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    • 9 hours, 43 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      "It's a forever learning curve" - so very true
    • 9 hours, 50 minutes ago
      KarenM6 likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      I hesitate to bring this up but I am quite sure this happens more than people realize. I use a tubed pump and small amounts of total daily insulin and have checked the tubing for YEARS for bubbles. YES, they are difficult to "notice" unless you have a good light behind the clear tubing because the insulin is also colorless. I detach and check the tubing in the morning and before bedtime if not before the evening meal...I'm talking about significant bubbles----8-10-or12 inches in length can appear and you would NOT notice them unless you were looking. I wonder how many people wonder why their blood sugar is occasionally high and it's being caused by a significant bubble...NO, not the champagne sized version that's often mentioned to "ignore." The pump company I deal with tried to get me to switch to injections instead but I am an EXPERT with the bubble situation. Also, comments over the years that I am probably not filling the reservoir correctly, etc....just plain silly. I am NOT new at this...LOL!!!
    • 10 hours, 16 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 52 minutes ago
      Janis Senungetuk likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 52 minutes ago
      Richard Wiener likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 15 hours, 12 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I began playing Pickleball last year in March. When the temperatures started to rise the extra effort my body was experiencing because of the heat got my body hormones out of balance and I began experiencing nausea, higher heart rates and feeling very uncomfortable. I soon realized that I cannot play when is too hot or I’ll end up with ketones. Any new activity when on. Insulin requires adjustments. It’s a forever learning curve. Adding to the heat, last year I was having some absorption problems by the overuse of my abdomen. I have now move the infusion sites to my upper front side and it’s working much better.
    • 15 hours, 13 minutes ago
      Kristine Warmecke likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 15 hours, 13 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I answered no, but I do experience nausea and/or vomiting, usually on a daily basis, but this is because I have gastroparesis. I have rarely been able to eat breakfast over the last 20+ years as I end up vomiting it all back up ... try explaining that to ward staff in hospital(s). ;-)
    • 15 hours, 33 minutes ago
      Becky Hertz likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 62 years I have skin issues everywhere. I am an avid at rotating every time I change my infusion set. When I was on multiple daily injections, up to 9 per day, I had massive skin hardening. Since on the pump it’s not nearly as bad that’s been 33 years. I take very little insulin my daily basal comes out to 9 units over 24 hours I eat two meals that I count carbs for and try to keep at a minimum of 30-40 per day. Everything is going well. Rotation is key
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I use a pump and have had issues with insulin absorbtion. It seems I have a lot of them on the side I primarily use for infusion sets. I recently switched to the other side of my abdomen and dropped more than one point on my a1c.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      When I first started with my current Endo we would discuss the released and upcoming products and I would tell her about the 'off-market' applications and devices, we both learned from each other. But she was so good with helping me transition to the Dexcom and then the Tandem after Animas was pulled from the Market. She followed my Dex and even finer tuned my Basals and early this year I got an "unbeleivable" 5.4 A1c and we are both extremely happy!
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Yes. But then I self-selected when choosing an endocrinology clinic that pursues cutting-edge advances 40 years ago. Cutting-edge is a phrase that is also often called bleeding-edge because it is often experimental, hit or miss on results, and very expensive. I am convinced the “bleeding” refers to $$$.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      not anymore, and I am happy about it! Most of the time they were recommending things that had been recently pitched to them by a pharmaceutical salesperson or a durable medical supplier. The doctors would give patients the "free samples" and it was often not the best fit, then after the "free" supply ran out, the prices were exorbitant. Maybe it still happens, but I haven't seen it for a while.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The need for better CGM accuracy is a big consideration for me. Also my control is pretty good right now (a1c in the low 6 range). Although I am tempted by the sleep and exercise modes which would be very helpful since I’m getting back in to exercise. So…I keep sitting on the fence…
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I don’t want to change from the Omnipod Dash to Omnipod 5 because the minimum target blood glucose is level is higher than where I like to keep it. My A1C is currently 5.0.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      For the last 5 years, the highest HbA1C I've had was 5.3. For the last 3 years the high, low, & average have been 5.2, 4.7, & 4.9. I'm not willing to go to an AID that sets a target of 6 to 7.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      There are many reasons, as well as "something else." My arthritic fingers do not serve me well with a cell phone. I have trouble putting the needle covers back on to my insulin pen needles. If I had to take care of all the fine muscle issues associated with setting a pump up, I would probably require assistance. I am also not drawn to the issues I hear about tissue damage at the infusion sites, or knowing whether everything is seated properly and the insulin is actually flowing. Finally, I just have some kind of negative karma with electronics. I have worked as a lab biochemist. Somehow, I find the weaknesses of every machine in the lab. (the ideal industrial beta-tester) Having said that, what I hear about the numbers achieved with the tandem CIQ gives me pause to consider.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Like others, the "closed loop" runs me too high - even the target bg is too high for me. I use the TandemX2 with BIQ integrated wqith my Dexcom G6. I also appreciate - and use - the temp basal function often. I would lose that with CIQ. L:ike Nilla Eckstrom (I think?) I like to be between 80-90, with maybe up to 120 after I eat.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The constant refilling and site changes...doesn't seem worth it.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Luddites just may be the most comfortable people on earth. 🙃 
    • 1 day, 10 hours ago
      Antsy likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      Holy cow! 8 to 10” bubbles? There is definitely something wrong if that is happening to you. I occasionally get 1/4” inch 10” is excessive. Have you gone in and shown your pump instructor how you’re doing it so that they can help you figure out the problem?
    • 1 day, 10 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      When I was put on insulin, the first dietitian I payed to see said I could eat whatever I wanted as long as I followed the set number of macros (carbs, protein, fats). The stupid diet had my blood sugars all over the map. She didn't care/listen when I told her milk, bread/pasta made me feel really sick. She said because I was on insulin I need to eat a high carb, low protein and low fat diet. What bad advice! Thankfully, I came to my senses and starting reading the experiences of other T1D's who were following the The Bernstein diet.
    • 1 day, 10 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      Saw one, recently out of school, when I was first diagnosed ten years ago. She insisted I needed 150 grams of carbs per day minimum and handed me a sheet with meal plans. She explained that I needed those carbs to keep my brain functioning properly. GEEZ. I can only hope she's learned a thing or two since then.
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    Do you feel like the financial costs associated with T1D require you to make sacrifices in other areas of your life?

    Home > LC Polls > Do you feel like the financial costs associated with T1D require you to make sacrifices in other areas of your life?
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    40 Comments

    1. Jneticdiabetic

      I’m fortunate to have good insurance through my husband’s employer. However, I met several T1D and T2Ds at an event this weekend who were struggling and couldn’t get insurance to cover and/or couldn’t afford a CGM. 💔 Anyone have any advice on this? Appreciate it!

      10 months ago Log in to Reply
      1. Wanacure

        1. Get then involved in working for a version of Medicare for All in their state. They can also get involved in the national Medicare for All movement. 2. With the shortage of workers, tell them to look to the Federal Government for a job. Even as just a clerk-typist I got excellent medical coverage when working full time for Small Business Administration. Familiarity with Windows OS and data input is probably a useful skill in any gov agency. Or look to city, state or county governments for openings.

        10 months ago Log in to Reply
    2. Jane Cerullo

      Not happy since switching from pump to MDI as required to pay co pay for insulin. Also pay for Iport, needles etc. but was my choice and am happy so far. Not being attached to a pump is freeing. Even omnipod gave me problems and was cost prohibitive on Medicare. Am waiting for InPen so I can follow my numbers on their app like a pump.

      1
      10 months ago Log in to Reply
      1. Kris Sykes-David

        I have an InPen and think it’s great! T1D for almost nine years and MDI the whole time. The InPen really makes a difference! I hope you can get one soon. I pay only $35/ year. In February, I turn 65, we’ll see what happens then with the cost.

        10 months ago Log in to Reply
    3. Cheryl Seibert

      I answered “Sometimes”. I am blessed with insurance that covers 80% of my insulin pump supplies and a $60 copay for 90day supply for insulin. However, that money has to be available, so we plan our purchases. My husband also has high medical expenses. I am approaching Medicare age in a few years, so it worries me the cost will skyrocket.

      10 months ago Log in to Reply
    4. Joan Fray

      I have a kaiser plan through Medicare and I pay 20% of everything I get. It’s ok. Better than being dead i suppose. Although sometimes………..

      2
      10 months ago Log in to Reply
    5. Vicki Breckenridge

      I’ve been so fortunate. I’ve always had fantastic insurance coverage. It’s even better for me now that I have original Medicare and a supplement.

      2
      10 months ago Log in to Reply
    6. Sasha Wooldridge

      If I didn’t have to pay higher insurance premiums, plus multiple prescriptions and dr visit copays that otherwise healthy people wouldn’t need, I’d have a new car. As it is, all those things combine average to a couple hundred dollars more than a new car payment would be each month. I keep hoping, but it’s been 7 years and I still haven’t been able to make it happen. Frustrating to say the least.

      10 months ago Log in to Reply
    7. Lyn McQuaid

      I feel very fortunate to have good insurance coverage at this stage in my life (age 49). However, when I was in my early 20’s and just starting out, I had crappy insurance but my father was also T1D so he would give me a box of test strips or a vial of insulin from his supply when I was low on cash. I was always grateful for that.

      10 months ago Log in to Reply
    8. Janice Bohn

      My husband is disabled so has been unable to work the last 20 years, and I make a modest income. The cost of healthcare has impacted our lives in these ways.
      Moved from our lovely home to a two family flat in the city so we get some additional income. No cable/sati lite, Netflix or the like – just plain tv, my brother has us on his family plan for phone, no high speed internet, we do not travel. Our one splurge is to eat out lunch on Saturday, lunch is more reasonable.
      With those “sacrifices” I have been able to have a pump, CGM and afford all our care.
      We are very content and do not need much to enjoy our lives so living modestly is really not a problem. I feel very fortunate as others have much greater struggles!

      9
      10 months ago Log in to Reply
      1. Wanacure

        Does your county or city library offer free computer access?

        10 months ago Log in to Reply
    9. TomH

      While I answered “no”, my insurance covers nearly all costs, I know several people that aren’t covered well or whose insurance does not cover many costs. They get stretched pretty well and there’s definitely financial impacts!

      10 months ago Log in to Reply
    10. mojoseje

      The cost of pump and CGM supplies has definitely impacted my financial health—especially since my husband was permanently laid off because of the pandemic. We could no longer afford our great insurance and my copays for insulin, pump, and CGM supplies are now $300/month. On 1/3 less salary, we are struggling to make it to retirement while watching our savings melt away.

      1
      10 months ago Log in to Reply
    11. Daniel Bestvater

      I answered yes.
      I owned a small business in Canada and have no coverage. I’ve tried to get coverage but due to an existing condition I have always been rejected.

      10 months ago Log in to Reply
    12. Marty

      I feel very lucky to have original Medicare with a supplement that covers copays and deductibles for insulin and diabetes supplies. My premiums aren’t cheap, of course, but I’m still very grateful to be free from worry about how to cover these expenses.

      10 months ago Log in to Reply
    13. Kris Sykes-David

      I answered sometimes. With federal BC/BS, my co-pays aren’t too awful. I have been keeping track on T1D expenditures for 2022 since I turn 65 in February and could choose straight Medicare or keep the Federal insurance. $ 1500 so far and I don’t have a pump, only MDI and InPen, and Dexcom CGM. Getting an OP5 would increase costs significantly.

      10 months ago Log in to Reply
    14. Lawrence S.

      I have not had to make sacrifices in other area of my life because of the financial costs of my T1D. The deductibles and copays are within my financial means. I have a Medicare, and a “mediocre” secondary insurance. But it keeps my head above water.

      10 months ago Log in to Reply
      1. Lawrence S.

        Sorry, I need to do a better job proof reading my statements.

        10 months ago Log in to Reply
    15. Teri Morris

      I understand in Europe diabetes expenses are covered. I have spent 20 years at the company I work for, due to their health coverage. I’ve got to have that, and can’t entertain the possibility of retirement. I’m very lucky to have help, as my parents had none when they raised me. We only took one vacation that I can remember. I do wish my health insurance through work covered CGMs though. They don’t recognize them as being as important as a pump for life-saving, life-extending, complication-less-likely treatment. At ~$120 every ten days I can’t afford to CGM!

      10 months ago Log in to Reply
      1. Lawrence S.

        If I may, I would suggest that you keep after your insurance company about the CGM. Many insurances cover CGM’s. My insurance company wouldn’t cover a CGM until I broke my ankle and lost a month from work from a low sugar fall. Then, they decided the CGM was worth it. I wish you good luck.

        1
        10 months ago Log in to Reply
    16. Bob Durstenfeld

      I am looking forward to the new legislation that caps out of pocket costs for Medicare part D and Insulin. Some years NY total medical costs have exceeded $15,000.

      2
      10 months ago Log in to Reply
    17. Ken Raiche

      That goes without saying if I didn’t have to spend the amount of money on my T1D it would definitely help in all aspects of the word.

      10 months ago Log in to Reply
      1. Donal Conway

        I have always found that and after 52 years with T1, it has taught me to be very economicial with my costs on every aspect of spending for

        1
        10 months ago Log in to Reply
    18. Sherrie Johnson

      Medicare and Anthem plan F cover it all except part D,which now omnipod falls under. To that I will not be trying the Omni when pumps are fully covered under Part B. Trying to simplify my life this doesn’t help.

      10 months ago Log in to Reply
    19. TEH

      I selected sometimes. While on private insurance at $1,500/ month, it was harder. When we stepped onto medicare with Anthem suplement and part D, our health care costs dropped to 1/3 of that. So, it depends on your prospective on if Medicare is expensive or not. Additionally, the mailorder Part D we have is a fraction of over the counter Rx costs.

      10 months ago Log in to Reply
    20. Eva

      It is not just the cost of the insulin, glucose tabs, pump supplies and test strips, it is also the increased cost associated with eating healthier (whole foods & gluten free) that makes me scrimp on clothes, electronics, vacations etc… Not that I care, because I really don’t need the latest apple phone or a new car.

      5
      10 months ago Log in to Reply
    21. Tina Roberts

      Absofreakinglutely!!!!!!! Sensors and pump supplies are outrageously expensive!!

      3
      10 months ago Log in to Reply
    22. Magnus Hiis

      Definitely, much of the pharmacy costs are taken care of the government but it’s much more, days that you can’t because of diabetes, to sign an insurance I pay at least the double amount compared to non diabetics and I can’t take a life insurance. The costs for treating lows, eating regularly, to have technical devices that is necessary for getting my diabetes optimized, doctors appointment, sick days etc

      2
      10 months ago Log in to Reply
    23. Janis Senungetuk

      YES! The impact of T1D expenses has made a tremendous difference in available choices over the past 67 years. Now at 76, the struggle has become even harder as savings are depleted from skyrocketing increases in living expenses in addition to the continual medical costs.

      6
      10 months ago Log in to Reply
    24. Diana L.

      Medicare covers all the costs for pump users . I also have a good supplemental plan that covers CGM use, it is $250/month

      10 months ago Log in to Reply
    25. Mick Martin

      Although I answered “No” it SHOULD BE ‘Not Applicable’ as I live in the UK and our NHS (National Health Service) pays for all of my diabetes costs. (The NHS is funded via direct taxation of all working people.)

      2
      10 months ago Log in to Reply
    26. Patricia Dalrymple

      I said No. I have worked in higher Ed for a college that pays for everything but my pump and supplies (I pay 20%). I have no children – I’m not sure I can say I’m fortunate for that – just didn’t work out for me. I’ve been fortunate to be able to save a lot of my salary. My husband and I don’t overspend for things.

      10 months ago Log in to Reply
    27. Molly Jones

      I answered No, but it is a constant thought of myself and my spouse, so if anything, maybe a sacrifice in a feeling of ease.
      I remember in my early twenties making sacrifices in many areas before qualifying for disability for epilepsy. Trying to save money in areas that would take you back a century at least. I still couldn’t afford medication and was thankfully given the most inexpensive phenobarbital from my neurologist who saw me for free.
      I am very grateful now with the insurance my husband has and also to have had the previous experience. I can empathize with others but am grateful not to live in areas of the world who lack doctors almost completely.

      1
      10 months ago Log in to Reply
    28. John McHenery

      Most costs covered by UK National Health Service

      2
      10 months ago Log in to Reply
    29. Steven Gill

      I “downsized” this last year (sold a house moved into an apt off my brother’s garage) not wholly for financial reasons. So I’m much better off but dropped the CGM supplies due to costs for 3 years. Still, I joke I’m wearing my car.

      10 months ago Log in to Reply
    30. elsa

      Absolutely, because these costs add up to a significant amount of the monthly budget. Insurance premiums are higher (always have to choose a more expensive plan), and monthly costs other than premiums are higher (more doctor’s visits, lots of prescription costs). Unexpected costs are inevitable given the delays and restrictions we are subjected to by insurance/PBM and DME suppliers—which have resulted in me paying full price out of pocket twice this year for pump supplies, once for insulin, and once for blood work despite planning ahead, knowing how to navigate insurance, and having an ACA Gold tier plan in New York with a monthly premium that is just under $1,000/month.

      10 months ago Log in to Reply
    31. AnitaS

      I am very fortunate to have insurance that covers most of my diabetes supplies, so my answer was no.

      10 months ago Log in to Reply
    32. mbulzomi@optonline.net

      No. I’m very fortunate that all my expenses are covered by Medicare Part “B” and my secondary insurance, Federal Employee Program, Blue Cross Blue Shield.

      1
      10 months ago Log in to Reply
    33. Krystal Udey

      Thankfully my employer does a good job of keeping my costs low through Rx and insurance plans. When I was younger though, I had a very strict budget where I broke my pump supply payments into small chunks. Otherwise I could not afford rent or geroceries.

      10 months ago Log in to Reply
    34. PamK

      It has, especially when money is tight, if you know what I mean.

      10 months ago Log in to Reply

    Do you feel like the financial costs associated with T1D require you to make sacrifices in other areas of your life? Cancel reply

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