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    • 15 minutes ago
      KCR likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 2 hours, 14 minutes ago
      Derek West likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 6 hours, 48 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 6 hours, 48 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I have a blood ketone monitor. It works just like a glucometer.
    • 8 hours, 38 minutes ago
      Kathy Hanavan likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 8 hours, 43 minutes ago
      atr likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 9 hours, 19 minutes ago
      Judith Halterman likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 day, 3 hours ago
      Anthony Harder likes your comment at
      Do you have ketone testing strips?
      Hi, Marty. Does your specialist have a source for that claim? It makes little sense that ketones would rise faster than BG since the metabolic pathway is much slower. If there's a source, however, I'd look further into the claim. FWIW, I've been a Type 1 for over 50 years; I can't remember the last time I tested for ketones. I possess no ketone testing strips.
    • 2 days, 6 hours ago
      Marty likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      Covers it with co pay
    • 2 days, 7 hours ago
      atr likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      It covers both. I prefer to have the the nasal version as I think it would be easier for someone else to administer.
    • 2 days, 9 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I’ve been T1D for 60 years. As a child my mother didn’t like needles or injections so she just fed me when low. In college, explained use to dorm mates and classmates would’ve been a waste of time. Now married, my wife assumed the role of my mother and doesn’t like using needles on me either. I don’t have glucagon.
    • 2 days, 9 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      Yes, always have one or two nasal glucagon kits (Baqsimi) at home in easy to reach locations (ie at bedside and special container in living area) and always keep one with me when I go out ( along with glucose tabs or other simple carbs for treating LBS.). I apparently required injectable glucagon several times as a child and needed injectable glucagon only twice as an adult, both more than 15 years ago . More recently I needed my husband to give me Baqsimi after eating a difficult to dose for, high fat meal. The experience was terrifying so I don’t go anywhere without it now.
    • 2 days, 9 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I actually have 2 non-expired prescriptions. One for Baqsimi and one for Gvoke. I have not filled either of them because they’re $500-600 each.
    • 2 days, 9 hours ago
      Lawrence S. likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      My Medicare Part D essentially doesn't cover glucagon when any form is nearly $500!
    • 2 days, 23 hours ago
      Amanda Barras likes your comment at
      Do you have a non-expired glucagon prescription?
      Same here. Been as low as 19 (struggling with a vacuum cleaner bag and refused to let it win) but was still able to swallow food. I did used the “red needle” as my husband refers to it once when I went low but was scheduled for surgery and couldn’t eat or drink anything. Only once in 26 years. Fortunate.
    • 3 days, 18 hours ago
      Karen Newe likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 7 hours ago
      Natalie Daley likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 8 hours ago
      atr likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 9 hours ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 4 days, 9 hours ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 9 hours ago
      Gary Taylor likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 20 hours ago
      Amanda Barras likes your comment at
      Which T1D influencers do you enjoy following?
      Currently it’s the Diabetech, Justin Easter.
    • 5 days, 5 hours ago
      ChrisW likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 5 days, 6 hours ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      TCOYD Diabetes Nerd Your Best T1D Year Think Like a Pancreas
    • 5 days, 6 hours ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      Take Control of Your Diabetes
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    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.

    Home > LC Polls > If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
    Previous

    During your most recent appointment, about how much time did you spend with your main T1D health care provider?

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    If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. 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    40 Comments

    1. jo

      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).

      2
      3 years ago Log in to Reply
    2. Lawrence S.

      I have never known anyone to give extra supplies to. I’m also a little leery of getting in trouble with the insurance companies that paid for the supplies., Or the legal ramifications of giving medical equipment or supplies to someone without a prescription.

      2
      3 years ago Log in to Reply
    3. Julie Blehm

      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage

      1
      3 years ago Log in to Reply
    4. Mick Martin

      I gave “leftover supplies” to the Diabetes Centre that I attend as it is they, via our NHS (National Health Service), which pays for them. I KNOW that they use them as I’ve been approached by DSNs (Diabetes Specialist Nurses) when I’ve attended clinic to see if I have “extra supplies” with me as I normally carry a few set changes, etc. with me.

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        This is the way it should be. Your system is so far ahead of ours in many ways.

        1
        3 years ago Log in to Reply
      2. Mick Martin

        @Lawrence S.

        That’s very debateable, sir. Supplies have to be paid for by someone. i.e. via our NHS (National Health Service) in the UK (United Kingdom of Great Britain and Northern Ireland), which is financed via direct taxation of all working people, or by individuals, either ‘out of pocket’ or via your Health System, which I grant you, DOES leave some people at a disadvantage. (SOME might argue that our system ‘goes against’ fit and healthy people who MIGHT resent having to pay to keep others alive. Sadly, I’ve written to people in the United States in the past, via email, that are no longer with us as they couldn’t afford insulin.)

        1
        3 years ago Log in to Reply
      3. Lawrence S.

        Mick,
        It’s not a debate for me. For example, I live in a community with lots of amenities, 95% of which I do not use. I still have to pay my monthly HOA fees, and annual CDD fees. I don’t mind a bit paying for those amenities that I don’t use. It’s just part of our community. Regarding taxes. We Americans regard paying taxes as negative, hurtful thing. I do not see it that way. I see taxes as a contribution toward making our society better (including healthcare). While I do not use most of those benefits, I get some of those benefits.

        3 years ago Log in to Reply
    5. Kris Sykes-David

      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?

      2
      3 years ago Log in to Reply
    6. George Lovelace

      Check with your Endo aas they can accept and distribute Supplies legally

      3 years ago Log in to Reply
    7. T1diabetic

      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.

      1
      3 years ago Log in to Reply
    8. LizB

      I just switched from Medtronic 770g to Tandem/Dexcom and I was amazed at how many Medtronic supplies I had when I was trying to get them out of the way. I don’t want to just throw them away but it’s hard finding someone to give them to. Most social media groups won’t allow you to post about them and I understand why that is. I definitely will hold onto some just in case I have an issue with my current pump and need to go back to my old one while waiting for a replacement, but I don’t need as much as I have.

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        A familiar story. I’ve been holding onto my old Medtronic supplies for ten to twenty years. They’re still sitting in the closet.

        1
        3 years ago Log in to Reply
    9. Eva

      I sent them back to the manufacturer to let them dispose of it.

      3 years ago Log in to Reply
    10. Sue Martin

      I’m still looking for someone to give them to.

      1
      3 years ago Log in to Reply
    11. Carl Robertson

      Took them to my CDE’s office to hand out as samples or spares

      3 years ago Log in to Reply
    12. Jane Cerullo

      I give them to my Endo and they give to patients who need them

      3 years ago Log in to Reply
    13. Keira Thurheimer

      I often take extra supplies to my endocrinologist’s office. They use them for educational purposes.

      3 years ago Log in to Reply
    14. fletchina

      I would love to learn of places to give/donate supplies!

      2
      3 years ago Log in to Reply
    15. Janis Senungetuk

      First I asked my CDE if she could find patients who needed them. She said she wasn’t permitted to do that. I asked on several Facebook groups and connected with people who paid for shipping. Just did that with the last of my Animus pump supplies. I’ve also sent supplies to Insulin for Life in Florida, but the shipping costs are very high, can’t do that anymore.

      1
      3 years ago Log in to Reply
    16. GLORIA MILLER

      I gave supplies to the homeless shelter in town once and the last time I gave my supplies to my endo’s office to give to the poor who can’t afford such things.

      3 years ago Log in to Reply
    17. rick phillips

      I have decided to give them to my endo’s office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.

      3
      3 years ago Log in to Reply
    18. Steve Rumble

      I have not had significant amounts of extra supplies, so it hasn’t really been an issue.

      3 years ago Log in to Reply
    19. Bob Durstenfeld

      InsulinPumpers.com does a great job of distributing supplies to those in need.

      3
      3 years ago Log in to Reply
      1. TS

        I tried to find this website but it says it doesn’t exist?

        3 years ago Log in to Reply
      2. Sasha Wooldridge

        Found it! http://www.insulin-pumpers.org/

        3 years ago Log in to Reply
    20. Amanda Barras

      If can’t can’t find someone online to take them I keep them until they expire and then throw them. Just in case.

      3 years ago Log in to Reply
    21. Karen Tay

      My other was gave them to the Endocrinologist office to give to people who needed them

      1
      3 years ago Log in to Reply
    22. William Bennett

      My personal Zombie Apocalypse Emergency Stash has never met an oversupply it didn’t like. Even for stuff I don’t use anymore. Because you never know…..

      3 years ago Log in to Reply
    23. Jennifer Wilson

      I gave them to my endocrinologist office to offer to patients in need.

      3 years ago Log in to Reply
    24. Samantha Hunter

      I have a whole big box of Medtronic supplies I wasn’t able to donate because I switched to omniPod during the pandemic, including a pump. If anyone needs it please contact me!

      3 years ago Log in to Reply
    25. StPetie

      Tried to give them to a local support group but couldn’t get a call back. So I kept them as back ups.

      3 years ago Log in to Reply
    26. Patricia Van Fleet

      I gave mine to a friend for her cat.

      3 years ago Log in to Reply
    27. Chris Albright

      Donated some to my endo (all unopened and currently still shipping by mfg) and kept some in the event my current pump fails and I need a temp ‘stand-in’ until warranty replacement is received

      3 years ago Log in to Reply
    28. TS

      I have a whole slew of old Medtronic pump supplies and have no idea what to do with them. I have asked my endos and they don’t know either. I would love to see any suggestions!

      3 years ago Log in to Reply
    29. Becky Hertz

      Donated to my endos office.

      3 years ago Log in to Reply
    30. Donna Condi

      I was going to a support group run by a nurse in the endocrinologist department at one of the hospitals and I gave them to her to pass along to patients who could use them.

      3 years ago Log in to Reply
    31. Diana L.

      When I changed to Tslim after using Medtronics pump,. I had a lot of extras. I gave some to a local TD! group but I could not find a place to donate the rest. After a few months I just put them in the garbage.

      3 years ago Log in to Reply
    32. T1D4LongTime

      I donated supplies to CR3 Diabetes Association.

      3 years ago Log in to Reply
    33. PamK

      I probably should have checked both “Donated to an organization,” and “Gave them to a friend…” because I did give some items to family/friends who could use them.

      3 years ago Log in to Reply
    34. Bea Anderson

      Kept. Recently I had trouble with prescription for Omnipod 5 from provider. Got rejection from pharmacy/Medicare. Ran out of pods and prepared to fire up Medtronic pump in desperation. He inadvertently did refill for Omnipod 5 starter kit. I was desperate, worried, sad. Pharmacy didn’t say what mistake was. Dr office nurse didn’t catch difference and defended all was ok on there end. Finally provider got involved and realized his mistake. Horrible situation. I did ask provider to call me and apologize. Nurse said it was just a human mistake. I replied when humans make mistakes they apologize. He did call and I was grateful for resolution. I really need to learn how and have on hand injection method to give shots in emergency, and that’s on me!!

      3 years ago Log in to Reply

    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply. Cancel reply

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