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    • 1 hour, 38 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 39 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 54 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 55 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 4 hours, 15 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 11 hours, 24 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 11 hours, 25 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 13 hours, 21 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 37 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    Do you feel like the financial costs associated with T1D require you to make sacrifices in other areas of your life?

    Home > LC Polls > Do you feel like the financial costs associated with T1D require you to make sacrifices in other areas of your life?
    Previous

    Do you currently have a kit containing the T1D supplies you would need in case of a natural disaster or emergency?

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    If you are a caregiver to a child with T1D, how old is your child?

    Samantha Robinson

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    40 Comments

    1. Jneticdiabetic

      I’m fortunate to have good insurance through my husband’s employer. However, I met several T1D and T2Ds at an event this weekend who were struggling and couldn’t get insurance to cover and/or couldn’t afford a CGM. šŸ’” Anyone have any advice on this? Appreciate it!

      6 months ago Log in to Reply
      1. Wanacure

        1. Get then involved in working for a version of Medicare for All in their state. They can also get involved in the national Medicare for All movement. 2. With the shortage of workers, tell them to look to the Federal Government for a job. Even as just a clerk-typist I got excellent medical coverage when working full time for Small Business Administration. Familiarity with Windows OS and data input is probably a useful skill in any gov agency. Or look to city, state or county governments for openings.

        6 months ago Log in to Reply
    2. Jane Cerullo

      Not happy since switching from pump to MDI as required to pay co pay for insulin. Also pay for Iport, needles etc. but was my choice and am happy so far. Not being attached to a pump is freeing. Even omnipod gave me problems and was cost prohibitive on Medicare. Am waiting for InPen so I can follow my numbers on their app like a pump.

      1
      6 months ago Log in to Reply
      1. Kris Sykes-David

        I have an InPen and think it’s great! T1D for almost nine years and MDI the whole time. The InPen really makes a difference! I hope you can get one soon. I pay only $35/ year. In February, I turn 65, we’ll see what happens then with the cost.

        6 months ago Log in to Reply
    3. Cheryl Seibert

      I answered “Sometimes”. I am blessed with insurance that covers 80% of my insulin pump supplies and a $60 copay for 90day supply for insulin. However, that money has to be available, so we plan our purchases. My husband also has high medical expenses. I am approaching Medicare age in a few years, so it worries me the cost will skyrocket.

      6 months ago Log in to Reply
    4. Joan Fray

      I have a kaiser plan through Medicare and I pay 20% of everything I get. It’s ok. Better than being dead i suppose. Although sometimes………..

      2
      6 months ago Log in to Reply
    5. Vicki Breckenridge

      I’ve been so fortunate. I’ve always had fantastic insurance coverage. It’s even better for me now that I have original Medicare and a supplement.

      2
      6 months ago Log in to Reply
    6. Sasha Wooldridge

      If I didn’t have to pay higher insurance premiums, plus multiple prescriptions and dr visit copays that otherwise healthy people wouldn’t need, I’d have a new car. As it is, all those things combine average to a couple hundred dollars more than a new car payment would be each month. I keep hoping, but it’s been 7 years and I still haven’t been able to make it happen. Frustrating to say the least.

      6 months ago Log in to Reply
    7. Lyn McQuaid

      I feel very fortunate to have good insurance coverage at this stage in my life (age 49). However, when I was in my early 20’s and just starting out, I had crappy insurance but my father was also T1D so he would give me a box of test strips or a vial of insulin from his supply when I was low on cash. I was always grateful for that.

      6 months ago Log in to Reply
    8. Janice Bohn

      My husband is disabled so has been unable to work the last 20 years, and I make a modest income. The cost of healthcare has impacted our lives in these ways.
      Moved from our lovely home to a two family flat in the city so we get some additional income. No cable/sati lite, Netflix or the like – just plain tv, my brother has us on his family plan for phone, no high speed internet, we do not travel. Our one splurge is to eat out lunch on Saturday, lunch is more reasonable.
      With those ā€œsacrificesā€ I have been able to have a pump, CGM and afford all our care.
      We are very content and do not need much to enjoy our lives so living modestly is really not a problem. I feel very fortunate as others have much greater struggles!

      9
      6 months ago Log in to Reply
      1. Wanacure

        Does your county or city library offer free computer access?

        6 months ago Log in to Reply
    9. TomH

      While I answered ā€œnoā€, my insurance covers nearly all costs, I know several people that aren’t covered well or whose insurance does not cover many costs. They get stretched pretty well and there’s definitely financial impacts!

      6 months ago Log in to Reply
    10. mojoseje

      The cost of pump and CGM supplies has definitely impacted my financial health—especially since my husband was permanently laid off because of the pandemic. We could no longer afford our great insurance and my copays for insulin, pump, and CGM supplies are now $300/month. On 1/3 less salary, we are struggling to make it to retirement while watching our savings melt away.

      1
      6 months ago Log in to Reply
    11. Daniel Bestvater

      I answered yes.
      I owned a small business in Canada and have no coverage. I’ve tried to get coverage but due to an existing condition I have always been rejected.

      6 months ago Log in to Reply
    12. Marty

      I feel very lucky to have original Medicare with a supplement that covers copays and deductibles for insulin and diabetes supplies. My premiums aren’t cheap, of course, but I’m still very grateful to be free from worry about how to cover these expenses.

      6 months ago Log in to Reply
    13. Kris Sykes-David

      I answered sometimes. With federal BC/BS, my co-pays aren’t too awful. I have been keeping track on T1D expenditures for 2022 since I turn 65 in February and could choose straight Medicare or keep the Federal insurance. $ 1500 so far and I don’t have a pump, only MDI and InPen, and Dexcom CGM. Getting an OP5 would increase costs significantly.

      6 months ago Log in to Reply
    14. Lawrence S.

      I have not had to make sacrifices in other area of my life because of the financial costs of my T1D. The deductibles and copays are within my financial means. I have a Medicare, and a “mediocre” secondary insurance. But it keeps my head above water.

      6 months ago Log in to Reply
      1. Lawrence S.

        Sorry, I need to do a better job proof reading my statements.

        6 months ago Log in to Reply
    15. Teri Morris

      I understand in Europe diabetes expenses are covered. I have spent 20 years at the company I work for, due to their health coverage. I’ve got to have that, and can’t entertain the possibility of retirement. I’m very lucky to have help, as my parents had none when they raised me. We only took one vacation that I can remember. I do wish my health insurance through work covered CGMs though. They don’t recognize them as being as important as a pump for life-saving, life-extending, complication-less-likely treatment. At ~$120 every ten days I can’t afford to CGM!

      6 months ago Log in to Reply
      1. Lawrence S.

        If I may, I would suggest that you keep after your insurance company about the CGM. Many insurances cover CGM’s. My insurance company wouldn’t cover a CGM until I broke my ankle and lost a month from work from a low sugar fall. Then, they decided the CGM was worth it. I wish you good luck.

        1
        6 months ago Log in to Reply
    16. Bob Durstenfeld

      I am looking forward to the new legislation that caps out of pocket costs for Medicare part D and Insulin. Some years NY total medical costs have exceeded $15,000.

      2
      6 months ago Log in to Reply
    17. Ken Raiche

      That goes without saying if I didn’t have to spend the amount of money on my T1D it would definitely help in all aspects of the word.

      6 months ago Log in to Reply
      1. Donal Conway

        I have always found that and after 52 years with T1, it has taught me to be very economicial with my costs on every aspect of spending for

        1
        6 months ago Log in to Reply
    18. Sherrie Johnson

      Medicare and Anthem plan F cover it all except part D,which now omnipod falls under. To that I will not be trying the Omni when pumps are fully covered under Part B. Trying to simplify my life this doesn’t help.

      6 months ago Log in to Reply
    19. TEH

      I selected sometimes. While on private insurance at $1,500/ month, it was harder. When we stepped onto medicare with Anthem suplement and part D, our health care costs dropped to 1/3 of that. So, it depends on your prospective on if Medicare is expensive or not. Additionally, the mailorder Part D we have is a fraction of over the counter Rx costs.

      6 months ago Log in to Reply
    20. Eva

      It is not just the cost of the insulin, glucose tabs, pump supplies and test strips, it is also the increased cost associated with eating healthier (whole foods & gluten free) that makes me scrimp on clothes, electronics, vacations etc… Not that I care, because I really don’t need the latest apple phone or a new car.

      5
      6 months ago Log in to Reply
    21. Tina Roberts

      Absofreakinglutely!!!!!!! Sensors and pump supplies are outrageously expensive!!

      3
      6 months ago Log in to Reply
    22. Magnus Hiis

      Definitely, much of the pharmacy costs are taken care of the government but it’s much more, days that you can’t because of diabetes, to sign an insurance I pay at least the double amount compared to non diabetics and I can’t take a life insurance. The costs for treating lows, eating regularly, to have technical devices that is necessary for getting my diabetes optimized, doctors appointment, sick days etc

      2
      6 months ago Log in to Reply
    23. Janis Senungetuk

      YES! The impact of T1D expenses has made a tremendous difference in available choices over the past 67 years. Now at 76, the struggle has become even harder as savings are depleted from skyrocketing increases in living expenses in addition to the continual medical costs.

      6
      6 months ago Log in to Reply
    24. Diana L.

      Medicare covers all the costs for pump users . I also have a good supplemental plan that covers CGM use, it is $250/month

      6 months ago Log in to Reply
    25. Mick Martin

      Although I answered “No” it SHOULD BE ‘Not Applicable’ as I live in the UK and our NHS (National Health Service) pays for all of my diabetes costs. (The NHS is funded via direct taxation of all working people.)

      2
      6 months ago Log in to Reply
    26. Patricia Dalrymple

      I said No. I have worked in higher Ed for a college that pays for everything but my pump and supplies (I pay 20%). I have no children – I’m not sure I can say I’m fortunate for that – just didn’t work out for me. I’ve been fortunate to be able to save a lot of my salary. My husband and I don’t overspend for things.

      6 months ago Log in to Reply
    27. Molly Jones

      I answered No, but it is a constant thought of myself and my spouse, so if anything, maybe a sacrifice in a feeling of ease.
      I remember in my early twenties making sacrifices in many areas before qualifying for disability for epilepsy. Trying to save money in areas that would take you back a century at least. I still couldn’t afford medication and was thankfully given the most inexpensive phenobarbital from my neurologist who saw me for free.
      I am very grateful now with the insurance my husband has and also to have had the previous experience. I can empathize with others but am grateful not to live in areas of the world who lack doctors almost completely.

      1
      6 months ago Log in to Reply
    28. John McHenery

      Most costs covered by UK National Health Service

      2
      6 months ago Log in to Reply
    29. Steven Gill

      I “downsized” this last year (sold a house moved into an apt off my brother’s garage) not wholly for financial reasons. So I’m much better off but dropped the CGM supplies due to costs for 3 years. Still, I joke I’m wearing my car.

      6 months ago Log in to Reply
    30. elsa

      Absolutely, because these costs add up to a significant amount of the monthly budget. Insurance premiums are higher (always have to choose a more expensive plan), and monthly costs other than premiums are higher (more doctor’s visits, lots of prescription costs). Unexpected costs are inevitable given the delays and restrictions we are subjected to by insurance/PBM and DME suppliers—which have resulted in me paying full price out of pocket twice this year for pump supplies, once for insulin, and once for blood work despite planning ahead, knowing how to navigate insurance, and having an ACA Gold tier plan in New York with a monthly premium that is just under $1,000/month.

      6 months ago Log in to Reply
    31. AnitaS

      I am very fortunate to have insurance that covers most of my diabetes supplies, so my answer was no.

      6 months ago Log in to Reply
    32. mbulzomi@optonline.net

      No. I’m very fortunate that all my expenses are covered by Medicare Part “B” and my secondary insurance, Federal Employee Program, Blue Cross Blue Shield.

      1
      6 months ago Log in to Reply
    33. Krystal Udey

      Thankfully my employer does a good job of keeping my costs low through Rx and insurance plans. When I was younger though, I had a very strict budget where I broke my pump supply payments into small chunks. Otherwise I could not afford rent or geroceries.

      6 months ago Log in to Reply
    34. PamK

      It has, especially when money is tight, if you know what I mean.

      6 months ago Log in to Reply

    Do you feel like the financial costs associated with T1D require you to make sacrifices in other areas of your life? Cancel reply

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