Cindy DeLano

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- 1 year, 7 months ago
  
  Randell Cole has commented in the same post you commented in :
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  Did not exist
- 1 year, 7 months ago
  
  Lawrence S. has commented in the same post you commented in :
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  Are you seeing an Endocrinologist? I would think and Endocrinologist would be happy to do the necessary paperwork. Insurance companies, and supply companies can just be difficult. I would think that Dexcom would be easier to get because it is currently the gold standard for CGM's.
- 1 year, 7 months ago
  
  Lawrence S. likes your comment at
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  Heck, home glucose monitoring didn’t exist! I still used the Clinitest test tube method of measuring the glucose in your urine. How things have changed. Thank goodness!
- 1 year, 7 months ago
  
  StPetie has commented in the same post you commented in :
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  I coose Other. I waited about about a year mostly due to a number of medical issues that came along with the t1d diagnosis.
- 1 year, 7 months ago
  
  Melinda Lipe has commented in the same post you commented in :
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  Complicated - In 1966 at diagnosis they did not exist. When they became commonly available, there were criteria (hypoglycemia unawareness) for them. 2008 - 43 years in, 10 years after I began pump therapy.
- 1 year, 7 months ago
  
  KarenM6 likes your comment at
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  Heck, home glucose monitoring didn’t exist! I still used the Clinitest test tube method of measuring the glucose in your urine. How things have changed. Thank goodness!
- 1 year, 7 months ago
  
  Joan Benedetto has commented in the same post you commented in :
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  Our son was diagnosed at 18 mos of age, and Endo prescribed pump/Cgm immediately. He started pumping two mos post dx, but insurance would not cover Cgm due to our son’s age. Shortly after he turned two, we sent proof (with help from Dex rep) that cgm was FDA approved for kiddos two and up. Took a few months, but we won our appeal!
- 1 year, 7 months ago
  
  Sherrie Johnson has commented in the same post you commented in :
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  I am with you similar journey 1961 for me.
- 1 year, 7 months ago
  
  Lyndsey Escobar has commented in the same post you commented in :
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  We received a CGM 2 weeks after diagnosis so we knew how to count carbs and dose in the event that the CGM failed or waiting for a delivery, etc.
- 1 year, 7 months ago
  
  Stephen Woodward has commented in the same post you commented in :
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  Took two years to get one at Kaiser because I had no ER visits and A1C was to low.
- 1 year, 7 months ago
  
  Patricia Dalrymple has commented in the same post you commented in :
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  Yes. You have to hit them where it hurts, and it isn’t always in the pocket book. They didn’t want to cover the amount of my test strips until I told the pharmacist: OK but it means when I go low, I won’t always test because I don’t want to run out is strips. The pharmacist said, hold on a minute. When they came back in, I had slow the strips I needed.
- 1 year, 7 months ago
  
  cynthia jaworski has commented in the same post you commented in :
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  I have typically used physicians who are "out of network" for my health plan. In my case, this means the in;insurance will pay some of the costs but a much lower amount. However, these endocrinologists are not hampered by the insurance companies in their choice of treatments. So, I had been offered a cgm long before I decided to go for it. The reason for my initial reluctance was that the early dexcom required 2 calibrations daily. At the time I was only using 5 finge3rsticks a day (yes, the test strips were limit4dd then), so it didn't seem to be worth all the bother to eliminate 2 fingersticks. I had not anticipated how frequently I would be getting readings and making good use of the cgm readings. I am very glad that I was not pushed, but I really wish I had seen the light sooner.
- 1 year, 7 months ago
  
  Amanda Barras has commented in the same post you commented in :
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  I am so sorry to hear that. It should have nothing to do with you age and everything to do with labs results and medical necessity. Frustrating!
- 1 year, 7 months ago
  
  Amanda Barras has commented in the same post you commented in :
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  Mine was a 2 fold answer. Dx in 1988 CGM didn’t exist. But, even when pumps and CGM became available I was still restricted due to affordability due to Insurance companies not covering these therapies right away.
- 1 year, 7 months ago
  
  cynthia jaworski likes your comment at
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  Heck, home glucose monitoring didn’t exist! I still used the Clinitest test tube method of measuring the glucose in your urine. How things have changed. Thank goodness!
- 1 year, 7 months ago
  
  Courtney Smith likes your comment at
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  Heck, home glucose monitoring didn’t exist! I still used the Clinitest test tube method of measuring the glucose in your urine. How things have changed. Thank goodness!
- 1 year, 7 months ago
  
  Mary Dexter has commented in the same post you commented in :
  If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.
  My insurance company automatically rejected my first request for a CGM and appealing that decision was arduous. I still must continuously prove that I am worthy. My doctors' offices are happy to have Medtronic deal with maintaining authorization for their CGM, but discourage use of Dexcom: paperwork doesn't get filed and they barely glance at the data. One CDE told me I would never get a Dexcom, as I was told I would never get an endocrinologist, because I wasn't one of the Chosen. As someone diagnosed well after childhood, I continually battle for my right to insulin and CGM against doctors who can't accept that an adult can develop autoimmune diabetes.
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Cindy DeLano

101 Federal Street, Suite 440
Boston, MA 02110
Phone: 617-892-6100
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