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    • 2 hours, 12 minutes ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 2 hours, 13 minutes ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 2 hours, 53 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 2 hours, 59 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 3 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 3 hours, 23 minutes ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 3 hours, 23 minutes ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 4 hours, 1 minute ago
      Vicki Andersen likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 4 hours, 46 minutes ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 4 hours, 46 minutes ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 4 hours, 48 minutes ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 13 hours, 53 minutes ago
      KarenM6 likes your comment at
      Do you live with depression or anxiety?
      Both. Been on medications for many years.
    • 13 hours, 54 minutes ago
      KarenM6 likes your comment at
      Do you live with depression or anxiety?
      I have both which are well managed with medication, lots of meditation and a focus on self compassion.
    • 20 hours, 57 minutes ago
      kilupx likes your comment at
      If you’ve used expired pump supplies (infusion sets, reservoirs, pods) in the past, did you have any issues with them?
      I don't believe I have ever used expired CGMs or pump supplies.
    • 20 hours, 57 minutes ago
      kilupx likes your comment at
      If you’ve used expired pump supplies (infusion sets, reservoirs, pods) in the past, did you have any issues with them?
      I have not use expired products.
    • 20 hours, 57 minutes ago
      kilupx likes your comment at
      If you’ve used expired pump supplies (infusion sets, reservoirs, pods) in the past, did you have any issues with them?
      I use a pump, but I haven't used expired pump supplies.
    • 1 day, 16 hours ago
      Sandy Norman likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      I put no since the only time I was admitted was at diagnosis. But would that count as a yes?
    • 2 days ago
      Gerald Oefelein likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      I said “No.” Perhaps I’m the luckiest person alive since I’ve navigated the diabetic road for 74 years. Have never had DKA, although symptomatic twice. Have had numerous hypoglycemic affairs, but no hospitalizations. I am also a bit determined. They may hospitalize me for dementia or other old age conditions. But not for T1D. ✨.•*¨*.¸.•*¨*.¸¸.•*¨`*• ¨*.¸.•*¨`*. ¸.•*¨*.¸¸.•*¨`*•.✨
    • 2 days ago
      Carl Robertson likes your comment at
      Do you “soak” or insert a new continuous glucose monitor (CGM) sensor before the old one expires?
      Yeah, somewhere between 1/2 to 12 hours ahead of time I insert a new G7 on the opposite arm. Only risk is -- and it's a big one -- I occasionally forget which is the new one and which is the old one. Sigh. ¯\_(ツ)_/¯?
    • 2 days, 4 hours ago
      TEH likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      Before CGMs, I had a severe insulin reaction. In a blackout I walked about half a mile and passed out, falling flat on my face. Woke up on an operating table where doctors were working on stopping the bleeding in my mouth and trying to save my front teeth. Was hospitalized for four days.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      Do you live with depression or anxiety?
      Depression is the condition I have lived with the longest and affects me the most. I am grateful that it seems to be improving as I age, even with additions of other medical conditions. I have anxiety unexpectedly for no reason when I have focal seizures that affect my amygdala. Otherwise, I seem to lack that emotion almost completely. I would love it if they could have sensors for neurochemistry.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      Back in the 80's, I had influenza, uncontrolled blood sugar, and was probably severely dehydrated that put me in the hospital. Maybe I had DKA, but that wasn't much talked about in those days. I think I was there for one to two days.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      Twice, once in 1980 and another in 2024. I was dx'd Type 1 in 1976 while in my mid-20's. In 1980, I had been on a ski vacation, caught a bad cold and didn't know that I needed more insulin in times of illness. I wound up in ICU for 3 days because of DKA. I've learned a lot about properly managing my diabetes in the intervening years and have been able to keep my A1c's in the low 6's. At year-end, last year, I had 3 consecutive insulin pump infusion site failures in the space of 18 hours (Dec 29-30) which landed me in the ER with very high glucose levels that would not come down. I was diagnosed with early DKA and spent 2 days in ICU and another 2 days in the hospital before release. The first two infusion sites hadn't penetrated. I gave myself an insulin injection which reduced my glucose levels before inserting the third site. Once my glucose levels had reached 120 mg/dl, I then ate breakfast and bolused but my levels kept climbing and I felt nauseous and overall "crappy". My husband took me to the ER. It turns out my 3rd site resulted in a bent cannula. I had been using the Tandem Autosoft30 infusion sets. Since that hospitalization I've gone back to the Autosoft XC infusion sets and haven't had any more such issues. It was not the way I'd envisioned welcoming in 2025...but I'm happy that I was able to welcome it in!
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      My glucose went so high because the pump wasn’t delivering insulin without me being aware that my acidity level was off and I had to spend a week at the hospital.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      I was staying at a friends house on Fire Island. As with many beach homes, the bedroom was all in white. But when I woke, the windowsill, the wall, and the bed were all covered in my blood. It was still dripping from my head. Back then, there was no CGM, no alarm. My glucometer read 24 and I scarfed down the M&M's in my bag, followed by a glass of juice. I was fine, but the worried wife of my friend called an ambulance. The paramedic was great...he said, "stop with the sugar" and had me eat a cheese sandwich. Then sent me in a water ambulance, just to get me head checked out.
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    If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply.

    Home > LC Polls > If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply.
    Previous

    For how many years have you (or your loved one) been living with T1D so far?

    Next

    Does your T1D health care provider offer access to an online patient portal where you can access your medical records, contact your provider, pay bills, etc.?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    13 Comments

    1. John Williamson

      I am glad to see some physicians make use of portals. My primary care refuses to post anything – even appointments while my endo only does so after covering everything during my appointment. I wonder how many are like mine?

      3 years ago Log in to Reply
    2. Henry Renn

      I try to limit messaging bc I think my providers are required to reply to every text. Do not know if there is a HIPPA regulation, a law or simply protocul of medical system.

      3 years ago Log in to Reply
    3. Jeanne McMillan-Olson

      My doctor and his team are amazing at responding to my messages. Can also access all test results like xrays not just labs.

      3 years ago Log in to Reply
    4. AnitaS

      I always use it to see my test results. I have used it 2x to do a telehealth appointment during high covid times (about a year ago I believe). I occasionally use it to message my provider, schedule appointments, or pay bills. I prefer paying right at the time of my appointment, but some offices don’t want the contact with my credit card (I am assuming) so they do not take payments at time of appointment.

      3 years ago Log in to Reply
    5. Marla Peaslee

      prescriptions refills

      1
      3 years ago Log in to Reply
    6. Kathleen Juzenas

      Just to see lab results. They also post my next appointment. The portal allows messages but I sent one and it went unanswered. When I then called, the provider told me to call (not message) if I have a question. They are good about returning calls within 24 hrs.

      3 years ago Log in to Reply
    7. Lori Lehnen

      I do all of the activities mentioned. When I switched to my new endo, the receptionist sent me a link for the portal and since then, all interactions have been virtual. I believe I’m getting better care because I routinely get follow up messages from the dr, via the portal, that are directly related to what we talked about. The portal must make it easier for her, which translates to better care for me and that makes me happy.

      1
      3 years ago Log in to Reply
    8. mojoseje

      I order my prescriptions.

      1
      3 years ago Log in to Reply
    9. Bea Anderson

      I don’t make appointments but I do check upcoming appointments.

      3 years ago Log in to Reply
    10. Amy Schneider

      While the portal offers many options, most are not implemented, like scheduling.

      3 years ago Log in to Reply
    11. PamK

      Refilling my prescriptions/medical devices.

      3 years ago Log in to Reply
    12. Cheryl Seibert

      I love the ability to send my endo a message! I also verify appointment times, check lab results, medical history (which quite often is inaccurate after 40 yrs with them, multiple electronic record upgrades, and the ER putting in inaccurate info). I have not had the need to schedule appointments on the portal, but this option is available.

      3 years ago Log in to Reply
    13. Velika Peterson

      Requesting new/refill prescriptions for insulin or supplies

      3 years ago Log in to Reply

    If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply. Cancel reply

    You must be logged in to post a comment.




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