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    • 1 hour, 7 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 hour, 8 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 hour, 9 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 hour, 51 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 3 hours, 14 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 11 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 20 hours, 34 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 20 hours, 36 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 20 hours, 37 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 20 hours, 38 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 20 hours, 46 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 38 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 22 hours, 39 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 22 hours, 41 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 4 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 6 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
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    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.

    Home > LC Polls > If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
    Previous

    During your most recent appointment, about how much time did you spend with your main T1D health care provider?

    Next

    If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    40 Comments

    1. jo

      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).

      2
      3 years ago Log in to Reply
    2. Lawrence S.

      I have never known anyone to give extra supplies to. I’m also a little leery of getting in trouble with the insurance companies that paid for the supplies., Or the legal ramifications of giving medical equipment or supplies to someone without a prescription.

      2
      3 years ago Log in to Reply
    3. Julie Blehm

      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage

      1
      3 years ago Log in to Reply
    4. Mick Martin

      I gave “leftover supplies” to the Diabetes Centre that I attend as it is they, via our NHS (National Health Service), which pays for them. I KNOW that they use them as I’ve been approached by DSNs (Diabetes Specialist Nurses) when I’ve attended clinic to see if I have “extra supplies” with me as I normally carry a few set changes, etc. with me.

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        This is the way it should be. Your system is so far ahead of ours in many ways.

        1
        3 years ago Log in to Reply
      2. Mick Martin

        @Lawrence S.

        That’s very debateable, sir. Supplies have to be paid for by someone. i.e. via our NHS (National Health Service) in the UK (United Kingdom of Great Britain and Northern Ireland), which is financed via direct taxation of all working people, or by individuals, either ‘out of pocket’ or via your Health System, which I grant you, DOES leave some people at a disadvantage. (SOME might argue that our system ‘goes against’ fit and healthy people who MIGHT resent having to pay to keep others alive. Sadly, I’ve written to people in the United States in the past, via email, that are no longer with us as they couldn’t afford insulin.)

        1
        3 years ago Log in to Reply
      3. Lawrence S.

        Mick,
        It’s not a debate for me. For example, I live in a community with lots of amenities, 95% of which I do not use. I still have to pay my monthly HOA fees, and annual CDD fees. I don’t mind a bit paying for those amenities that I don’t use. It’s just part of our community. Regarding taxes. We Americans regard paying taxes as negative, hurtful thing. I do not see it that way. I see taxes as a contribution toward making our society better (including healthcare). While I do not use most of those benefits, I get some of those benefits.

        3 years ago Log in to Reply
    5. Kris Sykes-David

      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?

      2
      3 years ago Log in to Reply
    6. George Lovelace

      Check with your Endo aas they can accept and distribute Supplies legally

      3 years ago Log in to Reply
    7. T1diabetic

      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.

      1
      3 years ago Log in to Reply
    8. LizB

      I just switched from Medtronic 770g to Tandem/Dexcom and I was amazed at how many Medtronic supplies I had when I was trying to get them out of the way. I don’t want to just throw them away but it’s hard finding someone to give them to. Most social media groups won’t allow you to post about them and I understand why that is. I definitely will hold onto some just in case I have an issue with my current pump and need to go back to my old one while waiting for a replacement, but I don’t need as much as I have.

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        A familiar story. I’ve been holding onto my old Medtronic supplies for ten to twenty years. They’re still sitting in the closet.

        1
        3 years ago Log in to Reply
    9. Eva

      I sent them back to the manufacturer to let them dispose of it.

      3 years ago Log in to Reply
    10. Sue Martin

      I’m still looking for someone to give them to.

      1
      3 years ago Log in to Reply
    11. Carl Robertson

      Took them to my CDE’s office to hand out as samples or spares

      3 years ago Log in to Reply
    12. Jane Cerullo

      I give them to my Endo and they give to patients who need them

      3 years ago Log in to Reply
    13. Keira Thurheimer

      I often take extra supplies to my endocrinologist’s office. They use them for educational purposes.

      3 years ago Log in to Reply
    14. fletchina

      I would love to learn of places to give/donate supplies!

      2
      3 years ago Log in to Reply
    15. Janis Senungetuk

      First I asked my CDE if she could find patients who needed them. She said she wasn’t permitted to do that. I asked on several Facebook groups and connected with people who paid for shipping. Just did that with the last of my Animus pump supplies. I’ve also sent supplies to Insulin for Life in Florida, but the shipping costs are very high, can’t do that anymore.

      1
      3 years ago Log in to Reply
    16. GLORIA MILLER

      I gave supplies to the homeless shelter in town once and the last time I gave my supplies to my endo’s office to give to the poor who can’t afford such things.

      3 years ago Log in to Reply
    17. rick phillips

      I have decided to give them to my endo’s office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.

      3
      3 years ago Log in to Reply
    18. Steve Rumble

      I have not had significant amounts of extra supplies, so it hasn’t really been an issue.

      3 years ago Log in to Reply
    19. Bob Durstenfeld

      InsulinPumpers.com does a great job of distributing supplies to those in need.

      3
      3 years ago Log in to Reply
      1. TS

        I tried to find this website but it says it doesn’t exist?

        3 years ago Log in to Reply
      2. Sasha Wooldridge

        Found it! http://www.insulin-pumpers.org/

        3 years ago Log in to Reply
    20. Amanda Barras

      If can’t can’t find someone online to take them I keep them until they expire and then throw them. Just in case.

      3 years ago Log in to Reply
    21. Karen Tay

      My other was gave them to the Endocrinologist office to give to people who needed them

      1
      3 years ago Log in to Reply
    22. William Bennett

      My personal Zombie Apocalypse Emergency Stash has never met an oversupply it didn’t like. Even for stuff I don’t use anymore. Because you never know…..

      3 years ago Log in to Reply
    23. Jennifer Wilson

      I gave them to my endocrinologist office to offer to patients in need.

      3 years ago Log in to Reply
    24. Samantha Hunter

      I have a whole big box of Medtronic supplies I wasn’t able to donate because I switched to omniPod during the pandemic, including a pump. If anyone needs it please contact me!

      3 years ago Log in to Reply
    25. StPetie

      Tried to give them to a local support group but couldn’t get a call back. So I kept them as back ups.

      3 years ago Log in to Reply
    26. Patricia Van Fleet

      I gave mine to a friend for her cat.

      3 years ago Log in to Reply
    27. Chris Albright

      Donated some to my endo (all unopened and currently still shipping by mfg) and kept some in the event my current pump fails and I need a temp ‘stand-in’ until warranty replacement is received

      3 years ago Log in to Reply
    28. TS

      I have a whole slew of old Medtronic pump supplies and have no idea what to do with them. I have asked my endos and they don’t know either. I would love to see any suggestions!

      3 years ago Log in to Reply
    29. Becky Hertz

      Donated to my endos office.

      3 years ago Log in to Reply
    30. Donna Condi

      I was going to a support group run by a nurse in the endocrinologist department at one of the hospitals and I gave them to her to pass along to patients who could use them.

      3 years ago Log in to Reply
    31. Diana L.

      When I changed to Tslim after using Medtronics pump,. I had a lot of extras. I gave some to a local TD! group but I could not find a place to donate the rest. After a few months I just put them in the garbage.

      3 years ago Log in to Reply
    32. T1D4LongTime

      I donated supplies to CR3 Diabetes Association.

      3 years ago Log in to Reply
    33. PamK

      I probably should have checked both “Donated to an organization,” and “Gave them to a friend…” because I did give some items to family/friends who could use them.

      3 years ago Log in to Reply
    34. Bea Anderson

      Kept. Recently I had trouble with prescription for Omnipod 5 from provider. Got rejection from pharmacy/Medicare. Ran out of pods and prepared to fire up Medtronic pump in desperation. He inadvertently did refill for Omnipod 5 starter kit. I was desperate, worried, sad. Pharmacy didn’t say what mistake was. Dr office nurse didn’t catch difference and defended all was ok on there end. Finally provider got involved and realized his mistake. Horrible situation. I did ask provider to call me and apologize. Nurse said it was just a human mistake. I replied when humans make mistakes they apologize. He did call and I was grateful for resolution. I really need to learn how and have on hand injection method to give shots in emergency, and that’s on me!!

      3 years ago Log in to Reply

    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply. Cancel reply

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