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    • 2 hours, 29 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 2 hours, 30 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 5 hours, 19 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 6 hours, 7 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 15 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 9 hours, 15 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 34 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 35 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 48 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 22 hours, 45 minutes ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 22 hours, 46 minutes ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 6 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 9 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 9 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 9 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 9 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 9 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 6 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
    • 3 days, 9 hours ago
      Lawrence S. likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      I’ve been a T1D for about 50 years. After about 10 years I moved towards a more whole food diet with only small amounts of meat. I seem to consume 100-150 grams of carbs per day and try not to eat more than 30-40 grams at a time.
    • 3 days, 9 hours ago
      Lawrence S. likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      No. Fruits, veggies and whole grains are too important for our health.
    • 3 days, 9 hours ago
      Lawrence S. likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      I do not eat keto but it is safe. The term is ketosis which is very different from DKA. “ Ketosis is a normal metabolic process where the body produces ketones for energy when carbohydrate intake is limited, while ketoacidosis is a life-threatening complication of diabetes where dangerously high levels of ketones cause blood to become acidic. Ketosis is typically harmless and can be induced by fasting or following a ketogenic diet, according to Healthline. Ketoacidosis, however, is a serious emergency requiring immediate medical attention, says the Mayo Clinic.
    • 3 days, 9 hours ago
      Deborah Wright likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      i agree! eating lower card due to Dr. Bernsteins book was a game changer in my type 1 control. I am so grateful he wrote it. I only found the book 10 years ago but wish I had known about it for the first 32 years of insulin treatment.
    • 3 days, 9 hours ago
      Deborah Wright likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      I have been a Type 1 since 1976. Back in the early 2000's, a friend gave me the book "Diabetes Solution" written by Dr Richard K Bernstein. Reading that book was a turning point for me in my diabetes control as it made me aware of the HUGE role carbohydrates play in glucose levels. I immediately became "carb-aware" and started tracking and reducing the number of total carbohydrate grams I was eating. My A1c's dropped from 9's and 8's into the low 6's with several higher 5's. My goal is to keep my A1c in the low 6's. As I've aged, (now 75), I've had to reduce the total number of daily carbs I consume in order to maintain my control. I credit becoming carb-aware and reducing my daily carbohydrate intake for not having developed any of the serious long-term diabetes complications that require additional treatment and medication. The diabetic ophthalmopathy that was first noticed in the late 1990's as well as neuropathy in my feet noticed about the same time have not progressed in the intervening 25 years. (I was on MDI until 2011 when I transitioned to an insulin pump. I resisted using a pump for years but love the added control and flexibility the pump gives me.) Life is good!
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    If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?

    Home > LC Polls > If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
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    If you have peripheral neuropathy in your feet, do you take any medications to help manage it? Please share in the comments how you manage neuropathy pain.

    Next

    Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    46 Comments

    1. Lawrence S.

      Funny you should ask. I am currently going through trying to get my next Endocrinology visit. My quarterly visit should have been in March. But, I have yet to be scheduled for an appointment. I’ve called a half dozen times to get an appointment. Now, they are waiting for the April calendar to come out for appointments. This is the most frustrating part of dealing with my Endo, which is part of a large hospital network. It makes me want to go somewhere else.

      2 years ago Log in to Reply
      1. Jneticdiabetic

        I’ve been told this by some of my doctors’ offices too – that they can’t schedule out that far. Surprising to me that a clinic that typically requires 3mo or annual follow-ups doesn’t have a system that allows scheduling out that far.

        2 years ago Log in to Reply
    2. Christine Gran

      Insurance company required a prior authorization for my son’s CGM despite his using one for two years. The process took 5 days before it was resolved.

      2 years ago Log in to Reply
    3. Kristen Clifford

      I just had to reschedule an appointment with my endocrinologist. Her next opening wasn’t until September.

      2 years ago Log in to Reply
    4. TEH

      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.

      1
      2 years ago Log in to Reply
    5. Jane Cerullo

      My Endo is chronically under staffed. Have been going for over ten years. They had to reschedule my next appointment because second NP left. Not sure if pay or working conditions. I don’t change because have no issues that need to be addressed. Just need scripts. Need more for my Graves’ disease than diabetes.

      2 years ago Log in to Reply
    6. Gary Taylor

      My current endocrinology specialist is a Nurse Practitioner. She is wonderful but she is also the only one in a 100 mile radius. She is booked out for at least 3 months, if not longer. I try to have two appointments scheduled in the future at any given time.

      2 years ago Log in to Reply
      1. Wanacure

        From one Taylor to another: Covid burned out many doctors & nurses exacerbated by a for-profit health care system that puts profits over life. Cuba delivers better health care to rural residents despite US Gov sanctions. That”s why I support IFCO Pastors for Peace. 212-926-5767 ifco@ifconews.org. I’ve met people who have traveled to Cuba.

        2 years ago Log in to Reply
    7. Steve Gold

      On hold or actually talking about the issue and calling back to ensure someone follow’s up as everyone seems to be over their head.
      Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.

      1
      2 years ago Log in to Reply
    8. David & Kaleo of Team Nani

      I said 1-2 months, but if there were some type of urgent need, and knowing me, I think I could get something w/in a week.

      2 years ago Log in to Reply
    9. beth nelson

      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.

      1
      2 years ago Log in to Reply
    10. Mick Martin

      It’s good to see that you’re keeping the imbeciles off the streets.

      How, on Earth, am I supposed to know? I’m not responsible for the booking of appointments at ANY healthcare establishment.

      2 years ago Log in to Reply
    11. Amanda Barras

      2-3 months, but I am blessed with a provider that is happy to squeeze me in last minute to a tele-med appt for emergencies or for problems with insurance needing new documents from her for Rx or DME.

      2 years ago Log in to Reply
    12. Marty

      When I saw my endo a year ago, I wasn’t able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can’t get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I’m on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.

      1
      2 years ago Log in to Reply
      1. Wanacure

        Is this a sign our US imperialistic empire is falling like the previous British & Spanish & Portuguese & Roman & Persian empires? OR can we meet this challenge? Can we learn from history to eliminate corruption and wealth inequality?

        2 years ago Log in to Reply
    13. Bruce Schnitzler

      Normally within a week or two, but the same day if I had a serious problem.

      2 years ago Log in to Reply
    14. Lyn McQuaid

      When I check out after an appointment, I tell the receptionist that my endo wants to see me again in six months but the next available appointment is generally eight months out. It caused trouble once when I was out of a Dexcom transmitters and Dexcom claimed they needed “clinicals” from my endo that were within six months old and it was seven months since I had seen him and my appointment wasn’t until the following month. Frustrating!

      On the other hand, my endo lives down the street from me and I frequently see him when we’re both out walking or riding bikes in the neighborhood but that doesn’t count as “clinicals” to Dexcom – haha.

      2 years ago Log in to Reply
    15. Mike S

      I just had to reschedule my January appointment and the next available was in June. That said, if I had an urgent need, they would get me in within a week. (it’s fortunately only happened once, but urgent care takes priority at my endo’s office)

      2 years ago Log in to Reply
    16. AnitaS

      I put 3-4 months, but since I usually schedule when I am leaving the office, I really am not sure. This last time I was leaving, I scheduled the appointment my doctor wanted for the summer, but she said her assistant would call me to make a visual appointment for the spring. I haven’t gotten a call so I will have to call them.

      2 years ago Log in to Reply
    17. Eva

      If I asked for a video appointment for an emergency, it would be in about two days. If I requested the next in person visit for the same emergency, it would be about two weeks.

      2 years ago Log in to Reply
    18. Denise Carter

      My Endo is booked all the time, first available appt is always 6 months out.

      2 years ago Log in to Reply
    19. Kevin McCue

      Probably could get in a few days but it would be due to cancellation or overbooking just to accommodate request

      2 years ago Log in to Reply
    20. Kathleen Juzenas

      I have no idea. I see T1d provider every 3 months; next appt is made at the end of each visit. I don’t remember ever having to add an extra visit.

      For providers for other health conditions, it depends, from 1 or 2 days up to a couple weeks. Six months for a new provider.

      2 years ago Log in to Reply
    21. Theresa DAngelo

      I am not sure because I recently moved and am seeing a new doctor near my new home. I have only seen her 2 times so far and haven’t had to call for another appointment besides my 3 months check-ups required by my Medicare insurance. My previous doctor, I could see within a couple of weeks (if it wasn’t a normal scheduled check-up). Thank God, I haven’t had to do that here so far.

      2 years ago Log in to Reply
    22. Georgina Sokol

      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.

      1
      2 years ago Log in to Reply
    23. Tod Herman

      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.

      1
      2 years ago Log in to Reply
    24. Janice Bohn

      For a regular appointment it would be 5-6 months. To see the nurse practitioner it would be sooner.

      2 years ago Log in to Reply
    25. Greg Felton

      3-4 months for an in person appointment, but the office and doc are good about responding to requests, questions and RX renewals online within 24 hours.

      2 years ago Log in to Reply
    26. Ernie Richmann

      Just not sure. I make another appointment before leaving the last appointment. I am almost certain I could get a appointment soon if I had a major problem.

      2 years ago Log in to Reply
    27. Abigail Elias

      I have never had to request a special appointment. If urgent, I’d probably get in quickly, within a week. If routine, 3 – 6 months from my last appointment. (Medicare has been requiring 3 months but my endocrinologists have been saying 6 months for many years).

      2 years ago Log in to Reply
    28. Molly Jones

      I recently changed from appointments every four months to twice a year, but if I needed to be seen, I could have an appointment depending on the urgency within a few days to 2 weeks or speak with them or someone in the clinic on email or phone the same working day.

      2 years ago Log in to Reply
    29. MARIE

      We’ve always been able to make appointments well in advance (except for the first one and we had to wait a bit over two weeks for that.) But we are blessed with an endo that gave me her email address and answers messages that I send there quickly. In the early days when I had a panic over something, she’d answer me within an hour.

      2 years ago Log in to Reply
    30. LZ

      Without asking for it, I get a card with my 3 mo and 6 mo visit dates when I pay for my visit (doctor’s office then files for me, and Medicare and BC send me checks to cover it, eventually). When he still would also act as my primary care, I did at least once get in the same day for an emergency (a burn), but I don’t think I’ve probably asked for any interim actual visits in years. I have emailed the nurse occasionally, who typically responds that day, usually already having asked the doctor if it is something that requires that. If he considers it serious, he has called me. The doctor has occasionally cancelled an appt., but when I hear about it, it has always already been rescheduled. I always consider my visit schedule when making plans, haven’t had to cancel in many years, so don’t know how long that would take.

      2 years ago Log in to Reply
    31. Pauline M Reynolds

      “Other” because I have not been in that position with my diabetes care, so have nothing to judge with. However, I think things will improve because Kaiser just went from a central location appointment service to appointments being made by the department you are asking for.

      2 years ago Log in to Reply
      1. Pauline M Reynolds

        I have contacted NP by email and received prompt answers, though.

        2 years ago Log in to Reply
    32. Chris Albright

      I indi ated 1-2 weeks, but really don’t know for sure since I have never requested an appointment outside my quarterly appointments.

      2 years ago Log in to Reply
    33. TomH

      I listed “within a month,” but believe the context of the request needs clarification. If an emergency, it would an ER trip. If it was a significant need, but short of an emergency, I think it would happen with a week or so. If a lesser need, then this month would be likely and reasonable. Example: I have a kidney stone; if it’s causing significant pain, and ER trip; if its a lower level ache, a month’s wait is reasonable; if its been there a long period, isn’t a constant ache, then longer may be reasonable.

      2 years ago Log in to Reply
    34. Becky Hertz

      I said 3-4 which is solely based on when I schedule 3 months out and it is usually 3-4 months for an available appointment.

      2 years ago Log in to Reply
    35. KSannie

      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their “portal.” Whether I get a timely response depends on whether there is a reliable nurse to respond.

      1
      2 years ago Log in to Reply
    36. mbulzomi@optonline.net

      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo’s office.

      1
      2 years ago Log in to Reply
    37. Linda Pease

      I have a appointment every three months like clock work made 6 months in advance specialist are hard to get in here took almost 5 month s the first visit

      2 years ago Log in to Reply
    38. Patricia Kilwein

      In order to visit my endo every 3 months, I have to make appointments 6 months ahead.

      1
      2 years ago Log in to Reply
    39. sweetcharlie

      I just do not see a Doctor for my T1D !!!

      2 years ago Log in to Reply
    40. Diana L.

      It would depend on the reason for the appointment. If it is an amergency they will take me immediately. For a checkup, probably 3 months. I always schedule checkups avery 4 months

      2 years ago Log in to Reply
    41. ConnieT1D62

      Who knows??? I see a dynamite endocrine FNP, CDCES who is in much demand because she is so good. I have been with her for diabetes care for 20 years. I book a full year of appointments to see her q 3 months every June. It is extremely difficult to to get a next available appointment with her unless there happens to be a cancellation and you are on her cancellation call list. One time she was out for a family medical emergency and they assigned me to see a newly minted NP in her place who was a poor substitute filling in for her.

      2 years ago Log in to Reply
    42. T1D4LongTime

      My endo is very busy, but has always worked me into his schedule within a few days.

      2 years ago Log in to Reply

    If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be? Cancel reply

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