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    • 14 hours, 39 minutes ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 15 hours, 10 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 15 hours, 29 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 16 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 16 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 16 hours, 1 minute ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 16 hours, 26 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 16 hours, 28 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 8 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 8 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 11 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 11 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 14 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 14 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 14 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 14 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 14 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 15 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 16 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 16 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 7 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 7 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 7 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    What have you learned about life with T1D this year?

    Home > LC Polls > What have you learned about life with T1D this year?
    Previous

    How many times in 2022 did you have an appointment with a Certified Diabetes Care and Education Specialist?

    Next

    If you use an insulin pump, when changing your pump site, do your blood glucose (BG) levels rise afterwards? If so, please share in the comments if you take any steps to adjust for the rise when changing your site.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    105 Comments

    1. Juha Kankaanpaa

      I have learned to appreciate how much better I look after my health and well-being because I live with T1D. I eat healthy, I exercise daily, I sleep well and keep active as much as possible. Life is good. At 57, I am fitter and stronger I have ever been. No sign of any T1D related complications after having it part of me for over 34 years.

      8
      5 months ago Log in to Reply
    2. GiGi

      Nothing new after 50 years of living with it.

      2
      5 months ago Log in to Reply
      1. sweet charlie

        same after 70 years…

        5 months ago Log in to Reply
    3. RegMunro

      CGM helps grasp just how unpredictable life, as measured by bg, is

      5
      5 months ago Log in to Reply
    4. Robert Wilson

      All carbs are NOT created equal. For me my flavored coffee creamer was causing my morning blood sugar spikes. Those un-noticed 10grams stopped when I included them in my morning bolus. Took me 25 years but much better now!

      5
      5 months ago Log in to Reply
      1. Nicholas Argento

        Caffeine also raises blood sugar…I drink it black and watch a 20-25 point increase over 30-60 minutes. I bolus now.

        1
        5 months ago Log in to Reply
      2. Wanacure

        Beware of powdered “creamers!’ They usually contain some type of disguised sugar.

        5 months ago Log in to Reply
    5. Jim Andrews

      That T1D is more difficult than life but life is still good.

      2
      5 months ago Log in to Reply
    6. Franklin Rios

      The perfect is impossible.

      12
      5 months ago Log in to Reply
    7. Linda Summerfield

      nothing new after living 58 years with type 1. always look for the positive!

      3
      5 months ago Log in to Reply
    8. cynthia jaworski

      It seems that I keep re-learning the same things over and over again. Among them: it is logical to trust your gut feelings. another: don’t be passive.

      9
      5 months ago Log in to Reply
    9. Richard Vaughn

      There are so many differences with people who are T1D. How we manage our diabetes can be vert different among the T1D members. Each T1D individual needs to develop appropriate steps that will maintain blood sugar numbers in a healthy range. My steps may be somewhat different from yours. Trial and error can help us to determine what works best for us.
      My T1D is different because I have insulin resistance. I use Metformin along with my insulin. I am type 1 with a type 2 characteristic, but I am T1 and not T2.
      There can be many differences among the people with T1D.
      I would like to see the question posed asking if any of us have insulin resistance, and what is being done to help with that complication.

      8
      5 months ago Log in to Reply
      1. beth nelson

        I feel research is so limited with t1d, but your hope to discover more about insulin resistance in t1d would be an amazing project. I’ll check out clinicaltrials.gov and see if any are ongoing!

        1
        5 months ago Log in to Reply
      2. Nicholas Argento

        T1D can have insulin resistance, just as T2D often does, because they are separately and independently inherited. People w T1D and a family history of T2D are most at risk. I refer to it as T1D with insulin resistance, very imaginative but makes it clear that you still need insulin all the time, but also methods aimed at reducing IR help as well, and the risk for heart disease is higher than most w T1D. Also referred to as double diabetes.

        5 months ago Log in to Reply
      3. Wanacure

        Want to lower IR? Try more exercise and lower carb diet. Find way(s) to reduce stress.

        5 months ago Log in to Reply
    10. ELYSSE HELLER

      I have been a T1D for many years now so I am very familiar with what this disease requires. The one big difference this year is that I started using the Omnipod 5 system along with Dexcom. Right now I am still on manual delivery until my next appointment with my CDE. Once I get programmed for the AID function I am hoping that it will make my life a little bit easier.

      1
      5 months ago Log in to Reply
    11. Debra Nance

      To make sure my ducks are all in a row when switching pumps with Medicare. Been months and I still don’t have my new pump. I have 3 sets left and no cgm. Also be sure to run glucoses as it can get away with you. Woke up to a 390 this morning!!!!

      4
      5 months ago Log in to Reply
    12. james zellerhoff

      That Jesus is in charge of me life
      AND my diabetes
      & he is the reason for the season
      Merry Christmas

      5
      5 months ago Log in to Reply
    13. Yaffa Steubinger

      To check the level of my bolus pen before going out. Nothing like going out to eat with friends and discover you have one unit left in the pen.

      3
      5 months ago Log in to Reply
    14. Susan Brinkhaus

      What was I waiting for! I should have been using a pump a long time ago! I love my closed loop system!

      3
      5 months ago Log in to Reply
    15. Kim Davis

      I can have great glucose values & in 5 min everything can change & go up or down

      6
      5 months ago Log in to Reply
    16. Henry Renn

      Age 71, 66.5 years of T1. All other health conditions of aging which are in my family are complicated by having long term T1.

      4
      5 months ago Log in to Reply
    17. Kathy Hanavan

      Always take way more supplies than needed when traveling no matter how much extra space they take up. Twice this year, I have needed backup supplies due to unforeseen troubles and almost ran out.

      9
      5 months ago Log in to Reply
    18. Bonnie kenney

      Educate yourself!

      5
      5 months ago Log in to Reply
    19. Lawrence S.

      Most of what I have learned about life with T1D this year, I learned reading comments on T1D exchange. As commented by Richard Vaughn earlier, ”
      Richard Vaughn ,”There are so many differences with people who are T1D.” I have learned that we use many different methods of insulin delivery; pumps, pens, MID. Some are parents and supporters. Some use extended boluses and square wave boluses. Some have high BG’s from eating or inserting cannulas, others have low BG’s. Some eat high carb diets, some low-carb, some vegetarian or vegan. Some are very active and exercise regularly, some are sedentary. Some comments are from Great Britain, some in Australia and other countries. Different countries have different ways of covering the costs of insulin and diabetic supplies. Also, there are many different ways of covering the costs in the USA; and many have little to no means of covering the costs.
      The list of what I’ve learned goes on-and-on. Thank you T1D Exchange, and all you fellow T1 diabetics.
      Merry Christmas, Happy Hannukah, Happy Kwanza, and Happy New Year!

      12
      5 months ago Log in to Reply
      1. sweet charlie

        very nice!!!

        5 months ago Log in to Reply
    20. Irene Blanchard

      After 58 years of having Type 1 diabetes with little or no other medical problems, I am grateful for my life. It has been hard and harsh at times with management of the disease, but I then move on to more stable blood glucose days.
      The insulin pump has made my life much easier managing the disease. Living day to day is a gift. Still hoping for a miracle cure for diabetes…

      4
      5 months ago Log in to Reply
    21. Judith Marged

      This year I learned that I am definitely allergic to metacresol, a preservative used in the newer injectable insulins. Fortunately, I use Afrezza for my bolus insulin, but had a difficult time finding a basal insulin without metacresol that helped to keep my glucose somewhat stable. ***My hope is for insulin manufacturers to find a better preservative.***

      6
      5 months ago Log in to Reply
    22. Kayci Marr

      That the criminal justice system is not set up for people like us. I’ve never been in jail thank God, but I’ve read threads on FB where many have had to fight for their lives to be treated and even believed that they needed insulin/food in the first place. That grief can affect our blood sugars to a great extent. That despite how far we still have to go, I am blessed to live where I do, in the time period that I do.

      7
      5 months ago Log in to Reply
      1. Lawrence S.

        You are very correct about the criminal justice system. I worked in correctional services for 30 years and wondered how the T1D’s survived. They were mostly given shots of insulin in the infirmary, insulin pumps were not allowed. Otherwise they were left on their own. They ate the same food as others. They had to go to the infirmary to do blood tests. Many had great difficulties, some seemed to do okay.

        With my very “brittle” diabetes, I thought that if I had to live as an inmate, I would not be able to survive. I felt that I was lucky to stay alive when I took multiple daily shots, before the insulin pump.

        6
        5 months ago Log in to Reply
    23. Donna Condi

      Technology (Tandem pump and Dexcom) has made my life sooo much easier but I still have to get up and take a walk after every meal to keep it that way. Without the walk I just end up working harder to get my numbers back down rather than keeping them from going up. Also, diabetes has been a blessing to me because I know for sure that I would have been a very overweight person without it.

      5
      5 months ago Log in to Reply
    24. Connie Porcaro

      I was diagnosed with LADA last March so EVERYTHING I know about T1D, l learned in the past year. So much stuff – about dexcom, omnipod, carb counting, causes – too much to list! But so far, what I’ve learned has helped me stay happy and healthy (A1C down from 11 to 5.6).

      12
      5 months ago Log in to Reply
    25. GLORIA MILLER

      I have learned that, unlike what my parents were told in 1957 when I was diagnosed, that we can live a long and full life even with diabetes.

      11
      5 months ago Log in to Reply
      1. sweet charlie

        yes ays 70 years!!

        5 months ago Log in to Reply
    26. eherban1

      That endogenous insulin, when manufactured by the body, cleaves from a larger molecule. The other half of that molecule is amylin. Our bodies don’t get amylin in any form after our β cells are destroyed. After 42 years of not having it, my endo prescribed a GLP-1 receptor agonist (Victoza) to help simulate replacement amylin. I’ve lost 60+ pounds and feel better than I have in decades.

      8
      5 months ago Log in to Reply
    27. Don P

      the day one stops learning is the day one dies ….. I much prefer to learn !!

      7
      5 months ago Log in to Reply
    28. Jane Cerullo

      After 18 years of over correcting if the i see a high number but have enough insulin according to IOB I do not look at Dexcom until IOB goes down. Duh. No more lows. No more up and down. Old dog new trick.

      5
      5 months ago Log in to Reply
      1. Mary Dexter

        It takes so much self control to see the number and wait,one eye on the CGM, knowing it probably will be okay in a few hours. Like waiting the 15 minutes for the glucose tablets to work. I do a lot of crossword puzzles.

        6
        5 months ago Log in to Reply
    29. beth nelson

      This year I became very interested in clinical trials. I was disappointed to learn t1d wasn’t being researched in more areas. But the good thing I learned (or anppreciated) about life with t1d was that diabetes has made me healthier. I must monitor every aspect of my life to stay safe and healthy. Other family members didn’t require that kind of monitoring, and it is reflected in their lives.

      3
      5 months ago Log in to Reply
      1. sweet charlie

        so true!!

        5 months ago Log in to Reply
    30. Bob Durstenfeld

      Time in range is cool.
      And the show must go on…

      5
      5 months ago Log in to Reply
    31. Kathleen Juzenas

      I learned that I can have my A1c done at Quest rather than in my endo’s office where they use Labcorp. Quest results seem aligned with my CGM. Labcorp results seem to be higher. My endo doesn’t care as long as it’s under 7.0, but I much prefer a 6.2 from Quest rather than a 6.5 from Labcorp.

      5 months ago Log in to Reply
      1. Vicki Andersen

        Really??? I love my OMNIPOD5!!!

        5 months ago Log in to Reply
    32. Kris Sykes-David

      Actually, nothing new that I can recall, just that T1D is constantly changing!

      1
      5 months ago Log in to Reply
    33. Jillmarie61

      That my OmniPod5 is a lousy excuse for a pump. I went from a Tandem TSlim X2, to this and my bgs are running so much higher, ruining my 6.7 HgA1c. My question is how did this piece of junk manage to get FDA approval?

      5 months ago Log in to Reply
    34. Kelly Wilhelm

      I’ve learned a lot through the Juicebox Podcast (and FB group) about all things diabetes!

      1
      5 months ago Log in to Reply
    35. Deyait Watson-Irvine

      I have learned that I will always learn something new about diabetes and the ways different ages, life events and choices affect me. I have learned to be up for the challenge, and not lose hope!

      5
      5 months ago Log in to Reply
    36. Patricia Kilwein

      It’s complicated!

      5
      5 months ago Log in to Reply
    37. Joan Benedetto

      For our not quite eleven year old (yes, on the verge of puberty),diabetes has a mind of its own. Every single sport/extra curricular requires different management. An hour of figure skating followed by 45 minutes of off ice conditioning requires the highest amount of uncovered carbs! Recess outside, and temps/weather, is very different than inside recess. This year’s PE is much more rigorous than previous years.
      What I told myself over nine years ago was to look back long enough to learn, then move forward. That is one thing that has not changed!

      6
      5 months ago Log in to Reply
    38. Brian Vodehnal

      A constant evolving treatment arena. Find what works for you..and don’t let your physician, insurance company or pharmacy push you around….stand your ground and get what u need to take care of yourself.

      8
      5 months ago Log in to Reply
      1. sweet charlie

        70 years agrees with you!!

        5 months ago Log in to Reply
    39. Ahh Life

      IF I have learned to heartily and genuinely say:

      Merry Christmas
      Happy Hanukkah
      Happy Kwanzaa
      Happy New Year
      Et al (way, way too many to list)

      THEN I have learned to heartily and genuinely say:

      Happy 100 day! 💌💯

      5
      5 months ago Log in to Reply
    40. MT

      After 48 years with T1D it’s okay to say that I prefer MDI and to not feel guilty about not using an insulin pump as recommended by my pump-pushing endo.

      6
      5 months ago Log in to Reply
    41. Janis Senungetuk

      I’ve learned to be even more grateful for every day . Sixty-seven years of life with a wildly fluctuating glucose level has stressed my kidneys, circulatory and nervous system. Now I’m dealing with those complications, too.

      4
      5 months ago Log in to Reply
    42. Vicki Andersen

      I love my new OMNIPOD Generation 5 communicating with my Dexcom 6. My nights have leveled out, rarely experiencing night time lows, which were common before this technology.

      1
      5 months ago Log in to Reply
    43. Russell Buckbee

      Td1 is way more complicated than can be fully controlled.
      If insanity is doing the same thing over and over expecting different results, then diabetic insanity is doing the same thing over and over and getting different results. Wow!

      7
      5 months ago Log in to Reply
    44. Lenora Ventura

      The same thing I learn every year: that what I already know has now changed and there is so much more to learn. It’s an ever changing T1D world and best to be ready for change

      2
      5 months ago Log in to Reply
    45. Danele Smith

      There’s always something new to learn .. a new way to manage.. or something I didn’t quite understand that suddenly becomes clear about diabetes and it’s technology!

      3
      5 months ago Log in to Reply
    46. Jeff Balbirnie

      It AINT always diabetes no matter what you wanna believe.

      2
      5 months ago Log in to Reply
      1. KarenM6

        That’s funny to me, Jeff Balbirnie!
        In a similar vein, I got kinda happy when I burned my hand so badly I had to go to the doctor. I just thought, “Yay! finally got something that was diabetes related.” ;p

        (No, I wasn’t _really_ happy about burning my hand, but I did have a moment of, “ha! the docs can’t blame my diabetes, just my inattention!)

        1
        5 months ago Log in to Reply
      2. KarenM6

        oh, crud…
        that was supposed to be “WASN’T diabetes related.” doh!

        5 months ago Log in to Reply
    47. Mary Dexter

      The difference between progressive chronic conditions and acute. My husband broke his arm a few weeks ago. It will heal and in a few months he will be able to do what he has always been able to do. So he has a grace period until then and I try to take up the slack. For those of us diagnosed as adults, we learn how to compensate, how to do things despite whatever, and to deal with the impatience of others.

      2
      5 months ago Log in to Reply
    48. Carol Meares

      The ways of coping are many and seeking a new approach can provide valuable insights.

      1
      5 months ago Log in to Reply
    49. Andrew Carpenter

      I’ve learned that despite my numbers improving, it’s never good enough for my doctors. So it’s up to me to keep myself readily prepared for the negative. I learned that I’m losing nearly 100% of the feeling in my feet and I had to harass my doctors to get help. Each day we draw a breath is a victory for us and our Friends and Family, where I live, we are all just numbers on a wall. After the 1st A1C is taken anyway…

      2
      5 months ago Log in to Reply
      1. Ernie Richmann

        My doctors believe I overreact to high bg readings. In their opinion I am doing much better than I think I am doing. My doctors have been very positive.

        2
        5 months ago Log in to Reply
    50. Melissa Childers

      Be vigilant, yet flexible.

      5
      5 months ago Log in to Reply
    51. Virginia Barndollar

      With a little effort, watching my diet, doing exercise daily, pumping and a CGM, I learned (and continue to learn) that T1DM can be controlled and I can live a normal happy healthy life.

      2
      5 months ago Log in to Reply
    52. dave hedeen

      With excellent pump & CGM, worries about highs or lows can be minimized.
      based upon 3 month 780g trial

      2
      5 months ago Log in to Reply
    53. Nicholas Argento

      T1D tells me- Stay alert and stay humble. I can still mesh with you, any time, any where. But I have guardians on my side to guard my back and even the playing field- My wife and my CGM.

      3
      5 months ago Log in to Reply
    54. Ernie Richmann

      Have backup plans. Educate family members/others what to do in case of a severe low or other emergency. Keep an adequate supply of all diabetic supplies and prescriptions. Have your will and legal papers up to date. Stay calm and do your best to stay well. Have empathy for others.

      4
      5 months ago Log in to Reply
    55. christyhenry

      To accept help from others. To prioritize and follow through with my commitments to myself and others for better quality of life.

      2
      5 months ago Log in to Reply
    56. kathy scott

      You can learn the intricacies of YOUR T1D when you keep a record of events with details of how you managed them. Then you can review your “results” the next time something similar is about to happen.

      1
      5 months ago Log in to Reply
    57. Mick Martin

      Nothing that I didn’t already know!

      5 months ago Log in to Reply
    58. Pauline M Reynolds

      That it never ends. Just added gastroparesis to the mix and the fun begins! If only I could predict which day would give me highs and which day would give me lows. (sigh) But, at 83, it keeps me busy.

      1
      5 months ago Log in to Reply
    59. Stephen Woodward

      Not providing individual education and training to T1Ds or their caregivers causes much more pain and suffering than I could have ever imagined. It hurts me to see this.

      2
      5 months ago Log in to Reply
    60. Jen Farley

      That no one person is the same and everyone has different preferences. What may work for me may not work for all.

      2
      5 months ago Log in to Reply
    61. Sharon Schwartz

      Everyday is going to be different.

      1
      5 months ago Log in to Reply
    62. Tb-well

      My diabetes care is only as good as the time I devote to it. I. An have the best devices and intentions but they mean nothing if I won’t devote time to it

      3
      5 months ago Log in to Reply
      1. anj1832

        So true!!

        5 months ago Log in to Reply
    63. Bonnie Lundblom

      That it requires a lot of effort and willingness to try and keep up with it 24/7 and 365 days each and every year. I’m grateful for the technology that we use and hoping that the next few years bring even more research results and updated equipment to help keep us all as healthy as possible.

      2
      5 months ago Log in to Reply
    64. Linda Pease

      That the pump doesn’t stop totally til you stop it which made a difference how I treated severe lows that hang on for hours

      5 months ago Log in to Reply
    65. AnitaS

      That I wish the Afrezza product came in smaller dosages. My sugar goes down too much when I use it (the 4 unit smallest dosage). I have to keep an eye on my sugar level as it heads downward and I need to consume some carbs at a certain level to make sure I don’t go too low.

      5 months ago Log in to Reply
      1. Judith Marged

        Create smaller units on your own. Save some of the empty cartridges, then open the 4-unit one and slit it in half to have two 2-unit cartridges. Be sure to make them with some nail polish or permanent marker. There are plenty of videos on YouTube showing the process.

        5 months ago Log in to Reply
    66. anj1832

      Not all insurance companies are created equal. I had a great plan as a state employee and was able to get insulin for free! I decided to stay home with my son after he was born and I switched to my husband’s insurance. He has the best plan provided, yet insulin costs a fortune!

      1
      5 months ago Log in to Reply
    67. James Hoare

      LIfe can be good and lucky. Medical interventions keep being a success ( had successful cataract surgery on my one eye with vision and for the first time in a long while can see clearly the bright world around me with 20/25 acuity). I am back to my weight in high school and A1c keeps dropping as time in range goes up. Survived Influenza A within the last weeks. Best Christmas and New Years wishes to all.

      1
      5 months ago Log in to Reply
    68. Claude Laforest

      A never ending story. Being retired, I thought I could handle my therapy easier with Fiasp and Tresiba, while delaying the moment I would go back to a costly pump. My results are more than adequate, but I still had to face so many episodes that kept me concentrated to find solutions. T1D is taking too much place in my mind, I finally decided to delegate some of my burden to a hybrid pump pretty soon to support me. I need more time to relax and enjoy life.

      2
      5 months ago Log in to Reply
    69. TEH

      SG response to exercize and or strenuous activity is much slower than carb absorption. An exercise response could be over hours, while glucose tablet responsc is in 15 minutes.

      2
      5 months ago Log in to Reply
    70. Maureen Helinski

      I continue to be thankful and happy for the technology advances. One night using the tru-steel infusion set I didn’t have it properly connected in the middle. I tried to sleep and the pump kept telling me my BG was going up. I hadn’t eaten so much but assumed I needed more insulin and bolussed. after 3-4 hours it was up to 300. I got up to check site and discovered the loose connection. So even though I only use about 28 U a day, I really need the insulin to go into my body to stay alive.

      1
      5 months ago Log in to Reply
    71. KCR

      Recognizing that most of the time I do a good job of managing my diabetes and learning to stay calmer and be kinder to myself when things don’t go as expected. 😊

      2
      5 months ago Log in to Reply
    72. Mary Halverson

      To be kinder to myself when I error in estimating food intake and/or insulin dosage and my numbers go crazy. To keep informed. Now reading “The Discovery of Insulin” by Michael Bliss, and watched “The Human Trial” documentary about Viacyte.

      2
      5 months ago Log in to Reply
    73. John Henninger

      Life is good, but it does take work and perseverance!

      2
      5 months ago Log in to Reply
    74. Kristine Warmecke

      No two days are ever the same, no matter how hard I plan it.

      3
      5 months ago Log in to Reply
    75. Robin Melen

      That it’s hard sometimes and scary sometimes, but mostly very manageable, and that I can ensure that it doesn’t impact who I am or what I want to do and what I want to eat!
      And it’s all going to be OK if you pay attention and have patience!

      1
      5 months ago Log in to Reply
    76. Steven Gill

      Technically learned to “prebolus” 20-25 minutes before eating (with almost no spike after any meal), decrease or even suspend insulin/basal the same 20-25 minutes before specific tasks to prevent glucose drops. With the thought if a miscalculation levels rise higher than I want (my upper alarm is set to 125) I’ll administer a bolus knowing my basal will never drop my glucose, that’s my bolus’ role. I can go without food all day without dropping (except for physical exertion), and likewise minus physical activity I can go to bed at…..74 and wake between 70 and 80. With 5 basal settings my “line” is finally straight minus physical exertion and food, to protect against the “dawn phenomenon,” levels dropping while I sleep.

      Emotionally still learning there are things worse than diabetes: imagine a mom watching her T1D child with ADHD or celiac disease; a teenager going through puberty; even my two sisters dying of cancer.

      I’m living decently with and through TYPE 1 diabetes.

      3
      5 months ago Log in to Reply
    77. Bekki Weston

      Ever changing. Ever the same.

      2
      5 months ago Log in to Reply
    78. PamK

      That information for people my age with T1D is very limited. It all seems to be based on the recommendations for treating T2D. Unfortunately, the medical community does not seem to recognize that there is still a difference between T1 and T2 in people who are older.

      3
      5 months ago Log in to Reply
    79. Kristen Clifford

      There is always something new, good or bad, to learn with T1D.

      2
      5 months ago Log in to Reply
    80. John McHenery

      Always learning but better than being dead.

      2
      5 months ago Log in to Reply
    81. Tom Rintelmann

      After 45 years of being a T1D I’ve learned to adapt to my body as it ages. This year learning to cope with a spinal epidural and a shoulder epidural.
      No fun to take triple the normal fast acting insulin for days after each procedure but am thankful for my CGM.
      Tom R

      5 months ago Log in to Reply
    82. Bea Anderson

      This year: I’ve learned what was true at the beginning of T1 is true 16 years later. Carbs need to be well managed. Love tech that allows me a path to bgs averaging 90. Not using automated modes. But still solid help. I’m the weak link. This year I grew weary of being careful. It has been more work. For 16 years I’ve had a1C no higher than 5.9. Turn 70 in a couple days. This year I have shared T1 with more age related infirmities that distract from best T1 care. What gets me back on track is to realize what is good for T1 is good for many other ailments. So lowering my carbs, again, easing the math involved each day, easing inflammation, planning ahead for success. In the beginning I was motivated to be my best for family. I still want to show grandkids responsible health care that maxes out an ability to be my best. Whew!

      5 months ago Log in to Reply
    83. Molly Jones

      How grateful I am for science, research and clinical trials.
      The more a condition is understood, the easier it is to live with, control and accepted by society and possibly prevent/ cure.
      Out of my many medical conditions, T1D is one of the easier to live with in this current time.

      5 months ago Log in to Reply
    84. wyndare3

      Retirement got really complicated really fast. T1D is a rollercoaster. Things change constantly. Insulin is not to be trifled with.

      5 months ago Log in to Reply
    85. Diana L.

      Be patient! don’t despair

      5 months ago Log in to Reply
    86. LoloMama53

      That I can control my A1c if I’m careful with diet and insulin management

      5 months ago Log in to Reply
    87. Lori Smith

      It’s still hard. Yes you have to watch everything you eat, drink and how your stress levels are. Stress can definitely affect your Blood Sugars. You can have a Normal life and do whatever you want to do. Hopefully, there will be a Cure

      4 months ago Log in to Reply

    What have you learned about life with T1D this year? Cancel reply

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