Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 23 hours, 32 minutes ago
      KarenM6 likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      The question is poorly worded. If I am doing those things I run my blood sugar higher if not I don’t. A better question might be how often do I do those things. Since I do them often I run high often on purpose. I cannot be sub 100 and do them.
    • 23 hours, 32 minutes ago
      KarenM6 likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      Exercise affects me profoundly at an older age (and has the physics of momentum and driving at ANY age!). Answer: often/
    • 1 day ago
      Richard likes your comment at
      How often do you exercise? Share more in the comments about your exercise routine.
      I have to try my best to move my Leg's for at least 30 minutes a day. If not something around that.
    • 1 day ago
      Richard likes your comment at
      How often do you exercise? Share more in the comments about your exercise routine.
      I exercise daily! I ski, bicycle, walk/jog, and workout at the gym. I currently have a rotator cuff injury so I limit my trips to the gym.
    • 1 day, 2 hours ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      During Ramadhan I keep it slightly elevated so that I don’t have to break the 12 hour fast.
    • 1 day, 2 hours ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      when I am traveling, I will let it run a little higher because I don't know what I'll be doing at any given moment.
    • 1 day, 2 hours ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      The question is poorly worded. If I am doing those things I run my blood sugar higher if not I don’t. A better question might be how often do I do those things. Since I do them often I run high often on purpose. I cannot be sub 100 and do them.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      Exercise affects me profoundly at an older age (and has the physics of momentum and driving at ANY age!). Answer: often/
    • 1 day, 22 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Moderately. My doctor and pharmacy are awesome, my insurance and durable medical equipment supplier, not so much. The excessive red tape of paper to get DME supplies shipped is almost always a nightmare!
    • 1 day, 22 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Run, don’t walk from Edgepark! Read my response to Nevin Bowman above! (Hint: the company I was referring to in that post was Edgepark)
    • 1 day, 22 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I once had a supplier withhold old pump supplies while refusing to ship the order for a new pump and I was on a 3-way call with insurance and got to listen to DME lie directly to Insurance about it and then I had the pleasure of interjecting and getting to call them a liar! I would have been more vindicated if it actually accomplished anything, but after I finally got my shipment I fired that DME and never looked back. The red tape that insurance insists on for DME is excessive for chronically ill patients!
    • 1 day, 22 hours ago
      kristina blake likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 1 day, 23 hours ago
      Patricia Dalrymple likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 2 days, 1 hour ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 2 days, 1 hour ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Yes, for me never weighing or measuring but actively using the Calorie King book and app for several years I have most things memorized or I can make a decent assessment.
    • 2 days, 1 hour ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 2 days, 1 hour ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 2 days, 2 hours ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 2 days, 2 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 2 days, 2 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 2 days, 2 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 2 days, 2 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am worried about the changes to Medicare making no provision for getting an immediate replacement if a pump fails. It sounds like we will have to get these from the suppliers instead of a warranty replacement from Tandem themselves (or whatever brand you use). Pumps will be rented and will have to be returned so they can verify the problem before replacing them, which is ridiculous. Meanwhile, Medicare would not pay for us to get long acting insulin as a temporary replacement for the basal.
    • 2 days, 2 hours ago
      Amanda Barras likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 2 days, 2 hours ago
      Derek West likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    For how many years have you (or your loved one) been living with T1D so far?

    Home > LC Polls > For how many years have you (or your loved one) been living with T1D so far?
    Previous

    If you use a pump that has an automated insulin delivery algorithm (e.g., Tandem Control-IQ, Medtronic SmartGuard Auto Mode, Omnipod 5 SmartAdjust, etc.), when do you usually turn off the algorithm, if ever? Feel free to share more about your schedule in the comments!

    Next

    If your T1D health care provider offers an online patient portal, for which activities do you use the online portal? Please select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    News

    What’s Keeping Glucagon Out of Reach for Many with T1D? 

    Jewels Doskicz, 4 days ago 6 min read  
    News

    Thinking About Type 1 Diabetes Autoantibody Screening? Here’s What to Consider 

    Jewels Doskicz, 1 week ago 9 min read  
    2025 Learning Session

    T1DX-QI 2025 November Learning Session Abstracts 

    QI Team at T1D Exchange, 2 weeks ago 1 min read  
    Advocacy

    The Language of Type 1 Diabetes: Why Words Matter 

    Jewels Doskicz, 2 weeks ago 6 min read  
    News

    Understanding Time in Range, GMI, and A1C in Type 1 Diabetes 

    Jewels Doskicz, 3 weeks ago 4 min read  
    News

    Out of Insulin? Expert Tips from Diana Isaacs, PharmD 

    Jewels Doskicz, 1 month ago 9 min read  

    58 Comments

    1. Kristine Warmecke

      I’m at 40 years; my brother whose 2 years younger than me is at 50 years (basically his whole life being 7 months old when they finally figured out what was going go.)

      4
      3 years ago Log in to Reply
    2. Molly Jones

      21 out of my 52 years

      3 years ago Log in to Reply
    3. Kris McDonald

      I was diagnosed at 8 years old so it’s been 42 years.

      2
      3 years ago Log in to Reply
      1. Donal Conway

        52 of 73 years @ 21 yrs old.

        3
        3 years ago Log in to Reply
    4. Lorri McLuckie

      56 of my 66 years

      5
      3 years ago Log in to Reply
    5. Gerald Oefelein

      76 now. Diagnosed as an adult in 2000.

      2
      3 years ago Log in to Reply
    6. Joan Fray

      61 ofmy 72 years. What a trip! Shooting for 70 years T1d. Nine to go, then I’ll retire!

      6
      3 years ago Log in to Reply
    7. Nevin Bowman

      45 of 49 years.

      3
      3 years ago Log in to Reply
    8. Virginia Barndollar

      57 years so far for me!

      6
      3 years ago Log in to Reply
    9. George Rich

      52 of my 74 years. Studies have shown that half of all cases of T1DM are diagnosed at age 30 or older!

      4
      3 years ago Log in to Reply
      1. Richard Wiener

        I just made it when I was 32.

        3 years ago Log in to Reply
      2. Wanacure

        Half! I’m surprised! Goes to show that the terms “adult-onset diabetes” and “child-onset diabetes” are no longer relevant.

        2
        3 years ago Log in to Reply
    10. Daniel Bestvater

      45 of my 59 years, still 51 years to go!

      2
      3 years ago Log in to Reply
      1. Phyllis Donahue

        31 out of 65,still going strong.

        3
        3 years ago Log in to Reply
    11. gary rind

      19 out of 62 years!

      3 years ago Log in to Reply
    12. dholl62@gmail.com

      56 out of 74

      4
      3 years ago Log in to Reply
    13. Jeanne McMillan-Olson

      67 out of my 76 years. 🤗

      9
      3 years ago Log in to Reply
      1. Janis Senungetuk

        me too!

        1
        3 years ago Log in to Reply
      2. Linda Zottoli

        And me!

        1
        3 years ago Log in to Reply
    14. Lawrence S.

      45 years with T1D out of 69. I was 23 when diagnosed in 1977.

      3
      3 years ago Log in to Reply
    15. Mig Vascos

      60 out of 83

      6
      3 years ago Log in to Reply
    16. mojoseje

      52 (Halloween will be 53) of 60 years.
      I’m proud of all of us!!

      10
      3 years ago Log in to Reply
    17. cynthia jaworski

      60 out of 70

      7
      3 years ago Log in to Reply
    18. Karen Taylor

      62 out of 66

      6
      3 years ago Log in to Reply
    19. Ahh Life

      71 out of 75. Dang! And I haven’t even written my obituary yet. Better get movin’.

      15
      3 years ago Log in to Reply
      1. Donna Williams

        Thanks, you always make me smile!

        6
        3 years ago Log in to Reply
    20. Mary Dexter

      2004, age 48, LADA, initially misdiagnosed as T2

      3 years ago Log in to Reply
    21. Jeff Balbirnie

      Maintenance is NOT a cure…..

      Cure me!

      7
      3 years ago Log in to Reply
    22. Sherrie Johnson

      61 out of 75

      7
      3 years ago Log in to Reply
    23. Drina Nicole Jewell

      Myself, 23ish yrs, my 17 yr old son, 15 yrs and my nearly 13 yr old, 3ish yrs.

      3
      3 years ago Log in to Reply
    24. ConnieT1D62

      60 out of 68.

      8
      3 years ago Log in to Reply
    25. Tom Caesar

      Grateful for 54 years! Congrats to all, you’ve beat expectations!!

      6
      3 years ago Log in to Reply
    26. Janis Senungetuk

      dx in 1955 at the age of 8 = 67 yrs

      9
      3 years ago Log in to Reply
    27. pru barry

      68 out of 82. The goal to find a cure better be reached soon. I don’t want to miss that exciting day :*} !

      12
      3 years ago Log in to Reply
    28. Andrew Stewart

      32 of my 58 years
      #BeWell

      1
      3 years ago Log in to Reply
    29. Bruce Schnitzler

      Diagnosed with T1D in Dec 1951 when I was 6 years old.

      5
      3 years ago Log in to Reply
    30. LizB

      35 out of 54 years. One of my sisters was diagnosed 10-11 years ago in her 40s.

      3 years ago Log in to Reply
    31. Bob Durstenfeld

      I was Dx’ed in 1956. I have seen many great changes, but the annual promise of a “cure” has still not materialized. I hope it happens in my granddaughter’s lifetime.
      I have lived a rich life despite the consequences long term T1D.

      5
      3 years ago Log in to Reply
    32. lynda meyer

      69 of my 73 years

      6
      3 years ago Log in to Reply
    33. Becky Hertz

      48 1/2 out of 62 ( in 4 days)

      3
      3 years ago Log in to Reply
    34. Joan Benedetto

      Coming up on nine years. My son was diagnosed in November of 2013 at the age of 18 months.

      1
      3 years ago Log in to Reply
    35. Sue Martin

      wow, and I thought 37 years was a long time. Way to go all of you who have been living with this longer than I have been.

      3
      3 years ago Log in to Reply
      1. ELYSSE HELLER

        When I got diagnosed with T1D many years ago the doctors told my parents that I wouldn’t live to age 40; thank the universe for advances in treatment! My fist blood glucose monitor was the size of a phone book! I nicknamed my first lancet device “the guillotine” and kept it in my office at the hospital where I worked to show my patients who didn’t like doing a finger stick what the old days were like.

        2
        3 years ago Log in to Reply
    36. Jan Masty

      63 of 73 years. By the way I was in rehab after a weird spinal infection(???) and the facility doctor said he had no idea what to do with me cause he’d never met someone with t1d that was in their 70’s. I assured him I could take care of me but that they’d better start training their medical staff on how to deal with type 1’s cause there will be many more coming someday. The nurses had absolutely no idea how to treat type 1 and tried to kill me with their type 2 knowledge..

      9
      3 years ago Log in to Reply
    37. KarenM6

      51 of 56 years!

      1
      3 years ago Log in to Reply
    38. Ken Raiche

      I’ve got to admit far to many years with this dreaded disease. I’ve got to admit though not as many years as some of you incredible individuals, wow…….. well done to each and everyone of you. Keep up the great work………

      3
      3 years ago Log in to Reply
    39. sweet charlie

      about 70 years T1D out of 90 years OLD !!

      5
      3 years ago Log in to Reply
    40. PamK

      58 years and going strong!

      3
      3 years ago Log in to Reply
    41. Robin Melen

      1 out of 62! All brand new! You all are an inspiration!

      3
      3 years ago Log in to Reply
    42. Mary Ann Sayers

      I’m still waiting for a cure☎️.

      3 years ago Log in to Reply
    43. Ms Cris

      I’m a newbie. My T2D journey started when I was 42, just a few years ago.

      1
      3 years ago Log in to Reply
      1. Ms Cris

        Autocorrect…T1D, not T2!

        3 years ago Log in to Reply
    44. Eva

      Living with T1D for 36 years and 25 years using a MiniMed pump and seeing the same Endo for 24 years. Blessed and luckily that I had the right tools (both mechanical and/or cognitive) to help keep my A1C within goal (never been above 6.5). As a result, I don’t have eye disease, kidney issues, heart issues, or neuropathy. So, I can’t complain too much about my journey.

      2
      3 years ago Log in to Reply
    45. Connie Porcaro

      I was diagnosed with LADA, type 1 last March so very new to all of this. Very grateful for this group and others where I can get input from you all.

      4
      3 years ago Log in to Reply
    46. mbulzomi@optonline.net

      Not much to discuss, however, I am tired of T1 Diabetes! I’ve did Injections for fifteen (15) years and on a pump for forty (40) years for a total of fifty-five 55 years, along with using CGMS for eleven (11) years.

      2
      3 years ago Log in to Reply
    47. Kristen Clifford

      Fourteen and a half years

      3 years ago Log in to Reply
    48. Elizabeth T.

      Diagnosed 15 years ago at 50. I’m inspired by those of you who have been dealing with T1D for many decades. It encourages me to hear that you all have managed it so well for so long.

      3 years ago Log in to Reply
    49. Annie Simon

      I was diagnosed late in life and suddenly in 2018 with T1D. I’m much more controlled now snd have managed to live with T1D. I wear a sensor and take 2 types of insulin; I am under the care of a wonderful endocrinologist which I see several times per year for follow ups. I also have have access to a diabetic dietician and have followed a personalized eating plan to control my diabetes.
      I can honestly say that, although my diabetes has changed my life in so many ways, I’m proud that I have come this far in almost 5 years and have learned to manage my blood glucose levels and maintain a healthy lifestyle with diet and exercises👍

      3 years ago Log in to Reply

    For how many years have you (or your loved one) been living with T1D so far? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]