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    • 2 hours, 2 minutes ago
      Jeremy Hanson likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      And sometimes I dream that I’ve run out of insulin and cannot get prescription refilled.
    • 3 hours, 55 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I providee an answer of low BG. But with that said, it is usually a false alarm (compression low from Dexcom sensor) With the stable bedtime BG and a TSlim X2 pump using CIQ and Sleep Mode, I consistently sleep between about 85 and 110 every night. The key to this is going to bed with a stable BG (85-110) and not having any IOB.
    • 3 hours, 59 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      While middle-of-the-nght alerts are frustrating and irritating, I'm no longer terrified of dying from an extreme low in the middle of the night, so technology is still a win for me!
    • 5 hours, 35 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 5 hours, 37 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 5 hours, 38 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 5 hours, 39 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 5 hours, 39 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 5 hours, 48 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 5 hours, 49 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 5 hours, 50 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 5 hours, 51 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 5 hours, 51 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 5 hours, 56 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Why isn't going to the bathroom not on this list?
    • 6 hours, 1 minute ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 6 hours, 16 minutes ago
      TEH likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 6 hours, 39 minutes ago
      Steven Gill likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My pump, "I need to BG! I need to BG!" Such a cry baby it is!
    • 7 hours, 33 minutes ago
      Robin Melen likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 8 hours, 20 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 8 hours, 22 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 8 hours, 47 minutes ago
      Anneyun likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 9 hours, 29 minutes ago
      Sue Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 10 hours ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 10 hours, 1 minute ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 10 hours, 22 minutes ago
      Velika Peterson likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
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    On a scale of 1-5, how much do you think T1D impacts decisions you make in other areas of your life? (1 = the least possible impact, 5 = the most possible impact)

    Home > LC Polls > On a scale of 1-5, how much do you think T1D impacts decisions you make in other areas of your life? (1 = the least possible impact, 5 = the most possible impact)
    Previous

    If you use an insulin pump, does your T1D healthcare provider typically examine your pump sites during your appointments?

    Next

    In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    31 Comments

    1. Tom Rintelmann

      When you’re T1D, your present decisions must be made with the next 8 hours in mind. If Insulin and food intake is not with you or quickly accessible, your asking for trouble.

      4
      2 years ago Log in to Reply
    2. Vivian Moon

      4

      2 years ago Log in to Reply
    3. Nevin Bowman

      The question is bit vague, but obviously, it affects all areas of my life. If I’m traveling, I need to make sure I have insulin and testing supplies. Even if it’s a half-day trip, I need to make sure I have food accessible at all times.

      2
      2 years ago Log in to Reply
    4. T1DGJ

      T1D 36 yrs. It’s such a part of my life, that I had to pause and reflect. I don’t usually consider it a “burden,” it’s just how I live. But every single day I make decisions or consider it – “where’s my b.s. right now?” Make sure I have sugar packets with me. Meter/strips accessible. I can’t just freely walk out the door with “nothing” and meander; I have to have some items and a way to comfortable carry them. Food choices ALWAYS are made considering impact on blood sugar. Travel – I would never go super remote due to need for insulin, or proper items to regulate b.s. I choose to travel out of the USA to buy insulin; normal ppl don’t do that.

      I don’t feel hindered in things I “wish” I could do – I always manage around it and do what I want (fortunately, I don’t WANT to travel really remotely). But it affects many small decisions in every day, impossible to separate from “other areas” of my life.

      3
      2 years ago Log in to Reply
    5. Lawrence Stearns

      I answered 4, but considered 5. I think just about every decision I make involves my diabetes care, in some respect, if not directly. When I don’t consider my diabetes is when I get into trouble. I know my answer is kind of vague …

      5
      2 years ago Log in to Reply
    6. Tb-well

      After 31 years I can safely say that diabetes has impacted which job opportunities I took, where I travel to, what equipment I travel with, how I travel etc a lot. From planning extra time to go through the TSA nightmare (got to spend some fun enhanced pat down time in both Florida and in Utah) to keeping a job that was a horrible fit simply to maintain health insurance, to not going out with certain people, or to certain places due to having to plan for them and how they effect my diabetes. A lot of my life has directly had to be modified to fit my diabetes equipment, my diabetes lifestyle, and the realities of dealing with a public (especially in the security arena) that have literally no idea of the technology / how it works / that they can destroy it. Along with that, the fact that this equipment is expensive and not easy to replace makes me significantly more risk averse than a normal person.

      5
      2 years ago Log in to Reply
    7. Danele Smith

      In an effort to stay ahead of any problems, we may run into.. I tend to overthink and over plan everything due to my daughters diabetes.

      2
      2 years ago Log in to Reply
    8. Ernie Richmann

      Diabetes impacts most decisions but it does not prevent me from participating in activities.

      2
      2 years ago Log in to Reply
    9. Andrew Stewart

      This is very dependent upon specific “other areas” of my life and since the question is generalized I have to say 1. least possible impact. After 31 years of T1D for the most part I don’t have think about it except for making sure I’m covered supply wise (pump has enough insulin, infusion set is good, CGM sensor is good and not going expire, I have snacks to prevent lows) for whenever I leave the house. Never have I thought I have T1D, I can’t do that. Everyday life requires some planning your T1D stuff just becomes automatic.

      3
      2 years ago Log in to Reply
    10. cynthia jaworski

      I put 2. I agree that T1 planning is part of what I always do. However, having T1 does not determine the outcome of my choices.

      5
      2 years ago Log in to Reply
    11. Tina Roberts

      Not much. I do pretty much anything I want except float the River for hours as my pump isn’t water proof.

      1
      2 years ago Log in to Reply
    12. Sherrie Johnson

      It really impacts me when traveling. Extras I must carry snd keep with me st sll times. I’ve done it for do long automatically pack medical first.

      3
      2 years ago Log in to Reply
    13. Abraham Remson

      T1 is forever on my mind. It is my first thought when doing anything. I have to think about my sugar level each time I get in the car to drive what kind of activities I am going to be involved with during the day. the amount of insulin I will need during the activities

      1
      2 years ago Log in to Reply
    14. AnitaS

      T1D affects most of my decisions, but it didn’t dictate whether I should have taken an accounting course in college or if I should have taken an English course. Therefore I chose #4. Obviously T1D does affect many of my decisions as I didn’t choose #1 through #3. Even physical activities only affect me a little bit as to my decisions (I am going to bring more glucose tabs on a 4 hour walk rather than on a 1/2 hour walk, but either way, I was going on a walk.

      2
      2 years ago Log in to Reply
    15. Mig Vascos

      Diabetes and now a day the use of my devices are always in the forehead of every decision I make every day, from where I’m going to have my next meal and what I’m going to eat, to how much insulin I’d need, to the clothes I wear, to the purse I carry (depending on whether I need to carry food or spares with me) to who are the people in my social group (whether I feel comfortable or not pulling out my pump). In respect to my choice of jobs I always consider whether or not I would had to participate in situations where I wouldn’t be able to check my sugar (that’s when a glucose meter was the only way to know). In other words it has always affect every single thing I do or have done in my life.
      I have never used diabetes as an excuse not do things but have always considered how to handle in each particular situation. So yes it has and it is always in my mind.

      1
      2 years ago Log in to Reply
    16. Janis Senungetuk

      For the past 66 years Type 1 D has impacted every aspect of my life.

      1
      2 years ago Log in to Reply
    17. Christina Trudo

      I put “other” because I really can’t answer this. It has been such an integral part of my life for 59 of my 70 years that I really can’t sort out what attitudes and reactions are related or not. It sounds like asking how much my arm has impacted my decision making.

      3
      2 years ago Log in to Reply
    18. Patricia Dalrymple

      I’m pretty much with everyone else: I think about it but it doesn’t stop me unless it involves salt water (I live near the Gulf). But one thing: before LADA diagnosis over 20 years ago, I would’ve said I eat to live. Food wasn’t that important. After my diagnosis: everything became about food. I couldn’t stop thinking about it. It makes me laugh now but when I go low, it’s all about now what can I eat that I normally wouldn’t to raise my BG?

      2 years ago Log in to Reply
    19. KCR

      As someone with adult-onset T1D, I feel like everything I took for granted about living my life was upended and still struggle with that at meals and in the planning for activities. Also, a lifelong struggle with depression has often made managing T1D much harder. Living with D is definitely a “work in progress”. I am very grateful for all the tech stuff that helps me life a more balanced life.

      2 years ago Log in to Reply
    20. connie ker

      I am surprised that I chose #1, but the highest percent was #4. Since T1D is a job that is 24/7/365, it is the most demanding job I have ever had, and it naturally impacts everything I do from moment to moment. However, I am a senior who lives alone which doesn’t give me a safety net of support.

      2 years ago Log in to Reply
    21. Sahran Holiday

      Other than using the right dose of insulin which isn’t that difficult thanks to technology I don’t have to do anything anyone else has to do to be healthy, exercise, eat mostly produce and whole grains most of the time. If I didn’t the consequences might be sooner and harder is the only difference.

      2 years ago Log in to Reply
    22. Marina Kurkov

      It’s not because my decision depends on how diabetes affects me at the moment —-but rather on what it has done to me over the years —– I wish I didn’t have it, but I am extremely happy that I am able to

      1
      2 years ago Log in to Reply
    23. Lucia Maya

      I answered 4, and like most of you I don’t let diabetes limit me in any way, and yet it is involved in every aspect of my day (and night). After 45 years and now using pump/CGM, I think I’m not even aware of how much it does impact everything I do in some way…good question, but I’m not sure I want to think about it too much! 🙂

      2
      2 years ago Log in to Reply
    24. Molly Jones

      I chose a 2. It impacts what I eat and how quickly I can leave my house, for what duration or where to. With the plague of T2D, insulin is available in all pharmacies and so I could find a way to access my necessities.
      I am used to being dependent upon medications and other medical supplies and currently prefer diabetes to the other bothers I have.

      2 years ago Log in to Reply
    25. William Schaffer

      It’s difficult to fairly judge this. I don’t have an idea what my life would be like without T1

      1
      2 years ago Log in to Reply
    26. ConnieT1D62

      I chose 3. I generally live life the way I want to most of the time. However, diabetes is something I have to take into consider in most situations and I am ultimately responsible for the day-to-day decisions and choices I make in matters of personal self-care, well being, and safety.

      1
      2 years ago Log in to Reply
    27. PamK

      I don’t really feel that Diabetes impacts decisions I make in “other areas” of my life. I answered “2” only because if having a low sugar keeps me from going shopping for 20 minutes counts, then I guess is does impact my decisions. I’m not sure what this question is referring to, so I chose a low answer with the understanding that it can effect my life at times. I don’t consider this a problem though.

      1
      2 years ago Log in to Reply
    28. kristina blake

      I answered 4 – not because T1D really impacts me 0but that having been raised to be a ballet dancer, and working as one, I have always taken into account what
      fuel I have in the tank”, getting weighed every week, etc. So while T1D is inolved in my decision-making (it is second nature to me now after 40 years) it isn’t a big impact because that’s they way I have lived my life for forever!

      2 years ago Log in to Reply
    29. Marsha Miller

      Maybe I am OCD about T1D, but I feel it effects every area of my life. I think about my BG level all of the time.

      1
      2 years ago Log in to Reply
    30. Bonnie Lundblom

      I chose 5 because it’s at the forefront of each and every day, trying to stay healthy with stable blood sugars. Some days are easier than others but I’m so grateful for the devices and technology I’m using that keeps my diabetes manageable.

      2 years ago Log in to Reply
    31. Cheryl Seibert

      I answered “4”. With 55 years of T1D, many of the decisions I now have to make mean considering when Sensor and cartridge changes have to occur and the location I will be in when these events need completed. I try to change Insulin pump and sensors when at home. My life as a caregiver means packing supplies, cords, and insulin for unexpected overnight or long-term stays away from home.

      2 years ago Log in to Reply

    On a scale of 1-5, how much do you think T1D impacts decisions you make in other areas of your life? (1 = the least possible impact, 5 = the most possible impact) Cancel reply

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