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    • 3 hours, 54 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 3 hours, 54 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 5 hours, 50 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 6 hours, 6 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 17 hours, 17 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 5 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 21 hours, 8 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 50 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 21 hours, 50 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 21 hours, 52 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 21 hours, 57 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 58 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 22 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 22 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 22 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 22 hours, 36 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 22 hours, 47 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 22 hours, 59 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 23 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
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    If you were diagnosed with T1D as an adult, on a scale of 1-5, how easy or difficult was it to find an endocrinology clinic near you? (1 = the easiest, 5 = the most difficult)

    Home > LC Polls > If you were diagnosed with T1D as an adult, on a scale of 1-5, how easy or difficult was it to find an endocrinology clinic near you? (1 = the easiest, 5 = the most difficult)
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    For caregivers of children with T1D, do you have any special accommodations available from your child’s school? For adults with T1D, did you have special accommodations when you were in school?

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    Sarah Howard

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    47 Comments

    1. Anthony Harder

      I was diagnosed w T1D when I was 7 years old in 1965. Depending on where I live and employer insurance, sometimes the availability of an endocrinologist is difficult.

      1 year ago Log in to Reply
    2. Ahh Life

      N/A as I was Rx’d in 1951. May’ve been only 1 or 2 “Endocrine Clinics” in the entire country at that time. ĀÆ\_( Ķ”ā›ā€ÆĶœŹ– Ķ”ā›)_/ĀÆ

      1 year ago Log in to Reply
      1. Mary Dexter

        Finding an endocrinologist is difficult. Finding one whose mind can embrace the concept of an adult having autoimmune diabetes rather than automatically assuming it is T2, or like T2, or like a T1 without any functioning beta cells? To find someone willing to deal with my reality? Nigh impossible. The mantras of the false dichotomy and the boilerplate “obesity related” drown everything out.

        1 year ago Log in to Reply
      2. n6jax@scinternet.net

        Yes, I never heard of such a place back then !!

        1 year ago Log in to Reply
    3. Chris Albright

      You would think that a town/city of 145k residents would have more than one endocrinologist… Needless to say with only one endo in town, appointment scheduling is a little crowded….

      1
      1 year ago Log in to Reply
    4. GLORIA MILLER

      I was seven when I was diagnosed so the question doesn’t apply to me. There are several endos in my city of about 200,000 but still it is difficult to find one accepting new patients!

      1 year ago Log in to Reply
    5. ConnieT1D62

      Other. I was dx’d as a child at age 8 and I was treated by Internal Medicine doctors in the places I lived during childhood, teen, and college years. I did not see an endocrinologist for diabetes care until age 24.

      1 year ago Log in to Reply
    6. Lawrence S.

      I chose #3. I guess it depends upon how you determine what is difficult. I don’t remember for sure when I discovered what an Endocrinologist is.
      I became a diabetic in 1977, and met my first Endocrinologist in 1986, when I went to the Joslin Clinic in Boston. At that time, I was living in northeastern New York, Adirondack mountains. The closest Endocrinologists to me was either Burlington, Vt, about 2 hrs away, or Syracuse, NY about 5 hours away. I chose Syracuse because is was the Joslin Clinic. Also, I don’t remember whether at that time Burlington Vt had an endocrinologist, or whether I was aware of it. Going to see the Endocrinologist became a full day trip, sometimes staying over night, sometimes starting at 5 am, and getting home at night. I did that from about 1987 through 2012.

      1 year ago Log in to Reply
    7. TomH

      You would think in Northern VA/DC there would be no problem finding a highly recommended Endo, PA, NP wouldn’t be a problem. Of the list of Endocrinologists my PCP provided, 2 had quit practice, 3 didn’t take Medicare/Tricare, and 2 weren’t taking new patients. I learned finding a doc is easy, finding a highly recommended doc that is a good fit is a chore. I’m still looking for one relatively nearby and a good fit for my outlook on treatment, have another appointment this week; I’m hoping he works out!

      1 year ago Log in to Reply
      1. Tina Roberts

        I have tricare as well. Got lucky that UT Southwestern takes it!!

        1 year ago Log in to Reply
    8. Eve Rabbiner

      Diagnosed at a teaching hospital with endo and CDE, an educator, not an actual diabetes clinic. Had wonderful care.

      1 year ago Log in to Reply
    9. StPetie

      The hospital I was diagnosed in operates a Diabetes Center. It’s staffed with diabetes educators, nurses and nutritionists. It is medically overseen by my endo. So for me it was just part of the natural process of getting t1d.

      1 year ago Log in to Reply
    10. Joan McGinnis

      If you live in a city with a medical school not difficult

      1 year ago Log in to Reply
      1. Mary Dexter

        Not necessarily. The doctors who have insisted I couldn’t possibly be anything but T2 have always prefaced the comment with “and I teach at the University of Wisconsin medical school. “

        1 year ago Log in to Reply
      2. Tina Roberts

        Yes! I’ve ended up going to UT Southwestern and I love it.

        1 year ago Log in to Reply
    11. Louise Robinson

      When I was diagnosed in 1976, I lived near a major metropolitan area and had no problem finding an endocrinology clinic and diabetes experts nearby. When I retired to semi-rural Florida nearly 20 years ago, I discovered there were no board-certified endocrinologists in my County. That is still true. I have been travelling 25 miles to visit the nearest endo in the next county. I have repeatedly struggled with this endo’s office to obtain the detailed case notes that Medicare requires for increased test strips (preCGM) and now increased pump supply frequency due to insulin absorption issues that began to surface last June. I have been trying since July to get that frequency changed from every 3 days to every 2.5 days so I don’t run out of pump supplies. Although he wrote the RX for increased site frequency, his clinical notes have not provided the supporting documentation to obtain Medicare’s approval. I’ve elected to change endo (to a multi-endo practice 45 miles away) but the earliest appointment I could get is Feb 22, 2022. I’ll keep my early February appointment with my current endo to assure Medicare will still pay for my pump supplies (must be seen every 90 days per Medicare guidelines) and continue to work with his office in the interim in an attempt to obtain Medicare approval for more frequent site changes. If I lived in a more urban area, I would have more options for more Medicare-savvy endos that could help me maintain my previous good control.

      1 year ago Log in to Reply
    12. persevereT1D52

      I have never found an endo that helped. It was always a conveyor belt type situation. I prefer to see a CDE for an hour and PC for scripts and labs

      1
      1 year ago Log in to Reply
    13. james zellerhoff

      Was extremely blessed
      Went right away to the Wash State UW Diabetic care center Dr Irl Hirsch is my endo
      One of the best Diabeticion DRs anywhere
      Diagnosed as LADA & do research programs at the same facility for the last 20 years

      1
      1 year ago Log in to Reply
      1. Sue Martin

        I’ve been going to the UW DCC as well for the last 25 years. It is a great clinic and the whole UW Medical Center has provided world-class care for many of my health issues.

        1 year ago Log in to Reply
      2. Kristine Warmecke

        I saw Dr. Ira Hirsch when he was a fellow at Washington University School of Medicine St. Louis and did several research studies with him. He is fabulous.

        1 year ago Log in to Reply
    14. Maureen Helinski

      It was 1983 and I suddenly couldn’t see the students in the back of the classroom, lost weight, drank water from the shower etc. My daughter had a biology course where she learned about diabetes and said mom, this is it. After a urine strip test I had to find a doctor immediately not in six months. Dr. Hsu from Hopkins saw me at his office at 10 PM. The next day he gave me insulin. I felt he saved my life.

      1 year ago Log in to Reply
    15. Mary Dexter

      https://care.diabetesjournals.org/content/44/11/2449

      1 year ago Log in to Reply
      1. Mary Dexter

        We are the majority

        1 year ago Log in to Reply
    16. Bob Durstenfeld

      I was diagnosed as an infant, but it was still hard to find an endocrinologist near by, the one I see now is 30 miles away.

      1 year ago Log in to Reply
      1. n6jax@scinternet.net

        what is your age now ?

        1 year ago Log in to Reply
    17. Natalie Daley

      T1D was my 40th birthday present after a five-hour fasting glucose test that ranged 35-350. My GP put me on an 1100 calorie/day diet. I lost 35 lb in a few weeks: I was 145 when I started. Five years later, my annual A1C was 12, and he sent me to another doctor, who said he had no idea what to do. The nurse overheard, and I as I left in tears figuring I was going to die, she said there’s a doctor at OHSU who can help. I’ve been seeing him every 3-4 months for 30 years. It’s a 186 mile round trip and is a carefully calendared event. He is the head of endocrinology at a teaching hospital. I don’t know what I’ll do when he retires in two years.

      1 year ago Log in to Reply
    18. M Fedor

      Couldn’t have been easier-The clinic was in the building where I worked. A diabetic colleague diagnosed me with his own blood sugar meter and I was able to be seen in the clinic the next day. I was very lucky!

      1 year ago Log in to Reply
    19. Kristine Warmecke

      NA for me. Dx at age 11 in 1982. It will be 40 years this coming January. I was kicked out of the pediatric diabetes clinic after my first year of nursing school.

      1 year ago Log in to Reply
    20. Tina Roberts

      Easy. Dallas and Fort Worth have many to choose from thank goodness.

      1 year ago Log in to Reply
    21. Dorian Dowell

      In 1975 I hardly knew what T1D was, except a PITA. The HMO I belonged to at the time supplied the necessary medical care. It didn’t seem as in depth as it does now.

      1 year ago Log in to Reply
    22. Carol Meares

      I had a regular internist who specialized in cancer for 20 years. I live in Alaska. The nearest Endo was probably 6 hours away although probably visited our town which I never heard about. When I moved I found out about an Endo who traveled to where I live, by chance. He put me on a pump and CGM.

      1 year ago Log in to Reply
      1. Carol Meares

        My diabetes education came out of the public library and a diabetes ā€œnewspaperā€ to which I subscribed that came out of California.

        1
        1 year ago Log in to Reply
    23. George Hamilton

      I lived in small communities most of my adult life. No endocrinologists anywhere nearby. Most of that time, people had never heard of an endocrinologist.

      1 year ago Log in to Reply
    24. Annie Wall

      When I was diagnosed at age 32, there were no endocrinologists in town and I simply stayed with my GP, so I answered #5. However, if I were to answer this upon diagnosis today, I would say #1 because there are two in town and they are both great. I have been with my endo for over 25 years and feel so fortunate to have him as my primary doc.

      1
      1 year ago Log in to Reply
    25. Kim Murphy

      I said 5 but there wasn’t one 36 years ago and there still isn’t one in Anchorage Alaska.

      1 year ago Log in to Reply
    26. Chrisanda

      I was diagnosed at 40, first with T2, and was treated by my PC. I got frustrated with the lack of control I was achieving, and asked for a referral to an endo. That was easy-the hard part was driving the 30 miles into DC to (then) Walter Reed Hospital with the crazy DC traffic! (You may have guessed we were military). She diagnosed me with LADA. Then I was able to transfer to the (military) Diabetes NP who has office hours in the local military clinic, and I’ve been set since. I moved to a more rural community 4 years ago, and there is one endo. Luckily, she has a NP that takes most of the diabetes patients. I’ve been very pleased.

      1 year ago Log in to Reply
    27. Sue Herflicker

      I can’t say near me. I drive 1.5 hours to Philadelphia to the U of PA. I don’t care for the endocrinologist in my area. It was very easy, since I already had a connection out there with my 2 sons.

      1 year ago Log in to Reply
    28. Steve Rumble

      Appointments are made through my HMO.

      1 year ago Log in to Reply
    29. Pauline M Reynolds

      When I was diagnosed 39 years ago, I lived in the Northeast megalopolis and had my pick of endos. But since, I spent 10 years in north country NY, and had to travel 45 min. to nearest one.

      1 year ago Log in to Reply
    30. Molly Jones

      After my dx at thirty, the Endo clinic I was referred to was a mile away from my house. I eventually decided to have all my different doctors within the same University hospital and had no problem finding an Endo clinic there, about twenty minutes from my house. It was quite easy and I could change it again easily if desired in this metro area with many many hospitals.

      1 year ago Log in to Reply
    31. William Bennett

      I was covered under university HMO-style health plans after dx at age 28, and they all basically refused to give me a referral to an endocrinologist. It was only after changing jobs and with that to a private insurer that I finally, FINALLY got a referral to Joslin. How long? TWENTY YEARS. So yeah, I guess you’d say it was difficult–not the finding but the getting access.

      1 year ago Log in to Reply
    32. TEH

      My GP dx-ed me. He treated me for 5 years. After waking up in the ER for the 3rd time with low BG, I demanded a referral to an endo. I was referred to a Doc I didn’t like. About 18 months later I found a much better one closer to home. When I retired I was able to find a good Endo, but 30 miles from home. So, I clicked.on 3.

      1 year ago Log in to Reply
    33. Patricia Dalrymple

      I picked 5 not because an Endo was far away but because I called 4 and pleaded but they all said they couldn’t take new patients. A friend got me into her mother’s because someone cancelled an appointment.

      1 year ago Log in to Reply
    34. Patricia Kilwein

      I was already seeing an endocrinologist because I was diagnosed T2D before being diagnosed as T1D

      1 year ago Log in to Reply
    35. LizB

      I was a 19 years college student when I was diagnosed and had no insurance. In 1987 I had no way of getting insurance on my own, so I didn’t even look for an endocrinologist. I actually didn’t see ANY doctor for the first 10-11 years after diagnosis because I couldn’t afford to pay out of pocket. I was approved for temporary Medicaid while in the hospital but it ran out after 3 months and they said I was no eligible to keep it because I lived at home.

      I did see the pediatric endocrinologist (I was 19 but they still had me in the children’s ward) who treated me in the hospital one time after I was discharged so I know there were options nearby.

      1 year ago Log in to Reply
    36. KCR

      I was diagnosed DKA and really wasn’t in good mental shape to choose where to go for treatment. There is only 1 endocrinology clinic in our town and in hindsight that is where I should have gone. But because my internist correctly identified me as Type 1/LADA, I opted to continue my treatment with that practice. Unfortunately, I did not get much help in adjusting and administering insulin doses and learning about all the basic practices and the pitfalls associated with diabetes management.

      1 year ago Log in to Reply
    37. n6jax@scinternet.net

      I don’t think there was such a place 68 years ago !!

      1 year ago Log in to Reply

    If you were diagnosed with T1D as an adult, on a scale of 1-5, how easy or difficult was it to find an endocrinology clinic near you? (1 = the easiest, 5 = the most difficult) Cancel reply

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