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      lis be likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      Being at high risk for dementia (both genetic and behavioral) and at an advanced age while still making very complex decisions about pump, CGM, and data issues Phew! What a premise! Is the optimal strategy for T1D management most likely to be MDI by caregivers in assisted living?
    • 6 hours, 36 minutes ago
      Deborah Wright likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      It's rare I have questions, but if I do, I send a message to my Endocrinologist, and she responds quickly.
    • 6 hours, 39 minutes ago
      Deborah Wright likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I use the patient portal to ask my doctor.
    • 6 hours, 39 minutes ago
      Deborah Wright likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
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      When I come up with a question between visits, I usually just do some research.
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      Mike S likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I use the patient portal to ask my doctor.
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      Mike S likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      Being at high risk for dementia (both genetic and behavioral) and at an advanced age while still making very complex decisions about pump, CGM, and data issues Phew! What a premise! Is the optimal strategy for T1D management most likely to be MDI by caregivers in assisted living?
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      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      How to avoid the rebounding effects of a low blood sugar.
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      Lawrence S. likes your comment at
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      After making pump setting changes due to new Mounjaro, why are my post meal glucose levels so high and how do we fix it?
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      Lawrence S. likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      Being at high risk for dementia (both genetic and behavioral) and at an advanced age while still making very complex decisions about pump, CGM, and data issues Phew! What a premise! Is the optimal strategy for T1D management most likely to be MDI by caregivers in assisted living?
    • 8 hours, 33 minutes ago
      Lawrence S. likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      Between regular T1D visits, I often wonder whether daily patterns—like changes in stress, sleep, or meals—affect my numbers more than I realize. Sometimes I take a short mental break with a quick game, such as subway surfers mod apk, before reviewing my data again. It helps me reset so I can ask clearer questions at my next appointment.
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      Carrolyn Barloco likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      Being at high risk for dementia (both genetic and behavioral) and at an advanced age while still making very complex decisions about pump, CGM, and data issues Phew! What a premise! Is the optimal strategy for T1D management most likely to be MDI by caregivers in assisted living?
    • 9 hours, 3 minutes ago
      Carrolyn Barloco likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      Will I be okay during pregnancy, especially now that I'm over 40?
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      Do you currently take metformin?
      Before I was correctly diagnosed the primary care physician said I must be type 2 due to my age of 36, even though I was always very thin and had rapidly lost even more weight. He prescribed metformin- I proceeded to get sicker and sicker. Finally got to an endocrinologist who tested and said I was T1D, and I was put immediately on insulin. What a game changer.
    • 20 hours, 26 minutes ago
      kilupx likes your comment at
      Do you currently take metformin?
      Other I took Metformim for 3 months when I was first incorrectly diagnosed with T2. I am very sensitive to insulin and don’t need it yet.
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      Do you currently take metformin?
      In the late 2010s, I began to become insulin resistant and started packing on a lot of weight. I believe using a pump facilitated this because of the abundance of insulin readily available. My doctor put me on metformin, then Jardiance, then Victoza. As a result, my insulin use went from 120-140 units per day to a minimum of 24, up to 40 depending on carb loads. I also lost 102 lbs. It may not be for everyone, but if you're starting to notice insulin resistance, it can be a good weapon to have.
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      Kristi Warmecke likes your comment at
      Do you currently take metformin?
      Wow!
    • 1 day, 6 hours ago
      Kristi Warmecke likes your comment at
      Do you currently take metformin?
      I've had T1D for 50 years. I started taking Metformin 9 months ago. I take full dose at bedtime to manage my morning glucose rise. It keeps the liver from releasing glucose. It has helped.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      Do you currently take metformin?
      In the late 2010s, I began to become insulin resistant and started packing on a lot of weight. I believe using a pump facilitated this because of the abundance of insulin readily available. My doctor put me on metformin, then Jardiance, then Victoza. As a result, my insulin use went from 120-140 units per day to a minimum of 24, up to 40 depending on carb loads. I also lost 102 lbs. It may not be for everyone, but if you're starting to notice insulin resistance, it can be a good weapon to have.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      Do you currently take metformin?
      I took it for four years when I was diagnosed with T2. After four years of not being able to control my bs I asked my endocrinologist if I could go on insulin and he said yes and the T2 drugs stopped.
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      Gerald Oefelein likes your comment at
      Do you currently take metformin?
      Other I took Metformim for 3 months when I was first incorrectly diagnosed with T2. I am very sensitive to insulin and don’t need it yet.
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      Gerald Oefelein likes your comment at
      Do you currently take metformin?
      I took it for four years when I was diagnosed with T2. After four years of not being able to control my bs I asked my endocrinologist if I could go on insulin and he said yes and the T2 drugs stopped.
    • 1 day, 9 hours ago
      Gerald Oefelein likes your comment at
      Do you currently take metformin?
      In the late 2010s, I began to become insulin resistant and started packing on a lot of weight. I believe using a pump facilitated this because of the abundance of insulin readily available. My doctor put me on metformin, then Jardiance, then Victoza. As a result, my insulin use went from 120-140 units per day to a minimum of 24, up to 40 depending on carb loads. I also lost 102 lbs. It may not be for everyone, but if you're starting to notice insulin resistance, it can be a good weapon to have.
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      Have you had to switch diabetes medications in the past year due to health insurance changes?
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    Which of these symptoms of hypoglycemia do you frequently experience during a low? Please select all that apply.

    Home > LC Polls > Which of these symptoms of hypoglycemia do you frequently experience during a low? Please select all that apply.
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    If you use an automated insulin delivery system (e.g., Tandem with Control-IQ, Omnipod 5, Medtronic pumps with Auto Mode, etc.), how did your A1c change in the first 3 months of use?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    58 Comments

    1. Twinniepoo74

      Problem for me is all the symptoms of low are the same as lupus plus fibermoylagia and I have both. Thank goodness for the Dexcom warning me of my lows.

      2
      3 years ago Log in to Reply
    2. stillarobyn

      Frequently, I’ll have a cold nose.

      1
      3 years ago Log in to Reply
    3. Lee Johnson

      For many years I did not have noticeable low feeling. The bottom line was I would have seizures.

      3
      3 years ago Log in to Reply
    4. Janice Bohn

      I also feel a weight in my chest

      3 years ago Log in to Reply
    5. Ginger Vieira

      This question reminds me of how much it is to live with T1D! 🙂 Oy vey.

      8
      3 years ago Log in to Reply
    6. Jim Andrews

      I’ve been hypo unaware for many years. I assume it’s because I had so many lows for a period of several years.

      2
      3 years ago Log in to Reply
    7. Robin Melen

      I don’t let the symptoms get ahead of me, though – as soon as I feel that shakiness, I check my CGM and sure enough, I’m headed down. Then all the other symptoms come at once, and out come the peanut butter crackers and/or juice!

      3 years ago Log in to Reply
    8. Debra Nance

      I no longer feel lows thus the reason for my CGM.

      3
      3 years ago Log in to Reply
    9. Joan Fray

      Ii just get sort of tired. Like I’ve run out of gas. I sit down, rest a minute, and then realize I must be low. But usually the cgm alarms first.

      5
      3 years ago Log in to Reply
    10. Cindy Green

      I frequently have tingling in my lips and also go into manic/panic/fight or flight mode – fun for all involved!

      4
      3 years ago Log in to Reply
    11. Mick Martin

      I selected ‘I do not experience any symptoms of hypoglycemia’ but that’s because I suffer with severe hypoglycaemia [hypoglycemia] unawareness.

      Usually, the first symptoms I get is when I’m ‘coming round’ after someone has injected me with either a glucagon injection or has given me intravenous glucose. (Unfortunately, it’s been like this for more than 20 years now, whereas before I used to experience Shakiness, Hunger, Irritability or impatience, Sweating, chills, or claminess, Fatigue or weakness, Dizziness or feeling lightheaded, Confusion, Co-ordination [coordination] problems or clumsiness, Tingling or feeling numb … this was particularly the case when we first moved from U80 strength insulin to U100 strength insulin and when we moved from animal-derived insulins to analog insulins.

      3 years ago Log in to Reply
    12. cynthia jaworski

      For the last few years, I have a fluorescent yellow light in the middle of my visual field. It is oval in shape, wider than it is high.
      It is quite useful to have a visual alert like that.
      I guess this is a subset of the contusion category: I cannot work with numbers when I am low.

      5
      3 years ago Log in to Reply
      1. Kris Sykes-David

        I have a similar symptom, it starts with a spiky light then if low enough I see the full blown light that almost totally obscures my vision.

        3 years ago Log in to Reply
      2. William Bennett

        Like an after-image from glancing at the sun, yeah. I call that the “flashbulb effect,” and like you it hits me before anything else when I’ve got a really bad one coming on, and only happens when it’s dropping fast. When I see that I know I’m in trouble.

        3 years ago Log in to Reply
      3. Phyllis Biederman

        On only a few occasions with really low bg I’ve had my vision change to yellow too! It’s pretty scary as I know m extremely lo or dropping there.

        3 years ago Log in to Reply
      4. Robin Melen

        I cannot work with numbers no matter what! LOL

        2
        3 years ago Log in to Reply
    13. Ahh Life

      Most of our blessings come in heavily disguised. Thus sayeth the hypoglycemic condition.

      Usually, it comes in as an NDA, a brain non disclosure agreement. 🙅‍♂️

      3
      3 years ago Log in to Reply
    14. AimmcG

      Anxiety. I suffer from anxiety and that has become my number one indicator that I’m low when I am not engaging with people . So if I’m watching tv, driving in the car alone, or sleeping(I wake and immediately start freaking out about something. It’s actually an early indicator which is good because I can react quickly and fix it. Confusion is number two followed by sweaty and clumsy.

      2
      3 years ago Log in to Reply
    15. Carol Meares

      I don’t always feel the symptoms checked and I do get hunger sometimes which I didn’t check. And sometimes I have no symptoms…

      3 years ago Log in to Reply
    16. William Bennett

      Worst one for me is loss of vision. Like a flashbulb after-image that gets worse instead of fading. Often occurs before feeling anything else, which tells me it’s a really bad one. “Don’t wait, stop whatever you’re doing and get sugar right now!” is what that one means. Then hunker down for the wave of other symptoms that are about to roll through. Fortunately it’s pretty rare, thanks to CGM, pumping, and more controllable insulin than in olden days, maybe one in a year. Used to be a lot more frequent back in the days of R/NPH MDI and finger-sticks.

      4
      3 years ago Log in to Reply
    17. Tod Herman

      Fortunately, I get to say these are mainly a thing of the past! Recently, if I get a low (which is rare), it only comes in the middle of the night. But thanks to the various responses on this site (related to low glucose alarm settings) I have moved my alarm trigger up sooner and can address it before it occurs. However, having switched over to the Omnipod 5 six months ago, I rarely get a low blood sugar condition.

      3 years ago Log in to Reply
    18. Lori Lehnen

      1.5 years into diagnosis so I have nearly all of those symptoms. Which ones are present depends on my blood glucose level.

      3
      3 years ago Log in to Reply
    19. Phyllis Biederman

      I notice subtle cognitive changes such as decreased responsiveness, difficulty processing information or hyper focusing on only one or two things. On rare occasions I still get hungry or shaky.

      3
      3 years ago Log in to Reply
    20. Sue Martin

      My symptoms were oscillating so I couldn’t tell when I was having a low, so I got a DexCom. I don’t have to rely on how I feel now.

      1
      3 years ago Log in to Reply
    21. RegMunro

      I also become overly talkative!

      3
      3 years ago Log in to Reply
      1. Sherolyn Newell

        Me too. And talking fast.

        1
        3 years ago Log in to Reply
      2. mojoseje

        Yes, and I can’t Express my thoughts coherently.

        3
        3 years ago Log in to Reply
    22. Jeanne McMillan-Olson

      I get a feeling in my gut that something is not right when my blood glucose is getting low.

      3
      3 years ago Log in to Reply
    23. Steven Gill

      I “clicked” most of these. Over the 25 years my threshold hasn’t changed, feel thses, and trying to get “near-normal” levels there’s definitely the risk of lo blood sugars. So to me it’s not “if” but when. I had a CGM several years ago but stopped to pay for care of my 16 year old pup. Had the worst episode 2 years ago (watched on a security as I collapsed and laid 6 hours with a black eye and bloody: that old dog frantic with heart disease frantic). Got it back several months later and will do every thing I can to keep one.

      But several occasions I woke and my thought process was really odd, completely logical but delusional. While I shrug it off now, I still wonder what I’d do if I were 21 with what I know now: instead of 3 more years enlistment being released from the army. Mother’s death, both sister’s deaths, and as I woke thinking how I could protect them. Almost wish it was so but sipped the sweetened drink on my nightstand and realized I was 40 years older. Had several dreams when waking with low blood sugars as interesting.

      2
      3 years ago Log in to Reply
      1. Karen Tay

        Oh, yes, I forgot that one – – – crazy dreams when my blood sugar is low.

        1
        3 years ago Log in to Reply
      2. Jneticdiabetic

        Yes! Have had some bizarre hypo dreams!

        1
        3 years ago Log in to Reply
    24. Stephen Woodward

      First thing I notice when dropping is cognitive changes, such as memory challenges, then coordination. The cognitive changes have been there for 52 T1D yrs and for some reason it’s never listed on symptoms, too bad it’s the easiest and first thing to show.

      2
      3 years ago Log in to Reply
      1. sweetcharlie

        Thanks, same with me!!

        3 years ago Log in to Reply
    25. Estelle Smith

      Shakiness is usually my first symptom, followed closely by clumsiness. On a recent trip, the lady who was checking my passport handed me a chocolate covered granola bar while my friend got the candy out of my purse since my fingers forgot how to work.

      3
      3 years ago Log in to Reply
    26. Robert Brooks

      I’m amazed at how low the percentages are for any one symptom. What a vote for individualism. And where is the symptom of hearing beeping from one’s CGM?

      3
      3 years ago Log in to Reply
    27. Sherolyn Newell

      I checked a lot of boxes, but I don’t have all the symptoms all the time. It takes a pretty low BG before I feel anything, the lower it is, the more symptoms I get.

      3
      3 years ago Log in to Reply
    28. Becky Hertz

      I said I don’t experience symptoms, but the honest answer is I don’t frequently experience symptoms (as asked in the qod). When I do experience symptoms it is usually feeling fatigue and/or weakness. Or I just feel “off”. Thankful for Dexcom and my DAD.

      3
      3 years ago Log in to Reply
      1. sweetcharlie

        I checked off quite a few. But like you I just feel OFF !! 70 years T1D, I guess !!

        3 years ago Log in to Reply
    29. Chrisanda

      I selected a few symptoms, but honestly, they don’t appear until I am very low-40s, which luckily doesn’t happen very often, and it’s usually at night after I’ve slept through the initial warnings. That’s why I am so dependent on my Dexcom and Tandem pump.

      1
      3 years ago Log in to Reply
    30. Karen Tay

      The symptoms I checked do not necessarily happen all with the same hypoglycemic event.
      I also get what I call “foggy” brain but not confusion. And if my sugar is really low my vision changes to everything looking white.

      1
      3 years ago Log in to Reply
    31. George Lovelace

      Coming up on my 59th Diaversary I’ve experienced All of the Symptoms and a few more

      1
      3 years ago Log in to Reply
    32. Angela Naccari

      I chose many of the symptoms listed but one that is not listed is the one has been mentioned several times in the comments. The visual of a while blob in the middle of my vision. I say “blob” because is never the same and is not round. Only happens when BG is 50 or lower.

      1
      3 years ago Log in to Reply
    33. Janis Senungetuk

      With very few exceptions I’m now unaware of hypos. The CGM warns me that my bg level is dropping. If my field of vision suddenly dims and fills with either dark floating blobs or a central yellow blinding light, I know I need to immediately respond.

      1
      3 years ago Log in to Reply
    34. Kristine Warmecke

      I have been hypo unaware most of the 41 year’s I’ve had T1D. My first clue I might be low is my D.A.D. pawing at me.

      3 years ago Log in to Reply
    35. Ernie Richmann

      Flashes of light.

      2
      3 years ago Log in to Reply
    36. Linda Pease

      Unless it’s a severe low I have no systoms but if severe I get brain fog shakey and sometimes weakness

      3 years ago Log in to Reply
    37. Vicki Breckenridge

      I get a weird feeling in my stomach that is not describable.

      3 years ago Log in to Reply
    38. TEH

      As others have said, I have felt quite a few. The other thing is it changes from time to time when I go low. Almost never the same.

      1
      3 years ago Log in to Reply
      1. AnitaS

        Mine have changed over the years too.

        3 years ago Log in to Reply
    39. sweetcharlie

      Checked so MANY of them.. Then realize after reading all the replys, in 70 years T1D, and being almost 91 years OLD, I forgot so many more!! Its become part of living!!

      3 years ago Log in to Reply
    40. Jennifer Farley

      I get very combative as well. I had a friend, who has passed on and he told me that he had taken on a whole fire department before only to send them all lunch the next day as an apology. It is not every time, sometimes I am the sweetest person in the world. I wish I had a crystal ball, anyone know which type of low blood sugar they will get?

      1
      3 years ago Log in to Reply
      1. Kristine Warmecke

        My brother at 7 years old took on the fire and ambulance crew for the first time. Our Dad was an EMT at the time. It has happened several more time over the years, but now after 50 plus living T1D he knows when to eat before he gets that low.

        3 years ago Log in to Reply
    41. AnitaS

      Mine have changed over the years, but now my main symptom is an extremely uncomfortable feeling that I can’t wait to stop. Not exactly shaky, but I feel extremely uncomfortable. I don’t go very low anymore with a cgm so I very rarely have the severe symptoms of blurry vision, not thinking straight, massive sweating, or wobbliness that I used to have.

      3 years ago Log in to Reply
    42. Jneticdiabetic

      I’ve experienced all the listed symptoms with hypoglycemia except nausea. Depends on how low I am and how fast I’m falling. Rarely notice symptoms until I’m less 50 mg/dl. Occasionally sooner if I’m double arrows down.

      3 years ago Log in to Reply
    43. Amanda Barras

      Depends on how low I am how many of these I get. Mild hypo I just get hungry and tired. The lower I get I have impaired vision, more extreme fatigue, irritability, and cold sweats. I have had tingling lips and tongue in the past but not in recent years.

      3 years ago Log in to Reply
    44. PamK

      I do have one other symptom that is not listed. I get horny.

      3 years ago Log in to Reply
    45. T1D4LongTime

      I get an odd feeling behind and underneath my eyes. Hard to describe. It feels like when your eyes are dilated and you can’t focus, but my vision is still ok during lows. I find I get irritable, but also very active…. seems like my brain works super-fast during lows, so I tend to try to complete more tasks during a low without stopping to treat it. Solving problems is easier and I am more efficient in the 60-80 range. Once below that, then I tend to be very irritable and get a tiny bit clumsier (not much though).

      3 years ago Log in to Reply
    46. mrthnmn

      “Frequently,” it’s just sweating. Occasionally, when really low, I also get chills and hunger. A few times; confusion, shakiness, loss of coordination and afterwards, a headache, which seems to be related to using glucagon.

      3 years ago Log in to Reply

    Which of these symptoms of hypoglycemia do you frequently experience during a low? Please select all that apply. Cancel reply

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