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    • 1 minute ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 1 minute ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 1 hour, 41 minutes ago
      Gerald Oefelein likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      AI Overview Tegoprubart, an anti-CD40L antibody, is generally safe and well-tolerated, with a cleaner safety profile than traditional calcineurin inhibitors (like tacrolimus) in early trials, specifically showing lower risks of kidney toxicity and diabetes. Common side effects reported include fatigue, headaches, muscle spasms, and potential infections. National Institutes of Health (.gov) National Institutes of Health (.gov) +4 Common Side Effects and Adverse Events In clinical trials, the most frequent treatment-emergent adverse events (TEAEs) observed included: National Institutes of Health (.gov) National Institutes of Health (.gov) +2 Fatigue (approx. 25.9%) Falls (approx. 22.2%) Headaches (approx. 20.4%) Muscle spasms (approx. 11.1%) Upper respiratory tract infections Sleepiness Key Safety Advantages Over Standard Care (Tacrolimus) Tegoprubart aims to avoid the, often, severe, long-term side effects of standard anti-rejection meds like tacrolimus
    • 1 hour, 42 minutes ago
      Lawrence S. likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      No thanks.
    • 21 hours, 22 minutes ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 21 hours, 22 minutes ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 21 hours, 22 minutes ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 21 hours, 22 minutes ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 21 hours, 22 minutes ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 21 hours, 23 minutes ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 21 hours, 23 minutes ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      If it requires immunosuppressive medication I have no interest. I'll continue to manage with insulin.
    • 21 hours, 26 minutes ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 21 hours, 26 minutes ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely, especially if stem-cell generated islet cells are transplanted without the need for immunosuppressants. If tegoprubart is needed and is found safe after the trials are complete, then likely.
    • 21 hours, 26 minutes ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 21 hours, 27 minutes ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 21 hours, 27 minutes ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 21 hours, 27 minutes ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 21 hours, 27 minutes ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely. Although the simplicity of spifflicating is often overrated. 🤓☝️
    • 21 hours, 28 minutes ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 21 hours, 28 minutes ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      I was going to comment that there's always a trade off. Am I trading insulin replacement with some other daily treatment? If so, what's the difference? Is the new daily grind more harmful than the old?
    • 21 hours, 28 minutes ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      If it requires immunosuppressive medication I have no interest. I'll continue to manage with insulin.
    • 21 hours, 28 minutes ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      I am too old and prefer my daughters get islet cells. There isn’t going to be enough to treat everyone I am sure as the supply will not allow that
    • 22 hours, 24 minutes ago
      Patricia Dalrymple likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 22 hours, 24 minutes ago
      Patricia Dalrymple likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      I was going to comment that there's always a trade off. Am I trading insulin replacement with some other daily treatment? If so, what's the difference? Is the new daily grind more harmful than the old?
    • 22 hours, 24 minutes ago
      Patricia Dalrymple likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      If it requires immunosuppressive medication I have no interest. I'll continue to manage with insulin.
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    For how many years have you (or your loved one) been living with T1D so far?

    Home > LC Polls > For how many years have you (or your loved one) been living with T1D so far?
    Previous

    If you use a pump that has an automated insulin delivery algorithm (e.g., Tandem Control-IQ, Medtronic SmartGuard Auto Mode, Omnipod 5 SmartAdjust, etc.), when do you usually turn off the algorithm, if ever? Feel free to share more about your schedule in the comments!

    Next

    If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    58 Comments

    1. Kristine Warmecke

      I’m at 40 years; my brother whose 2 years younger than me is at 50 years (basically his whole life being 7 months old when they finally figured out what was going go.)

      4
      4 years ago Log in to Reply
    2. Molly Jones

      21 out of my 52 years

      4 years ago Log in to Reply
    3. Kris McDonald

      I was diagnosed at 8 years old so it’s been 42 years.

      2
      4 years ago Log in to Reply
      1. Donal Conway

        52 of 73 years @ 21 yrs old.

        3
        4 years ago Log in to Reply
    4. Lorri McLuckie

      56 of my 66 years

      5
      4 years ago Log in to Reply
    5. Gerald Oefelein

      76 now. Diagnosed as an adult in 2000.

      2
      4 years ago Log in to Reply
    6. Joan Fray

      61 ofmy 72 years. What a trip! Shooting for 70 years T1d. Nine to go, then I’ll retire!

      6
      4 years ago Log in to Reply
    7. Nevin Bowman

      45 of 49 years.

      3
      4 years ago Log in to Reply
    8. Virginia Barndollar

      57 years so far for me!

      6
      4 years ago Log in to Reply
    9. George Rich

      52 of my 74 years. Studies have shown that half of all cases of T1DM are diagnosed at age 30 or older!

      4
      4 years ago Log in to Reply
      1. Richard Wiener

        I just made it when I was 32.

        4 years ago Log in to Reply
      2. Wanacure

        Half! I’m surprised! Goes to show that the terms “adult-onset diabetes” and “child-onset diabetes” are no longer relevant.

        2
        4 years ago Log in to Reply
    10. Daniel Bestvater

      45 of my 59 years, still 51 years to go!

      2
      4 years ago Log in to Reply
      1. Phyllis Donahue

        31 out of 65,still going strong.

        3
        4 years ago Log in to Reply
    11. gary rind

      19 out of 62 years!

      4 years ago Log in to Reply
    12. dholl62@gmail.com

      56 out of 74

      4
      4 years ago Log in to Reply
    13. Jeanne McMillan-Olson

      67 out of my 76 years. 🤗

      9
      4 years ago Log in to Reply
      1. Janis Senungetuk

        me too!

        1
        4 years ago Log in to Reply
      2. Linda Zottoli

        And me!

        1
        4 years ago Log in to Reply
    14. Lawrence S.

      45 years with T1D out of 69. I was 23 when diagnosed in 1977.

      3
      4 years ago Log in to Reply
    15. Mig Vascos

      60 out of 83

      6
      4 years ago Log in to Reply
    16. mojoseje

      52 (Halloween will be 53) of 60 years.
      I’m proud of all of us!!

      10
      4 years ago Log in to Reply
    17. cynthia jaworski

      60 out of 70

      7
      4 years ago Log in to Reply
    18. Karen Taylor

      62 out of 66

      6
      4 years ago Log in to Reply
    19. Ahh Life

      71 out of 75. Dang! And I haven’t even written my obituary yet. Better get movin’.

      15
      4 years ago Log in to Reply
      1. Donna Williams

        Thanks, you always make me smile!

        6
        4 years ago Log in to Reply
    20. Mary Dexter

      2004, age 48, LADA, initially misdiagnosed as T2

      4 years ago Log in to Reply
    21. Jeff Balbirnie

      Maintenance is NOT a cure…..

      Cure me!

      7
      4 years ago Log in to Reply
    22. Sherrie Johnson

      61 out of 75

      7
      4 years ago Log in to Reply
    23. Drina Nicole Jewell

      Myself, 23ish yrs, my 17 yr old son, 15 yrs and my nearly 13 yr old, 3ish yrs.

      3
      4 years ago Log in to Reply
    24. ConnieT1D62

      60 out of 68.

      8
      4 years ago Log in to Reply
    25. Tom Caesar

      Grateful for 54 years! Congrats to all, you’ve beat expectations!!

      6
      4 years ago Log in to Reply
    26. Janis Senungetuk

      dx in 1955 at the age of 8 = 67 yrs

      9
      4 years ago Log in to Reply
    27. pru barry

      68 out of 82. The goal to find a cure better be reached soon. I don’t want to miss that exciting day :*} !

      12
      4 years ago Log in to Reply
    28. Andrew Stewart

      32 of my 58 years
      #BeWell

      1
      4 years ago Log in to Reply
    29. Bruce Schnitzler

      Diagnosed with T1D in Dec 1951 when I was 6 years old.

      5
      4 years ago Log in to Reply
    30. LizB

      35 out of 54 years. One of my sisters was diagnosed 10-11 years ago in her 40s.

      4 years ago Log in to Reply
    31. Bob Durstenfeld

      I was Dx’ed in 1956. I have seen many great changes, but the annual promise of a “cure” has still not materialized. I hope it happens in my granddaughter’s lifetime.
      I have lived a rich life despite the consequences long term T1D.

      5
      4 years ago Log in to Reply
    32. lynda meyer

      69 of my 73 years

      6
      4 years ago Log in to Reply
    33. Becky Hertz

      48 1/2 out of 62 ( in 4 days)

      3
      4 years ago Log in to Reply
    34. Joan Benedetto

      Coming up on nine years. My son was diagnosed in November of 2013 at the age of 18 months.

      1
      4 years ago Log in to Reply
    35. Sue Martin

      wow, and I thought 37 years was a long time. Way to go all of you who have been living with this longer than I have been.

      3
      4 years ago Log in to Reply
      1. ELYSSE HELLER

        When I got diagnosed with T1D many years ago the doctors told my parents that I wouldn’t live to age 40; thank the universe for advances in treatment! My fist blood glucose monitor was the size of a phone book! I nicknamed my first lancet device “the guillotine” and kept it in my office at the hospital where I worked to show my patients who didn’t like doing a finger stick what the old days were like.

        2
        4 years ago Log in to Reply
    36. Jan Masty

      63 of 73 years. By the way I was in rehab after a weird spinal infection(???) and the facility doctor said he had no idea what to do with me cause he’d never met someone with t1d that was in their 70’s. I assured him I could take care of me but that they’d better start training their medical staff on how to deal with type 1’s cause there will be many more coming someday. The nurses had absolutely no idea how to treat type 1 and tried to kill me with their type 2 knowledge..

      9
      4 years ago Log in to Reply
    37. KarenM6

      51 of 56 years!

      1
      4 years ago Log in to Reply
    38. Ken Raiche

      I’ve got to admit far to many years with this dreaded disease. I’ve got to admit though not as many years as some of you incredible individuals, wow…….. well done to each and everyone of you. Keep up the great work………

      3
      4 years ago Log in to Reply
    39. sweet charlie

      about 70 years T1D out of 90 years OLD !!

      5
      4 years ago Log in to Reply
    40. PamK

      58 years and going strong!

      3
      4 years ago Log in to Reply
    41. Robin Melen

      1 out of 62! All brand new! You all are an inspiration!

      3
      4 years ago Log in to Reply
    42. Mary Ann Sayers

      I’m still waiting for a cure☎️.

      4 years ago Log in to Reply
    43. Ms Cris

      I’m a newbie. My T2D journey started when I was 42, just a few years ago.

      1
      4 years ago Log in to Reply
      1. Ms Cris

        Autocorrect…T1D, not T2!

        4 years ago Log in to Reply
    44. Eva

      Living with T1D for 36 years and 25 years using a MiniMed pump and seeing the same Endo for 24 years. Blessed and luckily that I had the right tools (both mechanical and/or cognitive) to help keep my A1C within goal (never been above 6.5). As a result, I don’t have eye disease, kidney issues, heart issues, or neuropathy. So, I can’t complain too much about my journey.

      2
      4 years ago Log in to Reply
    45. Connie Porcaro

      I was diagnosed with LADA, type 1 last March so very new to all of this. Very grateful for this group and others where I can get input from you all.

      4
      4 years ago Log in to Reply
    46. mbulzomi@optonline.net

      Not much to discuss, however, I am tired of T1 Diabetes! I’ve did Injections for fifteen (15) years and on a pump for forty (40) years for a total of fifty-five 55 years, along with using CGMS for eleven (11) years.

      2
      4 years ago Log in to Reply
    47. Kristen Clifford

      Fourteen and a half years

      4 years ago Log in to Reply
    48. Elizabeth T.

      Diagnosed 15 years ago at 50. I’m inspired by those of you who have been dealing with T1D for many decades. It encourages me to hear that you all have managed it so well for so long.

      4 years ago Log in to Reply
    49. Annie Simon

      I was diagnosed late in life and suddenly in 2018 with T1D. I’m much more controlled now snd have managed to live with T1D. I wear a sensor and take 2 types of insulin; I am under the care of a wonderful endocrinologist which I see several times per year for follow ups. I also have have access to a diabetic dietician and have followed a personalized eating plan to control my diabetes.
      I can honestly say that, although my diabetes has changed my life in so many ways, I’m proud that I have come this far in almost 5 years and have learned to manage my blood glucose levels and maintain a healthy lifestyle with diet and exercises👍

      4 years ago Log in to Reply

    For how many years have you (or your loved one) been living with T1D so far? Cancel reply

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