47 Comments
What was your A1c at the time of your T1D diagnosis?
You must be logged in to post a comment.
© 2022 T1D Exchange. All Rights Reserved.
Really? I don’t remember getting an A1C until many years after diagnosis.
I don’t know any of my numbers from my time in the hospital, probably because they meant nothing to me at the time.
Never heard what my A1C was but my blood sugar was 856. I can only imagine what it was…..
They said it was around 700, which would be over 33 mmol/l….I was slipping into a coma on the way to hospital. Very painful trip!
A1c measurements were not around when I got diagnosed, but my BG was either 1200 or 1300.
My Blood Sugar was 688 in the USA. My A1c wasn’t done till 3 months later.
I don’t remember the exact number. I what I do remember is that my BG was starting to creep up as a result of pancreatic insufficiency. But my physician thought to hold off on the insulin as long as possible cause he didn’t want me to experience severe hypoglycemia.
I was in DKA when I went to the hospital – sick as a dog! That was when I was diagnosed.
Seventeen years after my diagnosis I participated in the project developing the glycated hemoglobin analysis which is called HgA1c / HbA1c. My blood sugar was estimated as “just over 1700” and I was heavily into acidosis poisoning.
I was just shy of 4 years old, and my mother was told my bG was over 1600. I always say, “with the testing methods available at the time”, which was in 1970. I don’t know what those methods were, or if the same blood sample would measure differently today, but I have always found that number difficult to fathom.
Amazing how much Diabetes management has changed. When 1st diagnosed I was peeing on glucose/ketone strips. Now your asking me about a test I find antiquated and less than usefull…. Time in range is my standard now.
I don’t know what my A1C was but the doctor was shocked that I could even walk because my sugar was @800
Same here!
Interesting that the questions is really not what is done clinically. As most are saying no A1c, just a quick finger test showing 1500+. The diagnosis was not too difficult after that.
Mine was a urine test in office that was positive for ketones and off to the hospital I went to be admitted for a week. I’m sure they ran more specific labs there, but I was barely 4 years old so I don’t remember specifics.
I just remember a couple of lows (30). Pretty scary. Dr ordered a blood that had to be sent to COLORADO. Took 2 weeks for results, they came back with positive markers for T1D.
Blood test.
Hi Patricia. I also had a history of low blood sugars before my T1D diagnosis (about 6 years pre-diagnosis in my case). Have wondered if that was an early sign of beta cell dysfunction.
I do not know.
I had just barely turned 4 years old at dx.
10.4 with BG of 454. He was 18 mos old.
The A1C test didn’t exist when I was diagnosed 56 years ago.
There was no A1c in 1955 when I was 9 yrs old. Myblood sugar was in the 400s. I was getting very drowsy when finally admitted to the Virginia Mason hospital. My current endo was involved in the research for the A1c. He now uses time in range. It is Medicare that requires an A1c every 3 months!
I do not know. I do know he did a test that came back with an over 600 for a reading of that moment. Close to a finger poke test now, but too way longer. I remember I had just gotten paid for a babysitting job and had bought candy I could never eat and was promised a cheeseburger and milkshake for going to the doctor. I was 13 yo and weighed 70lbs and glad now that nightmare ended before my death. So, test used, unknown, results, priceless!
I don’t know the mmo/ml, I do know it was 550 gasting at 8 in the morning.
I was 20years into diabetes when A1C came uot
mine was 12.4. three months later, got it down to 7.0 so no pump for me!
1965 No A1c’s
In 1992 at time of diagnosis I only remember the sugar numbers not the long term hba1c and don’t believe it was measured
I don’t know, I was found in a DKA coma (not that I knew that at the time) by a nosy (thankfully, this time) neighbor who had a key to my house. She thought it best to call my day job to let them know I wasn’t coming in to work that day. Thank goodness my day job was with a large city Fire Dept. The dispatched EMS from HQ. Those guys saved my life.
AS a humorous side note, I had been feeling awful that weekend, decided to wear pj’s and go to bed. Thank goodness – the first responders were my co-workers. And in spite of the fact that in that job they see all sorts of people in all sorts of undress – these were my colleagues!!!!
My cousin who was a type-1 (besides me), had EMS at her home often and because she would sweat when having a severe low, she would usually undress herself before becoming unconscious. One day when she was out and about, a paramedic greeted her and said “Joan, it is nice to see you with your clothes on!” 🙂
The test didn’t exist when I was diagnosed in 1955.
I do not believe A1C measurements were available when I was diagnosed in 1970
I only remember that my diabetic friend who diagnosed me with his own BG meter was shocked and felt he needed to get me to the clinic ASAP. I didn’t really pay attention to any lab results, which didn’t mean anything to me at the time. I continued to believe it was all a big mistake and I’d get over it soon on my own. I firmly embraced denial until they put me in a room to learn how to do insulin injections about a week later.
LOL! 1966 had no A1C, current sugars were thought to be known with testing urine. So inaccurate!
A1c was still about 5 years away from becoming a tool.
I don’t know my BS# either. I was 5 and I don’t think anyone thought I needed to know. *shrugs
Too many years ago to recall……..
At time of diagnosis, my fasting BG was 229.
Oh, and I went to the doctor because I thought I was having a nervous breakdown!
I said I don’t know, actually, I don’t remember! Maybe in the sevens? Or nines.? I wasn’t in DKA, had a long LADA honeymoon, and caught it early.
I went to the doctor (GP) only because of severe leg cramps that actually caused me to collapse on the street while walking with some friends. I was oblivious to the fact that I had all the standard symptoms of Type 1 diabetes except for being 56 years old — in fact I had been delighted with the effortless weight loss! First thing she did was measure my blood sugar, but she had to look up what a reading of “high” meant on the meter (= >500 mg/dl). Then and there she (mis)diagnosed me as Type II simply because of my age. A few weeks later I saw my first endocrinologist who took one look at me and said I was likely Type 1 (he ordered an antibody test that cliched the diagnosis). I don’t know why as late as 2002 a young, smart doctor would not know that adults can get Type I. I hope medical education has caught up with reality since then.
I don’t remember what my A1C or BG was.
All the comments sparked my interest in the history of HbA1c
I saw an article on pubmed.gov stating: “Using the HbA1c as a biomarker for monitoring the levels of glucose among diabetic patients was first proposed by Koenig et al.7 in 1976.”
Due to all the tested dogs and patients before the discovery of insulin having sweet urine, I assumed it was earlier.
My bg after the glucose tolerance test was about 660 so that was that. I doubt AIC had been implemented here in South Africa back in 1966
I do not remember an A1C but my blood sugar was 640 with classic urination and water drinking issues. Added to it was Keto issues. The doctor told me about diabetes, and I said ok, fine and got up to go home. He stopped me and said, “I am admitting you to the hospital now” and they took me upstairs to my hospital bed. A vivid memory from many years ago.
that test did not exist 70 years ago.
I was diagnosed in 1974. I don’t remember hearing about an A1c. Were they done then?
We didn’t check my A1c to diagnose; we checked postprandial blood glucose. Had to hold up the reagent test strip to the color code on the Chemstrips container. Anybody else remember those old days? (1980s.) BG was around 240. Pretty obvious I had T1D.