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    • 7 hours, 35 minutes ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 8 hours, 25 minutes ago
      Mick Martin likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 9 hours, 21 minutes ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 10 hours, 4 minutes ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 10 hours, 24 minutes ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 10 hours, 55 minutes ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 11 hours ago
      KCR likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 11 hours, 54 minutes ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 11 hours, 56 minutes ago
      Chrisanda likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 12 hours, 24 minutes ago
      Gary Rind likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 12 hours, 33 minutes ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 12 hours, 38 minutes ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 23 hours, 54 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 23 hours, 54 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 23 hours, 54 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 1 day, 4 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 1 day, 4 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 1 day, 21 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 1 day, 21 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 2 days, 4 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I am rough on insulin pumps and cracked 2 minimed pump cases. I found the bare T:slim pump too slippery. I use the MEDmax silicone case. I put that in a AGOZ case with a belp clip. But I don't like the clip. It's too sharp and too stif. Looking for a belt for night time use.
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I use the Tandem provided case and added a gorilla glass screen protector. I wear it on my belt in an pouch.
    • 2 days, 7 hours ago
      lis be likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 2 days, 8 hours ago
      Karen Tay likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      No. I hate the clip on the case that came with my Tandem pump. I bought a couple of other cases, including Type 1 Tactical, and hate the bulk and the awful clips. I just stick the pump in my pocket and it's fine. At night I do use one of the other cases, from Type 1 Secura, because I can keep it clipped to my undies and easily slide the pump in/out if I have to look at it during the night.
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    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.

    Home > LC Polls > If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
    Previous

    During your most recent appointment, about how much time did you spend with your main T1D health care provider?

    Next

    If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    40 Comments

    1. jo

      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).

      2
      6 months ago Log in to Reply
    2. Lawrence S.

      I have never known anyone to give extra supplies to. I’m also a little leery of getting in trouble with the insurance companies that paid for the supplies., Or the legal ramifications of giving medical equipment or supplies to someone without a prescription.

      2
      6 months ago Log in to Reply
    3. Julie Blehm

      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage

      1
      6 months ago Log in to Reply
    4. Mick Martin

      I gave “leftover supplies” to the Diabetes Centre that I attend as it is they, via our NHS (National Health Service), which pays for them. I KNOW that they use them as I’ve been approached by DSNs (Diabetes Specialist Nurses) when I’ve attended clinic to see if I have “extra supplies” with me as I normally carry a few set changes, etc. with me.

      1
      6 months ago Log in to Reply
      1. Lawrence S.

        This is the way it should be. Your system is so far ahead of ours in many ways.

        1
        6 months ago Log in to Reply
      2. Mick Martin

        @Lawrence S.

        That’s very debateable, sir. Supplies have to be paid for by someone. i.e. via our NHS (National Health Service) in the UK (United Kingdom of Great Britain and Northern Ireland), which is financed via direct taxation of all working people, or by individuals, either ‘out of pocket’ or via your Health System, which I grant you, DOES leave some people at a disadvantage. (SOME might argue that our system ‘goes against’ fit and healthy people who MIGHT resent having to pay to keep others alive. Sadly, I’ve written to people in the United States in the past, via email, that are no longer with us as they couldn’t afford insulin.)

        1
        6 months ago Log in to Reply
      3. Lawrence S.

        Mick,
        It’s not a debate for me. For example, I live in a community with lots of amenities, 95% of which I do not use. I still have to pay my monthly HOA fees, and annual CDD fees. I don’t mind a bit paying for those amenities that I don’t use. It’s just part of our community. Regarding taxes. We Americans regard paying taxes as negative, hurtful thing. I do not see it that way. I see taxes as a contribution toward making our society better (including healthcare). While I do not use most of those benefits, I get some of those benefits.

        6 months ago Log in to Reply
    5. Kris Sykes-David

      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?

      2
      6 months ago Log in to Reply
    6. George Lovelace

      Check with your Endo aas they can accept and distribute Supplies legally

      6 months ago Log in to Reply
    7. T1diabetic

      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.

      1
      6 months ago Log in to Reply
    8. LizB

      I just switched from Medtronic 770g to Tandem/Dexcom and I was amazed at how many Medtronic supplies I had when I was trying to get them out of the way. I don’t want to just throw them away but it’s hard finding someone to give them to. Most social media groups won’t allow you to post about them and I understand why that is. I definitely will hold onto some just in case I have an issue with my current pump and need to go back to my old one while waiting for a replacement, but I don’t need as much as I have.

      1
      6 months ago Log in to Reply
      1. Lawrence S.

        A familiar story. I’ve been holding onto my old Medtronic supplies for ten to twenty years. They’re still sitting in the closet.

        1
        6 months ago Log in to Reply
    9. Eva

      I sent them back to the manufacturer to let them dispose of it.

      6 months ago Log in to Reply
    10. Sue Martin

      I’m still looking for someone to give them to.

      1
      6 months ago Log in to Reply
    11. Carl Robertson

      Took them to my CDE’s office to hand out as samples or spares

      6 months ago Log in to Reply
    12. Jane Cerullo

      I give them to my Endo and they give to patients who need them

      6 months ago Log in to Reply
    13. Keira Thurheimer

      I often take extra supplies to my endocrinologist’s office. They use them for educational purposes.

      6 months ago Log in to Reply
    14. fletchina

      I would love to learn of places to give/donate supplies!

      2
      6 months ago Log in to Reply
    15. Janis Senungetuk

      First I asked my CDE if she could find patients who needed them. She said she wasn’t permitted to do that. I asked on several Facebook groups and connected with people who paid for shipping. Just did that with the last of my Animus pump supplies. I’ve also sent supplies to Insulin for Life in Florida, but the shipping costs are very high, can’t do that anymore.

      1
      6 months ago Log in to Reply
    16. GLORIA MILLER

      I gave supplies to the homeless shelter in town once and the last time I gave my supplies to my endo’s office to give to the poor who can’t afford such things.

      6 months ago Log in to Reply
    17. rick phillips

      I have decided to give them to my endo’s office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.

      3
      6 months ago Log in to Reply
    18. Steve Rumble

      I have not had significant amounts of extra supplies, so it hasn’t really been an issue.

      6 months ago Log in to Reply
    19. Bob Durstenfeld

      InsulinPumpers.com does a great job of distributing supplies to those in need.

      3
      6 months ago Log in to Reply
      1. TS

        I tried to find this website but it says it doesn’t exist?

        6 months ago Log in to Reply
      2. Sasha Wooldridge

        Found it! http://www.insulin-pumpers.org/

        6 months ago Log in to Reply
    20. Amanda Barras

      If can’t can’t find someone online to take them I keep them until they expire and then throw them. Just in case.

      6 months ago Log in to Reply
    21. Karen Tay

      My other was gave them to the Endocrinologist office to give to people who needed them

      1
      6 months ago Log in to Reply
    22. William Bennett

      My personal Zombie Apocalypse Emergency Stash has never met an oversupply it didn’t like. Even for stuff I don’t use anymore. Because you never know…..

      6 months ago Log in to Reply
    23. Jennifer Wilson

      I gave them to my endocrinologist office to offer to patients in need.

      6 months ago Log in to Reply
    24. Samantha Hunter

      I have a whole big box of Medtronic supplies I wasn’t able to donate because I switched to omniPod during the pandemic, including a pump. If anyone needs it please contact me!

      6 months ago Log in to Reply
    25. StPetie

      Tried to give them to a local support group but couldn’t get a call back. So I kept them as back ups.

      6 months ago Log in to Reply
    26. Patricia Van Fleet

      I gave mine to a friend for her cat.

      6 months ago Log in to Reply
    27. Chris Albright

      Donated some to my endo (all unopened and currently still shipping by mfg) and kept some in the event my current pump fails and I need a temp ‘stand-in’ until warranty replacement is received

      6 months ago Log in to Reply
    28. TS

      I have a whole slew of old Medtronic pump supplies and have no idea what to do with them. I have asked my endos and they don’t know either. I would love to see any suggestions!

      6 months ago Log in to Reply
    29. Becky Hertz

      Donated to my endos office.

      6 months ago Log in to Reply
    30. Donna Condi

      I was going to a support group run by a nurse in the endocrinologist department at one of the hospitals and I gave them to her to pass along to patients who could use them.

      6 months ago Log in to Reply
    31. Diana L.

      When I changed to Tslim after using Medtronics pump,. I had a lot of extras. I gave some to a local TD! group but I could not find a place to donate the rest. After a few months I just put them in the garbage.

      6 months ago Log in to Reply
    32. T1D4LongTime

      I donated supplies to CR3 Diabetes Association.

      6 months ago Log in to Reply
    33. PamK

      I probably should have checked both “Donated to an organization,” and “Gave them to a friend…” because I did give some items to family/friends who could use them.

      6 months ago Log in to Reply
    34. Bea Anderson

      Kept. Recently I had trouble with prescription for Omnipod 5 from provider. Got rejection from pharmacy/Medicare. Ran out of pods and prepared to fire up Medtronic pump in desperation. He inadvertently did refill for Omnipod 5 starter kit. I was desperate, worried, sad. Pharmacy didn’t say what mistake was. Dr office nurse didn’t catch difference and defended all was ok on there end. Finally provider got involved and realized his mistake. Horrible situation. I did ask provider to call me and apologize. Nurse said it was just a human mistake. I replied when humans make mistakes they apologize. He did call and I was grateful for resolution. I really need to learn how and have on hand injection method to give shots in emergency, and that’s on me!!

      6 months ago Log in to Reply

    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply. Cancel reply

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