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What have you learned this year about life with T1D?
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Thereās always more to learn.
I learned that this community is fantastic and that I’m so glad I found it. I’m grateful for the articles, the questions, and the conversation about diabetes-in-real-life!
A lifetime of high and low glucose levels does damage that I’m now paying for with chronic kidney disease and hearing loss from nerve damage. Even with 90% TIR now, 66+ years of life with T1D takes a toll.
Iāve learned that your frame of mind has a lot to do with how you deal with T1D during a pandemic or anytime. Being able to walk, stay physically active, and bike outside was a blessing for my husband and I.
As much as you try there are no two days that are the same one day good next day not so good diabetes is very frustrating even after living with it for 45 years.
I learnt that glycoHG A1 can be misleading and biased downwards in some circumstances, e.g. if one has low red cell blood count, and that the calculated Dexcom indicator may be a better indicator, and this can be confirmed by tests to do with 1,5-anhydroglucitol (1,5-AG), fructosamine, or glycated albumin. My endo prefers the Dexcom indicator to the actual measured Hgb A1c, saying it is confirmed by the CGM which ‘doesn’t lie’ and a fructosamine test.
I’m to tired of being sick and tired of having doctors who assembly line me and a doctors staff who could give a sh*t. So I got a new Endo 5 days ago. Wish me luck. This Endo brought her game on our 1st appointment. I respect that. Never settle.
Sometimes it was easier when I did 2 shots a day and urine tests.
I agree. CGM technology is a blessing but it is stressful always seeing the numbers!
Nothing really. Been living with it for almost 50 years now.
I have learned that there is always more to learn to make my life easier with T1D: perhaps learning new ways to use the algorithm on my pump, perhaps finding new foods to enjoy, or ways to enjoy foods at least occasionally that I had left out because of T1D, perhaps finding new sites about T1D speaking to better technologies and others with T1D.
That I really see the value of a CGM.
Dexcom and Tandem CIQ make it much easier but diabetes still needs attention and sites changes, sensor changes, pump refills and such. It is always there.
60 years for me technology catching up with this disease.
I switched to the Tandem t:slim with Control-IQ pump after using Omnipod and Dexcom without connectivity. I love my tighter control and TIR that my pump achieves for me my reading my CGM data from Dexcom, it has been a game changer. The only downside is getting used to the tubes and having to hang the pump off my waistband or belt or pocket. Itās getting easier and I havenāt dropped it in the toilet yet so thatās a good thing.
Thank you all for sharing. š
1) I miss my MDI! My control was so much better then than it has been since going on a pump.
2) I do like that I don’t have the nighttime lows I did have on MDI.
3) Diabetes with COVID is scary and I pray that I don’t catch it!
Air bubbles in pump tubing can be a problem re. Glucose levels.
That I am still here living a pretty full, interesting, and fulfilling life on planet Earth after 59 years since being gifted with the hidden blessing of T1D. Although it is always challenging because of having to think, act, and maintain constant self-care awareness & beta cell consciousness, it has made me a stronger person and living with diabetes has never diminished my inner spirit and spiritual growth. I celebrated another diaversary on 12/26 – to commemorate 12/26/1962, the day I was informed of the lifelong journey I was embarking on as an 8 year old. I now enter my 60th year of dancing with diabetes! Life with diabetes gets better & better as I age!
Diabetes will win if you let it. I may be brittle but my life does not have to be.
That life is meant to be enjoyed. I have found the more conditions I have been diagnosed with throughout time, the more I realize that bodies and brains don’t last forever. I want to enjoy the time by keeping them in healthy working order as well as possible and spending time with others.
Also, that I am very grateful for science.
Man! Do I hope Dr Faustman does well with her possibility of a cure.
https://www.faustmanlab.org/clinical-trials/#diabetes
That diabetes management remains a full time job with no days off, but when I look at other illnesses there are many that are worse. I’m grateful for the technology (Tslim pump and Dexcom CGM) that helps me to keep my blood sugars in line. Hope you had a beautiful Merry Christmas and wishing all of you a very Happy New Year!
Insurance can really suck sometimes.
May
That CGM communicating with an insulin pump is a powerful, effective tool for managing T1D, but expensive. Would happily pay higher taxes to enable all with T1D to have access to that technology!
I have not learned much? having lived with it for the last 50 years and coping well with my GP & Diabetes Consultant being very happy with all of my blood results, my fitness and daily exercise routine, in the summer i jog/walk 5.6 kilometres and in winter time I do that same distance on the treadmill.
The consistency I have created in my daily management and glucose control has made my existence with T1D so much easier! The more strictly that I adhere to the guidelines that I set for myself, the more T1D because a secondary thought instead of a primary thought.
I’ve learned I can either suffer because diabetes happened TO ME or I can recognize that I created this disorder by attacking my own body out of guilt or shame, just emotional perspectives, owning that and realizing diabetes happened FOR ME! Awake up call to changes I need to make in thinking and lifestyle so I can live a fabulous life!
Although I was diagnosed over 7 years ago, I still struggle with acceptance of myself as a PWD. In 2021, I realized I was living more FOR diabetes and WITH diabetes and that I do have the power to manage my relationship with diabetes differently. A work in progress…
I learn that the technology is getting better for diabetes and has let me have a little bit more control for having uncontrollable diabetes
After 55 years of T1D, I’ve learned I am not immune to complications (T1D snowflake cataract in my only good eye). I’ve been complication-free and under decently good control since I was diagnosed at age 6. I’ve learned aging is harder on T1D management than puberty or pregnancy was.
You must NEVER make peace with Diabetes, it does not care.
I’ve learned how important it is to have the same diabetic provider for a while. In the last seven years I have had 10 endocrinologists and Even more diabetic educator. Previously I had the same diabetic team including a neurologist for almost 10 years. This Matt Maher consistency with care grapes and more congruence in goals between my endrocrinologist and me. Decorative near me well enough to work in ways that helped me.