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    • 1 hour, 47 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 47 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 2 hours, 3 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 2 hours, 4 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 4 hours, 24 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 11 hours, 33 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 11 hours, 33 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 13 hours, 30 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 46 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    Do you currently have a kit containing the T1D supplies you would need in case of a natural disaster or emergency?

    Home > LC Polls > Do you currently have a kit containing the T1D supplies you would need in case of a natural disaster or emergency?
    Previous

    If you use a CGM, do you ever experience ā€œcompression lowsā€? These are inaccurate CGM readings that occur when there is pressure placed on the CGM transmitter and sensor. They typically look like a sudden and drastic drop on a CGM graph, and often occur when a person is lying on their sensor.

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    Do you feel like the financial costs associated with T1D require you to make sacrifices in other areas of your life?

    Sarah Howard

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    55 Comments

    1. Molly Jones

      I always have a two month supply of insulin and a back up of lantus in case of pump failure in the refrigerator, but in the case of power outage with the cause being widespread, insulin would only last one month. It depends on the scenario.
      I am interested in what would be in an emergency kit for T1D that we don’t already have on hand.

      7
      6 months ago Log in to Reply
    2. Bea Anderson

      No, but could quickly put things together. Scary to think about.

      1
      6 months ago Log in to Reply
    3. Ahh Life

      Yes, but. As your life lengthens, the number of Rx’s lengthen, and the size of the box lengthens, and the closet space taken up lengthens. Ugh. ĀÆ\_( Ķ”ā›ā€Æļøµ Ķ”ā›)_/ĀÆ

      7
      6 months ago Log in to Reply
    4. lenglish@cimginc.com

      I keep all my supplies in one space so if there were an emergency I could gather all up at one time.

      3
      6 months ago Log in to Reply
    5. Jane Cerullo

      Probably should. Insulin pens are on fridge and wear Dexcom but always carry meter and test strips in purse for back up. So if grab purse and pens should should be quick

      6 months ago Log in to Reply
    6. Carolann Hunt

      Everything we need is in one cabinet and the insulin is in the frig so I only need a few minutes to throw it all in a ā€˜kit’ and go

      5
      6 months ago Log in to Reply
    7. Janice Bohn

      No, but I have been meaning to put one together

      6 months ago Log in to Reply
    8. mojoseje

      My answer is no because who can afford the luxury of extra?

      1
      6 months ago Log in to Reply
    9. Francisco Varea

      Insurance does not let me stock up on insulin. How am I supposed to be prepared for an emergency? I barely get enough to carry me through the month

      3
      6 months ago Log in to Reply
      1. William Bennett

        Hm. I’m curious what kind of restriction you’re dealing with. Standard method lots of us relies on the fact that insulin usage is extremely variable. So Dr prescribes for the maximum you might use per day and you end up ahead at the end of prescription period. Over time you have a back-up cushion in your fridge. This has been my method for 40 yrs under all kinds of different insurers and Drs. Does your insurer impose some kind of cap and what is it based on?

        1
        6 months ago Log in to Reply
      2. ConnieT1D62

        I typically use one and a third bottles of insulin each month to fill my pump. Like William Bennett my endo provider writes an insulin RX for two bottles a month so I have back-up and over time I accumulate extra insulin. Thus I am always ahead of the curve and not in danger of running out. With Dexcom, it depends on how many extras I have on hand and if it is at the end or beginning of the next 90 day order cycle.

        I keep a well stocked emergency preparedness grab & go kit handy within easy reach in my diabetes paraphernalia supply closet. I keep a Frio ready packed with insulins and Victoza in the butter compartment in the fridge so all I need to do is grab it on the way out of the house

        6 months ago Log in to Reply
    10. Csampogna

      Mainly but not everything.

      6 months ago Log in to Reply
    11. Lawrence S.

      I’ve thought about this from time to time, but am unsure where I would keep it with limited space. Currently my supplies are all in one closet, and my insulin in the refrigerator. I figure, in an emergency, I can throw it all into a few bags, and go. But, it is better to be prepared ahead of time.

      6 months ago Log in to Reply
    12. Mike S

      Pharmacy mistakenly filled my novo vials for Omnipod with pens a few months back. Couldn’t take them back and told me to just keep them. (and reversed the charge since it was their bad. So I’m good until expy in 23 and that’s my emergency supply of insulin for now. I also have back up vials that would last a few months, but for Omnipods themselves, it depends on when next order is due. Even without an emergency, I generally only have a few left when it’s time to re-order. Stupid healthcare system doesn’t believe in backups. (Thank god I learned how to extend the Dex – it gave me a bit more of a safety net on those)

      6 months ago Log in to Reply
    13. Chrisanda

      I keep a kit for travel with extra supplies. Add to it depending upon the length of the trip. Insulin is in fridge, so I get that separately. Otherwise, like others, all my supplies are in one space, so I can “grab and go” if necessary.

      6 months ago Log in to Reply
    14. Donal Conway

      I try not to look on the gloomy side of things but I suppose there is a need to plan ahead in the event of a disaster or something like that happening.

      6 months ago Log in to Reply
    15. William Bennett

      I dunno if I’d call it a “kit,” but like most (and all should), I have my zombie apocalypse emergency-reserves stash. I learned early on that, since insulin usage is not fixed, you should have your Dr prescribe for the maximum and save what you don’t use for backup. When I’ve got a few months’ worth I hold off re-ordering until I need to replenish. I also have a script for Lantus & Fiasp pens (1 box each) in case of pump failure. I’ve only resorted to the Lantus once, but the Fiasp pens come in handy all the time.

      As for pump and CGM supplies, same thing, only it’s a little trickier to stay ahead. For Dexcom, doing a few sensor restarts per order period (3 months) gets me a backup cushion of 3-4 sensors. For insets/reservoirs, I ALWAYS put in for a replacement when I have bad sites or rip outs, which they’re generally happy to do. I also try to order ahead so new ones arrive while I’ve still got 2 weeks’ worth on hand. Medicare makes you to certify that you’re down to 7 days before you reorder, so here’s what I do to deal with that: I LIE. Shamelessly and without a second’s regret. It’s not like I’m re-selling the darn things or using them for fun and games. All kinds of reasons why you might run short and be pulling your hair out (or having to resort to Lantus), so I make sure I have at extras of those too. Over time I’ve built up to about three months’ worth, so I’m about one full order ahead.

      6
      6 months ago Log in to Reply
      1. Jim Cobbe

        You describe well my strategies for ensuring I always have a cushion of all necessary supplies, the trickiest being, as you say, Dexcom. For a while each quarter my cushion for sensors is typically down to three weeks or so. I used to go on overseas work trips for a month or more, and ensuring I had enough supplies for those taught me how to game the systems successfully.

        6 months ago Log in to Reply
    16. Jim Cobbe

      I answered other because strictly speaking I should say No, but the two small kit containers – I have (one for Fiasp and one for Tresiba) – I use every day contain enough supplies for a week or so, and it would only take a few minutes to throw together enough for a month or more including sensors for Dexcom and chargers for receiver and phone. But gathering enough other medications etc might take a bit longer; but probably not more than half an hour, and the only serious evacuation risk where I live would be a category 2 or higher hurricane, for which we always get much more warning than that (no flood or fire risk where I live, and I cannot think of any other emergency or natural disaster which would result in need to evacuate).

      1
      6 months ago Log in to Reply
      1. Ahh Life

        Thank you for mentioning charger for pump & phone. I’ll add that two or three items to the list. āœ

        6 months ago Log in to Reply
    17. dave hedeen

      as Medicare patient, i’m restricted to max 30 supply limit therefore denying all Medicare patients from an adequate natural disaster kit

      3
      6 months ago Log in to Reply
      1. William Bennett

        Again, since it’s “as needed” insulin should be prescribed for the max you might need and it’s pretty easy to get a “cushion” that way. DME supplies are harder, since usage is more predictable, but even there there’s a degree of uncertainty. E.g., my pump insets are figured at a rate that usually exceeds actual usage. So if I reorder at the earliest possible time I can build up a cushion that way. Plus ALWAYS put in for a replacement in the case of a pull out, bad site, failed insertion–anything along those lines. Not sure about Omnipod, but suppliers are usually pretty generous about that. Same goes for Dexcom. Always get a replacement for sensors that don’t last the stated period, whatever the cause (they’ll replace even if it’s just the filament hit a spot that hurts). Occasionally restarting a sensor also helps you get ahead a few sensors. Not advocating breaking the rules, but if those rules, rigidly followed, put you in a place where you’re have to be anxious about running out of what you literally need to stay alive, I think you’re entitled to interpret them as liberally as possible in your favor. This isn’t about having fun, it’s about having what you need to be secure about your own safety.

        4
        6 months ago Log in to Reply
    18. Lisa Anderson

      If you’ve been in a natural disaster, you will most likely be prepared for another one. Il survived the night of the tornados in Grand Island, NE on June 3, 1980. I never want to be worried about insulin, food and supplies ever again. Ever.

      6 months ago Log in to Reply
    19. Joan Fray

      I had one. I kept having to borrow from it so it’s not complete. I have a ā€œ go bagā€ in case of wildfire, but I needs more pump supplies. Hard to get extras…

      1
      6 months ago Log in to Reply
    20. Joan Benedetto

      Yes! We have a large carryon suitcase that we keep packed at all times. We go through once a month or so to restate supplies so that nothing expires.

      6 months ago Log in to Reply
    21. Marie Foster

      We have a kit we take camping or when we travel and that is also our disaster kit. Since we use it on vacation the supplies are rotated out the only thing we have to grab is insulin and our standard is to grab a box of each (lantus & novolog) this would give her a months worth of supplies.

      6 months ago Log in to Reply
    22. Jennifer Wilson

      As others have mentioned, I do carry extra when traveling or away from home for extended time periods. Insurance will not allow you to request “extra”, so that is a bit difficult to navigate. One would think they would allow for at least one month “extra” as a backup or for emergencies. That only holds true for some things (insulin RX is easier to write for extra) but not the DME (OmniPod and Dexcom). And to pay out of pocket for “extra” just is not feasible for most people.

      4
      6 months ago Log in to Reply
      1. Kim Murphy

        I agree 100% you are very correct. About the Omnipod and Dexcom prescription issue. I barely get my next 90 day order before I run out. I am on my last one when they arrive. I just have a blood sugar machine to check manually and some needles to inject insulin. Not sure how that would work with fast acting insulin.

        1
        6 months ago Log in to Reply
      2. pru barry

        I wonder what it would take to convince the powers that be to allow us to get a back-up supply of pump supplies. Even one month’s security would allow me to give up that nagging worry. Blood sugars might even respond gratefully!

        2
        6 months ago Log in to Reply
    23. Eva

      I have an emergency kit in case my pump fails like injections, and glucose tabs. And I always have extra short acting insulin. The long acting is tricky for me to use. My body does produce a little insulin (based on a test). And I do have extra pump supplies, and batteries about 2 to 3 months worth.

      6 months ago Log in to Reply
    24. TomH

      I have all the supplies needed in one place so it’s easy to grab and go if needed.

      1
      6 months ago Log in to Reply
      1. TEH

        Me to, except insulin which I keep in the frig and i have a cooler bag I can quickly put in service for my insulin.

        6 months ago Log in to Reply
    25. Kim Murphy

      I do have a go bag, but I would have to be able to grab my insulin. It has to be kept refrigerated so I don’t know how I would keep it viable if I stored it in the go bag.

      6 months ago Log in to Reply
    26. Becky Hertz

      I don’t have a kitty per se, but my supplies are in two larger boxes so they’d be easy to grab and go.

      6 months ago Log in to Reply
    27. Marty

      I have a backpack in a closet that contains about a month’s worth of diabetes supplies, water, and a change of clothes. I have a separate box with my other prescription meds that I could dump in the backpack quickly along with unopened insulin vials from the refrigerator. Having been evacuated ahead of a wildfire and unable to return home for a week, I like to be organized ahead of time and not have to prioritize what’s needed as I’m rushing out the door. (Thanks for the reminder to rotate my supplies.)

      3
      6 months ago Log in to Reply
    28. rick phillips

      Sort of – I am half packed with the hardware but not the meds

      6 months ago Log in to Reply
    29. Janis Senungetuk

      No, and in an emergency evacuation I’m sure all of my time would be spent trying to round up Sunny Cat. My supply of Novolog vials is stashed in the refrigerator. That’s normally not an issue, but in an emergency situation the power often goes out. There’s just so much stuff, finding an additional space for a container to hold extras is difficult. I know it’s something I need to do.

      2
      6 months ago Log in to Reply
    30. Pauline M Reynolds

      No, but I should. I forget it’s a matter of life and death.

      3
      6 months ago Log in to Reply
    31. Ms Cris

      My Endo had me put a Go Kit together early on in COVID, in case I had to be hospitalized. I decided to maintain it since, and I rotate stock every 3 months with a reminder in my calendar. Special kit in fridge, too. Just grab-n-go.

      3
      6 months ago Log in to Reply
    32. BARRY HUNSINGER

      I use a pump, it would be extremely difficult to put all the stuff I need in a GO bag long term. If I am home when whatever is going on happens then I could put supplies in a cooler and a small bag. If it is a long-term issue then I would have to find the stuff I need or possibly just die.

      2
      6 months ago Log in to Reply
    33. Amanda Barras

      A kit? No. But I could quickly restock my travel case that I refill often anyway and be set for at least a week using that.

      1
      6 months ago Log in to Reply
    34. Abigail Elias

      All my supplies are in a single drawer so could be thrown into whatever bag or pack I’m using to carry essentials – would just need to grab and add my stash of insulin vials – all possible within a couple of minutes.

      2
      6 months ago Log in to Reply
    35. jo

      Yes I do, I was in an area where I had to evacuate during hurricane Irma . A friends allowed us to stay at her house, she was out of the state at the time. I was so worried about my 4 cats that I didn’t put too much thought into my insulin and supplies. Well of course the power went out. We found one of her neighbors who had a generator that kept his fridge running he let us keep my insulin in it. We now have a whole house generator with a 500 gallon propane tank buried in our yard. I have a go bag ready to put my insulin in and we also have our own portable generator to take with us just in case we have to be evacuated.

      2
      6 months ago Log in to Reply
    36. Natalie Daley

      I answered no because insulin needs to be refrigerated except for immediate use. Since it is the most expensive Rx I have, I could grab all of it, Toss in a case with other meds and be out in less than a minute.

      1
      6 months ago Log in to Reply
    37. Phyllis Lewis

      Never thought about it . thanks for the reminder.

      1
      6 months ago Log in to Reply
    38. Trisha Oldenkamp

      I have one but I don’t always have it well stocked since so needed items expire if I don’t use them up.

      6 months ago Log in to Reply
    39. Sue Herflicker

      I have about 2 weeks worth of supplies in a container in my pantry I can grab that if I have too, but it isn’t really for a disaster. I use it when I travel. I have grabbed it a few times when we had tornado warnings. Other than that I guess I am not really prepared for a natural disaster.

      6 months ago Log in to Reply
    40. Wanacure

      You’re going to also need your homeowners insurance policy #, birth certificate or visa or passport or Enhanced Driver License to prove your identity, copy of utility bill, copy of your property tax bill, copy of last income tax statement, water, a load of nutritional snack bars…what am I forgetting? A gun & ammo? My area is due for a really BIG earthquake and with busted gas lines, downed Wifi and no electricity, collapsed bridges….I must get a windup battery AM/FM radio. I know which broadcast radio station for emergency info. I keep a few expired Lantus and Novolog vials in fridge. Probably should have cyanide pill in case of nuclear accident. We have so many nuclear weapons in this state…if we were a separate country we ā€˜d probably be #10 in nuclear capacity, but this also make us a target. Should I get a microchip implanted with my social security # and blood type?

      1
      6 months ago Log in to Reply
      1. Bea Anderson

        These are some great ideas minus the cyanide!

        6 months ago Log in to Reply
    41. Kristine Warmecke

      I used to have one. I suppose I’ve gotten lazy after dealing with it for 40 years.

      1
      6 months ago Log in to Reply
    42. Julia Buckley

      I live in South Florida, so it’s a necessity. Mine is in a waterproof toolbox from Lowe’s that I saw on one of the boards on Facebook. It carries like a briefcase, so grab-n-go. It has all my pump and cgms supplies. Battery chargers and insulin would be in a different case.

      6 months ago Log in to Reply
    43. Krystal Udey

      I live in Wisconsin where we don’t get a hurricanes or earthquakes. No need for it really

      6 months ago Log in to Reply
    44. PamK

      I don’t live in an area that is prone to natural disasters, but for those who do it’s not a bad idea!

      6 months ago Log in to Reply
    45. Bea Anderson

      Said other. I Do carry/keep handy emergency supplies. For a disaster I’d need to grab my whole drawer or start storing all supplies in a suitcase to go!

      6 months ago Log in to Reply
    46. Jeff Balbirnie

      Am dangerously under supplied, at the current time. But yes have a Fanny pack with all supplies just under stocked until I can get new scripts.

      5 months ago Log in to Reply

    Do you currently have a kit containing the T1D supplies you would need in case of a natural disaster or emergency? Cancel reply

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