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  • Activity
    • 13 hours, 18 minutes ago
      ConnieT1D62 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I usually bolus for breakfast right at the time I start eating. But I prefer to bolus 15 minutes before. Better results. But I always forget.
    • 15 hours, 14 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 15 hours, 16 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I am able to pr bolus for Breakfast and dinner as I am at home. I never know when I am going to eat at work so bolus is at start of meal.
    • 18 hours, 8 minutes ago
      Mick Martin likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      Question is misleading until type of insulin is understood. I said 15 because I use Fiasp insulin.
    • 18 hours, 24 minutes ago
      Kris Sykes-David likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 19 hours, 20 minutes ago
      Ernie Richmann likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 19 hours, 42 minutes ago
      Robin Melen likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      My most recent meal was breakfast and, during the work week, I am far better at bolusing ahead of time. The rest of my meals in the day though end up receiving the bolus as I start eating or part at the start and more later on (depending on what I am eating and whether I know how much I'll eat.)
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 2 days, 15 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 2 days, 16 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 2 days, 16 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 2 days, 16 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 19 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 14 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 16 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 17 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 17 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 18 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 19 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 19 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 19 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 4 days, 7 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
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    Have you (or your loved one with T1D) been diagnosed with retinopathy?

    Home > LC Polls > Have you (or your loved one with T1D) been diagnosed with retinopathy?
    Previous

    If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)

    Next

    Which of these symptoms of hypoglycemia do you frequently experience during a low? Please select all that apply.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    33 Comments

    1. Jennifer Farley

      Not Yet

      1
      7 months ago Log in to Reply
    2. AnitaS

      I haven’t, but I had a Type-1 cousin who I believe had received that diagnosis. I know she had laser surgery for eye problems about 35-40 years ago.

      7 months ago Log in to Reply
    3. Ahh Life

      Diagnosed 1951. First laser treatment 1975. None in last 10 to 15 years. Still seeing, still driving. 💪

      6
      7 months ago Log in to Reply
    4. Lawrence S.

      Back in the 1980’s, my ophthalmologist said I had retinopathy and a tear in my retina. He did laser therapy. Since then, I’ve had good annual check ups.

      2
      7 months ago Log in to Reply
      1. cynthia jaworski

        Same timing and same results. We were lucky.

        2
        7 months ago Log in to Reply
      2. MT

        No tear here but lasers in the 80s, blessed with 20/20 now.

        2
        7 months ago Log in to Reply
    5. George Lovelace

      My Opthamologist referred me to a Retinologist 10+ years ago. Multiple Laser treatments and a Vitrectomy have my vision at 20/20 both eyes. Of course having Distance Vision doesn’t help with Reading

      1
      7 months ago Log in to Reply
    6. Gary Rind

      very mild case, no treatment necessary………………..yet

      3
      7 months ago Log in to Reply
    7. Francisco Varea

      I was just dx with very mild retinopathy. Does not affect my vision at this time.

      1
      7 months ago Log in to Reply
    8. Kristine Warmecke

      I answered yes, even though I have not been diagnosed with DM Retinopathy, I have congenital eye issues. My brother has been, has had laser treatment and is stable now & STILL has better vision than I do.

      1
      7 months ago Log in to Reply
    9. Dennis Dacey

      Yes, in 1966.
      Immediately volunteered for experiment with Ruby LASER and experienced very favorable results. Now with thousands of LASER burns done over a 50=+ year period, with at least 4 type LASERs, my vision is still pretty good – much better than the “you will be totally blind within 2 years” multiple doctors told me in ’66. My recently renewed driver’s license has an expiry date of July 4th 2028.

      4
      7 months ago Log in to Reply
    10. Shannon Barnaby

      Diagnosed with very mild about a year ago. Had frequent follow ups and it has been fine ever since.

      1
      7 months ago Log in to Reply
    11. Lena Selbrand

      Same here, very mild that does not affect my eyesight!

      1
      7 months ago Log in to Reply
    12. Richard Vaughn

      I was diagnosed with retinopathy about 15 years ago. That was before I used a pump. I started using a pump in 2007. I had better control, and my retinopathy disappeared. I do not have that problem now.

      3
      7 months ago Log in to Reply
    13. Janis Senungetuk

      Yes, in 1982, dx with retinopathy in both eyes, proliferative in left eye, slight in right eye. Next five years received 5 laser “treatments” in left eye. Have 20/200 vision in left eye. Right eye remains stable.

      2
      7 months ago Log in to Reply
    14. Ernie Richmann

      I know it is not a guarantee but my endocrinologist tells me I am never getting complications from diabetes. I exercise everyday. My routine includes walking, biking, and resistance training. I’m 74 and feel great. Sorry for those with complications.

      4
      7 months ago Log in to Reply
    15. Jan Masty

      63 years of t1 d and no retinopathy. I’m very, very lucky.

      5
      7 months ago Log in to Reply
      1. Karen Tay

        Yes, you are! : )

        7 months ago Log in to Reply
      2. Joan Fray

        That’s me too. Luck. Pure, dumb luck.

        7 months ago Log in to Reply
    16. theresa unter

      Yes at 35 years it was non proliferative and then rapidly proliferative and 4 years later still dealing with this life changing constant worry of up and down vision days. My a1c has been under 6 for the last 8 years and between 7 and 8 prior years!

      2
      7 months ago Log in to Reply
    17. Bob Durstenfeld

      Yes and thanks to extensive laser based pan-photo coagulation it has been stable for decades. The trade off was losing my peripheral vision which has led to a few annoying trips and falls. I understand it is treated with shots now.

      2
      7 months ago Log in to Reply
      1. Karen Brady

        It depends on the patient, sometimes injections are given but laser is still a very common treatment!

        7 months ago Log in to Reply
      2. Bill Williams

        Like you, I had laser treatments years ago (1990) and have minor peripheral vision loss. My condition is stable and I only need to see my eye guy once a year.

        7 months ago Log in to Reply
    18. Karen Tay

      I had proliferative retinopathy with many laser treatments in 1977. That was 17 years after being diagnosed T1D

      7 months ago Log in to Reply
    19. Carol Meares

      No but I have a wrinkled retina

      7 months ago Log in to Reply
    20. Georgina Sokol

      Had a great GP who sent me to a retinologist when finding out I was pregnant (I had no retinopathy at that time). The Retinologist mapped my eyes as they were. After my delivery, I went back and received extremely precise laser treatment for retinopathy that developed during my pregnancy.

      2
      7 months ago Log in to Reply
    21. Angela Naccari

      I had retinopathy in 2020 in my right eye after 58 years of TD1. It was a surprise – had background retinopathy for several years with no changes or concerns and was monitored every 6 months. Just suddenly had a bad bleed that affected vision. Was monitored for a month and it would go away but then happened again. Had to have injections but bleeds did not stop happening. Had vitrectomy surgery and laser at the same time and no problems since. I am monitored every 6 months. It was sad for me to have this happen after 58 years.

      4
      7 months ago Log in to Reply
    22. Amanda Barras

      Very mild one year, and no evidence of it the next. I have had a A1c of 6.5 or less for the last 11 years so I am not concerned.

      2
      7 months ago Log in to Reply
    23. Becky Hertz

      I was diagnosed with macular edema first and some nonaggression was found when they did the eye photos. 15 ish years in which my pathologist at the time said was about “on schedule”..

      7 months ago Log in to Reply
    24. sweetcharlie

      No retinopathy… But AMD both eyes last 2 years…No treatment available… Unable to wright… bareley able to read only large type… use the talking guy hideing in my computer to read for me… Almost 91 years OLD…. 70 years T1D…

      3
      7 months ago Log in to Reply
    25. Mick Martin

      More than 30 years ago.

      I’ve received laser treatment probably a hundred or more times since then to ‘keep on top of it’. (I’ve also had the lenses removed from both of my eyes, with plastic lenses inserted, due to severe cataracts that developed in both of my eyes.)

      7 months ago Log in to Reply
      1. Mick Martin

        I forgot to add that I’ve also developed Macula degeneration over recent years …. around about the last 10 years.

        7 months ago Log in to Reply
    26. Steve Rumble

      My spouse was diagnosed with retinopathy and treated with Lazer surgery in both eyes. I have been diagnosed with minor (level 1 if I remember correctly) retinopathy with no treatment required.

      7 months ago Log in to Reply

    Have you (or your loved one with T1D) been diagnosed with retinopathy? Cancel reply

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