For how many years have you (or your loved one) been living with T1D so far?

Activity
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 26 minutes ago
  
  Janis Senungetuk has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Fortunately that hasn't been an issue for quite some time. If I need help beyond what I've learned from 67 years of previous experience, I'd contact my endo or CDE.
- 1 hour, 31 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
- 1 hour, 31 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Just did what makes sense to me- eating less carbs, watching blood glucose more often and taking corrections as needed. Also some level of activity if possible.
- 1 hour, 32 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Been type 1 since the early 80's learned self management as therapies changed. Unless hospitalized(which I never am anymore) I decide how much insulin to put in my body based on my on going experience with the 1000's of reasons I may need more or less of it. I do love my pump, insulin and CGM so I guess I have to tell the doctor what I do once a year. .. I just keep throwing info and facts he isn't up on till he gets a glazed over look on his face and writes my scripts. I find the most inconvenient part of diabetes is all the people that want to help but don't know much about everyday life with the disease. And NO I do not want to join a discussion group!
- 1 hour, 34 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Many times I have needed to adjust insulin intake amount in order to cope with illness, but only rarely needed outside help. In the early 1970’s I made some mistakes managing influenza. My BG went very high (no meter available for testing at home), and I ended up in the hospital then.
- 1 hour, 35 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Except for those brand new at this, we all know the drill. We know that we need to be flexible, make adjustments, and pay attention.
- 1 hour, 36 minutes ago
  
  TEH likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  only time that I have been sick was when I got COVID during Jan '22. my sugars were going crazy high and I couldn't understand why but when I tested positive for COVID, in retrospect it made sense.
Clear All

For how many years have you (or your loved one) been living with T1D so far?

If you use a pump that has an automated insulin delivery algorithm (e.g., Tandem Control-IQ, Medtronic SmartGuard Auto Mode, Omnipod 5 SmartAdjust, etc.), when do you usually turn off the algorithm, if ever? Feel free to share more about your schedule in the comments!

Sarah Howard

58 Comments

Kristine Warmecke

I’m at 40 years; my brother whose 2 years younger than me is at 50 years (basically his whole life being 7 months old when they finally figured out what was going go.)

4

4 months ago Log in to Reply
Molly Jones

21 out of my 52 years

4 months ago Log in to Reply
Kris McDonald

I was diagnosed at 8 years old so it’s been 42 years.

2

4 months ago Log in to Reply
1. Donal Conway
  
  52 of 73 years @ 21 yrs old.
  
  3
  
  4 months ago Log in to Reply
Lorri McLuckie

56 of my 66 years

5

4 months ago Log in to Reply
Gerald Oefelein

76 now. Diagnosed as an adult in 2000.

2

4 months ago Log in to Reply
Joan Fray

61 ofmy 72 years. What a trip! Shooting for 70 years T1d. Nine to go, then I’ll retire!

6

4 months ago Log in to Reply
Nevin Bowman

45 of 49 years.

3

4 months ago Log in to Reply
Virginia Barndollar

57 years so far for me!

6

4 months ago Log in to Reply
George Rich

52 of my 74 years. Studies have shown that half of all cases of T1DM are diagnosed at age 30 or older!

4

4 months ago Log in to Reply
1. Richard Wiener
  
  I just made it when I was 32.
  
  4 months ago Log in to Reply
2. Wanacure
  
  Half! I’m surprised! Goes to show that the terms “adult-onset diabetes” and “child-onset diabetes” are no longer relevant.
  
  2
  
  4 months ago Log in to Reply
Daniel Bestvater

45 of my 59 years, still 51 years to go!

2

4 months ago Log in to Reply
1. Phyllis Donahue
  
  31 out of 65,still going strong.
  
  3
  
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gary rind

19 out of 62 years!

4 months ago Log in to Reply
dholl62@gmail.com

56 out of 74

4

4 months ago Log in to Reply
Jeanne McMillan-Olson

67 out of my 76 years. 🤗

9

4 months ago Log in to Reply
1. Janis Senungetuk
  
  me too!
  
  1
  
  4 months ago Log in to Reply
2. Linda Zottoli
  
  And me!
  
  1
  
  4 months ago Log in to Reply
Lawrence S.

45 years with T1D out of 69. I was 23 when diagnosed in 1977.

3

4 months ago Log in to Reply
Mig Vascos

60 out of 83

6

4 months ago Log in to Reply
mojoseje

52 (Halloween will be 53) of 60 years.
I’m proud of all of us!!

10

4 months ago Log in to Reply
cynthia jaworski

60 out of 70

7

4 months ago Log in to Reply
Karen Taylor

62 out of 66

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4 months ago Log in to Reply
Ahh Life

71 out of 75. Dang! And I haven’t even written my obituary yet. Better get movin’.

15

4 months ago Log in to Reply
1. Donna Williams
  
  Thanks, you always make me smile!
  
  6
  
  4 months ago Log in to Reply
Mary Dexter

2004, age 48, LADA, initially misdiagnosed as T2

4 months ago Log in to Reply
Jeff Balbirnie

Maintenance is NOT a cure…..

Cure me!

7

4 months ago Log in to Reply
Sherrie Johnson

61 out of 75

7

4 months ago Log in to Reply
Drina Nicole Jewell

Myself, 23ish yrs, my 17 yr old son, 15 yrs and my nearly 13 yr old, 3ish yrs.

3

4 months ago Log in to Reply
ConnieT1D62

60 out of 68.

8

4 months ago Log in to Reply
Tom Caesar

Grateful for 54 years! Congrats to all, you’ve beat expectations!!

6

4 months ago Log in to Reply
Janis Senungetuk

dx in 1955 at the age of 8 = 67 yrs

9

4 months ago Log in to Reply
pru barry

68 out of 82. The goal to find a cure better be reached soon. I don’t want to miss that exciting day :*} !

12

4 months ago Log in to Reply
Andrew Stewart

32 of my 58 years
#BeWell

1

4 months ago Log in to Reply
Bruce Schnitzler

Diagnosed with T1D in Dec 1951 when I was 6 years old.

5

4 months ago Log in to Reply
LizB

35 out of 54 years. One of my sisters was diagnosed 10-11 years ago in her 40s.

4 months ago Log in to Reply
Bob Durstenfeld

I was Dx’ed in 1956. I have seen many great changes, but the annual promise of a “cure” has still not materialized. I hope it happens in my granddaughter’s lifetime.
I have lived a rich life despite the consequences long term T1D.

5

4 months ago Log in to Reply
lynda meyer

69 of my 73 years

6

4 months ago Log in to Reply
Becky Hertz

48 1/2 out of 62 ( in 4 days)

3

4 months ago Log in to Reply
Joan Benedetto

Coming up on nine years. My son was diagnosed in November of 2013 at the age of 18 months.

1

4 months ago Log in to Reply
Sue Martin

wow, and I thought 37 years was a long time. Way to go all of you who have been living with this longer than I have been.

3

4 months ago Log in to Reply
1. ELYSSE HELLER
  
  When I got diagnosed with T1D many years ago the doctors told my parents that I wouldn’t live to age 40; thank the universe for advances in treatment! My fist blood glucose monitor was the size of a phone book! I nicknamed my first lancet device “the guillotine” and kept it in my office at the hospital where I worked to show my patients who didn’t like doing a finger stick what the old days were like.
  
  2
  
  4 months ago Log in to Reply
Jan Masty

63 of 73 years. By the way I was in rehab after a weird spinal infection(???) and the facility doctor said he had no idea what to do with me cause he’d never met someone with t1d that was in their 70’s. I assured him I could take care of me but that they’d better start training their medical staff on how to deal with type 1’s cause there will be many more coming someday. The nurses had absolutely no idea how to treat type 1 and tried to kill me with their type 2 knowledge..

9

4 months ago Log in to Reply
KarenM6

51 of 56 years!

1

4 months ago Log in to Reply
Ken Raiche

I’ve got to admit far to many years with this dreaded disease. I’ve got to admit though not as many years as some of you incredible individuals, wow…….. well done to each and everyone of you. Keep up the great work………

3

4 months ago Log in to Reply
sweet charlie

about 70 years T1D out of 90 years OLD !!

5

4 months ago Log in to Reply
PamK

58 years and going strong!

3

4 months ago Log in to Reply
Robin Melen

1 out of 62! All brand new! You all are an inspiration!

3

4 months ago Log in to Reply
Mary Ann Sayers

I’m still waiting for a cure☎️.

4 months ago Log in to Reply
Ms Cris

I’m a newbie. My T2D journey started when I was 42, just a few years ago.

1

4 months ago Log in to Reply
1. Ms Cris
  
  Autocorrect…T1D, not T2!
  
  4 months ago Log in to Reply
Eva

Living with T1D for 36 years and 25 years using a MiniMed pump and seeing the same Endo for 24 years. Blessed and luckily that I had the right tools (both mechanical and/or cognitive) to help keep my A1C within goal (never been above 6.5). As a result, I don’t have eye disease, kidney issues, heart issues, or neuropathy. So, I can’t complain too much about my journey.

2

4 months ago Log in to Reply
Connie Porcaro

I was diagnosed with LADA, type 1 last March so very new to all of this. Very grateful for this group and others where I can get input from you all.

4

4 months ago Log in to Reply
mbulzomi@optonline.net

Not much to discuss, however, I am tired of T1 Diabetes! I’ve did Injections for fifteen (15) years and on a pump for forty (40) years for a total of fifty-five 55 years, along with using CGMS for eleven (11) years.

2

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Kristen Clifford

Fourteen and a half years

4 months ago Log in to Reply
Elizabeth T.

Diagnosed 15 years ago at 50. I’m inspired by those of you who have been dealing with T1D for many decades. It encourages me to hear that you all have managed it so well for so long.

4 months ago Log in to Reply
Annie Simon

I was diagnosed late in life and suddenly in 2018 with T1D. I’m much more controlled now snd have managed to live with T1D. I wear a sensor and take 2 types of insulin; I am under the care of a wonderful endocrinologist which I see several times per year for follow ups. I also have have access to a diabetic dietician and have followed a personalized eating plan to control my diabetes.
I can honestly say that, although my diabetes has changed my life in so many ways, I’m proud that I have come this far in almost 5 years and have learned to manage my blood glucose levels and maintain a healthy lifestyle with diet and exercises👍

4 months ago Log in to Reply