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    • 16 hours, 55 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      shortly after I was diagnosed at age 43, went on a date with a T1D who had had it forever. she criticized what I ate, how much insulin I was taking for it (MDI) and when I ordered a Corona, I thought that her head would explode! needless to say there was no second date.
    • 16 hours, 55 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered NO, but on reflection, I'm not certain that is correct. Of the many girls/women I dated in the 1950s and early 1960s, the only one I ever told that I have diabetes [Type One naming didn't exist for another 40 years] is the woman to whom I've been married for an eternity. And not one of my many dates told me that she has/had diabetes [of any of the many kinds].
    • 16 hours, 57 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      At the time we dated and were married my wife was not diabetic. She was diagnosed as T1D during/after her first pregnancy. We shared T1D through the next 37 years and a second pregnancy!
    • 18 hours, 2 minutes ago
      Ahh Life likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered NO, but on reflection, I'm not certain that is correct. Of the many girls/women I dated in the 1950s and early 1960s, the only one I ever told that I have diabetes [Type One naming didn't exist for another 40 years] is the woman to whom I've been married for an eternity. And not one of my many dates told me that she has/had diabetes [of any of the many kinds].
    • 1 day, 9 hours ago
      Anita Stokar likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I put "Never" because I'm 85 and stable. Why change a good thing?
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      Ten years ago when I first started seeing her I asked her to work with me as an equal partner in all treatment decisions. She agreed and made a definite effort at every appointment to maintain that commitment. That was a decade ago. Healthcare has changed dramatically along with her caseload. At my 90 day appointment next week I hope she will have the uninterrupted time to allow for an actual pro/con discussion on several issues.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 1 day, 10 hours ago
      Janis Senungetuk likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      I said “No.” Perhaps I’m the luckiest person alive since I’ve navigated the diabetic road for 74 years. Have never had DKA, although symptomatic twice. Have had numerous hypoglycemic affairs, but no hospitalizations. I am also a bit determined. They may hospitalize me for dementia or other old age conditions. But not for T1D. ✨.•*¨*.¸.•*¨*.¸¸.•*¨`*• ¨*.¸.•*¨`*. ¸.•*¨*.¸¸.•*¨`*•.✨
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      Ten years ago when I first started seeing her I asked her to work with me as an equal partner in all treatment decisions. She agreed and made a definite effort at every appointment to maintain that commitment. That was a decade ago. Healthcare has changed dramatically along with her caseload. At my 90 day appointment next week I hope she will have the uninterrupted time to allow for an actual pro/con discussion on several issues.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 1 day, 13 hours ago
      ChrisW likes your comment at
      Do you check your blood glucose before driving a car?
      Kind of a bad question, “check” means what, CGM and meter both are used to “check” BG, so it would appear that 60%+ “check”. Maybe it should have been, “How do you check BG before driving?” To get a more specific assessment of the BG checking task.
    • 1 day, 13 hours ago
      ChrisW likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      She recommended having the latest incarnation of Glucagon on hand and Lantus pens in case I have a pump problem.
    • 1 day, 16 hours ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 1 day, 16 hours ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 17 hours ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 1 day, 17 hours ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 18 hours ago
      Vicki Andersen likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
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    For how many years have you (or your loved one) been living with T1D so far?

    Home > LC Polls > For how many years have you (or your loved one) been living with T1D so far?
    Previous

    If you use a pump that has an automated insulin delivery algorithm (e.g., Tandem Control-IQ, Medtronic SmartGuard Auto Mode, Omnipod 5 SmartAdjust, etc.), when do you usually turn off the algorithm, if ever? Feel free to share more about your schedule in the comments!

    Next

    If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply.

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    58 Comments

    1. Kristine Warmecke

      I’m at 40 years; my brother whose 2 years younger than me is at 50 years (basically his whole life being 7 months old when they finally figured out what was going go.)

      4
      3 years ago Log in to Reply
    2. Molly Jones

      21 out of my 52 years

      3 years ago Log in to Reply
    3. Kris McDonald

      I was diagnosed at 8 years old so it’s been 42 years.

      2
      3 years ago Log in to Reply
      1. Donal Conway

        52 of 73 years @ 21 yrs old.

        3
        3 years ago Log in to Reply
    4. Lorri McLuckie

      56 of my 66 years

      5
      3 years ago Log in to Reply
    5. Gerald Oefelein

      76 now. Diagnosed as an adult in 2000.

      2
      3 years ago Log in to Reply
    6. Joan Fray

      61 ofmy 72 years. What a trip! Shooting for 70 years T1d. Nine to go, then I’ll retire!

      6
      3 years ago Log in to Reply
    7. Nevin Bowman

      45 of 49 years.

      3
      3 years ago Log in to Reply
    8. Virginia Barndollar

      57 years so far for me!

      6
      3 years ago Log in to Reply
    9. George Rich

      52 of my 74 years. Studies have shown that half of all cases of T1DM are diagnosed at age 30 or older!

      4
      3 years ago Log in to Reply
      1. Richard Wiener

        I just made it when I was 32.

        3 years ago Log in to Reply
      2. Wanacure

        Half! I’m surprised! Goes to show that the terms “adult-onset diabetes” and “child-onset diabetes” are no longer relevant.

        2
        3 years ago Log in to Reply
    10. Daniel Bestvater

      45 of my 59 years, still 51 years to go!

      2
      3 years ago Log in to Reply
      1. Phyllis Donahue

        31 out of 65,still going strong.

        3
        3 years ago Log in to Reply
    11. gary rind

      19 out of 62 years!

      3 years ago Log in to Reply
    12. dholl62@gmail.com

      56 out of 74

      4
      3 years ago Log in to Reply
    13. Jeanne McMillan-Olson

      67 out of my 76 years. 🤗

      9
      3 years ago Log in to Reply
      1. Janis Senungetuk

        me too!

        1
        3 years ago Log in to Reply
      2. Linda Zottoli

        And me!

        1
        3 years ago Log in to Reply
    14. Lawrence S.

      45 years with T1D out of 69. I was 23 when diagnosed in 1977.

      3
      3 years ago Log in to Reply
    15. Mig Vascos

      60 out of 83

      6
      3 years ago Log in to Reply
    16. mojoseje

      52 (Halloween will be 53) of 60 years.
      I’m proud of all of us!!

      10
      3 years ago Log in to Reply
    17. cynthia jaworski

      60 out of 70

      7
      3 years ago Log in to Reply
    18. Karen Taylor

      62 out of 66

      6
      3 years ago Log in to Reply
    19. Ahh Life

      71 out of 75. Dang! And I haven’t even written my obituary yet. Better get movin’.

      15
      3 years ago Log in to Reply
      1. Donna Williams

        Thanks, you always make me smile!

        6
        3 years ago Log in to Reply
    20. Mary Dexter

      2004, age 48, LADA, initially misdiagnosed as T2

      3 years ago Log in to Reply
    21. Jeff Balbirnie

      Maintenance is NOT a cure…..

      Cure me!

      7
      3 years ago Log in to Reply
    22. Sherrie Johnson

      61 out of 75

      7
      3 years ago Log in to Reply
    23. Drina Nicole Jewell

      Myself, 23ish yrs, my 17 yr old son, 15 yrs and my nearly 13 yr old, 3ish yrs.

      3
      3 years ago Log in to Reply
    24. ConnieT1D62

      60 out of 68.

      8
      3 years ago Log in to Reply
    25. Tom Caesar

      Grateful for 54 years! Congrats to all, you’ve beat expectations!!

      6
      3 years ago Log in to Reply
    26. Janis Senungetuk

      dx in 1955 at the age of 8 = 67 yrs

      9
      3 years ago Log in to Reply
    27. pru barry

      68 out of 82. The goal to find a cure better be reached soon. I don’t want to miss that exciting day :*} !

      12
      3 years ago Log in to Reply
    28. Andrew Stewart

      32 of my 58 years
      #BeWell

      1
      3 years ago Log in to Reply
    29. Bruce Schnitzler

      Diagnosed with T1D in Dec 1951 when I was 6 years old.

      5
      3 years ago Log in to Reply
    30. LizB

      35 out of 54 years. One of my sisters was diagnosed 10-11 years ago in her 40s.

      3 years ago Log in to Reply
    31. Bob Durstenfeld

      I was Dx’ed in 1956. I have seen many great changes, but the annual promise of a “cure” has still not materialized. I hope it happens in my granddaughter’s lifetime.
      I have lived a rich life despite the consequences long term T1D.

      5
      3 years ago Log in to Reply
    32. lynda meyer

      69 of my 73 years

      6
      3 years ago Log in to Reply
    33. Becky Hertz

      48 1/2 out of 62 ( in 4 days)

      3
      3 years ago Log in to Reply
    34. Joan Benedetto

      Coming up on nine years. My son was diagnosed in November of 2013 at the age of 18 months.

      1
      3 years ago Log in to Reply
    35. Sue Martin

      wow, and I thought 37 years was a long time. Way to go all of you who have been living with this longer than I have been.

      3
      3 years ago Log in to Reply
      1. ELYSSE HELLER

        When I got diagnosed with T1D many years ago the doctors told my parents that I wouldn’t live to age 40; thank the universe for advances in treatment! My fist blood glucose monitor was the size of a phone book! I nicknamed my first lancet device “the guillotine” and kept it in my office at the hospital where I worked to show my patients who didn’t like doing a finger stick what the old days were like.

        2
        3 years ago Log in to Reply
    36. Jan Masty

      63 of 73 years. By the way I was in rehab after a weird spinal infection(???) and the facility doctor said he had no idea what to do with me cause he’d never met someone with t1d that was in their 70’s. I assured him I could take care of me but that they’d better start training their medical staff on how to deal with type 1’s cause there will be many more coming someday. The nurses had absolutely no idea how to treat type 1 and tried to kill me with their type 2 knowledge..

      9
      3 years ago Log in to Reply
    37. KarenM6

      51 of 56 years!

      1
      3 years ago Log in to Reply
    38. Ken Raiche

      I’ve got to admit far to many years with this dreaded disease. I’ve got to admit though not as many years as some of you incredible individuals, wow…….. well done to each and everyone of you. Keep up the great work………

      3
      3 years ago Log in to Reply
    39. sweet charlie

      about 70 years T1D out of 90 years OLD !!

      5
      3 years ago Log in to Reply
    40. PamK

      58 years and going strong!

      3
      3 years ago Log in to Reply
    41. Robin Melen

      1 out of 62! All brand new! You all are an inspiration!

      3
      3 years ago Log in to Reply
    42. Mary Ann Sayers

      I’m still waiting for a cure☎️.

      3 years ago Log in to Reply
    43. Ms Cris

      I’m a newbie. My T2D journey started when I was 42, just a few years ago.

      1
      3 years ago Log in to Reply
      1. Ms Cris

        Autocorrect…T1D, not T2!

        3 years ago Log in to Reply
    44. Eva

      Living with T1D for 36 years and 25 years using a MiniMed pump and seeing the same Endo for 24 years. Blessed and luckily that I had the right tools (both mechanical and/or cognitive) to help keep my A1C within goal (never been above 6.5). As a result, I don’t have eye disease, kidney issues, heart issues, or neuropathy. So, I can’t complain too much about my journey.

      2
      3 years ago Log in to Reply
    45. Connie Porcaro

      I was diagnosed with LADA, type 1 last March so very new to all of this. Very grateful for this group and others where I can get input from you all.

      4
      3 years ago Log in to Reply
    46. mbulzomi@optonline.net

      Not much to discuss, however, I am tired of T1 Diabetes! I’ve did Injections for fifteen (15) years and on a pump for forty (40) years for a total of fifty-five 55 years, along with using CGMS for eleven (11) years.

      2
      3 years ago Log in to Reply
    47. Kristen Clifford

      Fourteen and a half years

      3 years ago Log in to Reply
    48. Elizabeth T.

      Diagnosed 15 years ago at 50. I’m inspired by those of you who have been dealing with T1D for many decades. It encourages me to hear that you all have managed it so well for so long.

      3 years ago Log in to Reply
    49. Annie Simon

      I was diagnosed late in life and suddenly in 2018 with T1D. I’m much more controlled now snd have managed to live with T1D. I wear a sensor and take 2 types of insulin; I am under the care of a wonderful endocrinologist which I see several times per year for follow ups. I also have have access to a diabetic dietician and have followed a personalized eating plan to control my diabetes.
      I can honestly say that, although my diabetes has changed my life in so many ways, I’m proud that I have come this far in almost 5 years and have learned to manage my blood glucose levels and maintain a healthy lifestyle with diet and exercises👍

      3 years ago Log in to Reply

    For how many years have you (or your loved one) been living with T1D so far? Cancel reply

    You must be logged in to post a comment.




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