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    • 17 minutes ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      Ten years ago when I first started seeing her I asked her to work with me as an equal partner in all treatment decisions. She agreed and made a definite effort at every appointment to maintain that commitment. That was a decade ago. Healthcare has changed dramatically along with her caseload. At my 90 day appointment next week I hope she will have the uninterrupted time to allow for an actual pro/con discussion on several issues.
    • 19 minutes ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 20 minutes ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 1 hour, 35 minutes ago
      ChrisW likes your comment at
      Do you check your blood glucose before driving a car?
      Kind of a bad question, “check” means what, CGM and meter both are used to “check” BG, so it would appear that 60%+ “check”. Maybe it should have been, “How do you check BG before driving?” To get a more specific assessment of the BG checking task.
    • 1 hour, 48 minutes ago
      ChrisW likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      She recommended having the latest incarnation of Glucagon on hand and Lantus pens in case I have a pump problem.
    • 4 hours, 33 minutes ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 4 hours, 34 minutes ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 5 hours, 14 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 5 hours, 20 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 5 hours, 20 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 5 hours, 44 minutes ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 5 hours, 44 minutes ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 6 hours, 22 minutes ago
      Vicki Andersen likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 7 hours, 6 minutes ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 7 hours, 7 minutes ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 7 hours, 8 minutes ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 16 hours, 14 minutes ago
      KarenM6 likes your comment at
      Do you live with depression or anxiety?
      Both. Been on medications for many years.
    • 16 hours, 14 minutes ago
      KarenM6 likes your comment at
      Do you live with depression or anxiety?
      I have both which are well managed with medication, lots of meditation and a focus on self compassion.
    • 23 hours, 17 minutes ago
      kilupx likes your comment at
      If you’ve used expired pump supplies (infusion sets, reservoirs, pods) in the past, did you have any issues with them?
      I don't believe I have ever used expired CGMs or pump supplies.
    • 23 hours, 18 minutes ago
      kilupx likes your comment at
      If you’ve used expired pump supplies (infusion sets, reservoirs, pods) in the past, did you have any issues with them?
      I have not use expired products.
    • 23 hours, 18 minutes ago
      kilupx likes your comment at
      If you’ve used expired pump supplies (infusion sets, reservoirs, pods) in the past, did you have any issues with them?
      I use a pump, but I haven't used expired pump supplies.
    • 1 day, 18 hours ago
      Sandy Norman likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      I put no since the only time I was admitted was at diagnosis. But would that count as a yes?
    • 2 days, 3 hours ago
      Gerald Oefelein likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      I said “No.” Perhaps I’m the luckiest person alive since I’ve navigated the diabetic road for 74 years. Have never had DKA, although symptomatic twice. Have had numerous hypoglycemic affairs, but no hospitalizations. I am also a bit determined. They may hospitalize me for dementia or other old age conditions. But not for T1D. ✨.•*¨*.¸.•*¨*.¸¸.•*¨`*• ¨*.¸.•*¨`*. ¸.•*¨*.¸¸.•*¨`*•.✨
    • 2 days, 3 hours ago
      Carl Robertson likes your comment at
      Do you “soak” or insert a new continuous glucose monitor (CGM) sensor before the old one expires?
      Yeah, somewhere between 1/2 to 12 hours ahead of time I insert a new G7 on the opposite arm. Only risk is -- and it's a big one -- I occasionally forget which is the new one and which is the old one. Sigh. ¯\_(ツ)_/¯?
    • 2 days, 6 hours ago
      TEH likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      Before CGMs, I had a severe insulin reaction. In a blackout I walked about half a mile and passed out, falling flat on my face. Woke up on an operating table where doctors were working on stopping the bleeding in my mouth and trying to save my front teeth. Was hospitalized for four days.
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    If you have peripheral neuropathy in your feet, do you take any medications to help manage it? Please share in the comments how you manage neuropathy pain.

    Home > LC Polls > If you have peripheral neuropathy in your feet, do you take any medications to help manage it? Please share in the comments how you manage neuropathy pain.
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    From which healthcare provider do you receive the majority of your diabetes care?

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    If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    30 Comments

    1. Wanacure

      I think my neuropathy symptoms manifest as lack of feeling, not pain, in my feet. This can contribute to falling. I probably should use a cane for better stability.

      2 years ago Log in to Reply
    2. Linda Pease

      I take meds and super b complex and magnesium to help

      2 years ago Log in to Reply
    3. Linda Pease

      Along with meds I take super b complex and magnesium to help

      2 years ago Log in to Reply
    4. Frederick Schulz

      I have had neuropathic pain in my feet, primarily, and lower legs for many years. I have been on various meds, as they have improved and my symptoms worsened seemingly. I am on a combination of pregabalin and duloxetine for several years, which has provided me with a total absence of pain, with occasional “break-through pain” , as I call it, incidents. These lapses occur every 2 to 3 months, without warning, are severe, in that they cause one leg or the other to basically collapse, so I often walk with a cane for the day or two that these incidents occur. But, thankfully, they are infrequent if an over the counter pain killer does not work, which they normally don’t, I will retreat to the use of oral morphine, every 4 hours. 2 or a maximum of 3 doses will stop the pain, but will also cause me to sleep and be constipated. In such situations, I am “ out of use” for a day.

      2
      2 years ago Log in to Reply
      1. Ahh Life

        Good description. And good advice as to what to do, even in “last resort” situations. 👍

        2 years ago Log in to Reply
    5. gary rind

      Used to have terrible neuropathy pain in my feet at time of diagnosis. Endo put me on gabapentin which did nothing but make me “dopey”. Started taking ALA (alpha lipoic acid) vitamins and the pain was gone in a week! Have been taking it for almost 20 years and the pain has never returned.

      2
      2 years ago Log in to Reply
    6. Melinda Lipe

      One of my feet has been developing numbness for years – no pain, no medication.

      2 years ago Log in to Reply
    7. BARRY HUNSINGER

      I think that I don was peripheral myopathy because I take a prescription called METANX. A prescription base b complex with a proprietary prescription component. I have been taking it for about 12-15 years.

      1
      2 years ago Log in to Reply
    8. TEH

      I don’t have pain in my feet but I have lost nerve feeling in my finger tips, two fingers on both hands… Go figure 🤔

      2 years ago Log in to Reply
    9. pru barry

      None of the several endocrinologists I’ve had over 70 years has ever mentioned using medications for neuropathy. I’ve mentioned it often in the recent past since it feels like being without legs, at this point, but the docs shrug, say there’s nothing to help. What does help is to keep walking, a lot, and I think it may have something to do with not letting those brain cells forget what it used to feel like. I think I owe as much to walking as I do to shots and pumps :^) It’s all good!

      2
      2 years ago Log in to Reply
    10. Lawrence S.

      I occasionally get neuropathy pain in my toes. However, over the years it has never developed into long-term pain. I believe that my running and constant aerobic exercise have prevented the neuropathy from developing. I watched my father go through years of horrendous neuropathy pain. Back then I decided to keep running, with hopes that it will prevent early onset. I think it is working.

      2 years ago Log in to Reply
    11. Joseph Tappel

      I do have peripheral neuropathy, I am currently participating in a clinical trail in which I have experienced 80% improvement. VMDN-003-2 to Assess Engensis

      2 years ago Log in to Reply
      1. Lynn Smith

        Thanks for sharing this info. I will keep a watch over if/when this drug makes it to market.

        2 years ago Log in to Reply
    12. Lynn Smith

      I have been T1D for 55 years. I began having some neuropathy symptoms probably 5 years ago. A year and a half ago it had progressed to numbness and tingling at night. My endo prescribed the Metanx that some have mentioned. I also have osteoarthritis that I inherited from both my parents. It had left me with bone on bone in my knees. So October of last year I had total knee replacement in my left knee. The post-op pain from that was very difficult to tolerate. In addition, for whatever reason, the neuropathy in my feet became much worse. Two months into post-op and very frustrated with the pain, my endo prescribed me gabapentin for the neuropathy. Not only did it help the neuropathy, but my knee pain decreased dramatically. My surgeon had to increase the dosage, but so far I am doing much better with my post-op pain management and my neuropathy. So for those of you who have painful neuropathy and osteoarthritis, you might give gabapentin a try. That said, I may try the alpha lipoic acid that was mentioned sometime in the future.

      2 years ago Log in to Reply
    13. Bob Durstenfeld

      I have autonomic neuropathy and some peripheral neuropathy in my thighs. I take a low dose of Gabapentin at night to sleep.

      2 years ago Log in to Reply
    14. Merry Woolsey

      I tried both lyrica and gabapenetin for a few years. Neither worked and on the highest dose I only had brain fog so bad I resigned from my job (RN working in admin). It took several months to figure out what was wrong and when I stopped taking it was 3 months before I felt better. I’ve also tried medical marijuana for about 1 year with no success. Finally tried a compound that has gabapenetin cream added which does help.

      2
      2 years ago Log in to Reply
    15. Sheri Marcus

      Never so bad that I had to take medication for it. Hot water soak seems to help some.

      2 years ago Log in to Reply
    16. Kathy Morison

      Yes I do have significant peripheral neuropathy in both my feet and my hands. But I do not take any pharmaceutical chemicals to help because the side effects just aren’t worth any help they might be. Currently I’m taking a mushroom blend that seems to be helping to keep things at bay and at the same time helps my immunity and brain health.

      2 years ago Log in to Reply
      1. Kathy Morison

        The thing I found to help the most though is cannabis oil or smoking cannabis for relieving the symptoms.

        2 years ago Log in to Reply
    17. Kristine Warmecke

      I tried gabapentin at one point; not good. I couldn’t function on it.

      2 years ago Log in to Reply
    18. StPetie

      I marked “…do not take medication…” I do, however take over the counter alpha lipoic acid. Since begining it 3 years ago, my neuropathy has stopped progressing. Big thanks to my podiatrist.

      1
      2 years ago Log in to Reply
    19. Pauline M Reynolds

      My foot neuropathy consists of what I call “the itch from hell”. While capsaisin lotion has helped, I usually just keep lightly massaging until it stops usually in 10 or so minutes. So I put “No”. Also, I feel blessed because all I can think of is “at least it’s not pain”.

      2 years ago Log in to Reply
    20. Sheri Marcus

      I have tingling and some numbness sometimes in my feet if I sit too long especially. Like at work I sit at a desk all day long. But not much pain so far thankfully.
      Although I do take gabapentin (Sorry spelling) I have a ruptured disk in my neck and back as well as handicap knees from a motorcycle accident when I was young. I am curious if it makes you gain weight. I have gained 20lbs since I have been taking it but have also been told it could be I have been through menopause and hormones cause hunger and weight gain too. I thought I would try not taking it and see if my hunger slowed down some because I stay hungry all the time and I have always been under weight never have I weighed this much. From 138 to now 157 in just 3-6 months since taking it. Hmmm!? and. I just keep gaining a pound or so at a time. Anyone else notice this with Gabapentin? I actually take Horizant which is Generic Name: Gabapentin enacarbil.

      2 years ago Log in to Reply
    21. AnitaS

      I have SLIGHT tingling in my feet, but it is so slight that I very rarely feel it and my feet have great sensation to stimuli.

      2 years ago Log in to Reply
    22. Sharon Gerdik

      My physiatrist put me on a medication after having a cervical spine ablation. After taking it for almost a year I didn’t think I was getting anything from it and I stated that to my PCP who confirmed I was no longer seeing the MD who prescribed it and he started weening me off it. While my dose was decreased, I started getting pain in my legs and feet and I realized that med was actually helping but in a different way. I’m now continuing the lesser dose unless the higher dose is needed.

      2 years ago Log in to Reply
    23. ConnieT1D62

      I have lived with peripheral neuropathy in my feet and hands for years. At this point I only experience peripheral numbness. About 20 years ago my PCP prescribed Neurontin, then Lyrica for the sharp stabbing pains and neither did anything except to mask the discomfort and make me feel so mentally clouded & stoned that I could barely function. The meds also did nothing to reverse the progression of the neuropathy so I stopped taking them. At this point I no longer experience any pain, just chronic numbness and I have learned to live with it by making functional adaptations as needed.

      2 years ago Log in to Reply
    24. Joan McGinnis

      I have had neuropathy for 13 yrs and i took Gabapentin for years which was helpful but as of about 3 yrs ao no longer find it painful and don’t take Gabapentin for that long. I do take B complex and Alpha lipoid acid and my neuropathy consists of numbness in feet and sometimes I wake with a little numbness in fingers but no pains. I also have very good sensation. Diabetes for 45 yrs within retinopathy or kidney disease.

      2 years ago Log in to Reply
      1. Joan McGinnis

        without retinopathy or kidney disease

        2 years ago Log in to Reply
    25. T1D4LongTime

      T1D 56 years. As a teenager (after 10 yrs T1D), I had horrible neuropathy in my feet. Felt like branding irons. Then all of a sudden, it disappeared and never came back.

      2 years ago Log in to Reply
    26. Kathryn Tippey

      My neurologist has me starting with a supplement called ALA. I have found research papers showing when combined with CoQ it can be even more effective.

      2 years ago Log in to Reply

    If you have peripheral neuropathy in your feet, do you take any medications to help manage it? Please share in the comments how you manage neuropathy pain. Cancel reply

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