Trisha Oldenkamp – T1D Exchange

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- 4 months, 2 weeks ago
  
  Jeff Balbirnie likes your comment at
  Do you have a T1D-related tattoo?
  I use a medical alert bracelet and just recently asked my daughter, who is an emergency medicine doctor with experience of being an EMT if being “tagged” so to speak, is useful to first responders/emergency medicine. She said no because they can’t rely on them. They do their own evaluations/tests as well as treat the immediate situation with the potential possibilities in mind. So now I’m wondering if medical alert jewelry/tattoos are necessary?
- 5 months ago
  
  Lawrence S. likes your comment at
  Do you have a T1D-related tattoo?
  I use a medical alert bracelet and just recently asked my daughter, who is an emergency medicine doctor with experience of being an EMT if being “tagged” so to speak, is useful to first responders/emergency medicine. She said no because they can’t rely on them. They do their own evaluations/tests as well as treat the immediate situation with the potential possibilities in mind. So now I’m wondering if medical alert jewelry/tattoos are necessary?
- 5 months ago
  
  Antsy likes your comment at
  If you use a CGM, have you ever extended your sensor past its approved session duration?
  I have extended but it only lasts another day or two and is erratic. Not worth it for me.
- 5 months ago
  
  Marty likes your comment at
  If you use a CGM, have you ever extended your sensor past its approved session duration?
  I have extended but it only lasts another day or two and is erratic. Not worth it for me.
- 5 months ago
  
  Justin likes your comment at
  If you use a CGM, have you ever extended your sensor past its approved session duration?
  I have extended but it only lasts another day or two and is erratic. Not worth it for me.
- 7 months, 4 weeks ago
  
  Andrea Hultman likes your comment at
  If you go to a non-diabetes-related health care appointment, do you inform the staff that you have T1D?
  kI think my Type 1 diabetes my affect any other medical issue whether it is added risks, medicine interactions or affects, healing time etc. Since diabetes affects basically the entire human body I can't think of a time when it is not pertinent to at least mention it.
- 8 months, 1 week ago
  
  sweetcharlie likes your comment at
  If you go to a non-diabetes-related health care appointment, do you inform the staff that you have T1D?
  kI think my Type 1 diabetes my affect any other medical issue whether it is added risks, medicine interactions or affects, healing time etc. Since diabetes affects basically the entire human body I can't think of a time when it is not pertinent to at least mention it.
- 8 months, 1 week ago
  
  KarenM6 likes your comment at
  If you go to a non-diabetes-related health care appointment, do you inform the staff that you have T1D?
  kI think my Type 1 diabetes my affect any other medical issue whether it is added risks, medicine interactions or affects, healing time etc. Since diabetes affects basically the entire human body I can't think of a time when it is not pertinent to at least mention it.
- 10 months, 1 week ago
  
  Lawrence S. likes your comment at
  For insulin pump users: When traveling to a time zone that is at least 2 hours different than your home time zone, do you change the time on your pump? (For example, traveling from Eastern Time to Mountain Time, or traveling from Pacific Time to Central Time)
  I want my settings to match with my schedule at the new location. I’m currently in a time zone 9 hours from back home. Blood sugar is still bumpy for the first day and then it smooths out.
- 1 year ago
  
  mojoseje likes your comment at
  Have you (or your loved one with T1D) been diagnosed with peripheral neuropathy in your feet?
  It’s mild and has been pretty stable for several years. My endo said only a small percentage of well controlled Type 1s get it and I’m one of them. A neurologist said to take alpha lipoid acid supplements to help.
- 1 year, 1 month ago
  
  KarenM6 likes your comment at
  Have you ever accidentally given yourself an injection of rapid-acting insulin instead of a long-acting insulin (or vice versa)? Share in the comments how you handled this situation.
  I did this twice because I grabbed the wrong insulin vial by mistake. This was preCGM days so I woke up in a sweat, very confused by the low blood sugar. Though I had trouble thinking I knew I was to eat. The first time it happened my husband found me in the middle of the night staring into the refrigerator. He gave me juice. The second time I was away taking care of my mom post surgery. I somehow knew to eat and I found an apple in my tote bag. I did have glucotabs with me on the nightstand but I couldn’t think of that. I am very lucky and praise God for modern technology!
- 1 year, 3 months ago
  
  Jeff Balbirnie has commented in the same post you commented in :
  If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.
  A long time ago when I used a pump, but it was a severe comedy of on going ever changing pathetically untrue errors. My favorite was in necessary.
- 1 year, 3 months ago
  
  Lenora Ventura has commented in the same post you commented in :
  If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.
  I said yes, it was deemed not medically necessary. Some background detail’s important here: this was back in 1998 with my 1st insulin pump. The Minimed 507c. I had a HMO at the time and had to file an appeal which included pictures of my bruised abdomen among reports of the toughness on my arms & legs that prevented the continued use of MDI. After a lengthy fight, it was finally approved. Every pump since has been a piece of cake in comparison
- 1 year, 3 months ago
  
  Jillmarie61 has commented in the same post you commented in :
  If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.
  It was a long time ago, 1979-80. It was deemed experimental and they refused to pay. My parents sued and it was ruled in their favor. Since then I don’t ever remember having an issue.
- 1 year, 3 months ago
  
  Mick Martin has commented in the same post you commented in :
  If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.
  I selected "No - I have never been denied coverage for my pump or its supplies" but this MAY be misleading. I live in the United Kingdom of Great Britain and Northern Ireland where all of my diabetes supplies are paid for by our NHS (National Health Service), which is financed via direct taxation of all working people.
- 1 year, 3 months ago
  
  PamK has commented in the same post you commented in :
  If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.
  I have had several of these reasons occur. when I first got a pump the insurance initially said it was not medically necessary. As time has gone on I've had insurance companies tell me that the brand/model I was using was not covered. One time more recently, I was told that I had not seen my endocrine recently enough, even though he had submitted a new prescription for me! I have needed a Prior Authorization every time my insurance has changed over the years except once! I also have had "clerical errors" (I forgot to check that one!) with my current insurance. They told me my pump/CGM were not covered when I had just received a letter in the mail telling me that they were, with Prior Auth. which had been approved. I guess it wasn't in the system yet!
- 1 year, 3 months ago
  
  BARRY HUNSINGER has commented in the same post you commented in :
  If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.
  When I switch from private insurance to Medicare I was denied coverage. I had to prove to them that after almost 30 years that I was actually a type 1 diabetic and I had had that test back in the early 90s which proved it but I had to do it all again. it took 3 months to get it straightened out
- 1 year, 3 months ago
  
  KarenM6 likes your comment at
  If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.
  The Omnipod pump intro kit was “not covered” but the Omnipod’s are! I jumped hoops with help from Insulet for 6 months and finally received an insurance override. It shouldn’t be so hard!
- 1 year, 3 months ago
  
  Amanda Barras has commented in the same post you commented in :
  If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.
  Same! I was so mad, and my doc didn't want to hassle with the paperwork to fight it. I don't blame her, I know she knew it would have been a futile effort. But insurance changed and I have been happily on Tandem for 2 years now.
- 1 year, 3 months ago
  
  Amanda Barras has commented in the same post you commented in :
  If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.
  Back in 2007 I wasn't allowed to add the CGM to Medtronic's system while on Tricare because it wasn't medically necessary either. Didn't add CGM to my care until 2012 when separated and had good medical insurance through my husband's new job.
- 1 year, 3 months ago
  
  Amanda Barras has commented in the same post you commented in :
  If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.
  Yes - not Medically Necessary - back in 2007 when I started with Medtronic the CGM portion was not medically necessary and not covered by insurance. Yes - had't seen my provider recently enough. 2 months ago I tried to reorder supplies, they needed a new Rx and chart notes. My chart notes were more than 6 months old so I had to get an emergency virtual appt and labs drawn to update notes before prior auth was issued and supplies sent. Yes- pump brand not covered by insurance. Back when UHC was exclusively "in-bed" with Medtronic they would not authorize a switch to Tandem because it was not a covered device.
- 1 year, 3 months ago
  
  Julie Nalibov has commented in the same post you commented in :
  If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.
  I checked "yes" because they UNDERSUPPLY me. I get exactly 10 infusion sets per month. And fairly often, one either is irritated after 2 days, gets accidentally pulled out, goes in incorrectly, has to be changed early or I ruin it while trying to insert it with the delicate multipart procedure of unwinding the tubing, removing swivel tape, etc. of TANDEM) I have zero slack unless I wear them for 4+ days. Frustrating and stressful. If you call for replacement, its a long phone call and a week later, a giant box with one replacement (so much environmental waste!!). Dr. tried to write prescription to change every 2-3 days but alas insurance said NO.
- 1 year, 4 months ago
  
  Bwarschoff has commented in the same post you commented in :
  Which of the following supplements or vitamins do you take on a regular basis? Select all that apply.
  I take vitamin B12, vitamin C, Folic Acid as well as vitamin D.
- 1 year, 5 months ago
  
  Velika Peterson has commented in the same post you commented in :
  How would you describe the amount of scar tissue you have because of T1D management? Please feel free to share more about your experiences in the comments!
  @AnitaS, same here. My daughter has a very visible indent on her thight from her Omnipod and she hasn't used her thighs for almost a year :(
- 1 year, 5 months ago
  
  Velika Peterson has commented in the same post you commented in :
  How would you describe the amount of scar tissue you have because of T1D management? Please feel free to share more about your experiences in the comments!
  @Maurine Bowser, I am relieved to know that your dents have disappered. My daughter has a very visible indent on her thight from her Omnipod and she hasn't used her thighs for almost a year :(
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Trisha Oldenkamp

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Boston, MA 02110
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