have you experienced any life transitions during which it has been particularly difficult to manage T1D? Select all that apply to you.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    47 Comments

    1. Melinda Lipe

      Really? I don’t remember getting an A1C until many years after diagnosis.

      9 months ago Log in to Reply
    2. LizB

      I don’t know any of my numbers from my time in the hospital, probably because they meant nothing to me at the time.

      3
      9 months ago Log in to Reply
    3. Lenora Ventura

      Never heard what my A1C was but my blood sugar was 856. I can only imagine what it was…..

      9 months ago Log in to Reply
    4. Teri Morris

      They said it was around 700, which would be over 33 mmol/l….I was slipping into a coma on the way to hospital. Very painful trip!

      9 months ago Log in to Reply
    5. ELYSSE HELLER

      A1c measurements were not around when I got diagnosed, but my BG was either 1200 or 1300.

      9 months ago Log in to Reply
    6. Robert Wilson

      My Blood Sugar was 688 in the USA. My A1c wasn’t done till 3 months later.

      9 months ago Log in to Reply
    7. Eva

      I don’t remember the exact number. I what I do remember is that my BG was starting to creep up as a result of pancreatic insufficiency. But my physician thought to hold off on the insulin as long as possible cause he didn’t want me to experience severe hypoglycemia.

      9 months ago Log in to Reply
    8. Robin Melen

      I was in DKA when I went to the hospital – sick as a dog! That was when I was diagnosed.

      9 months ago Log in to Reply
    9. Dennis Dacey

      Seventeen years after my diagnosis I participated in the project developing the glycated hemoglobin analysis which is called HgA1c / HbA1c. My blood sugar was estimated as “just over 1700” and I was heavily into acidosis poisoning.

      1
      9 months ago Log in to Reply
      1. JuJuB

        I was just shy of 4 years old, and my mother was told my bG was over 1600. I always say, “with the testing methods available at the time”, which was in 1970. I don’t know what those methods were, or if the same blood sample would measure differently today, but I have always found that number difficult to fathom.

        9 months ago Log in to Reply
    10. Grey Gray

      Amazing how much Diabetes management has changed. When 1st diagnosed I was peeing on glucose/ketone strips. Now your asking me about a test I find antiquated and less than usefull…. Time in range is my standard now.

      2
      9 months ago Log in to Reply
    11. AimmcG

      I don’t know what my A1C was but the doctor was shocked that I could even walk because my sugar was @800

      1
      9 months ago Log in to Reply
      1. KCR

        Same here!

        9 months ago Log in to Reply
    12. Philip Bunsick

      Interesting that the questions is really not what is done clinically. As most are saying no A1c, just a quick finger test showing 1500+. The diagnosis was not too difficult after that.

      9 months ago Log in to Reply
      1. Amanda Barras

        Mine was a urine test in office that was positive for ketones and off to the hospital I went to be admitted for a week. I’m sure they ran more specific labs there, but I was barely 4 years old so I don’t remember specifics.

        9 months ago Log in to Reply
    13. Patricia Kilwein

      I just remember a couple of lows (30). Pretty scary. Dr ordered a blood that had to be sent to COLORADO. Took 2 weeks for results, they came back with positive markers for T1D.

      9 months ago Log in to Reply
      1. Patricia Kilwein

        Blood test.

        9 months ago Log in to Reply
      2. Jneticdiabetic

        Hi Patricia. I also had a history of low blood sugars before my T1D diagnosis (about 6 years pre-diagnosis in my case). Have wondered if that was an early sign of beta cell dysfunction.

        9 months ago Log in to Reply
    14. Amanda Barras

      I do not know.
      I had just barely turned 4 years old at dx.

      9 months ago Log in to Reply
    15. Joan Benedetto

      10.4 with BG of 454. He was 18 mos old.

      9 months ago Log in to Reply
    16. Jim Andrews

      The A1C test didn’t exist when I was diagnosed 56 years ago.

      1
      9 months ago Log in to Reply
    17. Jeanne McMillan-Olson

      There was no A1c in 1955 when I was 9 yrs old. Myblood sugar was in the 400s. I was getting very drowsy when finally admitted to the Virginia Mason hospital. My current endo was involved in the research for the A1c. He now uses time in range. It is Medicare that requires an A1c every 3 months!

      1
      9 months ago Log in to Reply
    18. Jen Farley

      I do not know. I do know he did a test that came back with an over 600 for a reading of that moment. Close to a finger poke test now, but too way longer. I remember I had just gotten paid for a babysitting job and had bought candy I could never eat and was promised a cheeseburger and milkshake for going to the doctor. I was 13 yo and weighed 70lbs and glad now that nightmare ended before my death. So, test used, unknown, results, priceless!

      9 months ago Log in to Reply
    19. BARRY HUNSINGER

      I don’t know the mmo/ml, I do know it was 550 gasting at 8 in the morning.

      9 months ago Log in to Reply
    20. Randy Reed

      I was 20years into diabetes when A1C came uot

      1
      9 months ago Log in to Reply
    21. gary rind

      mine was 12.4. three months later, got it down to 7.0 so no pump for me!

      9 months ago Log in to Reply
    22. Virginia Barndollar

      1965 No A1c’s

      1
      9 months ago Log in to Reply
    23. Kevin McCue

      In 1992 at time of diagnosis I only remember the sugar numbers not the long term hba1c and don’t believe it was measured

      9 months ago Log in to Reply
    24. Trina Blake

      I don’t know, I was found in a DKA coma (not that I knew that at the time) by a nosy (thankfully, this time) neighbor who had a key to my house. She thought it best to call my day job to let them know I wasn’t coming in to work that day. Thank goodness my day job was with a large city Fire Dept. The dispatched EMS from HQ. Those guys saved my life.

      1
      9 months ago Log in to Reply
      1. Trina Blake

        AS a humorous side note, I had been feeling awful that weekend, decided to wear pj’s and go to bed. Thank goodness – the first responders were my co-workers. And in spite of the fact that in that job they see all sorts of people in all sorts of undress – these were my colleagues!!!!

        4
        9 months ago Log in to Reply
      2. AnitaS

        My cousin who was a type-1 (besides me), had EMS at her home often and because she would sweat when having a severe low, she would usually undress herself before becoming unconscious. One day when she was out and about, a paramedic greeted her and said “Joan, it is nice to see you with your clothes on!” 🙂

        1
        9 months ago Log in to Reply
    25. Janis Senungetuk

      The test didn’t exist when I was diagnosed in 1955.

      1
      9 months ago Log in to Reply
    26. Steve Rumble

      I do not believe A1C measurements were available when I was diagnosed in 1970

      9 months ago Log in to Reply
    27. Marty

      I only remember that my diabetic friend who diagnosed me with his own BG meter was shocked and felt he needed to get me to the clinic ASAP. I didn’t really pay attention to any lab results, which didn’t mean anything to me at the time. I continued to believe it was all a big mistake and I’d get over it soon on my own. I firmly embraced denial until they put me in a room to learn how to do insulin injections about a week later.

      9 months ago Log in to Reply
    28. T1D4LongTime

      LOL! 1966 had no A1C, current sugars were thought to be known with testing urine. So inaccurate!

      2
      9 months ago Log in to Reply
    29. KarenM6

      A1c was still about 5 years away from becoming a tool.
      I don’t know my BS# either. I was 5 and I don’t think anyone thought I needed to know. *shrugs

      9 months ago Log in to Reply
    30. Chris Albright

      Too many years ago to recall……..

      9 months ago Log in to Reply
    31. Pauline M Reynolds

      At time of diagnosis, my fasting BG was 229.

      9 months ago Log in to Reply
      1. Pauline M Reynolds

        Oh, and I went to the doctor because I thought I was having a nervous breakdown!

        9 months ago Log in to Reply
    32. Kris Sykes-David

      I said I don’t know, actually, I don’t remember! Maybe in the sevens? Or nines.? I wasn’t in DKA, had a long LADA honeymoon, and caught it early.

      9 months ago Log in to Reply
    33. Thomas Cline

      I went to the doctor (GP) only because of severe leg cramps that actually caused me to collapse on the street while walking with some friends. I was oblivious to the fact that I had all the standard symptoms of Type 1 diabetes except for being 56 years old — in fact I had been delighted with the effortless weight loss! First thing she did was measure my blood sugar, but she had to look up what a reading of “high” meant on the meter (= >500 mg/dl). Then and there she (mis)diagnosed me as Type II simply because of my age. A few weeks later I saw my first endocrinologist who took one look at me and said I was likely Type 1 (he ordered an antibody test that cliched the diagnosis). I don’t know why as late as 2002 a young, smart doctor would not know that adults can get Type I. I hope medical education has caught up with reality since then.

      9 months ago Log in to Reply
    34. Molly Jones

      I don’t remember what my A1C or BG was.
      All the comments sparked my interest in the history of HbA1c
      I saw an article on pubmed.gov stating: “Using the HbA1c as a biomarker for monitoring the levels of glucose among diabetic patients was first proposed by Koenig et al.7 in 1976.”
      Due to all the tested dogs and patients before the discovery of insulin having sweet urine, I assumed it was earlier.

      9 months ago Log in to Reply
    35. RegMunro

      My bg after the glucose tolerance test was about 660 so that was that. I doubt AIC had been implemented here in South Africa back in 1966

      9 months ago Log in to Reply
    36. John Henninger

      I do not remember an A1C but my blood sugar was 640 with classic urination and water drinking issues. Added to it was Keto issues. The doctor told me about diabetes, and I said ok, fine and got up to go home. He stopped me and said, “I am admitting you to the hospital now” and they took me upstairs to my hospital bed. A vivid memory from many years ago.

      9 months ago Log in to Reply
    37. sweet charlie

      that test did not exist 70 years ago.

      9 months ago Log in to Reply
    38. Becky Hertz

      I was diagnosed in 1974. I don’t remember hearing about an A1c. Were they done then?

      9 months ago Log in to Reply
    39. Andrea Hultman

      We didn’t check my A1c to diagnose; we checked postprandial blood glucose. Had to hold up the reagent test strip to the color code on the Chemstrips container. Anybody else remember those old days? (1980s.) BG was around 240. Pretty obvious I had T1D.

      9 months ago Log in to Reply

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