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    • 13 hours, 40 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 13 hours, 41 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 14 hours, 32 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 15 hours ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 15 hours, 12 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 16 hours, 5 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 16 hours, 12 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 16 hours, 33 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 36 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 43 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 18 hours, 7 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 9 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 17 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?

    Home > LC Polls > If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
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    Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    46 Comments

    1. Lawrence S.

      Funny you should ask. I am currently going through trying to get my next Endocrinology visit. My quarterly visit should have been in March. But, I have yet to be scheduled for an appointment. I’ve called a half dozen times to get an appointment. Now, they are waiting for the April calendar to come out for appointments. This is the most frustrating part of dealing with my Endo, which is part of a large hospital network. It makes me want to go somewhere else.

      2 months ago Log in to Reply
      1. Jneticdiabetic

        I’ve been told this by some of my doctors’ offices too – that they can’t schedule out that far. Surprising to me that a clinic that typically requires 3mo or annual follow-ups doesn’t have a system that allows scheduling out that far.

        2 months ago Log in to Reply
    2. Christine Gran

      Insurance company required a prior authorization for my son’s CGM despite his using one for two years. The process took 5 days before it was resolved.

      2 months ago Log in to Reply
    3. Kristen Clifford

      I just had to reschedule an appointment with my endocrinologist. Her next opening wasn’t until September.

      2 months ago Log in to Reply
    4. TEH

      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.

      1
      2 months ago Log in to Reply
    5. Jane Cerullo

      My Endo is chronically under staffed. Have been going for over ten years. They had to reschedule my next appointment because second NP left. Not sure if pay or working conditions. I don’t change because have no issues that need to be addressed. Just need scripts. Need more for my Graves’ disease than diabetes.

      2 months ago Log in to Reply
    6. Gary Taylor

      My current endocrinology specialist is a Nurse Practitioner. She is wonderful but she is also the only one in a 100 mile radius. She is booked out for at least 3 months, if not longer. I try to have two appointments scheduled in the future at any given time.

      2 months ago Log in to Reply
      1. Wanacure

        From one Taylor to another: Covid burned out many doctors & nurses exacerbated by a for-profit health care system that puts profits over life. Cuba delivers better health care to rural residents despite US Gov sanctions. That”s why I support IFCO Pastors for Peace. 212-926-5767 ifco@ifconews.org. I’ve met people who have traveled to Cuba.

        2 months ago Log in to Reply
    7. Steve Gold

      On hold or actually talking about the issue and calling back to ensure someone follow’s up as everyone seems to be over their head.
      Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.

      1
      2 months ago Log in to Reply
    8. David & Kaleo of Team Nani

      I said 1-2 months, but if there were some type of urgent need, and knowing me, I think I could get something w/in a week.

      2 months ago Log in to Reply
    9. beth nelson

      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.

      1
      2 months ago Log in to Reply
    10. Mick Martin

      It’s good to see that you’re keeping the imbeciles off the streets.

      How, on Earth, am I supposed to know? I’m not responsible for the booking of appointments at ANY healthcare establishment.

      2 months ago Log in to Reply
    11. Amanda Barras

      2-3 months, but I am blessed with a provider that is happy to squeeze me in last minute to a tele-med appt for emergencies or for problems with insurance needing new documents from her for Rx or DME.

      2 months ago Log in to Reply
    12. Marty

      When I saw my endo a year ago, I wasn’t able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can’t get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I’m on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.

      1
      2 months ago Log in to Reply
      1. Wanacure

        Is this a sign our US imperialistic empire is falling like the previous British & Spanish & Portuguese & Roman & Persian empires? OR can we meet this challenge? Can we learn from history to eliminate corruption and wealth inequality?

        2 months ago Log in to Reply
    13. Bruce Schnitzler

      Normally within a week or two, but the same day if I had a serious problem.

      2 months ago Log in to Reply
    14. Lyn McQuaid

      When I check out after an appointment, I tell the receptionist that my endo wants to see me again in six months but the next available appointment is generally eight months out. It caused trouble once when I was out of a Dexcom transmitters and Dexcom claimed they needed “clinicals” from my endo that were within six months old and it was seven months since I had seen him and my appointment wasn’t until the following month. Frustrating!

      On the other hand, my endo lives down the street from me and I frequently see him when we’re both out walking or riding bikes in the neighborhood but that doesn’t count as “clinicals” to Dexcom – haha.

      2 months ago Log in to Reply
    15. Mike S

      I just had to reschedule my January appointment and the next available was in June. That said, if I had an urgent need, they would get me in within a week. (it’s fortunately only happened once, but urgent care takes priority at my endo’s office)

      2 months ago Log in to Reply
    16. AnitaS

      I put 3-4 months, but since I usually schedule when I am leaving the office, I really am not sure. This last time I was leaving, I scheduled the appointment my doctor wanted for the summer, but she said her assistant would call me to make a visual appointment for the spring. I haven’t gotten a call so I will have to call them.

      2 months ago Log in to Reply
    17. Eva

      If I asked for a video appointment for an emergency, it would be in about two days. If I requested the next in person visit for the same emergency, it would be about two weeks.

      2 months ago Log in to Reply
    18. Denise Carter

      My Endo is booked all the time, first available appt is always 6 months out.

      2 months ago Log in to Reply
    19. Kevin McCue

      Probably could get in a few days but it would be due to cancellation or overbooking just to accommodate request

      2 months ago Log in to Reply
    20. Kathleen Juzenas

      I have no idea. I see T1d provider every 3 months; next appt is made at the end of each visit. I don’t remember ever having to add an extra visit.

      For providers for other health conditions, it depends, from 1 or 2 days up to a couple weeks. Six months for a new provider.

      2 months ago Log in to Reply
    21. Theresa DAngelo

      I am not sure because I recently moved and am seeing a new doctor near my new home. I have only seen her 2 times so far and haven’t had to call for another appointment besides my 3 months check-ups required by my Medicare insurance. My previous doctor, I could see within a couple of weeks (if it wasn’t a normal scheduled check-up). Thank God, I haven’t had to do that here so far.

      2 months ago Log in to Reply
    22. Georgina Sokol

      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.

      1
      2 months ago Log in to Reply
    23. Tod Herman

      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.

      1
      2 months ago Log in to Reply
    24. Janice Bohn

      For a regular appointment it would be 5-6 months. To see the nurse practitioner it would be sooner.

      2 months ago Log in to Reply
    25. Greg Felton

      3-4 months for an in person appointment, but the office and doc are good about responding to requests, questions and RX renewals online within 24 hours.

      2 months ago Log in to Reply
    26. Ernie Richmann

      Just not sure. I make another appointment before leaving the last appointment. I am almost certain I could get a appointment soon if I had a major problem.

      2 months ago Log in to Reply
    27. Abigail Elias

      I have never had to request a special appointment. If urgent, I’d probably get in quickly, within a week. If routine, 3 – 6 months from my last appointment. (Medicare has been requiring 3 months but my endocrinologists have been saying 6 months for many years).

      2 months ago Log in to Reply
    28. Molly Jones

      I recently changed from appointments every four months to twice a year, but if I needed to be seen, I could have an appointment depending on the urgency within a few days to 2 weeks or speak with them or someone in the clinic on email or phone the same working day.

      2 months ago Log in to Reply
    29. MARIE

      We’ve always been able to make appointments well in advance (except for the first one and we had to wait a bit over two weeks for that.) But we are blessed with an endo that gave me her email address and answers messages that I send there quickly. In the early days when I had a panic over something, she’d answer me within an hour.

      2 months ago Log in to Reply
    30. LZ

      Without asking for it, I get a card with my 3 mo and 6 mo visit dates when I pay for my visit (doctor’s office then files for me, and Medicare and BC send me checks to cover it, eventually). When he still would also act as my primary care, I did at least once get in the same day for an emergency (a burn), but I don’t think I’ve probably asked for any interim actual visits in years. I have emailed the nurse occasionally, who typically responds that day, usually already having asked the doctor if it is something that requires that. If he considers it serious, he has called me. The doctor has occasionally cancelled an appt., but when I hear about it, it has always already been rescheduled. I always consider my visit schedule when making plans, haven’t had to cancel in many years, so don’t know how long that would take.

      2 months ago Log in to Reply
    31. Pauline M Reynolds

      “Other” because I have not been in that position with my diabetes care, so have nothing to judge with. However, I think things will improve because Kaiser just went from a central location appointment service to appointments being made by the department you are asking for.

      2 months ago Log in to Reply
      1. Pauline M Reynolds

        I have contacted NP by email and received prompt answers, though.

        2 months ago Log in to Reply
    32. Chris Albright

      I indi ated 1-2 weeks, but really don’t know for sure since I have never requested an appointment outside my quarterly appointments.

      2 months ago Log in to Reply
    33. TomH

      I listed “within a month,” but believe the context of the request needs clarification. If an emergency, it would an ER trip. If it was a significant need, but short of an emergency, I think it would happen with a week or so. If a lesser need, then this month would be likely and reasonable. Example: I have a kidney stone; if it’s causing significant pain, and ER trip; if its a lower level ache, a month’s wait is reasonable; if its been there a long period, isn’t a constant ache, then longer may be reasonable.

      2 months ago Log in to Reply
    34. Becky Hertz

      I said 3-4 which is solely based on when I schedule 3 months out and it is usually 3-4 months for an available appointment.

      2 months ago Log in to Reply
    35. KSannie

      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their “portal.” Whether I get a timely response depends on whether there is a reliable nurse to respond.

      1
      2 months ago Log in to Reply
    36. mbulzomi@optonline.net

      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo’s office.

      1
      2 months ago Log in to Reply
    37. Linda Pease

      I have a appointment every three months like clock work made 6 months in advance specialist are hard to get in here took almost 5 month s the first visit

      2 months ago Log in to Reply
    38. Patricia Kilwein

      In order to visit my endo every 3 months, I have to make appointments 6 months ahead.

      1
      2 months ago Log in to Reply
    39. sweetcharlie

      I just do not see a Doctor for my T1D !!!

      2 months ago Log in to Reply
    40. Diana L.

      It would depend on the reason for the appointment. If it is an amergency they will take me immediately. For a checkup, probably 3 months. I always schedule checkups avery 4 months

      1 month ago Log in to Reply
    41. ConnieT1D62

      Who knows??? I see a dynamite endocrine FNP, CDCES who is in much demand because she is so good. I have been with her for diabetes care for 20 years. I book a full year of appointments to see her q 3 months every June. It is extremely difficult to to get a next available appointment with her unless there happens to be a cancellation and you are on her cancellation call list. One time she was out for a family medical emergency and they assigned me to see a newly minted NP in her place who was a poor substitute filling in for her.

      1 month ago Log in to Reply
    42. T1D4LongTime

      My endo is very busy, but has always worked me into his schedule within a few days.

      1 month ago Log in to Reply

    If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be? Cancel reply

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