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    • 13 hours, 43 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 13 hours, 44 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 14 hours, 35 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 15 hours, 2 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 15 hours, 15 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 16 hours, 7 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 16 hours, 14 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 16 hours, 36 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 38 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 45 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 18 hours, 10 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 9 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 17 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    If you have peripheral neuropathy in your feet, do you take any medications to help manage it? Please share in the comments how you manage neuropathy pain.

    Home > LC Polls > If you have peripheral neuropathy in your feet, do you take any medications to help manage it? Please share in the comments how you manage neuropathy pain.
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    If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    30 Comments

    1. Wanacure

      I think my neuropathy symptoms manifest as lack of feeling, not pain, in my feet. This can contribute to falling. I probably should use a cane for better stability.

      2 months ago Log in to Reply
    2. Linda Pease

      I take meds and super b complex and magnesium to help

      2 months ago Log in to Reply
    3. Linda Pease

      Along with meds I take super b complex and magnesium to help

      2 months ago Log in to Reply
    4. Frederick Schulz

      I have had neuropathic pain in my feet, primarily, and lower legs for many years. I have been on various meds, as they have improved and my symptoms worsened seemingly. I am on a combination of pregabalin and duloxetine for several years, which has provided me with a total absence of pain, with occasional “break-through pain” , as I call it, incidents. These lapses occur every 2 to 3 months, without warning, are severe, in that they cause one leg or the other to basically collapse, so I often walk with a cane for the day or two that these incidents occur. But, thankfully, they are infrequent if an over the counter pain killer does not work, which they normally don’t, I will retreat to the use of oral morphine, every 4 hours. 2 or a maximum of 3 doses will stop the pain, but will also cause me to sleep and be constipated. In such situations, I am “ out of use” for a day.

      2
      1 month ago Log in to Reply
      1. Ahh Life

        Good description. And good advice as to what to do, even in “last resort” situations. 👍

        1 month ago Log in to Reply
    5. gary rind

      Used to have terrible neuropathy pain in my feet at time of diagnosis. Endo put me on gabapentin which did nothing but make me “dopey”. Started taking ALA (alpha lipoic acid) vitamins and the pain was gone in a week! Have been taking it for almost 20 years and the pain has never returned.

      2
      1 month ago Log in to Reply
    6. Melinda Lipe

      One of my feet has been developing numbness for years – no pain, no medication.

      1 month ago Log in to Reply
    7. BARRY HUNSINGER

      I think that I don was peripheral myopathy because I take a prescription called METANX. A prescription base b complex with a proprietary prescription component. I have been taking it for about 12-15 years.

      1
      1 month ago Log in to Reply
    8. TEH

      I don’t have pain in my feet but I have lost nerve feeling in my finger tips, two fingers on both hands… Go figure 🤔

      1 month ago Log in to Reply
    9. pru barry

      None of the several endocrinologists I’ve had over 70 years has ever mentioned using medications for neuropathy. I’ve mentioned it often in the recent past since it feels like being without legs, at this point, but the docs shrug, say there’s nothing to help. What does help is to keep walking, a lot, and I think it may have something to do with not letting those brain cells forget what it used to feel like. I think I owe as much to walking as I do to shots and pumps :^) It’s all good!

      2
      1 month ago Log in to Reply
    10. Lawrence S.

      I occasionally get neuropathy pain in my toes. However, over the years it has never developed into long-term pain. I believe that my running and constant aerobic exercise have prevented the neuropathy from developing. I watched my father go through years of horrendous neuropathy pain. Back then I decided to keep running, with hopes that it will prevent early onset. I think it is working.

      1 month ago Log in to Reply
    11. Joseph Tappel

      I do have peripheral neuropathy, I am currently participating in a clinical trail in which I have experienced 80% improvement. VMDN-003-2 to Assess Engensis

      1 month ago Log in to Reply
      1. Lynn Smith

        Thanks for sharing this info. I will keep a watch over if/when this drug makes it to market.

        1 month ago Log in to Reply
    12. Lynn Smith

      I have been T1D for 55 years. I began having some neuropathy symptoms probably 5 years ago. A year and a half ago it had progressed to numbness and tingling at night. My endo prescribed the Metanx that some have mentioned. I also have osteoarthritis that I inherited from both my parents. It had left me with bone on bone in my knees. So October of last year I had total knee replacement in my left knee. The post-op pain from that was very difficult to tolerate. In addition, for whatever reason, the neuropathy in my feet became much worse. Two months into post-op and very frustrated with the pain, my endo prescribed me gabapentin for the neuropathy. Not only did it help the neuropathy, but my knee pain decreased dramatically. My surgeon had to increase the dosage, but so far I am doing much better with my post-op pain management and my neuropathy. So for those of you who have painful neuropathy and osteoarthritis, you might give gabapentin a try. That said, I may try the alpha lipoic acid that was mentioned sometime in the future.

      1 month ago Log in to Reply
    13. Bob Durstenfeld

      I have autonomic neuropathy and some peripheral neuropathy in my thighs. I take a low dose of Gabapentin at night to sleep.

      1 month ago Log in to Reply
    14. Merry Woolsey

      I tried both lyrica and gabapenetin for a few years. Neither worked and on the highest dose I only had brain fog so bad I resigned from my job (RN working in admin). It took several months to figure out what was wrong and when I stopped taking it was 3 months before I felt better. I’ve also tried medical marijuana for about 1 year with no success. Finally tried a compound that has gabapenetin cream added which does help.

      2
      1 month ago Log in to Reply
    15. Sheri Marcus

      Never so bad that I had to take medication for it. Hot water soak seems to help some.

      1 month ago Log in to Reply
    16. Kathy Morison

      Yes I do have significant peripheral neuropathy in both my feet and my hands. But I do not take any pharmaceutical chemicals to help because the side effects just aren’t worth any help they might be. Currently I’m taking a mushroom blend that seems to be helping to keep things at bay and at the same time helps my immunity and brain health.

      1 month ago Log in to Reply
      1. Kathy Morison

        The thing I found to help the most though is cannabis oil or smoking cannabis for relieving the symptoms.

        1 month ago Log in to Reply
    17. Kristine Warmecke

      I tried gabapentin at one point; not good. I couldn’t function on it.

      1 month ago Log in to Reply
    18. StPetie

      I marked “…do not take medication…” I do, however take over the counter alpha lipoic acid. Since begining it 3 years ago, my neuropathy has stopped progressing. Big thanks to my podiatrist.

      1
      1 month ago Log in to Reply
    19. Pauline M Reynolds

      My foot neuropathy consists of what I call “the itch from hell”. While capsaisin lotion has helped, I usually just keep lightly massaging until it stops usually in 10 or so minutes. So I put “No”. Also, I feel blessed because all I can think of is “at least it’s not pain”.

      1 month ago Log in to Reply
    20. Sheri Marcus

      I have tingling and some numbness sometimes in my feet if I sit too long especially. Like at work I sit at a desk all day long. But not much pain so far thankfully.
      Although I do take gabapentin (Sorry spelling) I have a ruptured disk in my neck and back as well as handicap knees from a motorcycle accident when I was young. I am curious if it makes you gain weight. I have gained 20lbs since I have been taking it but have also been told it could be I have been through menopause and hormones cause hunger and weight gain too. I thought I would try not taking it and see if my hunger slowed down some because I stay hungry all the time and I have always been under weight never have I weighed this much. From 138 to now 157 in just 3-6 months since taking it. Hmmm!? and. I just keep gaining a pound or so at a time. Anyone else notice this with Gabapentin? I actually take Horizant which is Generic Name: Gabapentin enacarbil.

      1 month ago Log in to Reply
    21. AnitaS

      I have SLIGHT tingling in my feet, but it is so slight that I very rarely feel it and my feet have great sensation to stimuli.

      1 month ago Log in to Reply
    22. Sharon Gerdik

      My physiatrist put me on a medication after having a cervical spine ablation. After taking it for almost a year I didn’t think I was getting anything from it and I stated that to my PCP who confirmed I was no longer seeing the MD who prescribed it and he started weening me off it. While my dose was decreased, I started getting pain in my legs and feet and I realized that med was actually helping but in a different way. I’m now continuing the lesser dose unless the higher dose is needed.

      1 month ago Log in to Reply
    23. ConnieT1D62

      I have lived with peripheral neuropathy in my feet and hands for years. At this point I only experience peripheral numbness. About 20 years ago my PCP prescribed Neurontin, then Lyrica for the sharp stabbing pains and neither did anything except to mask the discomfort and make me feel so mentally clouded & stoned that I could barely function. The meds also did nothing to reverse the progression of the neuropathy so I stopped taking them. At this point I no longer experience any pain, just chronic numbness and I have learned to live with it by making functional adaptations as needed.

      1 month ago Log in to Reply
    24. Joan McGinnis

      I have had neuropathy for 13 yrs and i took Gabapentin for years which was helpful but as of about 3 yrs ao no longer find it painful and don’t take Gabapentin for that long. I do take B complex and Alpha lipoid acid and my neuropathy consists of numbness in feet and sometimes I wake with a little numbness in fingers but no pains. I also have very good sensation. Diabetes for 45 yrs within retinopathy or kidney disease.

      1 month ago Log in to Reply
      1. Joan McGinnis

        without retinopathy or kidney disease

        1 month ago Log in to Reply
    25. T1D4LongTime

      T1D 56 years. As a teenager (after 10 yrs T1D), I had horrible neuropathy in my feet. Felt like branding irons. Then all of a sudden, it disappeared and never came back.

      1 month ago Log in to Reply
    26. Kathryn Tippey

      My neurologist has me starting with a supplement called ALA. I have found research papers showing when combined with CoQ it can be even more effective.

      1 month ago Log in to Reply

    If you have peripheral neuropathy in your feet, do you take any medications to help manage it? Please share in the comments how you manage neuropathy pain. Cancel reply

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