Subscribe Now

* You will receive the latest news and updates on your favorite celebrities!

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 18 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 18 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 34 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 35 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 2 hours, 55 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 10 hours, 4 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 10 hours, 4 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 12 hours, 1 minute ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 12 hours, 17 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 23 hours, 27 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 6 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • Submit a Question
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
      • Leadership
      • Committees
      • Clinics
      • Portal
      • HEAL
        • Heal Advisors
      • Join Us
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Work with us
    • Partners
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
    • Join / Login
    • Donate

    Have you experienced any life transitions during which it has been particularly difficult to manage T1D? Select all that apply to you.

    Home > LC Polls > Have you experienced any life transitions during which it has been particularly difficult to manage T1D? Select all that apply to you.
    Previous

    What was your A1c at the time of your T1D diagnosis?

    Next

    If you have ever used a CGM, in what year did you first begin using a CGM?

    Sarah Howard

    Related Stories

    Medications

    Our Experience: Taking GLP-1 Medications Like Ozempic & Trulicity with Type 1 Diabetes 

    Ginger Vieira, 2 days ago 15 min read  
    Questions of the Day

    Do You Ever Change Your Lancet? 

    Samantha Robinson, 2 days ago 4 min read  
    Devices & Technology

    Tidepool Loop FDA Clearance: Chatting with CEO Howard Look 

    Ginger Vieira, 4 days ago 7 min read  
    Insulin

    Mark Cuban’s Cost Plus Drugs Tests New Insulin Program 

    Ginger Vieira, 2 weeks ago 4 min read  
    Devices & Technology

    Connected Insulin Delivery Devices 

    Hope Warshaw, 2 weeks ago 7 min read  
    Devices & Technology

    Automated Insulin Delivery Systems 

    Hope Warshaw, 2 weeks ago 11 min read  

    48 Comments

    1. Bruce Schnitzler

      Diagnosed in 1951 when I was 6 years old.

      2
      2 months ago Log in to Reply
      1. Barbara Bubar

        And I was not quite 5 in 1950…small world back then and now there seem to be SO many children diagnosed with diabetes.

        1
        2 months ago Log in to Reply
    2. RegMunro

      I have experienced all ost all the above, not pregnancy, but T1D has not made any significantly more difficult to manage. T1D is just always there, rather a nuisance

      5
      2 months ago Log in to Reply
    3. Ahh Life

      I answered none.

      Being diagnosed with T1D is like trying to build a house of cards in a stiff wind. The beginning is impossible. So you move into a tent or shelter. That includes education, training, technologies of CGM, pumps, smart pens, and the like.

      It is always impossible as a T1D and the cards can blow away at any time. Perhaps the word ā€œdifficultā€ should be replaced with the phrase ā€œimpossible, but . . .ā€

      6
      2 months ago Log in to Reply
    4. Joan McGinnis

      I would call it a situational depression, that was the hardest time for me I kept having low blood sugar. fortunately I pursued help right away and recovered very quickly.

      2 months ago Log in to Reply
    5. Joan Plog

      Serious operation

      2 months ago Log in to Reply
    6. Jeanne McMillan-Olson

      I was diagnosed in 1955 at age 9. No way to check blood glucose (urine tests!) or no doctor who really knew how to treat T1D for many years. So during most of my life transitions including pregnancy my diabetes was really not well controlled. In the late 1980s things changed with glucose meters and a great endo. I feel really fortunate that I am still here and doing fairly well!

      5
      2 months ago Log in to Reply
    7. Richard Vaughn

      My problems were caused my being diagnosed so long ago, in 1945. There were no glucose meters, pumps, and modern day insulin like we have now. Pork insulin was a life saver, but I had very unpredictable blood sugar numbers. Diabetes management was so difficult! My doctors seemed to know very little about diabetes.

      3
      2 months ago Log in to Reply
    8. Lawrence S.

      I became a diabetic about 8 months after we got married. Dealing with low blood sugars was shocking for both of us. I felt that my wife did not get what she signed up for. But, she has stayed with me and helped me through many lows.
      I would say the initial adjustment to T1D was difficult. But, we got through it.

      3
      2 months ago Log in to Reply
    9. Nevin Bowman

      Moving to a time zone 12 hours different from the previous really creates problems for a while. Also, when I reached adolescence, I assumed wrongly that “those” things would never happen to me, and I became lax in my treatment and monitoring.

      2 months ago Log in to Reply
    10. Greg Felton

      A lot of these life events took place before I had a pump or CGM, so I could answer all of the above. Who knows if it was the lack of diabetes technology or the stressful events that made t1 difficult.

      2 months ago Log in to Reply
    11. Janelle Stallkamp

      Having heart bypass surgery

      2 months ago Log in to Reply
    12. Joan Fray

      1969. Junior year abroad in Bordeaux, France. On long lasting U-80. Postal workers went on strike and didn’t get my insulin. French doctor told me U-40 would work the same. three days later, DKA and a week in a French hospital built in 1840. They almost finished me off. My insulin came in the mail, my friends brought it to me, and I snuck out of the hospital a day later. I was 19, and knew virtually nothing about diabetes. Got in 1963. What a time we’ve had!

      4
      2 months ago Log in to Reply
    13. Kevin McCue

      Feels like being over the hill will be a challenge to overcome or at least cope with. Different stamina, stressors, coping techniques. It definitely is something changing but not quite sure what to put my finger on/go after or accept and move on.

      1
      2 months ago Log in to Reply
    14. Kris Sykes-David

      Six months before dx’d at 55, we retired and moved! I answered none of the above, however, my husband had lymphoma during T1D. He is cancer-free!

      1
      2 months ago Log in to Reply
    15. M C

      Chose “other”. One of my children is considered severely disabled (developmental disability) – due to her lack of speech and inability to help others understand ‘where’ her severe pain was coming from – We went through approx. 7 years of horror – with my child in pain, screaming night and day. Sent to various specialists at local children’s hospital, who would do one or two tests then say ‘it’s not something to do with this specialty – test is negative. Good bye.’ Leaving us continually in a state of incredible stress and anxiety. My A1C was running continually around 14! Just couldn’t get my BG under control. Decided to go on the insulin pump – and regain some control over my T1D. (The only thing I could ‘control’ at this point in our lives.) This was about 5 years into the horrible life situation we were in. My A1C, after just 3 months on the pump, was 7.2, even with the on-going stress…. Ever since it has remained around 6.5. (As an aside, about 2 years after getting the pump, we finally figured out what was wrong with my child, and a better norm returned to all of our lives (despite being continually challenged by my child’s developmental disability and health issues).)
      Have to say it is like a bad joke when the medicos continually say “you can’t live with this much stress.” like I can wave a magic wand and make the daily stress, through will alone, disappear. Ha!

      2
      2 months ago Log in to Reply
    16. cynthia jaworski

      Sepsis made it almost impossible to control my diabetes. This was only months before glucose monitors became available for personal use by diabetic patients.
      Until the blood-borne infection was diagnosed, I was repeatedly told that my physical problems were due to bad blood sugar control. In other word, “Go home and straighten out!”

      1
      2 months ago Log in to Reply
    17. Amanda Barras

      Changing jobs/moving: my husband separated from military and we lost insurance for a year and a half and I was unable to stay on pump. Was maintaining an A1c of 8.4 on MDI during that time. I enjoyed the weight loss, but not at the cost of my health.
      Also, moving makes me run low from all the exercise.
      And pregnancy made me extremely insulin resistant. All 3 situations were hard, but no insurance was the hardest.

      2 months ago Log in to Reply
    18. Janis Senungetuk

      I checked most of the list. I think both adolescence and pregnancy were the most difficult, so far. Dx. at 8 in 1955. The MDs told my parents, if I/they followed all the rules, I might live to my late 20’s, early 30’s. Having relatives who had died from diabetes, most before or without access to insulin, my parents chose to micro-manage my life with a strict schedule for almost all activities. By adolescence, the 24/7 of diabetes, compounded by too frequent medical staff lectures on the horrible consequence of “non-compliance” created major depression. Leaving for college half-way across the country helped. In 1970 my pregnancy was under the care of an OB who specialized in “high-risk” but was I still without the ability to self-monitor glucose levels. Six weeks early I was admitted to the hospital with preeclampsia. Very fortunately, our 7lb. 15.8 oz. “preemie” daughter and I were able to leave the hospital together four days later. My current endo thinks that was the beginning of the chronic kidney disease that I’m now dealing with.

      2 months ago Log in to Reply
      1. Anneyun

        Interesting. I had preeclampsia 5.5 weeks early and gave birth to a 7lb 12oz ā€œpreemieā€ daughter.

        1
        2 months ago Log in to Reply
    19. Kelly Wilhelm

      I’ve experienced a ton of these life events recently but my blood sugars have tensioned fairly stable!

      2 months ago Log in to Reply
    20. Trina Blake

      I answered other. For me, I was tailor-made to handle T1D. Very self-disicplined, nubers oriented, raised to be a ballet dancer (hence very careful, wary of eating) etc. About 15 years ago (I’ve had T1D 40+ years) my partner was Dx’d Bipolar 1 with anger-mgt issues. Major life change for me – I had to learn to skate opn thin ice 24/7 or walk on egg-shells 24/7. But, it reminded me that at least with T1D, I am in control (essentially – we all have rogue numbers etc). I just added “ducking and weaving” to my lifestlye.

      1
      2 months ago Log in to Reply
    21. Sherrie Johnson

      Everything for a Type 1 diabetic is management. Caregiver for aging parent,with dementia, just threw me for a loop. Extra care for everyone concerned. Hardest time of my life in all aspects.

      1
      2 months ago Log in to Reply
    22. dave hedeen

      Very worried from pressure of 3 day daughter wedding in another city. Hoping 780g will be available or G7 at minimum

      2 months ago Log in to Reply
    23. Colleen Jackson

      Menopause was a nightmare for me.

      2
      2 months ago Log in to Reply
      1. lis be

        me too

        2 months ago Log in to Reply
    24. Bruce and Audrey Coleman

      I am now a Senior Citizen and my memory is failing. Occasionally I forget to bolus and then have to deal with high blood sugars. I do not like to bolus right before I start eating as I am not always sure how much I will eat.

      2
      2 months ago Log in to Reply
    25. Ms Cris

      Had just struck out on my own and started my own business 3 months before diagnosis, helped place my grandmother (95yo!) into hospice 2 weeks before diagnosis, and then she passed while I was in the ICU in DKA.

      1
      2 months ago Log in to Reply
    26. Sue Martin

      Brain tumor surgery (benign), kidney transplant

      1
      2 months ago Log in to Reply
    27. BARRY HUNSINGER

      I didn’t actually retire, but I did go on Medicare. Moving from private insurance to Medicare was quite the challenge. I could not get pump supplies or insulin. I did have a reserve of insulin, but I had to buy syringes and walk around with a bottle if Humalog and give myself many injections throughout the day including getting up in the middle of the night to inject. All of this because Medicare made me go through all the tests to prove that after 25 years I was indeed a type one diabetic. They would not take the doctors word for it or look at previous lab work. Such a waste.

      3
      2 months ago Log in to Reply
      1. Liz Avery

        Ahh..Medicare
        I should have included that as well.

        1
        2 months ago Log in to Reply
      2. Lawrence S.

        I agree. Medicare is much too bureaucratic and creates unnecessary stress in my life. It does not necessarily make life easier.

        1
        2 months ago Log in to Reply
    28. Carol Meares

      I had a teen who was wayward in his behaviors. It was very difficult to focus on my own health when I was trying to save his. We both made it through but it was a very difficult time.

      1
      2 months ago Log in to Reply
    29. Jillmarie61

      Being a victim of a stalker/domestic abuser/ex-boyfriend really made it hard to manage my diabetes.

      So did having some major illnesses that were totally unrelated to diabetes. So far in my 61 years of diabetes my kidneys are totally healthy and unaffected by diabetes, and so were my eyes, but at the start of Covid I was diagnosed with Age-related Macular Degeneration. I have been losing my vision from this disease and it’s hard to accept that this is the cause unlike if I had had retinopathy instead.

      2
      2 months ago Log in to Reply
    30. Linda Pease

      Menopause was tough

      1
      2 months ago Log in to Reply
    31. Don (Lucky) Copps

      All of the above, T1D is part of your life, it’s with you always.

      2
      2 months ago Log in to Reply
    32. Liz Avery

      Diagnosed in 1966, T1D is a daily challenge. I was struggling during adolescence as I lived in a rural community and was the first child T1D in the area. I had anger issues with my doctor because he would order Saturday fasting blood sugars; then add insulin until I got lows and convulsed.

      8 years of Saturday FBS then I went to college, found a different physician, and life improved. Thank the creator that technology moved on. I got the first Ames Glucometer, and life continued to get better.

      Still venting. Thanks for listening!

      1
      2 months ago Log in to Reply
    33. T1D4LongTime

      All of these….. plus menopause, stress (physical, mental and emotional), and illness/surgery as I age. It’s ALWAYS difficult to manage my brittle T1D. Just sitting still makes it difficult these days to keep sugars under control.

      1
      2 months ago Log in to Reply
    34. Juha Kankaanpaa

      I have had many life transitions: university, multiple inter continental moves, job changes, as well as periods of regular travel around the world, but I have never had any big difficulties managing my T1D. With good planning everything has always worked out ok.

      1
      2 months ago Log in to Reply
    35. vbaum1956

      Any time I have a very stressful event coming up to manage.

      2 months ago Log in to Reply
    36. Jneticdiabetic

      *Pregnancy/nursing – I underestimated how significantly my insulin requirements would drop with nursing.
      *Working under deadline – stress hormones + sleep deprivation + stress snacking with less mindful insulin dosing often leads to highs. *Traveling – lots of walking + indulging in new foods with uncertain carb content (my fav part of traveling!) can lead to a roller coaster. A “backpack o’ snacks” is a must.
      *Perimenopause – hormones strike again! Once fairly predictable patterns of insulin resistance one week prior to period start are now full of surprises. Sudden severe lows were a surprise that prompted me to use my a CGM again.

      2 months ago Log in to Reply
    37. Ginger Vieira

      The stress of divorce and trying to transition everyone to two different households (with two little kids) had a funny effect on my T1D. My background insulin needs nearly doubled but I lost like 7 pounds. It was go-go-go for 6 months trying to juggle everything (selling house, getting kids where they needed to be, moving twice, etc.). Once the dust settled, my background needs quickly dropped back down to my pre-divorce dose.

      2 months ago Log in to Reply
    38. Kristine Warmecke

      The hardest transition for me was being diagnosed and the year of treatment (chemo, surgeries and radiation). Going away for nursing school, loss of loved ones, break up’s with boyfriends, etc. were hard but I always managed to get my sugars back in control within 24 hours. Breast cancer, even 5 years after being diagnosed, is hard with medication I must remain on yet.

      2 months ago Log in to Reply
    39. keith johnson

      I had a lot of trouble managing my blood sugars the entire time I was a social worker. The stress of the job was immense.

      2 months ago Log in to Reply
      1. keith johnson

        I had to retire early because I could not manage my diabetes and do that job any longer.

        1
        2 months ago Log in to Reply
    40. Steven Gill

      I am so lucky. Single, living alone (had a variety of roommates), very OCD. While my diabetic control was generally acceptable (for standards set) with minimal influences from anything other than self inflicted, I’ve only periodically had bouts of poor control. Death, changing jobs, moving, even stress of violence (should I admit I moved from a crime riddled area?) had little effect on my control. Mostly it wad my own inaction that had that effect.

      1 month ago Log in to Reply
    41. Michael Andrews

      I was diagnosed in 2016 at age 38. I had no idea what was happening to me and assumed the exhaustion and other symptoms were somehow related to my wife and I caring for our first Child. I was diagnosed in September, and my 1st was born in April, so it was a few rough months of not knowing what was happening to me. At first, we thought it was Cancer and were relieved to get the T1D diagnosis – at least you can live with it, right? Since 2016 we’ve had 2 sets of twins, one set in 2018 and another in 2021. Being a parent to five kids under 7 is hard, especially with T1D added to the mix – it’s crazy, but we’re managing.

      1 month ago Log in to Reply
    42. C B

      Why isn’t menopause an option? Women’s health is actually a thing

      1 month ago Log in to Reply

    Have you experienced any life transitions during which it has been particularly difficult to manage T1D? Select all that apply to you. Cancel reply

    You must be logged in to post a comment.

    This site uses Akismet to reduce spam. Learn how your comment data is processed.




    11 Avenue de Lafayette
    Boston, MA 02111
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    Ā© 2022 T1D Exchange.
    All Rights Reserved.

    Ā© 2022 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    2019 Publications

    0 Stories Related

    2020 ADA

    9 Stories Related

    2020 ADCES

    0 Stories Related

    2020 ATTD

    0 Stories Related

    2020 EASD

    0 Stories Related

    2020 ISPAD

    6 Stories Related

    2020 Publications

    0 Stories Related

    2021 ADA

    11 Stories Related

    2021 ADCES

    0 Stories Related

    2021 ATTD

    4 Stories Related

    2021 ISPAD

    8 Stories Related

    2021 Publications

    22 Stories Related

    2022 ADA

    11 Stories Related

    2022 ADCES

    4 Stories Related

    2022 ATTD

    10 Stories Related

    2022 ISPAD

    0 Stories Related

    ADA

    5 Stories Related

    ADCES

    0 Stories Related

    Adult

    0 Stories Related

    Adults & T1D

    38 Stories Related

    Advocacy

    11 Stories Related

    ATTD

    10 Stories Related

    Blood Sugar

    2 Stories Related

    Blood sugar management

    29 Stories Related

    Challenges & Complications

    30 Stories Related

    Continuous Glucose Monitor

    6 Stories Related

    COVID-19

    18 Stories Related

    Devices & Technology

    29 Stories Related

    DiabeteSpeaks

    20 Stories Related

    EASD

    0 Stories Related

    En EspaƱol

    0 Stories Related

    Exercise

    3 Stories Related

    General Publications

    74 Stories Related

    Get Involved

    39 Stories Related

    Glu Guide

    9 Stories Related

    Glu Insights

    16 Stories Related

    Health Equity

    0 Stories Related

    Healthcare & Insurance

    11 Stories Related

    Hypoglycemia

    4 Stories Related

    In Depth

    1 Stories Related

    Inspiration & Advocacy

    24 Stories Related

    Insulin

    6 Stories Related

    Insulin & Meds

    0 Stories Related

    Insulins & Non-insulins

    11 Stories Related

    ISPAD

    0 Stories Related

    Journal of Diabetes

    21 Stories Related

    Learning Session

    0 Stories Related

    Medications

    2 Stories Related

    Meet the Expert

    9 Stories Related

    Mental Health

    9 Stories Related

    New & Newsworthy

    52 Stories Related

    News

    26 Stories Related

    Nutrition & Exercise

    4 Stories Related

    Other

    0 Stories Related

    Our team

    32 Stories Related

    Parenting & Families

    3 Stories Related

    Partner Content

    10 Stories Related

    Pediatric

    0 Stories Related

    Personal Stories

    16 Stories Related

    Press Release

    6 Stories Related

    Prevention

    11 Stories Related

    Questions of the Day

    18 Stories Related

    Research & Studies

    54 Stories Related

    Review

    0 Stories Related

    T1D Exchange & Glu

    16 Stories Related

    T1D Exchange News

    5 Stories Related

    Tech

    25 Stories Related

    Test Category

    0 Stories Related

    Therapies & Management

    0 Stories Related

    Type 1 Diabetes

    0 Stories Related

    Type 2 Diabetes

    0 Stories Related

    Uncategorized

    43 Stories Related

    You Told Glu

    1 Stories Related

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    • Clear All
    • Sort By

    • Select Category