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    • 14 hours, 45 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 14 hours, 46 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 15 hours, 37 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 16 hours, 4 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 16 hours, 17 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 17 hours, 9 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 17 hours, 16 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 17 hours, 38 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 40 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 47 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 19 hours, 12 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 10 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 16 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 17 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 17 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 18 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 18 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 18 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 18 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    Which of these symptoms of hypoglycemia do you frequently experience during a low? Please select all that apply.

    Home > LC Polls > Which of these symptoms of hypoglycemia do you frequently experience during a low? Please select all that apply.
    Previous

    Have you (or your loved one with T1D) been diagnosed with retinopathy?

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    If you use an automated insulin delivery system (e.g., Tandem with Control-IQ, Omnipod 5, Medtronic pumps with Auto Mode, etc.), how did your A1c change in the first 3 months of use?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    57 Comments

    1. Twinniepoo74

      Problem for me is all the symptoms of low are the same as lupus plus fibermoylagia and I have both. Thank goodness for the Dexcom warning me of my lows.

      2
      5 days ago Log in to Reply
    2. stillarobyn

      Frequently, I’ll have a cold nose.

      1
      5 days ago Log in to Reply
    3. Lee Johnson

      For many years I did not have noticeable low feeling. The bottom line was I would have seizures.

      2
      5 days ago Log in to Reply
    4. Janice Bohn

      I also feel a weight in my chest

      5 days ago Log in to Reply
    5. Ginger Vieira

      This question reminds me of how much it is to live with T1D! 🙂 Oy vey.

      8
      5 days ago Log in to Reply
    6. Jim Andrews

      I’ve been hypo unaware for many years. I assume it’s because I had so many lows for a period of several years.

      2
      5 days ago Log in to Reply
    7. Robin Melen

      I don’t let the symptoms get ahead of me, though – as soon as I feel that shakiness, I check my CGM and sure enough, I’m headed down. Then all the other symptoms come at once, and out come the peanut butter crackers and/or juice!

      5 days ago Log in to Reply
    8. Debra Nance

      I no longer feel lows thus the reason for my CGM.

      3
      5 days ago Log in to Reply
    9. Joan Fray

      Ii just get sort of tired. Like I’ve run out of gas. I sit down, rest a minute, and then realize I must be low. But usually the cgm alarms first.

      5
      5 days ago Log in to Reply
    10. Cindy Green

      I frequently have tingling in my lips and also go into manic/panic/fight or flight mode – fun for all involved!

      4
      5 days ago Log in to Reply
    11. Mick Martin

      I selected ‘I do not experience any symptoms of hypoglycemia’ but that’s because I suffer with severe hypoglycaemia [hypoglycemia] unawareness.

      Usually, the first symptoms I get is when I’m ‘coming round’ after someone has injected me with either a glucagon injection or has given me intravenous glucose. (Unfortunately, it’s been like this for more than 20 years now, whereas before I used to experience Shakiness, Hunger, Irritability or impatience, Sweating, chills, or claminess, Fatigue or weakness, Dizziness or feeling lightheaded, Confusion, Co-ordination [coordination] problems or clumsiness, Tingling or feeling numb … this was particularly the case when we first moved from U80 strength insulin to U100 strength insulin and when we moved from animal-derived insulins to analog insulins.

      5 days ago Log in to Reply
    12. cynthia jaworski

      For the last few years, I have a fluorescent yellow light in the middle of my visual field. It is oval in shape, wider than it is high.
      It is quite useful to have a visual alert like that.
      I guess this is a subset of the contusion category: I cannot work with numbers when I am low.

      5
      5 days ago Log in to Reply
      1. Kris Sykes-David

        I have a similar symptom, it starts with a spiky light then if low enough I see the full blown light that almost totally obscures my vision.

        5 days ago Log in to Reply
      2. William Bennett

        Like an after-image from glancing at the sun, yeah. I call that the “flashbulb effect,” and like you it hits me before anything else when I’ve got a really bad one coming on, and only happens when it’s dropping fast. When I see that I know I’m in trouble.

        5 days ago Log in to Reply
      3. Phyllis Biederman

        On only a few occasions with really low bg I’ve had my vision change to yellow too! It’s pretty scary as I know m extremely lo or dropping there.

        5 days ago Log in to Reply
      4. Robin Melen

        I cannot work with numbers no matter what! LOL

        2
        5 days ago Log in to Reply
    13. Ahh Life

      Most of our blessings come in heavily disguised. Thus sayeth the hypoglycemic condition.

      Usually, it comes in as an NDA, a brain non disclosure agreement. 🙅‍♂️

      3
      5 days ago Log in to Reply
    14. AimmcG

      Anxiety. I suffer from anxiety and that has become my number one indicator that I’m low when I am not engaging with people . So if I’m watching tv, driving in the car alone, or sleeping(I wake and immediately start freaking out about something. It’s actually an early indicator which is good because I can react quickly and fix it. Confusion is number two followed by sweaty and clumsy.

      2
      5 days ago Log in to Reply
    15. Carol Meares

      I don’t always feel the symptoms checked and I do get hunger sometimes which I didn’t check. And sometimes I have no symptoms…

      5 days ago Log in to Reply
    16. William Bennett

      Worst one for me is loss of vision. Like a flashbulb after-image that gets worse instead of fading. Often occurs before feeling anything else, which tells me it’s a really bad one. “Don’t wait, stop whatever you’re doing and get sugar right now!” is what that one means. Then hunker down for the wave of other symptoms that are about to roll through. Fortunately it’s pretty rare, thanks to CGM, pumping, and more controllable insulin than in olden days, maybe one in a year. Used to be a lot more frequent back in the days of R/NPH MDI and finger-sticks.

      4
      5 days ago Log in to Reply
    17. Tod Herman

      Fortunately, I get to say these are mainly a thing of the past! Recently, if I get a low (which is rare), it only comes in the middle of the night. But thanks to the various responses on this site (related to low glucose alarm settings) I have moved my alarm trigger up sooner and can address it before it occurs. However, having switched over to the Omnipod 5 six months ago, I rarely get a low blood sugar condition.

      5 days ago Log in to Reply
    18. Lori Lehnen

      1.5 years into diagnosis so I have nearly all of those symptoms. Which ones are present depends on my blood glucose level.

      3
      5 days ago Log in to Reply
    19. Phyllis Biederman

      I notice subtle cognitive changes such as decreased responsiveness, difficulty processing information or hyper focusing on only one or two things. On rare occasions I still get hungry or shaky.

      3
      5 days ago Log in to Reply
    20. Sue Martin

      My symptoms were oscillating so I couldn’t tell when I was having a low, so I got a DexCom. I don’t have to rely on how I feel now.

      1
      5 days ago Log in to Reply
    21. RegMunro

      I also become overly talkative!

      3
      5 days ago Log in to Reply
      1. Sherolyn Newell

        Me too. And talking fast.

        1
        5 days ago Log in to Reply
      2. mojoseje

        Yes, and I can’t Express my thoughts coherently.

        3
        5 days ago Log in to Reply
    22. Jeanne McMillan-Olson

      I get a feeling in my gut that something is not right when my blood glucose is getting low.

      3
      5 days ago Log in to Reply
    23. Steven Gill

      I “clicked” most of these. Over the 25 years my threshold hasn’t changed, feel thses, and trying to get “near-normal” levels there’s definitely the risk of lo blood sugars. So to me it’s not “if” but when. I had a CGM several years ago but stopped to pay for care of my 16 year old pup. Had the worst episode 2 years ago (watched on a security as I collapsed and laid 6 hours with a black eye and bloody: that old dog frantic with heart disease frantic). Got it back several months later and will do every thing I can to keep one.

      But several occasions I woke and my thought process was really odd, completely logical but delusional. While I shrug it off now, I still wonder what I’d do if I were 21 with what I know now: instead of 3 more years enlistment being released from the army. Mother’s death, both sister’s deaths, and as I woke thinking how I could protect them. Almost wish it was so but sipped the sweetened drink on my nightstand and realized I was 40 years older. Had several dreams when waking with low blood sugars as interesting.

      2
      5 days ago Log in to Reply
      1. Karen Tay

        Oh, yes, I forgot that one – – – crazy dreams when my blood sugar is low.

        1
        5 days ago Log in to Reply
      2. Jneticdiabetic

        Yes! Have had some bizarre hypo dreams!

        1
        4 days ago Log in to Reply
    24. Stephen Woodward

      First thing I notice when dropping is cognitive changes, such as memory challenges, then coordination. The cognitive changes have been there for 52 T1D yrs and for some reason it’s never listed on symptoms, too bad it’s the easiest and first thing to show.

      2
      5 days ago Log in to Reply
      1. sweetcharlie

        Thanks, same with me!!

        4 days ago Log in to Reply
    25. Estelle Smith

      Shakiness is usually my first symptom, followed closely by clumsiness. On a recent trip, the lady who was checking my passport handed me a chocolate covered granola bar while my friend got the candy out of my purse since my fingers forgot how to work.

      3
      5 days ago Log in to Reply
    26. Robert Brooks

      I’m amazed at how low the percentages are for any one symptom. What a vote for individualism. And where is the symptom of hearing beeping from one’s CGM?

      3
      5 days ago Log in to Reply
    27. Sherolyn Newell

      I checked a lot of boxes, but I don’t have all the symptoms all the time. It takes a pretty low BG before I feel anything, the lower it is, the more symptoms I get.

      3
      5 days ago Log in to Reply
    28. Becky Hertz

      I said I don’t experience symptoms, but the honest answer is I don’t frequently experience symptoms (as asked in the qod). When I do experience symptoms it is usually feeling fatigue and/or weakness. Or I just feel “off”. Thankful for Dexcom and my DAD.

      3
      5 days ago Log in to Reply
      1. sweetcharlie

        I checked off quite a few. But like you I just feel OFF !! 70 years T1D, I guess !!

        4 days ago Log in to Reply
    29. Chrisanda

      I selected a few symptoms, but honestly, they don’t appear until I am very low-40s, which luckily doesn’t happen very often, and it’s usually at night after I’ve slept through the initial warnings. That’s why I am so dependent on my Dexcom and Tandem pump.

      1
      5 days ago Log in to Reply
    30. Karen Tay

      The symptoms I checked do not necessarily happen all with the same hypoglycemic event.
      I also get what I call “foggy” brain but not confusion. And if my sugar is really low my vision changes to everything looking white.

      1
      5 days ago Log in to Reply
    31. George Lovelace

      Coming up on my 59th Diaversary I’ve experienced All of the Symptoms and a few more

      1
      5 days ago Log in to Reply
    32. Angela Naccari

      I chose many of the symptoms listed but one that is not listed is the one has been mentioned several times in the comments. The visual of a while blob in the middle of my vision. I say “blob” because is never the same and is not round. Only happens when BG is 50 or lower.

      1
      5 days ago Log in to Reply
    33. Janis Senungetuk

      With very few exceptions I’m now unaware of hypos. The CGM warns me that my bg level is dropping. If my field of vision suddenly dims and fills with either dark floating blobs or a central yellow blinding light, I know I need to immediately respond.

      1
      5 days ago Log in to Reply
    34. Kristine Warmecke

      I have been hypo unaware most of the 41 year’s I’ve had T1D. My first clue I might be low is my D.A.D. pawing at me.

      4 days ago Log in to Reply
    35. Ernie Richmann

      Flashes of light.

      2
      4 days ago Log in to Reply
    36. Linda Pease

      Unless it’s a severe low I have no systoms but if severe I get brain fog shakey and sometimes weakness

      4 days ago Log in to Reply
    37. Vicki Breckenridge

      I get a weird feeling in my stomach that is not describable.

      4 days ago Log in to Reply
    38. TEH

      As others have said, I have felt quite a few. The other thing is it changes from time to time when I go low. Almost never the same.

      1
      4 days ago Log in to Reply
      1. AnitaS

        Mine have changed over the years too.

        4 days ago Log in to Reply
    39. sweetcharlie

      Checked so MANY of them.. Then realize after reading all the replys, in 70 years T1D, and being almost 91 years OLD, I forgot so many more!! Its become part of living!!

      4 days ago Log in to Reply
    40. Jennifer Farley

      I get very combative as well. I had a friend, who has passed on and he told me that he had taken on a whole fire department before only to send them all lunch the next day as an apology. It is not every time, sometimes I am the sweetest person in the world. I wish I had a crystal ball, anyone know which type of low blood sugar they will get?

      1
      4 days ago Log in to Reply
      1. Kristine Warmecke

        My brother at 7 years old took on the fire and ambulance crew for the first time. Our Dad was an EMT at the time. It has happened several more time over the years, but now after 50 plus living T1D he knows when to eat before he gets that low.

        4 days ago Log in to Reply
    41. AnitaS

      Mine have changed over the years, but now my main symptom is an extremely uncomfortable feeling that I can’t wait to stop. Not exactly shaky, but I feel extremely uncomfortable. I don’t go very low anymore with a cgm so I very rarely have the severe symptoms of blurry vision, not thinking straight, massive sweating, or wobbliness that I used to have.

      4 days ago Log in to Reply
    42. Jneticdiabetic

      I’ve experienced all the listed symptoms with hypoglycemia except nausea. Depends on how low I am and how fast I’m falling. Rarely notice symptoms until I’m less 50 mg/dl. Occasionally sooner if I’m double arrows down.

      4 days ago Log in to Reply
    43. Amanda Barras

      Depends on how low I am how many of these I get. Mild hypo I just get hungry and tired. The lower I get I have impaired vision, more extreme fatigue, irritability, and cold sweats. I have had tingling lips and tongue in the past but not in recent years.

      3 days ago Log in to Reply
    44. PamK

      I do have one other symptom that is not listed. I get horny.

      3 days ago Log in to Reply
    45. T1D4LongTime

      I get an odd feeling behind and underneath my eyes. Hard to describe. It feels like when your eyes are dilated and you can’t focus, but my vision is still ok during lows. I find I get irritable, but also very active…. seems like my brain works super-fast during lows, so I tend to try to complete more tasks during a low without stopping to treat it. Solving problems is easier and I am more efficient in the 60-80 range. Once below that, then I tend to be very irritable and get a tiny bit clumsier (not much though).

      14 hours ago Log in to Reply

    Which of these symptoms of hypoglycemia do you frequently experience during a low? Please select all that apply. Cancel reply

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