JuJuB – T1D Exchange

Activity
- 3 weeks, 6 days ago
  
  mojoseje likes your comment at
  Have you been diagnosed with any of the following diabetes complications? Please select all that apply to you.
  Oh! Now that I've read the previous comments, also frozen shoulder/adhesive capsulitis which, according to my endo, affects diabetic WOMEN at an alarmingly higher rate than any other population.
- 3 weeks, 6 days ago
  
  Megan S likes your comment at
  Have you been diagnosed with any of the following diabetes complications? Please select all that apply to you.
  Oh! Now that I've read the previous comments, also frozen shoulder/adhesive capsulitis which, according to my endo, affects diabetic WOMEN at an alarmingly higher rate than any other population.
- 3 months, 2 weeks ago
  
  Kathy Hanavan likes your comment at
  If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
  I request a backup insulin pump when I travel internationally. I have had so few issues with my Tandem pump, I rarely give it a second thought. But I do pack extra pump supplies, CGM supplies, insulin, and a syringe or two.
- 7 months ago
  
  Jeff Marvel likes your comment at
  If you use a CGM, have you ever been asked to remove it for a medical procedure? Share more about your experiences in the comments!
  No one has asked me to remove it (who would do that?). If it needs to be removed according to the manufacturer's guidelines, I remove it. Then I contact the manufacturer and tell them I had to remove it for a medical procedure and they replace it for me. Easy-peasy.
- 7 months ago
  
  Karen Tay likes your comment at
  If you use a CGM, have you ever been asked to remove it for a medical procedure? Share more about your experiences in the comments!
  No one has asked me to remove it (who would do that?). If it needs to be removed according to the manufacturer's guidelines, I remove it. Then I contact the manufacturer and tell them I had to remove it for a medical procedure and they replace it for me. Easy-peasy.
- 8 months ago
  
  Susan Brinkhaus has commented in the same post you commented in :
  When you (or your child) were diagnosed with T1D, for how long were you in the hospital?
  Diagnosed at a Dr visit. No hospitalizations
- 8 months ago
  
  Debbie Knowles has commented in the same post you commented in :
  When you (or your child) were diagnosed with T1D, for how long were you in the hospital?
  I became a T1D after having Whipple surgery. I was in the hospital for 11 days.
- 8 months, 1 week ago
  
  Patricia Dalrymple has commented in the same post you commented in :
  When you (or your child) were diagnosed with T1D, for how long were you in the hospital?
  Ate
- 8 months, 1 week ago
  
  Patricia Dalrymple has commented in the same post you commented in :
  When you (or your child) were diagnosed with T1D, for how long were you in the hospital?
  I’m not sure why zero was not an option. I knew when I went to the doctor I had it. Ignored the symptoms until I dropped 10 lbs without trying and couldn’t bury my head in the sand anymore. Are a big piece of chocolate cake before I went because I figured that’s the last time I would be able to. Luckily, I am in control and can still have desserts every once in a while.
- 8 months, 2 weeks ago
  
  Andrea Hultman has commented in the same post you commented in :
  What was your A1c at the time of your T1D diagnosis?
  We didn't check my A1c to diagnose; we checked postprandial blood glucose. Had to hold up the reagent test strip to the color code on the Chemstrips container. Anybody else remember those old days? (1980s.) BG was around 240. Pretty obvious I had T1D.
- 9 months, 1 week ago
  
  Becky Hertz has commented in the same post you commented in :
  What was your A1c at the time of your T1D diagnosis?
  I was diagnosed in 1974. I don't remember hearing about an A1c. Were they done then?
- 9 months, 1 week ago
  
  sweet charlie has commented in the same post you commented in :
  What was your A1c at the time of your T1D diagnosis?
  that test did not exist 70 years ago.
- 9 months, 3 weeks ago
  
  Samantha Hunter has commented in the same post you commented in :
  For caregivers of children with T1D, do you have any accommodations at your child’s school for managing T1D? For adults with T1D, did you have accommodations when you were in school? Please share more about your experiences managing T1D with caregivers and school staff in the comments.
  I technically received accommodations, but still received a lot of judgment and discouragement from using those accommodations. In seventh grade, I had to leave five minutes early before lunch to go to the nurse to have my blood sugar taken (I had just been diagnosed and wasn't comfortable doing it myself), and my seventh grade history teacher would literally stop what he was doing to glare at me as I left the room...
- 9 months, 3 weeks ago
  
  PamK has commented in the same post you commented in :
  For caregivers of children with T1D, do you have any accommodations at your child’s school for managing T1D? For adults with T1D, did you have accommodations when you were in school? Please share more about your experiences managing T1D with caregivers and school staff in the comments.
  @Lawrence S. - 504 refers to Section 504 of a government act that declared diabetes a disability. This allows students to have a 504 Plan that allows for them to do thinks like take breaks, eat a snack, or take insulin when needed while in school.
- 10 months ago
  
  T1D4LongTime has commented in the same post you commented in :
  For caregivers of children with T1D, do you have any accommodations at your child’s school for managing T1D? For adults with T1D, did you have accommodations when you were in school? Please share more about your experiences managing T1D with caregivers and school staff in the comments.
  I was in school in the 60s and 70s, so 'accommodations' didn't exist. After several hospitalizations in 7th grade, I was allowed to go to my locker outside of allowed time period to eat a snack. Not really an 'accommodation'. No food or drinks in class in my school years, so Lifesavers were my low treatment choice
- 10 months ago
  
  Tom Webb has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Never be afraid to state your fears and admiration to your friends ✨️ If you do not know, ask a question.
- 10 months ago
  
  Tom Webb has commented in the same post you commented in :
  If you wear an insulin pump, what do you do with it when going through airport security? Select all that apply.
  I fix and build computers and the memory of the computer gets cleared from strong magnetic waves. I went on a cruise and had to go through security . The security person stated that he was impressed with my knowledge and paperwork I had with me.
- 10 months ago
  
  Tom Webb has commented in the same post you commented in :
  For caregivers of children with T1D, do you have any accommodations at your child’s school for managing T1D? For adults with T1D, did you have accommodations when you were in school? Please share more about your experiences managing T1D with caregivers and school staff in the comments.
  I was in school some years ago but my mother would bring juice placed in the office. The nurse was only at the school for a very short time during the day and her office was locked when she was not there. The juice was either orange or apple juice.
- 10 months ago
  
  mbulzomi@optonline.net has commented in the same post you commented in :
  For caregivers of children with T1D, do you have any accommodations at your child’s school for managing T1D? For adults with T1D, did you have accommodations when you were in school? Please share more about your experiences managing T1D with caregivers and school staff in the comments.
  I have no children with T1, T1 1/2 or T2 Diabetes. Only I have Diabetes.
- 10 months ago
  
  Kayci Marr has commented in the same post you commented in :
  If you wear an insulin pump, what do you do with it when going through airport security? Select all that apply.
  I hate this part of the traveling process and I’ve been discriminated against by a TSA agent when I expressed my concern. The director I spoke to afterward was very empathetic, though.
- 10 months, 1 week ago
  
  T1D4LongTime has commented in the same post you commented in :
  If you wear an insulin pump, what do you do with it when going through airport security? Select all that apply.
  TSA Pre-check is great because the scanner is just a metal detector. No need to remove the pump or CGM. I always declare both devices and TSA pats me down every time. I take no chances on the full-body scanner scrambling the devices.
- 10 months, 1 week ago
  
  Rose Lentzke has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Be patient and learn as much as you can about how to take care of yourself.
- 10 months, 1 week ago
  
  PamK has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  I would let the person/people know that you can live a long, happy, healthy life with diabetes as long as you keep your blood sugars controlled. That is the key! It may take some time to get regulated, but once you do, stay that way. It's the best thing for you and you'll feel so much better if you do. Also, don't fret over the occasional high or low blood sugar. They will happen. It's just part of life with diabetes.
- 10 months, 1 week ago
  
  Molly Jones has commented in the same post you commented in :
  If you wear an insulin pump, what do you do with it when going through airport security? Select all that apply.
  I've had implanted devices before the diagnosis of diabetes due to epilepsy and have had to have a pat down. I haven't walked through the metal detector due to it interfering with a responsive neurostimulator for almost a decade.
- 10 months, 1 week ago
  
  Melissa Childers has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Blood sugar numbers are treatment tools, not a judgement on how well you are doing.
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101 Federal Street, Suite 440
Boston, MA 02110
Phone: 617-892-6100
Email: admin@t1dexchange.org

Name	JuJuB
About Me	T1D - dx in October 1970

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