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    • 16 hours ago
      KarenM6 likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 16 hours, 1 minute ago
      KarenM6 likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I use a CGM and STILL check an average of 7 times per day with BG meter because despite the advertising claims, I have yet to find a CGM that is consistently accurate enough to rely on for various tasks including meal Bolus dose calculations. Currently using Dexcom G6 with tSlim Control IQ, along with Dario BG meter I trust more than Dexcom.
    • 20 hours, 22 minutes ago
      Mick Martin likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 20 hours, 23 minutes ago
      Mick Martin likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I use a CGM and STILL check an average of 7 times per day with BG meter because despite the advertising claims, I have yet to find a CGM that is consistently accurate enough to rely on for various tasks including meal Bolus dose calculations. Currently using Dexcom G6 with tSlim Control IQ, along with Dario BG meter I trust more than Dexcom.
    • 20 hours, 41 minutes ago
      Trina Blake likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I am curious. Do you routinely check the control glucose solution to be sure the meter is accurate?
    • 21 hours, 29 minutes ago
      Barbara Bubar likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 21 hours, 41 minutes ago
      Barbara Bubar likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I use a CGM and STILL check an average of 7 times per day with BG meter because despite the advertising claims, I have yet to find a CGM that is consistently accurate enough to rely on for various tasks including meal Bolus dose calculations. Currently using Dexcom G6 with tSlim Control IQ, along with Dario BG meter I trust more than Dexcom.
    • 21 hours, 49 minutes ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      My infusion site stopped working well. Most of my problems going high are due to problems with infusion set. Another problem is my slow processing of my dinner. If I bolus too fast I go low, if I wait a bit I go high. It’s a nightmare
    • 21 hours, 50 minutes ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      Yesterday I walked 30 miles. At about 10 miles I went 200 something. I took 20g of carbs at about 120 to prevent going low and ended up at 200 even though I continued to walk. Took a correction and my bg dropped more than I wanted. It is a trick to manage bg during long endurance events. My endocrinologist suggested a profile for me which I was trying for the first time. I will be walking for 24 continuous hours hoping for about 70 miles. The event is outrun 24 at Chapin Forest in Kirtland Ohio.
    • 21 hours, 51 minutes ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      I answered 4 , I had steroid in my infusion yesterday.
    • 21 hours, 55 minutes ago
      Marthaeg likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 22 hours, 17 minutes ago
      Mike S likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 22 hours, 22 minutes ago
      KCR likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 22 hours, 23 minutes ago
      Jeff Marvel likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 23 hours, 47 minutes ago
      ConnieT1D62 likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      I use a CGM and my BG went over 180 seven times. Not unusual for BG go to 200+ after eating, then comes down. Yesterday and today my average BG was 150.
    • 1 day, 16 hours ago
      KarenM6 likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      I answered 4 , I had steroid in my infusion yesterday.
    • 1 day, 16 hours ago
      KarenM6 likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      My infusion site stopped working well. Most of my problems going high are due to problems with infusion set. Another problem is my slow processing of my dinner. If I bolus too fast I go low, if I wait a bit I go high. It’s a nightmare
    • 1 day, 17 hours ago
      Lindsey Whitnell likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      My "high" alarm is 130. When I hit that I consider: when I ate; could I have screwed up the bolus; what am I doing or will be doing; when I'll eat next. Rarely go over 150-160, by reacting and preventing highs found I actually use less insulin than just correct when it peaks....could never do this without a CGM I'm comfortable with, although with pens and an unmoving basel more fun (can't make fast adjustments for food, stress, heat, or activity). So the past several days zero over 180, just a few over 150.
    • 1 day, 19 hours ago
      Janis Senungetuk likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      Yesterday I walked 30 miles. At about 10 miles I went 200 something. I took 20g of carbs at about 120 to prevent going low and ended up at 200 even though I continued to walk. Took a correction and my bg dropped more than I wanted. It is a trick to manage bg during long endurance events. My endocrinologist suggested a profile for me which I was trying for the first time. I will be walking for 24 continuous hours hoping for about 70 miles. The event is outrun 24 at Chapin Forest in Kirtland Ohio.
    • 1 day, 19 hours ago
      Bruce Schnitzler likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      Yesterday I walked 30 miles. At about 10 miles I went 200 something. I took 20g of carbs at about 120 to prevent going low and ended up at 200 even though I continued to walk. Took a correction and my bg dropped more than I wanted. It is a trick to manage bg during long endurance events. My endocrinologist suggested a profile for me which I was trying for the first time. I will be walking for 24 continuous hours hoping for about 70 miles. The event is outrun 24 at Chapin Forest in Kirtland Ohio.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      I had the same thing happen. I usually go below about 3 times but yesterday not at all. Amazing!
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      With Tandem CIQ, I get <2% in hypo range, rare at night, and when I do it is usually my fault- over bolusing for food, or exercise. Love this system
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      It's been an unusual 24 hours for me and I haven't gone below 70 at all. (If I'd a been asked last week, totally different answer!) :p But, I'm doing really great today. So... Yay! :D
    • 2 days, 8 hours ago
      ConnieT1D62 likes your comment at
      The food we choose to eat as people with T1D is so personal, and each food impacts every person differently. What foods do you prefer to eat for your first meal of the day? Share what works for you in the comments!
      I follow my wife’s old adage, “Eat breakfast like a king, lunch like a queen, and dinner like a pauper.” And in a very king-like fashion and since I am retired, I do it most mornings in a very leisurely 3 or 4 fashion. The best breakfasts, by far, are those you have with delightful conversationalists with people of wide-ranging interests. I start with 2 or 3 cups of strong, dark-roast black coffee, nursed liked an expensive cocktail rather than gulped. Then come berries—raspberries, black berries, blue berries, and a complete box of strawberries, followed by protein potions of turkey peperoni slices or an egg or two. The cereal consumed is a mix of three-Uncle Sam’s mixed with Grape Nuts mixed with All Bran. Either milk or yogurt is used to top the cereal. I know not the calories, but the carbs I can count down to the first decimal point. And decidedly, the meal’s main attributes are the time spent and the conversations.
    • 2 days, 9 hours ago
      ConnieT1D62 likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      With Tandem CIQ, I get <2% in hypo range, rare at night, and when I do it is usually my fault- over bolusing for food, or exercise. Love this system
    Clear All
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    In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D?

    Home > LC Polls > In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D?
    Previous

    On a scale of 1-5, how much do you think T1D impacts decisions you make in other areas of your life? (1 = the least possible impact, 5 = the most possible impact)

    Next

    When is the last time you forgot to bolus for a meal or snack?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    126 Comments

    1. ConnieT1D62

      You are not alone, it is not the end of your life, nor the end of the world. Seek, meet and befriend others who live with T1D to learn and grow from real life shared experience. Keep up to date with diabetes science advancements, treatment and self-care options, most importantly use of applied technology. Live life to your fullest potential by making sensible and healthy choices. Once you get past the initial shock of it, you will quickly learn what works for you. You can do this and live a long and healthy life!

      3
      1 year ago Log in to Reply
    2. Steven Gill

      Learn all you can, don’t necessarily depend on “professionals” because there’re different levels of experience, training, and preferences (preconceived opinion on what indicates control and techniques for it).

      We’ve got professional football players (DeAndreCarter), professional “wrasslers” (KyleO’Reilly—Greenwood), politicians (KimSchrier), national leaders (TheresaMay-former UK prime minister), actors (ElizabethPerkins), and my future wife and super model (HalleBerry).

      We’re in great company, even with all the struggles right now is the best time to work and live with diabetes. It’s “part” of us but but all of us: it’s not who we are. Allow yourself to be human and have good and bad times and days.

      And no Halle Berry doesn’t even know who I am but a guy can dream!

      1
      1 year ago Log in to Reply
      1. cynthia jaworski

        You forgot Mary Tyler Moore.

        1
        1 year ago Log in to Reply
    3. Mary Dexter

      Fight like hell so they don’t take your prescription for insulin away. Many doctors refuse to believe that anyone but a little kid could have autoimmune diabetes. This is the second time my insulin prescription is gone. I still had 4 Novolog refills available yesterday and had asked for my Levemir to be refilled. Now no refills of either. I fought to be correctly diagnosed LADA in 2004. Why do my doctors keep doing this?

      1 year ago Log in to Reply
      1. Mary Halverson

        Have you had a recent C peptide test that shows you make little or no insulin or a GAD antibodies test?

        1 year ago Log in to Reply
      2. Bonnie Lundblom

        I’m astonished reading this and encourage you to contact everyone you can to help you with this. A diabetic without insulin will end up hospitalized and during this pandemic that’s not where any of us want to be. Call local media to ask for their help in publicizing your current dilemma, call the state medical board to discuss it and ask for their input on how to resolve this, stay strong.

        1 year ago Log in to Reply
    4. Ahh Life

      You’re in the club, like it or not. Some of the rules are severe, like it or not. But like the sea turtle that carries his home along with him for two or three hundred years, you will carry the load.

      Information masquerading as knowledge will not lead you to wisdom of the T1D condition. Only from your own sense of things do you come to realizations about reality, the reality of challenges good and bad.

      You can do it. And best of luck! 💪 👍

      3
      1 year ago Log in to Reply
    5. Twinniepoo74

      Never give up plus Never be discouraged or disappointed in yourself or your blood sugars. Make each blood sugar a healthy game of trying to keep it down and how you can keep it normal. Make each failure a lesson to learn to live and exercise more.

      3
      1 year ago Log in to Reply
    6. Larry Martin

      I can only speak as a type one but live your life. Understand you have control over your numbers, not your doctor, an educator, or device maker. I encourage a pump and CGM but learn them and manage them yourself. DO NOT depend on a doctor or anyone else. Play with it until it works right for you. No doctor or educator and know what each day is like and do that. Only you can, if you OWN IT!

      3
      1 year ago Log in to Reply
    7. Dawn Konig

      Stay strong. Insulin and food are your lifelong friends

      1 year ago Log in to Reply
    8. Bonnie kenney

      Educate yourself!

      2
      1 year ago Log in to Reply
      1. Molly Jones

        My thoughts exactly. Educate yourself as much as possible and stay on top of what is newly available information on pubmed or ADA. Go on to the basics mandatory for medicine: biochemistry, digestion, nutrition after you have read all you can on T1D.

        1 year ago Log in to Reply
    9. GLORIA MILLER

      The teens years are tough but you can get through it (if you haven’t already!). People with diabetes can live a very long time. We have Joslin Medalists who have had it for 75 and I think one had it for 80 years. I am at almost 65 years and we can do without complications even when we did not do well (obey the experts) as a teen.

      2
      1 year ago Log in to Reply
    10. Scott Feighner

      Pay attention to details.

      1
      1 year ago Log in to Reply
    11. Alan Fellman

      It can be overwhelming. It’s a rough road to travel. But don’t lose site of the fact that in time you will learn how to control your situation. It can be done.

      1
      1 year ago Log in to Reply
    12. connie ker

      I am going to say what the endo told me at diagnosis, “It’s not cancer, you can go home and work with this”. That was 24 years ago and I have read and learned so much about T1D. Watch your diet, exercise, and medication and get a CGM as you become your own Dr. and care giver. Lastly, celebrate the 100th Birthday for insulin because T1D used to be terminal before the discovery of insulin which is life saving, but not a cure.

      3
      1 year ago Log in to Reply
    13. Nicholas Argento

      It’s work, but it works! You can stay healthy and have a normal lifespan, but it takes planning, persistence, guidance from knowledgeable sources, acceptance of the fact it will not always go as planned, and faith that you can do this. A sense of humor does not hurt, either…:)

      2
      1 year ago Log in to Reply
    14. Don (Lucky) Copps

      Like it or not, you are in this for life. The better you are at managing T1D, the better T1D will be to you. Find an endocrinologist you can work with. They will teach you quite a bit. But you must learn to rely on yourself. every high and low has a reason, cause and failure. Learn from each one and do your best not to repeat. Watch out for fat laden foods. Subscribe to diabetic stuff. YouTube is full of stuff. Learn to trust yourself, no one knows you like you. Be careful of under educated Dr’s. Find a T1D mentor with A1C under 6.5 and time in range over 80%. they know as much if not more than anyone. Follow Adam Brown! he provides very simple easy to understand concepts that are excellent for diabetes management. we all have a cross to bear and this one is now yours.

      1 year ago Log in to Reply
    15. Joan McGinnis

      Take one day at a time, work with your educators, talk honestly with your drs -they will try to help you if you try to do what they ask and tell them if for some reason you can’t do what they ask. Read well documented experts not just blogs. Others have survived very well snd you can too.

      1
      1 year ago Log in to Reply
    16. Patricia Kilwein

      Take control of your care immediately! Don’t hesitate to get into a doctor who specializes in diabetes right away.
      Take care of yourself!!!

      1
      1 year ago Log in to Reply
    17. StPetie

      First, accept that it is part of yout life and you can’t change that. Learn to be ok with it. Next learn as much as you can about the disease, risks associated with it and treatment options. After that just put forth the effort to make conscientious, informed decisions regarding all aspects of your shiny new disease.

      1
      1 year ago Log in to Reply
    18. Brett Crystal

      You’re not alone! Ask for help from your medical team, friends, and family members, when needed, and they will be there to support you. This is a major life-changing moment for you, and everything may not go perfectly for a while. That’s okay! Keep putting one foot in front of the other and it WILL get easier. Everyone’s experience with diabetes is different, and you will figure out what works best for you and your body. There is also always exciting news on the horizon about how medical advances continue to make living with diabetes easier. You will be okay, and your personal community and the diabetes community are here to support you!

      1
      1 year ago Log in to Reply
    19. Henry McNett

      Switch to a low carb diet sooner rather than later!

      1
      1 year ago Log in to Reply
    20. Marina Kurkov

      Don’t panic! Soon you will take the new regimen in your stride — on par with brushing your teeth!

      1
      1 year ago Log in to Reply
    21. M Fedor

      Trust that things will get better.

      1
      1 year ago Log in to Reply
    22. Jonathan Caplan

      You control it and don’t let it control you.

      1
      1 year ago Log in to Reply
    23. Virginia Barndollar

      With determination and a positive attitude and the medical advancements, YOU can do anything. 56 years T1DM and still running marathons and climbing mountains.

      2
      1 year ago Log in to Reply
    24. Lawrence Stearns

      DIET, meaning eat good nutritious food;
      EXERCISE, I find aerobic exercise to be the most beneficial. I like to run.
      ENDOCRINOLOGIST, regularly see a doctor who specializes in diabetes
      INSULIN PUMP, the most profound and beneficial device that helped me control my diabetes
      CGM, Continuous Glucose Monitoring system, I recommend Dexcom G6, as it is the most accurate and reliable way of measuring your body glucose levels. It’s better than just blood tests. I also like the Control IQ system available on the Tandem pump with the Dexcom G6 CGM system.
      GET CONNECTED: A website like T1D exchange is good. Most of us went for decades, lifetimes, alone not knowing any other Type 1 diabetics. It’s nice to know you’re not alone.
      I have seen diabetics who do not take care of themselves. They all died young. However, on this site, I have met many diabetics who have lived full lives, 70, 80 years with diabetes, who are still going strong.
      Good luck and best wishes.

      2
      1 year ago Log in to Reply
    25. Louise Robinson

      Learn as much as you can about managing your diabetes. Gary Scheiner’s book “Think Like a Pancreas” provides excellent information and has become my go-to manual to better understand what I can do to live and age well with my Type 1 diabetes (dx’d in 1976)

      1 year ago Log in to Reply
    26. Catherine Van Hove

      Sometimes Type 1 D has a mind of it’s own. Don’t beat yourself up about a blood sugar too high or too low. Tell yourself “oh well” and go on doing the best you can do. I used to analyze every blood sugar and it was hard to go forward. I’m much healthier putting it in the past. Be your own advocate. Run from a Doctor who doesn’t understand what you’re going through or who doesn’t listen. Set long term goals so every decision you make gets you a little closer to that goal.

      4
      1 year ago Log in to Reply
    27. Amy Jo

      Learn to laugh at it all – you can do the same exact thing (food, exercise, insulin) two days in a row and get wildly different blood sugars! The first 6 months are the hardest – be patient and gentle with yourself.

      1
      1 year ago Log in to Reply
    28. Meerkat

      Have fun living a healthy lifestyle. Keep congratulating yourself for all the things you do to stay healthy.

      1
      1 year ago Log in to Reply
    29. Eugene Lamm

      You can outlive non diabetics

      2
      1 year ago Log in to Reply
    30. Don P

      Unfortunately this question can’t be answered as a blanket statement. Tooo many varying factors apply … ie ….. relationship ( if any ) / age / time frame since diagnosis / persons thoughts & concerns / to list just a few.

      1 year ago Log in to Reply
    31. Sahran Holiday

      Technology is everything. You can have control, do everything. Also need an endocrinologist who is up on the technology.

      1 year ago Log in to Reply
    32. Amy Malliett

      Control what you can, do your best as often as you can, and let the rest go.

      3
      1 year ago Log in to Reply
    33. Sherrie Johnson

      The ball is in your court it’s all up to you. You are in charge be the best you can be . Keep tabs on everything and make decidions for you. Be independent ask questions just keep strong. Technology’s catching up with diabetes use sll the tools available to you. Learn all you can sign up for classes through your doctors or community Never never give up. I just celebrated 60 years with diabetes and I thank everyday for the next. Stay well my friends.

      1 year ago Log in to Reply
    34. Lorri McLuckie

      Happy World Diabetes Day !
      I really love everyone’s comments and agree with them all. Whether you’re new or old to T1D, let’s have a wonderful day celebrating our awesome Type 1 community – we’ve got this 👍👍👍

      1 year ago Log in to Reply
    35. Todd Thedell

      Be calm, find support, talk with people, you can do this.

      1 year ago Log in to Reply
    36. Neal Van Berg

      As soon as possible you should learn how much 1 unit of insulin lowers your blood sugar and how much 1 carbohydrate raises your blood sugar.
      Controlling your blood sugar becomes an arithmetic problem. You have to become vigilant to low blood sugar symptoms and over time they change.

      1
      1 year ago Log in to Reply
      1. Neal Van Berg

        Always, Always, Always keep glucose tablets on you when you leave home and next to where you sleep.

        2
        1 year ago Log in to Reply
    37. Jaime H

      Check out Juicebox Podcast. And then find other people local to you who have t1d and make sure to spend time with them.

      1 year ago Log in to Reply
    38. Scott Doerner

      Diabetes is like a car. gas is food you eat, insulin is like the spark, from your spark plugs. Your spark plugs got broken and can’t be fixed. Insulin is your new fake sparks. They dont work real good, but always remember, no sparks, your engine won’t run

      1 year ago Log in to Reply
    39. Tina Roberts

      Just because you can’t feel it damaging you, doesn’t mean it isn’t! Take heed and be mindful.

      1 year ago Log in to Reply
    40. Karen Newe

      This is a very self-managed disease. Read all the books and learn all you can about T1.

      1 year ago Log in to Reply
    41. Alan Altschuler

      You can live a full healthy life with T1D. I was diagnosed 53 years ago when none of today’s treatments and technological advances existed. Today, you will have so many tools to keep you healthy.

      1 year ago Log in to Reply
    42. Yaffa Steubinger

      Remember that YOU control your diabetes. Don’t let diabetes control you.

      1
      1 year ago Log in to Reply
    43. planesdoc@gmail.com

      It’s worth it to keep your blood sugar around 100. This means learning what a gram of carbohydrate does to your blood sugar and how many points a unit of Humalog will reduce it. It means figuring out what long term insulin like Lantus can do. I’m 92 with no complications.

      2
      1 year ago Log in to Reply
    44. LizB

      Get a CGM as soon as you possibly can. It will really help you to understand the relationship between your BG, food, exercise, illness and many other things! Without it you are basically flying blind with poking your finger only a few times a day.
      I also highly recommend a pump but I know it’s not for everyone.

      1 year ago Log in to Reply
    45. Carol Meares

      Find your people

      1
      1 year ago Log in to Reply
    46. David & Kaleo of Team Nani

      It’s a long haul, start early by identifying a menu of cardio activities/exercises you like, including walk/run, strength, sports etc that you can do regardless of weather, seasons, access to gym an/or people; learn about healthy eating, not diets, that emphasize leafy greens, fruits, whole grains, lean proteins and let yourself have treats on occasion as you learn what impacts your blood glucose. Lastly find something, an app, a class that helps you learn to be mindful, grateful, and lowers anxiety as you roll with bumps in the road.

      1 year ago Log in to Reply
    47. Conniekaycox

      I wish would have been honestly told how my old life pre type 1 was so over. You can still build a life however freedom and spontaneous decisions are a thing if the past.

      1 year ago Log in to Reply
      1. Amanda Barras

        This also depends on your perspective and age at diagnosis.
        I was dx at age 4, 33 years ago. Being diabetic is all I have ever known. I can’t remember “life before”. Also, compared to the medications and technology that were available in the late 80s-90s, I feel like I got my life back with what’s available to me now compared to them. I can eat when I want, I don’t have to eat if I don’t want. I can run to the store and monitor my bs and take insulin without anything else but my pump in my pocket. I’m way more casual and on the fly than I have ever been. But, again, it’s perspective based on experience. Hope you get in a grove and get the therapy right for you to make life easier for you!

        1
        1 year ago Log in to Reply
      2. cynthia jaworski

        I think what you mean is that spontaneity is no longer an option. I agree. but on the other hand, I feel I have as much free3dom as anyone else on the planet.

        1 year ago Log in to Reply
    48. Denise Wilkes

      Listen to the Juice Box podcast. The pro tip series first, and then move on to all the other that interest you.

      1
      1 year ago Log in to Reply
    49. Bob Durstenfeld

      Treat Diabetes like a pet rattle snake, do what it needs, respect it,, but it still might bite you.

      1
      1 year ago Log in to Reply
    50. Jimmy Boling

      Make exercise a daily part of your life. Stay away from high carb foods Keep track of what your numbers are.

      1
      1 year ago Log in to Reply
    51. Elissa Macher

      Try to get and use the latest technologies…. ie pump with IQ and a CGM.

      1 year ago Log in to Reply
    52. Andrew Stewart

      My advice for all T1D diagnosed (no order of importance):
      be engaged in your care; become the expert in your T1D; be optimistic and keep a positive outlook; know that you’re not alone and that you can be successful managing your T1D; use a pump that integrates CGM to assist your basal and bolus dosing; perfection does not exist so don’t beat yourself up or give up trying.

      2
      1 year ago Log in to Reply
    53. Amanda Barras

      Be patient with yourself and make changes as you go. Figuring out how your body responds to food and medication will take time. And you’ll learn something new all the time. Also, don’t be afoot ask for help from your doctor or from online groups that have a wealth of knowledge and experience. You’ll do just fine, I’m 33 year in and am still learning and improving.

      2
      1 year ago Log in to Reply
      1. Amanda Barras

        Don’t be afraid… afoot!? Autocorrect is weird. Lol

        1
        1 year ago Log in to Reply
    54. Pauline M Reynolds

      Find an endocrinologist you can relate to and find a support group.

      1 year ago Log in to Reply
    55. Kathy Morison

      Dont blindly trust your Endo, do your own research on diabetes, medications and how they work. Be very proactive in your treatment plan and medications they want to put you on.

      4
      1 year ago Log in to Reply
    56. Jenn Velez

      Sorry you’re here but glad you found us. It doesn’t get easier but you’ll get a lot better at managing T1D. Listen to the Juicebox podcast. Scott Benner really helped me with my T1D management.

      1 year ago Log in to Reply
    57. kflying1@yahoo.com

      Deal with it – because of the advances in insulin therapy you can live a somewhat normal life. Sure, people like the FAA who are medically advanced to the 1920s will limit you, yet in most areas of life it’s just a big annoyance you can deal with.

      1 year ago Log in to Reply
    58. Sharon Lillibridge

      listen to your body and learn what works for you….Dr’s can teach you the basics but they cannot understand your personal variables. You have to learn to be your own DR.

      1
      1 year ago Log in to Reply
    59. Marla Peaslee

      You can control your diabetes OR it will control you. Knowledge is power.

      1 year ago Log in to Reply
    60. Karen DeVeaux

      Eat low carb and take your insulin!

      1
      1 year ago Log in to Reply
    61. Patricia Dalrymple

      Learn how to eat properly. Treat your body well. Yes, with insulin pumps and CGMs you CAN possibly do whatever you want, but it is best to do the basics and live by them: eat right, exercise, drink plenty of water, get sleep. And, cheat occasionally without feeling guilty: birthday, holidays, anniversary, but don’t make it a habit. Get an Endo that will listen to you as well as you listen to them! And listen to your body. Get your eyes, teeth checked regularly.

      1
      1 year ago Log in to Reply
    62. rick phillips

      It gets better – get mental health – work on routine – never be too critical of yourself and others

      1
      1 year ago Log in to Reply
    63. TomH

      Find a trusted confidant you can say/discuss anything to/with, that will give honest feedback without judging, and knows when to just listen.

      2
      1 year ago Log in to Reply
    64. Jennifer Wilson

      Having a good and thorough endocrinologist, who educates you on quality of care and knowledgeable about the latest technology, along with networking with other T1Ds, is very important.

      1 year ago Log in to Reply
    65. Maureen Helinski

      Knowing what the problem is, is the main solution. It is treatable and you can live a normal life. Wonderful developments in the last 30 years!

      1 year ago Log in to Reply
    66. Janis Senungetuk

      Be patient with yourself. Every day living with diabetes bring new challenges. Do the best you can, but don’t beat yourself up. Enjoy life!

      2
      1 year ago Log in to Reply
    67. Richard Vaughn

      Get tp know other diabetics, preferably in your community and near your age. Making friends with other diabetics and keeping in touch can be very rewarding. Online support groups are also good.
      I have attended the Friends For Life T1D conference in Orlando. It is a wonderful!!! It is held every July.

      1 year ago Log in to Reply
    68. KCR

      Read everything you can about T1D, join knowledgeable and trustworthy online forums, and be your own advocate with your health care providers.

      1 year ago Log in to Reply
    69. Abraham Remson

      First after the shock wares off, please don’t panic. Once you get your insulin regiment set. Remember nothing is one hundred percent there will be good days and bad days. Don’t beat yourself up, if your sugar isn’t spot on. This quit normal no matter how good or bad you are, Give yourself a break

      1 year ago Log in to Reply
    70. Andrew Carpenter

      Don’t go through this alone. Share with people you can trust and lean on them when you need too. Ask your doctor/Endocrinologist any question that comes to mind, Wikipedia is NOT the best source for answers…

      1 year ago Log in to Reply
    71. Vickie Baumgartner

      Do not have your expectations firmly set on perfection right away with BGs. You need to learn what foods you enjoy and don’t raise BGs your too much or cause long lasting highs. All the new learning will take time and experimentation. Each person reacts differently to different foods.

      1 year ago Log in to Reply
    72. Christina Trudo

      It’s a difficult adjustment. Mind your mental health as well as your physical- it’s a long road.

      1 year ago Log in to Reply
    73. dave hedeen

      Follow the technology, changes will only make living with T1D easier

      1 year ago Log in to Reply
    74. Nevin Bowman

      Diabetes = carbohydrate intolerance. You can explain it however you want, but that is the truth.

      1
      1 year ago Log in to Reply
    75. Derek West

      Educate yourself well on what it is and the latest methodologies for control of the condition.

      1 year ago Log in to Reply
      1. Keli Godin

        Nothing you did gave you T1D so don’t feel ashamed. Find an endocrinologist and start talking with your insurance company to see what medical devices are covered since they take forever to approve things. Your endocrinologist may have some supplies for you to try out as well. Find a nutritionist or educator who can help you learn to read nutrition labels. There is nothing you can’t do, you just have to plan ahead a bit more than before.

        1 year ago Log in to Reply
    76. Peter Shank

      Every day is an education, live it fully and positively.

      1 year ago Log in to Reply
    77. Patricia Maddix

      Learn all you can about managing diabetes and be open to trying all the newest technologies such as automated insulin pumps and CGMs as they can make your life easier overall.

      1 year ago Log in to Reply
    78. Gina Lucero

      Eat low carb and low glycemic index. It makes things so much easier.

      1 year ago Log in to Reply
    79. CindyGoddard

      Get a CGM right away and a smart insulin pump. Do everything you can to have great time in range. You’ll live forever . . .

      1 year ago Log in to Reply
    80. James Hoare

      Diagnosed at 13 years old in 1961. Knowledge was limited, technology was someone’s dream. Learned to keep a game face on and started high school. I did not know it then but good therapy was what I needed most, to explore with someone capable what had happened and what futures could be: good , bad, and the other. Maybe that is still a critical need despite the tech.

      1 year ago Log in to Reply
    81. Tb-well

      Diabetes is rough, having diabetic friends helps a lot.
      Also keep up on the emerging technologies, as a lot of times your doctor won’t even know about. Also be honest and don’t be afraid to ask your doctor questions.

      1 year ago Log in to Reply
    82. Kim Murphy

      Learn everything you can about how to manage you T1D. Don’t be afraid to try all the newest technologies available.

      1
      1 year ago Log in to Reply
    83. RACHEL BLEVINS

      Don’t give up on yourself during the hardest times. Learn to count your carbs diligently and work hard to calculate your insulin. It’s not all about a 3 month A1C- it’s about taking care of yourself, lol and when you do- your numbers will reflect.

      1
      1 year ago Log in to Reply
    84. TEH

      In addition to all the other good advice here, don’t settle with just a GP. Find an Endocrinologist. Look for one you can work with and if possible one who has a PA who really knows how to use the new technology.

      1
      1 year ago Log in to Reply
    85. n6jax@scinternet.net

      As I have done in the past, I would put my hands in the air, twirl around and say [now], “well I got T1D at age 21, and I am now age 891/2 !!!

      1
      1 year ago Log in to Reply
    86. Ronald Troyer

      Take it seriously and listen to an Endocrinologist

      1 year ago Log in to Reply
    87. Kristine Warmecke

      That it seems overwhelming right now, but shortly EVERYTHING about T1D will become second nature. You may have T1D, it is only 1 part of you. What is other 99%?

      1
      1 year ago Log in to Reply
    88. AnitaS

      Technological devices (CGMs, pumps and even new insulin pens that help with insulin dosing) have made living with diabetes easier to control, but absolutely nobody is perfect, so don’t expect your blood sugars to be where you want them all of the time. Do the best you can, enjoy treats occasionally (even non-diabetic people should only enjoy treats occasionally), and hang in there as there will be a cure some day.

      1 year ago Log in to Reply
    89. M C

      Take advantage of the technology now available (insulin pump and CGM) right from the start, which will assist you in managing your BG levels, and reduce the chances of having diabetic-related complications in the future.

      1 year ago Log in to Reply
    90. Stephen Woodward

      After 51 T1D yrs here is what has kept me going.
      – Laugh at the funny stuff, there will be plenty.
      – Pat yourself on the back for your successes, you’ve earned it!
      – Learn everyday, it will help and give you the knowledge and confidence to overcome the challenges.
      – Be proud of coping with and managing the T1D 24/7 experiment.
      – Celebrate the good stuff, no matter how small.

      2
      1 year ago Log in to Reply
    91. Ruth Chapman

      It may seem daunting, but opportunities will arise. Make it work for you.

      1 year ago Log in to Reply
    92. Donal Conway

      My advice is to get to know your new condition of Diabetes as well as it can be, that is to read timely measured amounts of information, listen carefully to all members of your diabetes care team and ask plenty of searching questions. Accept you new condition, get to know the carbohydrate values of food, include fruit and look to consume as much wheaten & only brown breads into your daily diet. Stay fit and adopt and maintain a daily exercise regime into your living. As well as educating yourself do inform and educate those people around you, family friends and workmates. Most of all maintain a good mental health state because there will be times when everything will not go your way in your new found Diabetes life.

      1 year ago Log in to Reply
    93. Sue Herflicker

      I will tell you what I have always told my boys growing up. YOU CAN DO ANYTHING!! Diabetes will not stop you from living!! You will stop you from living! Our lifestyle is a bit different than the norm, but its nothing to be ashamed of. Always hold you head high! YOU CAN DO THIS!! And you know what, they did, now 34 and 26 they have climbed mountains and you can too!!!

      1
      1 year ago Log in to Reply
    94. kylekk@gmail.com

      Learn what your body needs and research the disease. An understanding of what is happening with diabetes makes management SO much easier and turns it into something that is back of mind instead of front of mind. There are a lot of fantastic resources…Sugar Surfing (book), Think Like a Pancreas (book), Juicebox Podcast, etc.

      1 year ago Log in to Reply
    95. Kristen Clifford

      Above anything else, don’t be scared. If you get too caught up in your fear about what’s to come, you’ll forget to live. In many ways, your life will be no different than it was before you were diagnosed. In some, it may even be better.

      1 year ago Log in to Reply
    96. brettsmith115

      Here’s some advice to parents with young kids who are diagnosed….be calm and confident. Your kids will match that energy and then will rebound into new normal in no time.

      1 year ago Log in to Reply
    97. Dave Akers

      You’ll be just fine… eventually, Diabetes will just be another part of your day. Find a way, in the long term, to live your life. Don’t let diabetes manage your life. Lots of help out there and lots of tools that will fit your daily lifestyle.

      1
      1 year ago Log in to Reply
    98. BOldfield

      Learn to eat in a way that allows you to keep the carbs low for daily intake and then insulin consumption will be better for you in the long run.

      1 year ago Log in to Reply
    99. Glenda Schuessler

      Be kind to yourself! There is a learning curve, use trusted sources for your education. Be your own (your childs’) best advocate. Your lifestyle will most likely change (medications, devices, diet, exercise, budget) but it might be for the better! I was diagnosed almost 30 years ago, I continue to learn, advancements have been made, new technology is available, new medications are available – try to stay current. Your diabetes experience will most likely not match someone else’s, learn what is best for your scenario. Again, be kind to yourself.

      1 year ago Log in to Reply
    100. Velika Peterson

      Read a lot, listen to the Juicebox podcast, find others in your shoes, get a CGM as soon as possible, breathe!

      1 year ago Log in to Reply
    101. Miguel Carela

      Don’t freak out every time the blood sugars fall outside of acceptable range. Just treat it (with food or insulin, depending on whether you’re hypo or hyper, figure out how much units [for insulin] or grams of carbs [for food]) and move on.

      1 year ago Log in to Reply
    102. Donna Condi

      Get a CGM!

      1
      1 year ago Log in to Reply
    103. Kathleen Juzenas

      Thinking back to when I was diagnosed as an adult 44 years ago, I’d say finding a good doctor. In today’s world, there are many sources of information and tools out there, so I’d say, learn as much as you can and stay engaged in managing T1d.

      1 year ago Log in to Reply
    104. Sue Martin

      Learn to take advantage of technology. Find a good endrocrologist. Find good health care. Find a balance between T1D and other interests.

      1 year ago Log in to Reply
    105. PamK

      Diabetes is not the end of the world. It is just something new you have to deal with. But, don’t let it stop you! You can be who you want to be and do anything you want, as long as you learn how to keep your blood sugars in range. So, my advice is, “Don’t let it stop you from doing what you love!”

      1 year ago Log in to Reply
    106. James Cheairs

      There are ample virtual and in-person T1D communities out there. Make it a point to join one for support and learning. Also, breathe and take it one day at a time. You are not your number.

      1 year ago Log in to Reply
    107. Bonnie Lundblom

      Education for you and your family members about Type 1 diabetes is so very important. Having an endocrinologist whose decision making you trust, and who takes the time to work with you to manage your diabetes is critically important. Realize that you are going to be learning a lot and ask questions about teaching points you didn’t 100% grasp. CGM is an absolute must have device, and insulin pumps make diabetes management better for many. Day by day experiences that encompass both sides of the coin, the good and the bad blood sugar days, will making living as a Type 1 diabetic easier.

      1 year ago Log in to Reply
    108. Cheryl Seibert

      Diabetes is not a death sentence. You can live your life and accomplish anything even with diabetes. It takes management not surrender! 🙂

      1 year ago Log in to Reply
    109. kcatalino

      It will never be easy but it does get easier. Remember to be kind to yourself.

      1 year ago Log in to Reply
    110. Diana Lemcoff

      Be patient and watch your numbers!

      1 year ago Log in to Reply
    111. cmrobinson227

      Ignoring your diabetes because you are embarrassed, or ‘don’t want to be dependent on something’ is only hurting yourself. Embrace your diabetes, realizing that it sucks, and be open about it- management and treatment will improve if you view it this way.

      1 year ago Log in to Reply
    112. kathy scott

      Do not strive for perfection.

      1 year ago Log in to Reply
    113. Chris Albright

      T1 diabetes is a challenging disease but if you stay fit, eat a well constructed diabetes diet, take your medication as prescribed by your doctor/Endo and the most important thing is staying positive…. There will be good days and days that are challenging, but if you stay at focused on the good practices mentioned above, you can lead a healthy, happy productive life with you T1 diabetes

      1 year ago Log in to Reply
    114. John McHenery

      Learn the rules and don’t be stupid.

      1 year ago Log in to Reply
    115. K W

      You are going to be ok. Don’t ignore what you need to do to keep yourself healthy, but don’t let this diagnosis define you. You are able to learn and able to thrive with this disease despite the added layers of challenges to your life.

      1 year ago Log in to Reply
    116. Carlene Vaitones

      This is a manageable condition. You will get better and better at it with time. Be kind to yourself on the harder days. It doesn’t change who you are or what you can do, just sometimes how you do things. I still swim, backpack, cross country ski, and bike long-distance, as I did 29 years ago when I was diagnosed at age 35. You define your diabetes journey, it doesn’t define you.

      1 year ago Log in to Reply
      1. Carlene Vaitones

        And ALWAYS have glucose tablets with you 🙂 This is your backpack to carry and no one else’s.

        1 year ago Log in to Reply

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