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    • 17 hours, 45 minutes ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 1 day, 4 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 1 day, 4 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 1 day, 11 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 1 day, 11 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 1 day, 11 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 1 day, 11 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 1 day, 16 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 1 day, 16 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 1 day, 17 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 1 day, 17 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 1 day, 17 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 1 day, 18 hours ago
      Beckett Nelson likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 8 hours ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 2 days, 13 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 2 days, 13 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 2 days, 13 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
    • 2 days, 15 hours ago
      Laurie B likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      It depends on the research. Some research questions deal with youth and T1D. More needs to be done with aging populations with T1D, and LADA. Most all the research should have diversity of gender and race unless the question is involved with a particular race or gender. But what is the control? The question of inclusion of diversity should always be a part of the development of the study and its what is desired in its findings.
    • 2 days, 16 hours ago
      Marty likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I put 5-10, but don't really know. I have auto-generation and install updates to both DIY Trio and Loop each week, that takes minimal time. I participate in four different on-line groups (FUD [daily], BeyondT1 [once in awhile], LoopZulipChat [on Loop development/questions], and Trio Discord [development/questions on Trio]. I also look through Facebook groups every once in awhile for Loop and Trio. Then there's the before meal/snack dosing of insulin (requires carb counting/estimating and carb entry) and then correction dosing as needed. When I think of question appropriate for my Endo, I write it down so I don't forget. I get the added bonus of dealing with EPI (roughly 30% of T1s have it/get it) which necessitates determining my fat intake and treatment with enzyme pills so I can digest food (mostly fats, but also protein and carbs). There's a lot to it that gets "normalized" in my routine...most of the time! Once in awhile, my mind "forgets" one or the other briefly.
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      That’s a tricky question, somewhere between always and sometimes. After about 50 years of T1D I think I run on autopilot. But having said that everything one eats or if you move around or sit around must be taken into account. Even with CIQ I need to run different basal programs…..inactive to highly active….or am I eating larger quantities of carbohydrates…many variables that we automatically adjust for.
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    If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?

    Home > LC Polls > If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
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    Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    46 Comments

    1. Lawrence S.

      Funny you should ask. I am currently going through trying to get my next Endocrinology visit. My quarterly visit should have been in March. But, I have yet to be scheduled for an appointment. I’ve called a half dozen times to get an appointment. Now, they are waiting for the April calendar to come out for appointments. This is the most frustrating part of dealing with my Endo, which is part of a large hospital network. It makes me want to go somewhere else.

      3 years ago Log in to Reply
      1. Jneticdiabetic

        I’ve been told this by some of my doctors’ offices too – that they can’t schedule out that far. Surprising to me that a clinic that typically requires 3mo or annual follow-ups doesn’t have a system that allows scheduling out that far.

        3 years ago Log in to Reply
    2. Christine Gran

      Insurance company required a prior authorization for my son’s CGM despite his using one for two years. The process took 5 days before it was resolved.

      3 years ago Log in to Reply
    3. Kristen Clifford

      I just had to reschedule an appointment with my endocrinologist. Her next opening wasn’t until September.

      3 years ago Log in to Reply
    4. TEH

      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.

      1
      3 years ago Log in to Reply
    5. Jane Cerullo

      My Endo is chronically under staffed. Have been going for over ten years. They had to reschedule my next appointment because second NP left. Not sure if pay or working conditions. I don’t change because have no issues that need to be addressed. Just need scripts. Need more for my Graves’ disease than diabetes.

      3 years ago Log in to Reply
    6. Gary Taylor

      My current endocrinology specialist is a Nurse Practitioner. She is wonderful but she is also the only one in a 100 mile radius. She is booked out for at least 3 months, if not longer. I try to have two appointments scheduled in the future at any given time.

      3 years ago Log in to Reply
      1. Wanacure

        From one Taylor to another: Covid burned out many doctors & nurses exacerbated by a for-profit health care system that puts profits over life. Cuba delivers better health care to rural residents despite US Gov sanctions. That”s why I support IFCO Pastors for Peace. 212-926-5767 ifco@ifconews.org. I’ve met people who have traveled to Cuba.

        3 years ago Log in to Reply
    7. Steve Gold

      On hold or actually talking about the issue and calling back to ensure someone follow’s up as everyone seems to be over their head.
      Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.

      1
      3 years ago Log in to Reply
    8. David & Kaleo of Team Nani

      I said 1-2 months, but if there were some type of urgent need, and knowing me, I think I could get something w/in a week.

      3 years ago Log in to Reply
    9. beth nelson

      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.

      1
      3 years ago Log in to Reply
    10. Mick Martin

      It’s good to see that you’re keeping the imbeciles off the streets.

      How, on Earth, am I supposed to know? I’m not responsible for the booking of appointments at ANY healthcare establishment.

      3 years ago Log in to Reply
    11. Amanda Barras

      2-3 months, but I am blessed with a provider that is happy to squeeze me in last minute to a tele-med appt for emergencies or for problems with insurance needing new documents from her for Rx or DME.

      3 years ago Log in to Reply
    12. Marty

      When I saw my endo a year ago, I wasn’t able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can’t get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I’m on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.

      1
      3 years ago Log in to Reply
      1. Wanacure

        Is this a sign our US imperialistic empire is falling like the previous British & Spanish & Portuguese & Roman & Persian empires? OR can we meet this challenge? Can we learn from history to eliminate corruption and wealth inequality?

        3 years ago Log in to Reply
    13. Bruce Schnitzler

      Normally within a week or two, but the same day if I had a serious problem.

      3 years ago Log in to Reply
    14. Lyn McQuaid

      When I check out after an appointment, I tell the receptionist that my endo wants to see me again in six months but the next available appointment is generally eight months out. It caused trouble once when I was out of a Dexcom transmitters and Dexcom claimed they needed “clinicals” from my endo that were within six months old and it was seven months since I had seen him and my appointment wasn’t until the following month. Frustrating!

      On the other hand, my endo lives down the street from me and I frequently see him when we’re both out walking or riding bikes in the neighborhood but that doesn’t count as “clinicals” to Dexcom – haha.

      3 years ago Log in to Reply
    15. Mike S

      I just had to reschedule my January appointment and the next available was in June. That said, if I had an urgent need, they would get me in within a week. (it’s fortunately only happened once, but urgent care takes priority at my endo’s office)

      3 years ago Log in to Reply
    16. AnitaS

      I put 3-4 months, but since I usually schedule when I am leaving the office, I really am not sure. This last time I was leaving, I scheduled the appointment my doctor wanted for the summer, but she said her assistant would call me to make a visual appointment for the spring. I haven’t gotten a call so I will have to call them.

      3 years ago Log in to Reply
    17. Eva

      If I asked for a video appointment for an emergency, it would be in about two days. If I requested the next in person visit for the same emergency, it would be about two weeks.

      3 years ago Log in to Reply
    18. Denise Carter

      My Endo is booked all the time, first available appt is always 6 months out.

      3 years ago Log in to Reply
    19. Kevin McCue

      Probably could get in a few days but it would be due to cancellation or overbooking just to accommodate request

      3 years ago Log in to Reply
    20. Kathleen Juzenas

      I have no idea. I see T1d provider every 3 months; next appt is made at the end of each visit. I don’t remember ever having to add an extra visit.

      For providers for other health conditions, it depends, from 1 or 2 days up to a couple weeks. Six months for a new provider.

      3 years ago Log in to Reply
    21. Theresa DAngelo

      I am not sure because I recently moved and am seeing a new doctor near my new home. I have only seen her 2 times so far and haven’t had to call for another appointment besides my 3 months check-ups required by my Medicare insurance. My previous doctor, I could see within a couple of weeks (if it wasn’t a normal scheduled check-up). Thank God, I haven’t had to do that here so far.

      3 years ago Log in to Reply
    22. Georgina Sokol

      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.

      1
      3 years ago Log in to Reply
    23. Tod Herman

      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.

      1
      3 years ago Log in to Reply
    24. Janice Bohn

      For a regular appointment it would be 5-6 months. To see the nurse practitioner it would be sooner.

      3 years ago Log in to Reply
    25. Greg Felton

      3-4 months for an in person appointment, but the office and doc are good about responding to requests, questions and RX renewals online within 24 hours.

      3 years ago Log in to Reply
    26. Ernie Richmann

      Just not sure. I make another appointment before leaving the last appointment. I am almost certain I could get a appointment soon if I had a major problem.

      3 years ago Log in to Reply
    27. Abigail Elias

      I have never had to request a special appointment. If urgent, I’d probably get in quickly, within a week. If routine, 3 – 6 months from my last appointment. (Medicare has been requiring 3 months but my endocrinologists have been saying 6 months for many years).

      3 years ago Log in to Reply
    28. Molly Jones

      I recently changed from appointments every four months to twice a year, but if I needed to be seen, I could have an appointment depending on the urgency within a few days to 2 weeks or speak with them or someone in the clinic on email or phone the same working day.

      3 years ago Log in to Reply
    29. MARIE

      We’ve always been able to make appointments well in advance (except for the first one and we had to wait a bit over two weeks for that.) But we are blessed with an endo that gave me her email address and answers messages that I send there quickly. In the early days when I had a panic over something, she’d answer me within an hour.

      3 years ago Log in to Reply
    30. LZ

      Without asking for it, I get a card with my 3 mo and 6 mo visit dates when I pay for my visit (doctor’s office then files for me, and Medicare and BC send me checks to cover it, eventually). When he still would also act as my primary care, I did at least once get in the same day for an emergency (a burn), but I don’t think I’ve probably asked for any interim actual visits in years. I have emailed the nurse occasionally, who typically responds that day, usually already having asked the doctor if it is something that requires that. If he considers it serious, he has called me. The doctor has occasionally cancelled an appt., but when I hear about it, it has always already been rescheduled. I always consider my visit schedule when making plans, haven’t had to cancel in many years, so don’t know how long that would take.

      3 years ago Log in to Reply
    31. Pauline M Reynolds

      “Other” because I have not been in that position with my diabetes care, so have nothing to judge with. However, I think things will improve because Kaiser just went from a central location appointment service to appointments being made by the department you are asking for.

      3 years ago Log in to Reply
      1. Pauline M Reynolds

        I have contacted NP by email and received prompt answers, though.

        3 years ago Log in to Reply
    32. Chris Albright

      I indi ated 1-2 weeks, but really don’t know for sure since I have never requested an appointment outside my quarterly appointments.

      3 years ago Log in to Reply
    33. TomH

      I listed “within a month,” but believe the context of the request needs clarification. If an emergency, it would an ER trip. If it was a significant need, but short of an emergency, I think it would happen with a week or so. If a lesser need, then this month would be likely and reasonable. Example: I have a kidney stone; if it’s causing significant pain, and ER trip; if its a lower level ache, a month’s wait is reasonable; if its been there a long period, isn’t a constant ache, then longer may be reasonable.

      3 years ago Log in to Reply
    34. Becky Hertz

      I said 3-4 which is solely based on when I schedule 3 months out and it is usually 3-4 months for an available appointment.

      3 years ago Log in to Reply
    35. KSannie

      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their “portal.” Whether I get a timely response depends on whether there is a reliable nurse to respond.

      1
      3 years ago Log in to Reply
    36. mbulzomi@optonline.net

      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo’s office.

      1
      3 years ago Log in to Reply
    37. Linda Pease

      I have a appointment every three months like clock work made 6 months in advance specialist are hard to get in here took almost 5 month s the first visit

      3 years ago Log in to Reply
    38. Patricia Kilwein

      In order to visit my endo every 3 months, I have to make appointments 6 months ahead.

      1
      3 years ago Log in to Reply
    39. sweetcharlie

      I just do not see a Doctor for my T1D !!!

      3 years ago Log in to Reply
    40. Diana L.

      It would depend on the reason for the appointment. If it is an amergency they will take me immediately. For a checkup, probably 3 months. I always schedule checkups avery 4 months

      3 years ago Log in to Reply
    41. ConnieT1D62

      Who knows??? I see a dynamite endocrine FNP, CDCES who is in much demand because she is so good. I have been with her for diabetes care for 20 years. I book a full year of appointments to see her q 3 months every June. It is extremely difficult to to get a next available appointment with her unless there happens to be a cancellation and you are on her cancellation call list. One time she was out for a family medical emergency and they assigned me to see a newly minted NP in her place who was a poor substitute filling in for her.

      3 years ago Log in to Reply
    42. T1D4LongTime

      My endo is very busy, but has always worked me into his schedule within a few days.

      3 years ago Log in to Reply

    If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be? Cancel reply

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