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    • 13 hours, 39 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 13 hours, 40 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 14 hours, 31 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 14 hours, 59 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 15 hours, 11 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 16 hours, 4 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 16 hours, 11 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 16 hours, 33 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 35 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 42 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 18 hours, 7 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 9 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 17 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    Have you (or your loved one with T1D) been diagnosed with retinopathy?

    Home > LC Polls > Have you (or your loved one with T1D) been diagnosed with retinopathy?
    Previous

    If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)

    Next

    Which of these symptoms of hypoglycemia do you frequently experience during a low? Please select all that apply.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    33 Comments

    1. Jennifer Farley

      Not Yet

      1
      4 days ago Log in to Reply
    2. AnitaS

      I haven’t, but I had a Type-1 cousin who I believe had received that diagnosis. I know she had laser surgery for eye problems about 35-40 years ago.

      4 days ago Log in to Reply
    3. Ahh Life

      Diagnosed 1951. First laser treatment 1975. None in last 10 to 15 years. Still seeing, still driving. 💪

      6
      4 days ago Log in to Reply
    4. Lawrence S.

      Back in the 1980’s, my ophthalmologist said I had retinopathy and a tear in my retina. He did laser therapy. Since then, I’ve had good annual check ups.

      2
      4 days ago Log in to Reply
      1. cynthia jaworski

        Same timing and same results. We were lucky.

        2
        4 days ago Log in to Reply
      2. MT

        No tear here but lasers in the 80s, blessed with 20/20 now.

        2
        4 days ago Log in to Reply
    5. George Lovelace

      My Opthamologist referred me to a Retinologist 10+ years ago. Multiple Laser treatments and a Vitrectomy have my vision at 20/20 both eyes. Of course having Distance Vision doesn’t help with Reading

      1
      4 days ago Log in to Reply
    6. Gary Rind

      very mild case, no treatment necessary………………..yet

      3
      4 days ago Log in to Reply
    7. Francisco Varea

      I was just dx with very mild retinopathy. Does not affect my vision at this time.

      1
      4 days ago Log in to Reply
    8. Kristine Warmecke

      I answered yes, even though I have not been diagnosed with DM Retinopathy, I have congenital eye issues. My brother has been, has had laser treatment and is stable now & STILL has better vision than I do.

      1
      4 days ago Log in to Reply
    9. Dennis Dacey

      Yes, in 1966.
      Immediately volunteered for experiment with Ruby LASER and experienced very favorable results. Now with thousands of LASER burns done over a 50=+ year period, with at least 4 type LASERs, my vision is still pretty good – much better than the “you will be totally blind within 2 years” multiple doctors told me in ’66. My recently renewed driver’s license has an expiry date of July 4th 2028.

      4
      4 days ago Log in to Reply
    10. Shannon Barnaby

      Diagnosed with very mild about a year ago. Had frequent follow ups and it has been fine ever since.

      1
      4 days ago Log in to Reply
    11. Lena Selbrand

      Same here, very mild that does not affect my eyesight!

      1
      4 days ago Log in to Reply
    12. Richard Vaughn

      I was diagnosed with retinopathy about 15 years ago. That was before I used a pump. I started using a pump in 2007. I had better control, and my retinopathy disappeared. I do not have that problem now.

      3
      4 days ago Log in to Reply
    13. Janis Senungetuk

      Yes, in 1982, dx with retinopathy in both eyes, proliferative in left eye, slight in right eye. Next five years received 5 laser “treatments” in left eye. Have 20/200 vision in left eye. Right eye remains stable.

      2
      4 days ago Log in to Reply
    14. Ernie Richmann

      I know it is not a guarantee but my endocrinologist tells me I am never getting complications from diabetes. I exercise everyday. My routine includes walking, biking, and resistance training. I’m 74 and feel great. Sorry for those with complications.

      4
      4 days ago Log in to Reply
    15. Jan Masty

      63 years of t1 d and no retinopathy. I’m very, very lucky.

      5
      4 days ago Log in to Reply
      1. Karen Tay

        Yes, you are! : )

        3 days ago Log in to Reply
      2. Joan Fray

        That’s me too. Luck. Pure, dumb luck.

        2 days ago Log in to Reply
    16. theresa unter

      Yes at 35 years it was non proliferative and then rapidly proliferative and 4 years later still dealing with this life changing constant worry of up and down vision days. My a1c has been under 6 for the last 8 years and between 7 and 8 prior years!

      2
      3 days ago Log in to Reply
    17. Bob Durstenfeld

      Yes and thanks to extensive laser based pan-photo coagulation it has been stable for decades. The trade off was losing my peripheral vision which has led to a few annoying trips and falls. I understand it is treated with shots now.

      2
      3 days ago Log in to Reply
      1. Karen Brady

        It depends on the patient, sometimes injections are given but laser is still a very common treatment!

        3 days ago Log in to Reply
      2. Bill Williams

        Like you, I had laser treatments years ago (1990) and have minor peripheral vision loss. My condition is stable and I only need to see my eye guy once a year.

        3 days ago Log in to Reply
    18. Karen Tay

      I had proliferative retinopathy with many laser treatments in 1977. That was 17 years after being diagnosed T1D

      3 days ago Log in to Reply
    19. Carol Meares

      No but I have a wrinkled retina

      3 days ago Log in to Reply
    20. Georgina Sokol

      Had a great GP who sent me to a retinologist when finding out I was pregnant (I had no retinopathy at that time). The Retinologist mapped my eyes as they were. After my delivery, I went back and received extremely precise laser treatment for retinopathy that developed during my pregnancy.

      2
      3 days ago Log in to Reply
    21. Angela Naccari

      I had retinopathy in 2020 in my right eye after 58 years of TD1. It was a surprise – had background retinopathy for several years with no changes or concerns and was monitored every 6 months. Just suddenly had a bad bleed that affected vision. Was monitored for a month and it would go away but then happened again. Had to have injections but bleeds did not stop happening. Had vitrectomy surgery and laser at the same time and no problems since. I am monitored every 6 months. It was sad for me to have this happen after 58 years.

      4
      3 days ago Log in to Reply
    22. Amanda Barras

      Very mild one year, and no evidence of it the next. I have had a A1c of 6.5 or less for the last 11 years so I am not concerned.

      2
      3 days ago Log in to Reply
    23. Becky Hertz

      I was diagnosed with macular edema first and some nonaggression was found when they did the eye photos. 15 ish years in which my pathologist at the time said was about “on schedule”..

      3 days ago Log in to Reply
    24. sweetcharlie

      No retinopathy… But AMD both eyes last 2 years…No treatment available… Unable to wright… bareley able to read only large type… use the talking guy hideing in my computer to read for me… Almost 91 years OLD…. 70 years T1D…

      3
      3 days ago Log in to Reply
    25. Mick Martin

      More than 30 years ago.

      I’ve received laser treatment probably a hundred or more times since then to ‘keep on top of it’. (I’ve also had the lenses removed from both of my eyes, with plastic lenses inserted, due to severe cataracts that developed in both of my eyes.)

      3 days ago Log in to Reply
      1. Mick Martin

        I forgot to add that I’ve also developed Macula degeneration over recent years …. around about the last 10 years.

        3 days ago Log in to Reply
    26. Steve Rumble

      My spouse was diagnosed with retinopathy and treated with Lazer surgery in both eyes. I have been diagnosed with minor (level 1 if I remember correctly) retinopathy with no treatment required.

      3 days ago Log in to Reply

    Have you (or your loved one with T1D) been diagnosed with retinopathy? Cancel reply

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