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    • 1 hour, 21 minutes ago
      KCR likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 3 hours, 19 minutes ago
      Derek West likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 7 hours, 54 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 7 hours, 54 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I have a blood ketone monitor. It works just like a glucometer.
    • 9 hours, 43 minutes ago
      Kathy Hanavan likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 9 hours, 49 minutes ago
      atr likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 10 hours, 25 minutes ago
      Judith Halterman likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 day, 4 hours ago
      Anthony Harder likes your comment at
      Do you have ketone testing strips?
      Hi, Marty. Does your specialist have a source for that claim? It makes little sense that ketones would rise faster than BG since the metabolic pathway is much slower. If there's a source, however, I'd look further into the claim. FWIW, I've been a Type 1 for over 50 years; I can't remember the last time I tested for ketones. I possess no ketone testing strips.
    • 2 days, 7 hours ago
      Marty likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      Covers it with co pay
    • 2 days, 8 hours ago
      atr likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      It covers both. I prefer to have the the nasal version as I think it would be easier for someone else to administer.
    • 2 days, 10 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I’ve been T1D for 60 years. As a child my mother didn’t like needles or injections so she just fed me when low. In college, explained use to dorm mates and classmates would’ve been a waste of time. Now married, my wife assumed the role of my mother and doesn’t like using needles on me either. I don’t have glucagon.
    • 2 days, 10 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      Yes, always have one or two nasal glucagon kits (Baqsimi) at home in easy to reach locations (ie at bedside and special container in living area) and always keep one with me when I go out ( along with glucose tabs or other simple carbs for treating LBS.). I apparently required injectable glucagon several times as a child and needed injectable glucagon only twice as an adult, both more than 15 years ago . More recently I needed my husband to give me Baqsimi after eating a difficult to dose for, high fat meal. The experience was terrifying so I don’t go anywhere without it now.
    • 2 days, 10 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I actually have 2 non-expired prescriptions. One for Baqsimi and one for Gvoke. I have not filled either of them because they’re $500-600 each.
    • 2 days, 10 hours ago
      Lawrence S. likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      My Medicare Part D essentially doesn't cover glucagon when any form is nearly $500!
    • 3 days, 1 hour ago
      Amanda Barras likes your comment at
      Do you have a non-expired glucagon prescription?
      Same here. Been as low as 19 (struggling with a vacuum cleaner bag and refused to let it win) but was still able to swallow food. I did used the “red needle” as my husband refers to it once when I went low but was scheduled for surgery and couldn’t eat or drink anything. Only once in 26 years. Fortunate.
    • 3 days, 19 hours ago
      Karen Newe likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 8 hours ago
      Natalie Daley likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 9 hours ago
      atr likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 10 hours ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 4 days, 10 hours ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 10 hours ago
      Gary Taylor likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 21 hours ago
      Amanda Barras likes your comment at
      Which T1D influencers do you enjoy following?
      Currently it’s the Diabetech, Justin Easter.
    • 5 days, 6 hours ago
      ChrisW likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 5 days, 7 hours ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      TCOYD Diabetes Nerd Your Best T1D Year Think Like a Pancreas
    • 5 days, 7 hours ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
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    During your most recent appointment, about how much time did you spend with your main T1D health care provider?

    Home > LC Polls > During your most recent appointment, about how much time did you spend with your main T1D health care provider?
    Previous

    If you use time in range reports, what blood glucose level is set as the threshold for your “High” range? If you have different target range settings depending on the time of day, please answer with the High setting at 12 p.m. in your time zone.

    Next

    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. 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By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. 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    26 Comments

    1. sweetcharlie

      It was so long ago, I don’t remember…

      2
      3 years ago Log in to Reply
    2. Beckett Nelson

      11 minutes. And he told me I needed to find someone else to split the two reasons I see him because it “takes too long” covering both

      3 years ago Log in to Reply
      1. KarenM6

        =:o Yikes!

        3 years ago Log in to Reply
    3. mbulzomi@optonline.net

      30-40 minutes, but most of the time I was waiting for the Doctor to come into the room.

      3 years ago Log in to Reply
      1. cynthia jaworski

        The waiting time doesn’t count as time with the doctor.

        3 years ago Log in to Reply
    4. Marty

      I’m not shy about asking questions. I always feel that I get as much time as I need.

      3 years ago Log in to Reply
    5. Kris Sykes-David

      I just had a consultation with a perspective endo, she spent over an hour with me! Amazing. And, she is fantastic, to boot! Hired!

      3 years ago Log in to Reply
    6. George Lovelace

      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 – 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!

      1
      3 years ago Log in to Reply
      1. Carol Cunningham

        CIQ is da bomb!
        😀

        3 years ago Log in to Reply
    7. Chris Albright

      I believe if you have good control and your A1C’s prove it, maybe 10 to 20 minutes is enough. My A1C’s are in the high 5’s / low 6’s so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a ‘well managed’ A1C path.

      2
      3 years ago Log in to Reply
    8. Carol Cunningham

      My primary care is managed at a teaching facility. My endocrinologist manages the diabetes.
      I do ask them to also help keep watch for neuropathy in my lower extremities. So far so good!

      3 years ago Log in to Reply
    9. Jneticdiabetic

      Normally 10-15 min, but it was 20-30 min this last time. First time meeting the new diabetes nurse assigned during COVID in person. Previous encounters all via Zoom. It was nice to meet her in 3D!

      3 years ago Log in to Reply
    10. Georgina Sokol

      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.

      1
      3 years ago Log in to Reply
    11. Kristine Warmecke

      My usual length is 30 to 40 minutes but she also manages my Hashimoto’s and go over ortho and neurology notes while I’m there. Honestly I don’t know what I will do when she retires, which will be in the next couple of years. I’ve been with her since 1989.

      3 years ago Log in to Reply
    12. William Bennett

      40-50 for me. It was a new-patient initial consult visit, so longer than I’d normally need.

      3 years ago Log in to Reply
    13. Tracy Jean

      My provider spends at least 40 minutes with me. I never feel rushed.

      1
      3 years ago Log in to Reply
    14. Joan Benedetto

      Brand new Endo, and new to us. Just under 20 minutes. We are almost ten years in with our, soon to be eleven year old, son. She just said it looked like we knew what we were doing, then gave us scripts we needed and lab orders. Indicated that ADA recommends appointments every three months. We said we were accustomed to every 4-5 months, and that was that.

      3 years ago Log in to Reply
    15. KarenM6

      I didn’t have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.

      2
      3 years ago Log in to Reply
    16. mojoseje

      My beloved endocrinologist died and was replaced by a much younger one. I have only met in person with her once. For 52 years, the first thing in all of my appointments was to check my feet. when I asked this younger doc if she were going to, she seemed almost offended. Is this not something the new generation of endocrinologists do anymore?

      3 years ago Log in to Reply
    17. Jen Farley

      Always around 30 min. Adjusting pumps, asking questions, looking over Dexcom reports, figuring out changes, how I feel, what has changed, on and on. My doctor is a very detailed and thorough doctor I respect.

      1
      3 years ago Log in to Reply
    18. Tom Caesar

      Spent 20 minutes with nurse parctioner and 10 with Doctor, tag team

      3 years ago Log in to Reply
    19. Amanda Barras

      Less than 10 min by choice. Nothing to talk about with stable labs, 95% time in range, and an A1c of 5.8.

      1
      3 years ago Log in to Reply
      1. KarenM6

        Congrats on those awesome results, Amanda Barras!! 🙂

        3 years ago Log in to Reply
    20. Kristen Clifford

      This has been asked at least once before. Get new material!

      3 years ago Log in to Reply
    21. Jamie

      This one was longer because she insisted on giving my daughter four antibody tests. She doesn’t understand how we can have a Type 1 15 year old with a 5.0 and 0% lows. I gave her an entire PowerPoint on how we eat, dose, and explained that we follow Dr Bernstein so my daughter is not an anomaly—everyone that follows Dr Bernstein has normal non-diabetic a1cs. My daughter failed all of her antibody tests horribly—as expected!

      3 years ago Log in to Reply
    22. Bea Anderson

      Less than 10 minutes. Very unusual but that was the last one.

      3 years ago Log in to Reply

    During your most recent appointment, about how much time did you spend with your main T1D health care provider? Cancel reply

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