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    • 4 hours, 23 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 4 hours, 24 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 4 hours, 26 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 5 hours, 39 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 5 hours, 45 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 5 hours, 45 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 5 hours, 45 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 5 hours, 45 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 5 hours, 49 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 5 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 5 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 5 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 5 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 5 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 5 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 6 hours, 11 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 6 hours, 12 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 6 hours, 32 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 6 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 6 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 6 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 6 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 6 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 6 hours, 42 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 6 hours, 42 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    What was your A1c at the time of your T1D diagnosis?

    Home > LC Polls > What was your A1c at the time of your T1D diagnosis?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    47 Comments

    1. Melinda Lipe

      Really? I don’t remember getting an A1C until many years after diagnosis.

      5 months ago Log in to Reply
    2. LizB

      I don’t know any of my numbers from my time in the hospital, probably because they meant nothing to me at the time.

      3
      5 months ago Log in to Reply
    3. Lenora Ventura

      Never heard what my A1C was but my blood sugar was 856. I can only imagine what it was…..

      5 months ago Log in to Reply
    4. Teri Morris

      They said it was around 700, which would be over 33 mmol/l….I was slipping into a coma on the way to hospital. Very painful trip!

      5 months ago Log in to Reply
    5. ELYSSE HELLER

      A1c measurements were not around when I got diagnosed, but my BG was either 1200 or 1300.

      5 months ago Log in to Reply
    6. Robert Wilson

      My Blood Sugar was 688 in the USA. My A1c wasn’t done till 3 months later.

      5 months ago Log in to Reply
    7. Eva

      I don’t remember the exact number. I what I do remember is that my BG was starting to creep up as a result of pancreatic insufficiency. But my physician thought to hold off on the insulin as long as possible cause he didn’t want me to experience severe hypoglycemia.

      5 months ago Log in to Reply
    8. Robin Melen

      I was in DKA when I went to the hospital – sick as a dog! That was when I was diagnosed.

      5 months ago Log in to Reply
    9. Dennis Dacey

      Seventeen years after my diagnosis I participated in the project developing the glycated hemoglobin analysis which is called HgA1c / HbA1c. My blood sugar was estimated as “just over 1700” and I was heavily into acidosis poisoning.

      1
      5 months ago Log in to Reply
      1. JuJuB

        I was just shy of 4 years old, and my mother was told my bG was over 1600. I always say, “with the testing methods available at the time”, which was in 1970. I don’t know what those methods were, or if the same blood sample would measure differently today, but I have always found that number difficult to fathom.

        5 months ago Log in to Reply
    10. Grey Gray

      Amazing how much Diabetes management has changed. When 1st diagnosed I was peeing on glucose/ketone strips. Now your asking me about a test I find antiquated and less than usefull…. Time in range is my standard now.

      2
      5 months ago Log in to Reply
    11. AimmcG

      I don’t know what my A1C was but the doctor was shocked that I could even walk because my sugar was @800

      1
      5 months ago Log in to Reply
      1. KCR

        Same here!

        5 months ago Log in to Reply
    12. Philip Bunsick

      Interesting that the questions is really not what is done clinically. As most are saying no A1c, just a quick finger test showing 1500+. The diagnosis was not too difficult after that.

      5 months ago Log in to Reply
      1. Amanda Barras

        Mine was a urine test in office that was positive for ketones and off to the hospital I went to be admitted for a week. I’m sure they ran more specific labs there, but I was barely 4 years old so I don’t remember specifics.

        5 months ago Log in to Reply
    13. Patricia Kilwein

      I just remember a couple of lows (30). Pretty scary. Dr ordered a blood that had to be sent to COLORADO. Took 2 weeks for results, they came back with positive markers for T1D.

      5 months ago Log in to Reply
      1. Patricia Kilwein

        Blood test.

        5 months ago Log in to Reply
      2. Jneticdiabetic

        Hi Patricia. I also had a history of low blood sugars before my T1D diagnosis (about 6 years pre-diagnosis in my case). Have wondered if that was an early sign of beta cell dysfunction.

        5 months ago Log in to Reply
    14. Amanda Barras

      I do not know.
      I had just barely turned 4 years old at dx.

      5 months ago Log in to Reply
    15. Joan Benedetto

      10.4 with BG of 454. He was 18 mos old.

      5 months ago Log in to Reply
    16. Jim Andrews

      The A1C test didn’t exist when I was diagnosed 56 years ago.

      1
      5 months ago Log in to Reply
    17. Jeanne McMillan-Olson

      There was no A1c in 1955 when I was 9 yrs old. Myblood sugar was in the 400s. I was getting very drowsy when finally admitted to the Virginia Mason hospital. My current endo was involved in the research for the A1c. He now uses time in range. It is Medicare that requires an A1c every 3 months!

      1
      5 months ago Log in to Reply
    18. Jen Farley

      I do not know. I do know he did a test that came back with an over 600 for a reading of that moment. Close to a finger poke test now, but too way longer. I remember I had just gotten paid for a babysitting job and had bought candy I could never eat and was promised a cheeseburger and milkshake for going to the doctor. I was 13 yo and weighed 70lbs and glad now that nightmare ended before my death. So, test used, unknown, results, priceless!

      5 months ago Log in to Reply
    19. BARRY HUNSINGER

      I don’t know the mmo/ml, I do know it was 550 gasting at 8 in the morning.

      5 months ago Log in to Reply
    20. Randy Reed

      I was 20years into diabetes when A1C came uot

      1
      5 months ago Log in to Reply
    21. gary rind

      mine was 12.4. three months later, got it down to 7.0 so no pump for me!

      5 months ago Log in to Reply
    22. Virginia Barndollar

      1965 No A1c’s

      1
      5 months ago Log in to Reply
    23. Kevin McCue

      In 1992 at time of diagnosis I only remember the sugar numbers not the long term hba1c and don’t believe it was measured

      5 months ago Log in to Reply
    24. Trina Blake

      I don’t know, I was found in a DKA coma (not that I knew that at the time) by a nosy (thankfully, this time) neighbor who had a key to my house. She thought it best to call my day job to let them know I wasn’t coming in to work that day. Thank goodness my day job was with a large city Fire Dept. The dispatched EMS from HQ. Those guys saved my life.

      1
      5 months ago Log in to Reply
      1. Trina Blake

        AS a humorous side note, I had been feeling awful that weekend, decided to wear pj’s and go to bed. Thank goodness – the first responders were my co-workers. And in spite of the fact that in that job they see all sorts of people in all sorts of undress – these were my colleagues!!!!

        4
        5 months ago Log in to Reply
      2. AnitaS

        My cousin who was a type-1 (besides me), had EMS at her home often and because she would sweat when having a severe low, she would usually undress herself before becoming unconscious. One day when she was out and about, a paramedic greeted her and said “Joan, it is nice to see you with your clothes on!” 🙂

        1
        5 months ago Log in to Reply
    25. Janis Senungetuk

      The test didn’t exist when I was diagnosed in 1955.

      1
      5 months ago Log in to Reply
    26. Steve Rumble

      I do not believe A1C measurements were available when I was diagnosed in 1970

      5 months ago Log in to Reply
    27. Marty

      I only remember that my diabetic friend who diagnosed me with his own BG meter was shocked and felt he needed to get me to the clinic ASAP. I didn’t really pay attention to any lab results, which didn’t mean anything to me at the time. I continued to believe it was all a big mistake and I’d get over it soon on my own. I firmly embraced denial until they put me in a room to learn how to do insulin injections about a week later.

      5 months ago Log in to Reply
    28. T1D4LongTime

      LOL! 1966 had no A1C, current sugars were thought to be known with testing urine. So inaccurate!

      2
      5 months ago Log in to Reply
    29. KarenM6

      A1c was still about 5 years away from becoming a tool.
      I don’t know my BS# either. I was 5 and I don’t think anyone thought I needed to know. *shrugs

      5 months ago Log in to Reply
    30. Chris Albright

      Too many years ago to recall……..

      5 months ago Log in to Reply
    31. Pauline M Reynolds

      At time of diagnosis, my fasting BG was 229.

      5 months ago Log in to Reply
      1. Pauline M Reynolds

        Oh, and I went to the doctor because I thought I was having a nervous breakdown!

        5 months ago Log in to Reply
    32. Kris Sykes-David

      I said I don’t know, actually, I don’t remember! Maybe in the sevens? Or nines.? I wasn’t in DKA, had a long LADA honeymoon, and caught it early.

      5 months ago Log in to Reply
    33. Thomas Cline

      I went to the doctor (GP) only because of severe leg cramps that actually caused me to collapse on the street while walking with some friends. I was oblivious to the fact that I had all the standard symptoms of Type 1 diabetes except for being 56 years old — in fact I had been delighted with the effortless weight loss! First thing she did was measure my blood sugar, but she had to look up what a reading of “high” meant on the meter (= >500 mg/dl). Then and there she (mis)diagnosed me as Type II simply because of my age. A few weeks later I saw my first endocrinologist who took one look at me and said I was likely Type 1 (he ordered an antibody test that cliched the diagnosis). I don’t know why as late as 2002 a young, smart doctor would not know that adults can get Type I. I hope medical education has caught up with reality since then.

      5 months ago Log in to Reply
    34. Molly Jones

      I don’t remember what my A1C or BG was.
      All the comments sparked my interest in the history of HbA1c
      I saw an article on pubmed.gov stating: “Using the HbA1c as a biomarker for monitoring the levels of glucose among diabetic patients was first proposed by Koenig et al.7 in 1976.”
      Due to all the tested dogs and patients before the discovery of insulin having sweet urine, I assumed it was earlier.

      5 months ago Log in to Reply
    35. RegMunro

      My bg after the glucose tolerance test was about 660 so that was that. I doubt AIC had been implemented here in South Africa back in 1966

      5 months ago Log in to Reply
    36. John Henninger

      I do not remember an A1C but my blood sugar was 640 with classic urination and water drinking issues. Added to it was Keto issues. The doctor told me about diabetes, and I said ok, fine and got up to go home. He stopped me and said, “I am admitting you to the hospital now” and they took me upstairs to my hospital bed. A vivid memory from many years ago.

      5 months ago Log in to Reply
    37. sweet charlie

      that test did not exist 70 years ago.

      5 months ago Log in to Reply
    38. Becky Hertz

      I was diagnosed in 1974. I don’t remember hearing about an A1c. Were they done then?

      5 months ago Log in to Reply
    39. Andrea Hultman

      We didn’t check my A1c to diagnose; we checked postprandial blood glucose. Had to hold up the reagent test strip to the color code on the Chemstrips container. Anybody else remember those old days? (1980s.) BG was around 240. Pretty obvious I had T1D.

      5 months ago Log in to Reply

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