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    • 3 hours, 33 minutes ago
      Jeremy Hanson likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      And sometimes I dream that I’ve run out of insulin and cannot get prescription refilled.
    • 5 hours, 26 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I providee an answer of low BG. But with that said, it is usually a false alarm (compression low from Dexcom sensor) With the stable bedtime BG and a TSlim X2 pump using CIQ and Sleep Mode, I consistently sleep between about 85 and 110 every night. The key to this is going to bed with a stable BG (85-110) and not having any IOB.
    • 5 hours, 30 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      While middle-of-the-nght alerts are frustrating and irritating, I'm no longer terrified of dying from an extreme low in the middle of the night, so technology is still a win for me!
    • 7 hours, 7 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 7 hours, 8 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 7 hours, 9 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 7 hours, 10 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 7 hours, 10 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 7 hours, 19 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 7 hours, 20 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 7 hours, 21 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 7 hours, 22 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 7 hours, 22 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 7 hours, 28 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Why isn't going to the bathroom not on this list?
    • 7 hours, 32 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 7 hours, 47 minutes ago
      TEH likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 8 hours, 11 minutes ago
      Steven Gill likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My pump, "I need to BG! I need to BG!" Such a cry baby it is!
    • 9 hours, 4 minutes ago
      Robin Melen likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 9 hours, 51 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 9 hours, 53 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 10 hours, 18 minutes ago
      Anneyun likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 11 hours ago
      Sue Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 11 hours, 31 minutes ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 11 hours, 32 minutes ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 11 hours, 53 minutes ago
      Velika Peterson likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
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    Do you have hypoglycemia unawareness?

    Home > LC Polls > Do you have hypoglycemia unawareness?
    Previous

    If you have gone through the process of getting an insulin pump, how easy or difficult was it for you to get the pump you most wanted to use?

    Next

    What was your A1c at the time of your T1D diagnosis?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    35 Comments

    1. Ahh Life

      No. 72 years T1D and have the exact opposite–acute awareness.

      I am ready to eat lions, tigers, bears, crow bars, thumb tacks, table legs — anything! — to relieve the symptoms. Needless to say, I am very poor at the 15 carbs wait 15 minutes rule. Otherwise, I am quite disciplined. Sigh! 🙃

      6
      6 months ago Log in to Reply
      1. mojoseje

        Same. How is that even possible? Lol

        6 months ago Log in to Reply
      2. Kristine Warmecke

        @Ahh Life I wish I had that keen alertness. I’m only 40 years into it.

        6 months ago Log in to Reply
    2. Jordan Harshman

      I go through phases where I’m too low too often and get desensitized to it (about a month) followed by another month where I’m really sensitive to lows as I’ve brought my time in range back to (more) ideal

      2
      6 months ago Log in to Reply
    3. Jane Cerullo

      Always feel but I tolerate pretty low readings. Just because 😼 don’t run high a lot.

      1
      6 months ago Log in to Reply
      1. Lyn McQuaid

        Same here. I don’t really feel low until I’m in the 50’s so I’m not sure if that means I’m “unaware” if I don’t feel anything until then?

        1
        6 months ago Log in to Reply
    4. Barbara Bubar

      After 72 years, yes, like Ahh Life, my eyesight changes and I see a sort of yellow shape when I’m around 55 or lower. It’s actually handy that it happens in case the Dexcom is not quite there yet.

      3
      6 months ago Log in to Reply
    5. Mike Plante

      Was 61 on Dexcom and 51 on Contour Next last night, but I just felt normal.

      1
      6 months ago Log in to Reply
    6. Steve Rumble

      It used to be a problem before I started using a CGM

      1
      6 months ago Log in to Reply
    7. mojoseje

      I have to be in my 40s and my vision going dark before I feel low. A lot of times I feel normal and CGM is the only way I know I’m going low.

      1
      6 months ago Log in to Reply
    8. Sherolyn Newell

      In the last couple weeks, I’ve noticed feeling the lows sooner. I don’t know why, it will probably change back. That’s the way T1D seems to work, likes to keep you guessing.

      1
      6 months ago Log in to Reply
    9. Lawrence S.

      I have occasional unawareness. Usually, when my blood glucose drops quickly.
      Other times I feel light headedness, occasionally a “hole” in my vision. Usually, by the time I’m sweating profusely, it’s too late. I’m deep into it.

      1
      6 months ago Log in to Reply
    10. Rick Martin

      Yes I have complete unawareness. AND, I thank God everyday for my CGM.

      5
      6 months ago Log in to Reply
    11. Joan Fray

      I wear my Dexcom all the time so I very rarely go low. Only when exercising. Then I just get more tired than warranted, so I check if I’m low. Glucose tabs and some food do the trick. Lows aren’t my problem. My ‘icky’ stomach is my problem. Eat to live, 15 units of humalog for 24 hours, plus .3 basal all the time. Is that a lot?

      6 months ago Log in to Reply
    12. Judy Hampton

      Until I started using a cgm I was very aware of dropping blood sugar. Now it seems my body depends on the cgm to alert me. I really wish I could still recognize LBS without the cgm.

      6 months ago Log in to Reply
    13. Daniel Bestvater

      T1D for about 45 years, I seem to feel a low BG around 3(54).
      I have been down to 1.8(34) recently before detecting any symptoms. I don’t think my stomach works properly after 45 years! Some days are normal and other days it seems only liquid carbohydrates are absorbed.

      6 months ago Log in to Reply
    14. Claude Laforest

      No, because my CGM alerts have replaced my symptoms, alerts are much more reliable than symptoms and less variable!

      1
      6 months ago Log in to Reply
    15. kenneth brooks

      I used to have hypoglycemic unawareness but in ten years since CGM, my sugar never gets low enough to be a problem

      6 months ago Log in to Reply
    16. Sue Martin

      This is one of the reasons I got a CGM. The other reason is that my symptoms didn’t always manifest the same way.

      6 months ago Log in to Reply
    17. Kathy Morison

      The only time I experienced hypoglycemia unawareness was when I was using humalog insulin

      6 months ago Log in to Reply
    18. Janis Senungetuk

      Yes, both hypo and hyperglycemia unawareness. If I’ve dropped to the low 40’s my vision becomes impaired and I’ll see light yellow amorphous blobs in my central vision. Fortunately that rarely happens now because of CGM alerts.

      3
      6 months ago Log in to Reply
    19. William Bennett

      Important to note that hypo awareness is a threshold thing that changes depending on what your average BG is like. People who run very high–up around 200–can start feeling low at levels a lot of us with tight control would consider high in their own rate. 120-50 e.g. Before getting a CGM, back when I was on MDI, I’d feel trembly and my knees would start locking up in the 70s. Now that I have much tighter control (last A1C was 5.8) I don’t feel low above 60, and even below that if it’s a slow drop I’m now aware of it until I start getting that flash-bulb effect in the center of my vision. Speed of descent also seems to have a lot to do with it. The old insulins could make you crash very hard all of a sudden because of the very long effect curves and the practice of taking both types in one shot. So shaking OMG I’m gonna pass out lows were far more of a fact of life back then than they are for me now.

      1
      6 months ago Log in to Reply
    20. Jneticdiabetic

      Hypo unaware and appreciative of my CGM. Rarely feel symptoms unless I’m dropping quickly. Recently had a middle of the night CGM alarm that I was 80 and dropping. Got up, stumbled and could tell I was already much lower than that. Required a mega carb binge to correct. CGM may lag, but it saved the day again this time.

      1
      6 months ago Log in to Reply
    21. John Williamson

      Prior to going on a pump 14 years ago I had sever hypoglycemia unawareness. After a year on the pump (and much better control than on MDI) I began to detect even low 70’s.

      6 months ago Log in to Reply
    22. LuckyPineapple

      I FEEL every second of being low..that’s why I try so hard not to get that way ever. I have very sever hyper-unawareness though. I can’t even tell if I’m 400+

      6 months ago Log in to Reply
    23. Robert Kovalik

      I wear a CGM.

      6 months ago Log in to Reply
    24. Bob Durstenfeld

      I am thankful CGM alarms.

      6 months ago Log in to Reply
    25. pru barry

      I think my nervous system is losing its mojo. Lots of neuropathy, lots of not feeling highs or lows. So glad to have my Dexcom with the Tandem! I’m making an effort to rely more on this technology.

      6 months ago Log in to Reply
    26. Nancy Burgess

      Since I’ve had T1D since 1960, I’ve lost the ability to feel hypoglycemia. I totally rely on my Dexcom to keep me in the range.

      1
      6 months ago Log in to Reply
    27. Kristine Warmecke

      I’ve been hypo unaware since the early 90’s. It’s not fun. I wish I’d aware, even though it was scary and made me feel like crap. I was made to get Medtronics CMG in July 2007 because I had my first and only car accident due to being unaware of my hypo. I couldn’t stand all the alarms, false low & high’s, need to calibrate it, etc. and stopped using it. I was introduced to Dexcom a couple years later and started with the G4, far more accurate for me and still use Dexcom but it doesn’t catch my fast falling or rising numbers as well my DAD dose now.

      1
      6 months ago Log in to Reply
    28. Carol Meares

      I put “sometimes.” It depends generally on the speed of which I am dropping.

      6 months ago Log in to Reply
    29. Amanda Barras

      Sometimes I can keep on trucking down to the 40s, self treat and keep going on about my day. Other times I feel terrible, super lethargic and irritable and it stops me in my tracks.

      1
      6 months ago Log in to Reply
    30. Donna Condi

      I always feel it but that doesn’t happen until I hit about 42.

      6 months ago Log in to Reply
    31. George Lovelace

      I am surprised sometimes by the Dexcom warning but in combination with Tandem CIQ I have about eliminated All Hypos even with a 5.4 A1c

      6 months ago Log in to Reply
    32. Bonnie Lundblom

      Yes and I’m thankful for having my Dexcom.

      6 months ago Log in to Reply

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