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    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 26 minutes ago
      Janis Senungetuk has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
    • 1 hour, 31 minutes ago
      Janis Senungetuk likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 hour, 31 minutes ago
      Janis Senungetuk likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Just did what makes sense to me- eating less carbs, watching blood glucose more often and taking corrections as needed. Also some level of activity if possible.
    • 1 hour, 32 minutes ago
      Janis Senungetuk likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Been type 1 since the early 80's learned self management as therapies changed. Unless hospitalized(which I never am anymore) I decide how much insulin to put in my body based on my on going experience with the 1000's of reasons I may need more or less of it. I do love my pump, insulin and CGM so I guess I have to tell the doctor what I do once a year. .. I just keep throwing info and facts he isn't up on till he gets a glazed over look on his face and writes my scripts. I find the most inconvenient part of diabetes is all the people that want to help but don't know much about everyday life with the disease. And NO I do not want to join a discussion group!
    • 1 hour, 34 minutes ago
      Janis Senungetuk likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Many times I have needed to adjust insulin intake amount in order to cope with illness, but only rarely needed outside help. In the early 1970’s I made some mistakes managing influenza. My BG went very high (no meter available for testing at home), and I ended up in the hospital then.
    • 1 hour, 35 minutes ago
      Janis Senungetuk likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Except for those brand new at this, we all know the drill. We know that we need to be flexible, make adjustments, and pay attention.
    • 1 hour, 36 minutes ago
      TEH likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      only time that I have been sick was when I got COVID during Jan '22. my sugars were going crazy high and I couldn't understand why but when I tested positive for COVID, in retrospect it made sense.
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    For how many years have you (or your loved one) been living with T1D so far?

    Home > LC Polls > For how many years have you (or your loved one) been living with T1D so far?
    Previous

    If you use a pump that has an automated insulin delivery algorithm (e.g., Tandem Control-IQ, Medtronic SmartGuard Auto Mode, Omnipod 5 SmartAdjust, etc.), when do you usually turn off the algorithm, if ever? Feel free to share more about your schedule in the comments!

    Next

    If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply.

    Sarah Howard

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    58 Comments

    1. Kristine Warmecke

      I’m at 40 years; my brother whose 2 years younger than me is at 50 years (basically his whole life being 7 months old when they finally figured out what was going go.)

      4
      4 months ago Log in to Reply
    2. Molly Jones

      21 out of my 52 years

      4 months ago Log in to Reply
    3. Kris McDonald

      I was diagnosed at 8 years old so it’s been 42 years.

      2
      4 months ago Log in to Reply
      1. Donal Conway

        52 of 73 years @ 21 yrs old.

        3
        4 months ago Log in to Reply
    4. Lorri McLuckie

      56 of my 66 years

      5
      4 months ago Log in to Reply
    5. Gerald Oefelein

      76 now. Diagnosed as an adult in 2000.

      2
      4 months ago Log in to Reply
    6. Joan Fray

      61 ofmy 72 years. What a trip! Shooting for 70 years T1d. Nine to go, then I’ll retire!

      6
      4 months ago Log in to Reply
    7. Nevin Bowman

      45 of 49 years.

      3
      4 months ago Log in to Reply
    8. Virginia Barndollar

      57 years so far for me!

      6
      4 months ago Log in to Reply
    9. George Rich

      52 of my 74 years. Studies have shown that half of all cases of T1DM are diagnosed at age 30 or older!

      4
      4 months ago Log in to Reply
      1. Richard Wiener

        I just made it when I was 32.

        4 months ago Log in to Reply
      2. Wanacure

        Half! I’m surprised! Goes to show that the terms ā€œadult-onset diabetesā€ and ā€œchild-onset diabetesā€ are no longer relevant.

        2
        4 months ago Log in to Reply
    10. Daniel Bestvater

      45 of my 59 years, still 51 years to go!

      2
      4 months ago Log in to Reply
      1. Phyllis Donahue

        31 out of 65,still going strong.

        3
        4 months ago Log in to Reply
    11. gary rind

      19 out of 62 years!

      4 months ago Log in to Reply
    12. dholl62@gmail.com

      56 out of 74

      4
      4 months ago Log in to Reply
    13. Jeanne McMillan-Olson

      67 out of my 76 years. šŸ¤—

      9
      4 months ago Log in to Reply
      1. Janis Senungetuk

        me too!

        1
        4 months ago Log in to Reply
      2. Linda Zottoli

        And me!

        1
        4 months ago Log in to Reply
    14. Lawrence S.

      45 years with T1D out of 69. I was 23 when diagnosed in 1977.

      3
      4 months ago Log in to Reply
    15. Mig Vascos

      60 out of 83

      6
      4 months ago Log in to Reply
    16. mojoseje

      52 (Halloween will be 53) of 60 years.
      I’m proud of all of us!!

      10
      4 months ago Log in to Reply
    17. cynthia jaworski

      60 out of 70

      7
      4 months ago Log in to Reply
    18. Karen Taylor

      62 out of 66

      6
      4 months ago Log in to Reply
    19. Ahh Life

      71 out of 75. Dang! And I haven’t even written my obituary yet. Better get movin’.

      15
      4 months ago Log in to Reply
      1. Donna Williams

        Thanks, you always make me smile!

        6
        4 months ago Log in to Reply
    20. Mary Dexter

      2004, age 48, LADA, initially misdiagnosed as T2

      4 months ago Log in to Reply
    21. Jeff Balbirnie

      Maintenance is NOT a cure…..

      Cure me!

      7
      4 months ago Log in to Reply
    22. Sherrie Johnson

      61 out of 75

      7
      4 months ago Log in to Reply
    23. Drina Nicole Jewell

      Myself, 23ish yrs, my 17 yr old son, 15 yrs and my nearly 13 yr old, 3ish yrs.

      3
      4 months ago Log in to Reply
    24. ConnieT1D62

      60 out of 68.

      8
      4 months ago Log in to Reply
    25. Tom Caesar

      Grateful for 54 years! Congrats to all, you’ve beat expectations!!

      6
      4 months ago Log in to Reply
    26. Janis Senungetuk

      dx in 1955 at the age of 8 = 67 yrs

      9
      4 months ago Log in to Reply
    27. pru barry

      68 out of 82. The goal to find a cure better be reached soon. I don’t want to miss that exciting day :*} !

      12
      4 months ago Log in to Reply
    28. Andrew Stewart

      32 of my 58 years
      #BeWell

      1
      4 months ago Log in to Reply
    29. Bruce Schnitzler

      Diagnosed with T1D in Dec 1951 when I was 6 years old.

      5
      4 months ago Log in to Reply
    30. LizB

      35 out of 54 years. One of my sisters was diagnosed 10-11 years ago in her 40s.

      4 months ago Log in to Reply
    31. Bob Durstenfeld

      I was Dx’ed in 1956. I have seen many great changes, but the annual promise of a “cure” has still not materialized. I hope it happens in my granddaughter’s lifetime.
      I have lived a rich life despite the consequences long term T1D.

      5
      4 months ago Log in to Reply
    32. lynda meyer

      69 of my 73 years

      6
      4 months ago Log in to Reply
    33. Becky Hertz

      48 1/2 out of 62 ( in 4 days)

      3
      4 months ago Log in to Reply
    34. Joan Benedetto

      Coming up on nine years. My son was diagnosed in November of 2013 at the age of 18 months.

      1
      4 months ago Log in to Reply
    35. Sue Martin

      wow, and I thought 37 years was a long time. Way to go all of you who have been living with this longer than I have been.

      3
      4 months ago Log in to Reply
      1. ELYSSE HELLER

        When I got diagnosed with T1D many years ago the doctors told my parents that I wouldn’t live to age 40; thank the universe for advances in treatment! My fist blood glucose monitor was the size of a phone book! I nicknamed my first lancet device “the guillotine” and kept it in my office at the hospital where I worked to show my patients who didn’t like doing a finger stick what the old days were like.

        2
        4 months ago Log in to Reply
    36. Jan Masty

      63 of 73 years. By the way I was in rehab after a weird spinal infection(???) and the facility doctor said he had no idea what to do with me cause he’d never met someone with t1d that was in their 70’s. I assured him I could take care of me but that they’d better start training their medical staff on how to deal with type 1’s cause there will be many more coming someday. The nurses had absolutely no idea how to treat type 1 and tried to kill me with their type 2 knowledge..

      9
      4 months ago Log in to Reply
    37. KarenM6

      51 of 56 years!

      1
      4 months ago Log in to Reply
    38. Ken Raiche

      I’ve got to admit far to many years with this dreaded disease. I’ve got to admit though not as many years as some of you incredible individuals, wow…….. well done to each and everyone of you. Keep up the great work………

      3
      4 months ago Log in to Reply
    39. sweet charlie

      about 70 years T1D out of 90 years OLD !!

      5
      4 months ago Log in to Reply
    40. PamK

      58 years and going strong!

      3
      4 months ago Log in to Reply
    41. Robin Melen

      1 out of 62! All brand new! You all are an inspiration!

      3
      4 months ago Log in to Reply
    42. Mary Ann Sayers

      I’m still waiting for a cureā˜Žļø.

      4 months ago Log in to Reply
    43. Ms Cris

      I’m a newbie. My T2D journey started when I was 42, just a few years ago.

      1
      4 months ago Log in to Reply
      1. Ms Cris

        Autocorrect…T1D, not T2!

        4 months ago Log in to Reply
    44. Eva

      Living with T1D for 36 years and 25 years using a MiniMed pump and seeing the same Endo for 24 years. Blessed and luckily that I had the right tools (both mechanical and/or cognitive) to help keep my A1C within goal (never been above 6.5). As a result, I don’t have eye disease, kidney issues, heart issues, or neuropathy. So, I can’t complain too much about my journey.

      2
      4 months ago Log in to Reply
    45. Connie Porcaro

      I was diagnosed with LADA, type 1 last March so very new to all of this. Very grateful for this group and others where I can get input from you all.

      4
      4 months ago Log in to Reply
    46. mbulzomi@optonline.net

      Not much to discuss, however, I am tired of T1 Diabetes! I’ve did Injections for fifteen (15) years and on a pump for forty (40) years for a total of fifty-five 55 years, along with using CGMS for eleven (11) years.

      2
      4 months ago Log in to Reply
    47. Kristen Clifford

      Fourteen and a half years

      4 months ago Log in to Reply
    48. Elizabeth T.

      Diagnosed 15 years ago at 50. I’m inspired by those of you who have been dealing with T1D for many decades. It encourages me to hear that you all have managed it so well for so long.

      4 months ago Log in to Reply
    49. Annie Simon

      I was diagnosed late in life and suddenly in 2018 with T1D. I’m much more controlled now snd have managed to live with T1D. I wear a sensor and take 2 types of insulin; I am under the care of a wonderful endocrinologist which I see several times per year for follow ups. I also have have access to a diabetic dietician and have followed a personalized eating plan to control my diabetes.
      I can honestly say that, although my diabetes has changed my life in so many ways, I’m proud that I have come this far in almost 5 years and have learned to manage my blood glucose levels and maintain a healthy lifestyle with diet and exercisesšŸ‘

      4 months ago Log in to Reply

    For how many years have you (or your loved one) been living with T1D so far? Cancel reply

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