Robert Brooks – T1D Exchange

Activity
- 2 months, 3 weeks ago
  
  pru barry likes your comment at
  Have you ever changed diabetes healthcare providers because you did not agree on aspects of your T1D management? (E.g., disagreement about device choices, blood glucose goals, management decisions, etc.)
  A GP can prescribe the needed supplies and serve as the doctor required by Medicare for a 90-day visit interval. Even the endo could authorize a refill without a visit.
- 4 months, 2 weeks ago
  
  sweetcharlie likes your comment at
  Do you wear medical alert jewelry or something on your body to signify you have type 1 diabetes in case of an emergency?
  I have worn a stainless steel neck chain and medal for 65 years. I would prefer medical personnel know I am a Type 1 diabetic before I develop a 500 blood sugar. The medal from Medic Alert can still be read and spells out insulin-dependent diabetic and hypertension. It also tells me my blood type. Even has a phone number and file number that was last updated 40 years ago. The added benefit is that the chain is a place to clip the insulin pump when you lack a belt or pocket.
- 6 months, 2 weeks ago
  
  Jeanne McMillan-Olson likes your comment at
  If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
  During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
- 6 months, 2 weeks ago
  
  Ahh Life likes your comment at
  If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
  During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
- 6 months, 2 weeks ago
  
  KSannie likes your comment at
  If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
  During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
- 6 months, 2 weeks ago
  
  Marthaeg likes your comment at
  Which of these symptoms of hypoglycemia do you frequently experience during a low? Please select all that apply.
  I'm amazed at how low the percentages are for any one symptom. What a vote for individualism. And where is the symptom of hearing beeping from one's CGM?
- 6 months, 2 weeks ago
  
  Sherolyn Newell likes your comment at
  Which of these symptoms of hypoglycemia do you frequently experience during a low? Please select all that apply.
  I'm amazed at how low the percentages are for any one symptom. What a vote for individualism. And where is the symptom of hearing beeping from one's CGM?
- 6 months, 2 weeks ago
  
  Robin Melen likes your comment at
  Which of these symptoms of hypoglycemia do you frequently experience during a low? Please select all that apply.
  I'm amazed at how low the percentages are for any one symptom. What a vote for individualism. And where is the symptom of hearing beeping from one's CGM?
- 8 months, 1 week ago
  
  Sara Kvenvik has commented in the same post you commented in :
  When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
  I haven't flown since my type 1 diabetes.
- 8 months, 3 weeks ago
  
  Wanacure has commented in the same post you commented in :
  When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
  I no longer fly. But when I did i carried medical supplies and extra food as carry on. Today, whether running errands on foot or by bus or taxi, I ALWAYS carry Dexcom, One Touch meter, sugar cubes, prefilled insulin syringes with me in backpack, pockets of pants and/or backpack. Let recent SW Airlines lost luggage snafu be a warning.
- 8 months, 3 weeks ago
  
  Andrea Hultman has commented in the same post you commented in :
  If you use an insulin pump, when a pump site does not last the full amount of time it is supposed to last, do you contact customer service for replacement supplies?
  Medtronic doesn't offer this service for infusion sites. Only for CGM sensors.
- 8 months, 3 weeks ago
  
  T1D4LongTime has commented in the same post you commented in :
  When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
  Usually all T1D supplies and medications go with me on my carryon. Can't risk freezing in cargo holds or lost luggage. Extra week of test strips, etc. sometimes I will pack in checked baggage, but seldom.
- 8 months, 3 weeks ago
  
  Jeff Balbirnie has commented in the same post you commented in :
  When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
  Fanny pack always
- 8 months, 3 weeks ago
  
  Kris van Bergen has commented in the same post you commented in :
  When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
  I actually pack all diabetes supplies in a SEPARATE carry on, because most airlines will allow a medical bag that is not counted as THE carry on typically allowed for passengers.
- 8 months, 3 weeks ago
  
  Anthony Harder has commented in the same post you commented in :
  When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
  I learned this the hard way, years ago. I flew to Chicago and my bag flew to Pittsburgh. Ever since, I keep my supplies within reach when traveling.
- 8 months, 3 weeks ago
  
  KC has commented in the same post you commented in :
  When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
  I put everything that I know I will definitely need and then some in my "personal bag" which is with me under the seat in front of me. If there are additional items, it will go in my carryon (the one going overhead). I pack lightly and tightly and may have checked my bag once maybe twice due to all the horror stories.
- 8 months, 3 weeks ago
  
  Diana L. has commented in the same post you commented in :
  When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
  I fly frequently. I disconnect the pump and put it in my purse. I don't like the full body scanners, i ask for a pat down. They are usually very polite. With TSA precheck, most of the times they only require you to go through the metal detector. There is no need to bypass therules. Safe travels!
- 8 months, 3 weeks ago
  
  TEH has commented in the same post you commented in :
  When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
  I flew a lot for my employers when I worked. Like others, I carried on what I needed to cover the trip plus some reserves. I retired 4 years ago and stopped flying all together. My wife hates to fly so it's not a problem for me. We take our RV.
- 8 months, 3 weeks ago
  
  Jen Farley has commented in the same post you commented in :
  When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
  I have never flown anywhere. I like the drive!
- 8 months, 3 weeks ago
  
  mbulzomi@optonline.net has commented in the same post you commented in :
  When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
  May I clarify the question, a Carry-on is a bag put into the overhead compartment. I have travelled all around the world and carry a small case in my HAND with at least three days of supplies, including my Insulin in a FRIO, insulin cooler. It never leaves my sight!
- 8 months, 3 weeks ago
  
  Jeremy Hanson has commented in the same post you commented in :
  When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
  I do this same thing.
- 8 months, 3 weeks ago
  
  Kelly Wilhelm has commented in the same post you commented in :
  When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
  Agree. It def depends on length of trip but generally I don’t check a bag BUT for long long trip I check bag with extra supplies if they don’t fit in carry on. Just depends on situation. I’ve been denied the extra medical bag and been required to combine bags while trying to board the plane.
- 8 months, 3 weeks ago
  
  MARIE has commented in the same post you commented in :
  When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
  Unfortunately, they simply remind you that disability status does not exempt one from "the rules." Of course they all enforce "the rules" a bit differently. In airports with smart, compassionate agents, you don't have to trot out the ADA. In the others (such as Boston Logan), it makes no difference.
- 8 months, 3 weeks ago
  
  Sherrie Johnson has commented in the same post you commented in :
  When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
  I dictated and that didn’t come out at all it was supposed to be it’s our life we better carry our medicine you never can rely on other people at least that’s what I’ve always done
- 8 months, 3 weeks ago
  
  Sherrie Johnson has commented in the same post you commented in :
  When traveling by airplane, which of these options best describes whether you pack your T1D supplies and medications in your carryon or checked baggage? Please select all that apply to you, and share in the comments about which supplies you keep in your carryon bags while flying.
  Life with better care yet this question sometimes are well I don’t know what to say about them they’re not very smart
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