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      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 10 hours, 16 minutes ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
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      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 11 hours, 20 minutes ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 1 day, 6 hours ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 1 day, 9 hours ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 1 day, 10 hours ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 1 day, 11 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 1 day, 11 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 1 day, 22 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 1 day, 22 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 2 days, 6 hours ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 2 days, 10 hours ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
    • 2 days, 11 hours ago
      Derek West likes your comment at
      What is the best spot for CGM accuracy
      Dexcom is ok with other locations if approved by your doctor.
    • 2 days, 11 hours ago
      Lawrence S. likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      1 and 2 days before its about to expire. It goes out of range several times those days. They should prescribe a 10 day CGM for every 8 days because on average, that is the use it seems we get.. and if you call to report it, you lose an hour on the phone!
    • 2 days, 12 hours ago
      Lawrence S. likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      It's a G7...one feature they added to the new version was random signal loss.
    • 2 days, 12 hours ago
      Meerkat likes your comment at
      Over the past week, what percent of the time have you been within your glucose target range?
      Around 95%
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      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      It’s usually at the end of my sensor session. Day 8 or 9
    • 3 days, 7 hours ago
      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      I tried to answer all of them but it wouldn’t let me. Or maybe my answer should be-for no apparent reason. It happens any time from day five on with no particular reason.
    • 3 days, 7 hours ago
      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Methinks the question doth another answer require. I almost clicked "out of range," but the occurrences often happen when withing 6 feet of CGM and the *#($% thing still has a signal loss. I re-orient so both devices are face to face. It STILL indicates signal loss. Then, after considerable time, these digital devices change their minds and say to each other, "OK, let's communicate again." My patience and frustration are suffering. 🗣˙◠˙
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      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Day 5 of 7, 4 out of 5 sensors in that box.
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      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      for no discernable reason.
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      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
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      Lauren T likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      for no discernable reason.
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    Do extremely high temperatures outside impact whether or not you refrigerate your insulin after it has been opened?

    Home > LC Polls > Do extremely high temperatures outside impact whether or not you refrigerate your insulin after it has been opened?
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    If you use a CGM, how many times in the past month have you had to change your sensor more than 24 hours before its session expired?

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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    54 Comments

    1. Tim Kirchgessner

      Always keep it refrigerated even before open

      2
      4 years ago Log in to Reply
    2. Thomas Cline

      I wouldn’t refrigerate the insulin I’m using, but I certainly would make sure it doesn’t get above 86F — either by simply not going outside with it when it is superhot (we have parts of our house that are always below 86F), or, if I had to go out (like on a vacation) I’d use a Frio pack — but that’s not refrigeration per se.

      1
      4 years ago Log in to Reply
    3. Molly Jones

      Extremely high temps are rare for me and hopefully continue to be so.
      I live in a temperate zone, but don’t want to worry about the expiration of the insulin and keep it in the fridge while using it.
      I learned from tandem that cold insulin can possibly damage their cartridges and so prepare a syringe a day in advance.

      4 years ago Log in to Reply
    4. Janice Bohn

      I have a box in the refrigerator where I keep all my insulin.

      4 years ago Log in to Reply
    5. alice locke

      I always refrigerate my rapid insulin. I keep my long acting at room temperature.

      4 years ago Log in to Reply
    6. Carolann Hunt

      The house has AC so the insulin is fine at room temp

      1
      4 years ago Log in to Reply
    7. Kimberly Starkey

      I will also place my insulin in a somewhat chilled cooler if I lock up my car while shopping in a location where the car will get hot, and I know I will need a new reservoir that day.

      4 years ago Log in to Reply
    8. Kevin McCue

      So where was the option for always refrigerate insulin that’s was my other choice not presented

      1
      4 years ago Log in to Reply
    9. GLORIA MILLER

      While at home it is stored in my refrigerator simply because I get about a year’s supply at one time. When I traveling, it is kept at whatever temperature I am located in at the time. I know some will carry a cold pack while traveling but I never have.

      4 years ago Log in to Reply
    10. TEH

      When I do car trips I keep my open and/or unopened insulin in a Medicool protector mini-cooler, or in a tray away from the ice in a regular cooler. I keep all my unopened insulin in the frig at home. We usually vacation with our RV that has a frig on line.

      4 years ago Log in to Reply
    11. Trisha Oldenkamp

      I never refrigerate it but I keep the vial in a small Frio bag and I keep it in my purse.

      4 years ago Log in to Reply
    12. Lawrence S.

      I am confused by the wording of the question. I always keep my vials of insulin in the refrigerator, whether opened or not. When I use a cartridge of insulin in my pump, it goes where I go, inside or outside. I still don’t understand what you are asking?

      2
      4 years ago Log in to Reply
      1. Sherrie Johnson

        I agree some questions are confusing the way they are worded

        4 years ago Log in to Reply
      2. AnitaS

        I am taking for granted that they are are not talking about pump cartridges, just vials. Many people just put in their explanation whether they are talking about opened vials or vials that have not been opened yet. I think people put explanations since they are stating how they have interpreted the questions.

        4 years ago Log in to Reply
      3. Lawrence S.

        Thank you Anita and Sherrie.

        4 years ago Log in to Reply
    13. Gerald Oefelein

      I do not refrigerate opened vials of insulin at normal room temperature, but I do pack in a cooler when traveling. I store unopened vials in our refrigerator.

      2
      4 years ago Log in to Reply
    14. Marty

      I put my whole pump in a cooler when I take it off and lock it in the car at the beach. In the past, I’ve left opened vials on ice in hotel rooms that lack air conditioning in hot places. Otherwise, I leave opened vials at room temperature.

      4 years ago Log in to Reply
    15. Susan Gordon

      I receive 4 bottles at a time and I refrigerate right away. They stay in the fridge as I use them.

      1
      4 years ago Log in to Reply
    16. Tom Caesar

      Always keep my insulin refrigerated, opened or not

      1
      4 years ago Log in to Reply
    17. Bruce Schnitzler

      I always refrigerate Lantus because a vial lasts over a month. I do not refrigerate Novolog pens since it lasts only a few days and Is in an environment with air conditioning. If auto traveling, I use a small cooler.

      4 years ago Log in to Reply
    18. Jane Cerullo

      I am on MDI and I keep pens in fridge. If going out I use a Frio pouch. I live in the desert. Makes me feel more secure I guess that insulin won’t overheat. It’s been 114 degrees. Won’t worry so much when it gets cooler.

      4 years ago Log in to Reply
    19. Jim Cobbe

      I never refrigerate it in the US, but I have on occasion in the past when traveling in the tropics in countries with unreliable air conditioning. Both in the US and overseas when traveling in high temp areas I would use a gel pak in my kit to keep the insulin cool during the day and refreeze the gel pak each night in the hotel room fridge (sometimes would involve asking the staff to put in a kitchen freezer, which was never refused once the use was understood — even in some fairly dodgy lodgings!)

      4 years ago Log in to Reply
    20. mbulzomi@optonline.net

      As I checked off, “I always Refrigerate my Insulin”, except when I am Traveling. However, I have not been to a hotel that doesn’t have a Refrigerator. I use a FRIO cooling pack in transit; it hasn’t failed me yet. I’ve traveled all over the world.

      3
      4 years ago Log in to Reply
      1. mbulzomi@optonline.net

        May I add a comment. If the Hotel does not have a Refrigerator, I will get Ice cubes and put them into the ice receptacle and put the insulin into a glass and place it into the ice. When home, my nine vials of NovoLog goes into the refer. until I used them.

        4 years ago Log in to Reply
    21. Marla Peaslee

      When traveling with extreme temperatures I use insulated insulin packs.

      4 years ago Log in to Reply
    22. Russ Spittler

      I do not refrigerate insulin/Symlin pens “in use” while I’m indoors. As a Type 1, I go back and forth between the beach in CA and the desert in Las Vegas, which means sharp outdoor temperature extremes going from say 75 to 115 degrees in a single day, or consistent outdoor temps over 100 degrees through the day (Vegas). Using insulin and Symlin pens, I carry a tote bag with frozen gel packs (as necessary) in which I seek to keep the temperature IN THE BAG below the max tolerable by the pens in the bag. I do not have the gel packs touch the pens directly. Serves to maintain a degree of continuity between in-door and outdoor temps the pens are exposed to while remaining under the pens’ maximum tolerable temps. Works for me.

      1
      4 years ago Log in to Reply
    23. Ernie Richmann

      I have air conditioning at home so I do not usually refrigerate insulin after opening. When traveling during warm weather, I keep insulin in a thermos with ice.

      4 years ago Log in to Reply
    24. Steve Rumble

      the temperature is not an issue. I keep my lantus in the refrigerator because I always take my lantus in the kitchen and the refrigerator is convenient. I carry my novolog with me so it is not refrigerated.

      4 years ago Log in to Reply
    25. Mary Ann Sayers

      I have experienced a heart wave like this one. But I live in an air conditioned rest home and have not gone outside during it’s impact on my area of Massachusetts, nevermind the country!
      The answer is no, I do not refrigerate the insulin after opening.

      4 years ago Log in to Reply
    26. Amanda Barras

      During the summer if I am traveling I always keep my insulin with me or in the hotel to keep it cool and never leave it in car. But just at home, a/c keeps it cool and it’s a non-issue. Power outage during summer heat would be an exception.

      4 years ago Log in to Reply
    27. Sue Compo

      I use a frio for my opened pens
      I refrigerate unopened viles

      1
      4 years ago Log in to Reply
    28. Sue Herflicker

      I always keep my insulin out of the refrigerator after opening. However in the summer at the beach or pool I always put it in a cooler so it doesn’t cook. Years ago when my boys were younger and we went to Florida often to stay with friends their insulin in their pumps would go bad when playing outside in the heat.

      4 years ago Log in to Reply
    29. Ms Cris

      I keep them all refrigerated or in a cooler at all times, learned the hard way that even at steady room temp I notice early, minute deterioration.
      When it’s time for a new cartridge, I prepare a syringe an hour beforehand, allowing it to come to room temp before filling the cartridge.
      I use a Frio wallet for my pump, works great.

      4 years ago Log in to Reply
    30. Carol Meares

      I keep all insulin in a refrigerator except when traveling in which case it is in a Frio container if is opened. It is with a frozen cooler block in my suitcase when traveling. I always keep some extra insulin with me in Frio container.

      4 years ago Log in to Reply
    31. Mick Martin

      I VERY RARELY refrigerate insulin after it has been opened.

      It’s not often that we receive temperatures in the UK that warrant this behaviour [behavior].

      4 years ago Log in to Reply
    32. Bonnie Lundblom

      Air-conditioned house so the NovoLog vial once opened stays at room temperature. I wish I knew how to protect the insulin in my Tslim pump when I’m outside doing yard work and the temperature is in the 90’s!

      4 years ago Log in to Reply
      1. Bonnie Lundblom

        All unopened vials are in the refrigerator.

        4 years ago Log in to Reply
    33. Janis Senungetuk

      I keep all of my Novolog in the refrigerator, including what I’m currently using.

      1
      4 years ago Log in to Reply
    34. Julie Pierce

      I always keep my insulin refrigerated

      1
      4 years ago Log in to Reply
    35. kflying1@yahoo.com

      I will put opened insulin in a thermal pouch with something cold when the air temp get’s above 80.

      4 years ago Log in to Reply
    36. AnitaS

      I don’t normally refrigerate my insulin after opening as after I fill my pump cartridge, I usually just put my insulin back into my closet. If I need to take insulin with me, such as on vacation, I do carry my insulin vials in insulin holders that keep my insulin cooler.

      4 years ago Log in to Reply
    37. Ahh Life

      Never refrigerate the bottle being used and one extra. Both are in emergency kit in the closet next to the extra bathroom. Others are all refrigerated.

      It is known to be a bit hot in Florida. In fact, we skipped global warming and went straight to global heating many years ago. Just wish you guys in the other 49 states wouldn’t compete so hard to out do us. And toFahrenheit rub salt in our wound, you are doing it by 15 or 20 degrees fahrenheit. ( ͡> ͜ʖ͡< )

      1
      4 years ago Log in to Reply
    38. Denise Yonchek

      I don’t refrigerate after opening a new bottle, but if extremely hot make sure it is in a cool place

      1
      4 years ago Log in to Reply
    39. Jneticdiabetic

      I usually keep my Humalog insulin in the fridge. When I get down to the last bits (~20u) that are not worth drawing up for my pump, I’ll carry that vial in my kit with syringes at room temp in case of emergencies. I rarely need, so have had vials in my bag unrefrigerated for months and have been happy to find they still worked.

      1
      4 years ago Log in to Reply
    40. Steve Hornig

      I keep opened bottles at room temp. In 35 years as a type 1, I’ve never noticed insulin being affected by heat. Can anyone point me to an authoritative article on degradation of insulin due to heat? I’d love to read one. Thanks.

      4 years ago Log in to Reply
    41. Angela Naccari

      I answered “other”. I keep my insulin in the refrigerator until I open a vial. Then it kept in container with other supplies. When I travel in the car for a long trip I pack opened and and unopened vials with a cold pack in a thermal lunch bag.

      1
      4 years ago Log in to Reply
    42. ConnieT1D62

      I keep the insulin bottle currently in use in my pump change supplies carryall that lives in a hallway closet. Bottles not in use are refrigerated. When traveling away from home i carry insulin supplies in a Frio pack.

      1
      4 years ago Log in to Reply
    43. RegMunro

      Some years ago during a trip I had to leave all my insulin supplies, short & long acting, in the trunk of a car for 15 hours of over 100 degree heat. Despite our fears the insulins were, or appeared to be, totally unaffected! Being in Panama City we’re doubted our ability to replace my insulin based on my Cape Toen prescription that I didn’t have with me

      4 years ago Log in to Reply
    44. vbaum1956

      I keep the unopened bottles in the refrig but usually the opened bottle I keep in the bathroom, unless it is very warm outside.

      4 years ago Log in to Reply
    45. Bea Anderson

      I keep the opened vial with me. I don’t leave it in hot car, but hiking, biking it comes along. Rarely I’ll use a cool pack.

      4 years ago Log in to Reply
    46. Tom Rintelmann

      Living in Texas and being an active individual, I must pack a small cooler with ice packs and cushioning to keep my pens from getting too cold.

      1
      4 years ago Log in to Reply
    47. Brad Larson

      Have used a product called Frio (?) a pouch containing crystals that swell when wetted, then by dehydrating slowly uses evaporative cooling. Always in warm months, rarely during cool months. TSA has never pulled me up for the “gel,” in X-ray. It always keeps the insulin cool. I heard (maybe mistakenly) that once taken out of refrigeration, insulin pens should not be refrigerated again.

      4 years ago Log in to Reply
    48. Chris Deutsch

      The recommendation is to keep insulin refrigerated until it is opened, then to use it within 1 month at room temperature. I label the open vial and pens for expiration in 28-30 days. My vials last 25 days; I carry insulin pens as backup to my pump, and am required to waste most of each syringe since my tandem pump seldom malfunctions. I always regret wasting the insulin.

      4 years ago Log in to Reply
    49. Cheryl Seibert

      I’ve kept ALL my insulin vials in the fridge for the past 56 years. I carry a vial when away from home, either on ice pack in high temps or in an insulated pouch if I’m going to be inside out of the hot temps.

      4 years ago Log in to Reply

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