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    • 3 hours, 3 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 14 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 16 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 22 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 23 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 23 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 14 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 17 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 17 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 20 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 20 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 22 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 22 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you live with autoimmune disease other than T1D, which were you diagnosed with first, T1D or your other autoimmune disease? Share in the comment what your other autoimmune disease is if you have one!

    Home > LC Polls > If you live with autoimmune disease other than T1D, which were you diagnosed with first, T1D or your other autoimmune disease? Share in the comment what your other autoimmune disease is if you have one!
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    If you have moved away from your T1D care provider, how challenging was it to find a new T1D care provider who was accepting new patients?

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    Have you ever used a breath ketone meter?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    54 Comments

    1. Leigh French

      Giant cell arteritis

      4 years ago Log in to Reply
    2. Robin Melen

      Systemic lupus erythematosus

      4 years ago Log in to Reply
    3. Shannon Barnaby

      Celiac, hypothyroidism

      4 years ago Log in to Reply
    4. Pauline M Reynolds

      Hashimoto’s thyroiditis diagnosed about five years after T1D. Polymyalgia Rheumatica about 15 years after T1D. Enteropathic arthritis 25 yrs after T1D.

      4 years ago Log in to Reply
    5. Eva

      hypothyroidism – 20 years after T1D diagnoses

      4 years ago Log in to Reply
    6. Kelly Steiner

      Hashimotos

      4 years ago Log in to Reply
    7. Phyllis Lewis

      Thyroid disease

      4 years ago Log in to Reply
    8. Amanda Barras

      1988 – T1
      2001 – Hypothyroidism

      4 years ago Log in to Reply
    9. Jneticdiabetic

      Hashimoto’s thyroid disease about 14 yrs after T1D diagnosis (& following birth of my 2nd child).

      4 years ago Log in to Reply
    10. Kathleen Juzenas

      Hypothyroidism
      Rheumatoid arthritis 22 yrs after T1d diagnosis

      4 years ago Log in to Reply
    11. kilupx

      I answered BEFORE though the real answer is before and after. I had hypothyroidism and mild psoriasis for decades before I developed LADA. Five years after that I got rheumatoid arthritis.

      4 years ago Log in to Reply
    12. Lori Lehnen

      Psoriasis-1972
      T1D-2021

      4 years ago Log in to Reply
    13. Chrisanda

      Hashimoto’s disease a few years after T1D.

      4 years ago Log in to Reply
    14. Natalie Daley

      Hashimoto’s Syndrome and genital scleroderma, both after T1D

      4 years ago Log in to Reply
    15. Drina Nicole Jewell

      Chronic Urticaria (chronic hives)
      Ive had this for as long as I can remember. My dad said they started shortly after he brought me home from the hospital as an infant.

      4 years ago Log in to Reply
      1. Drina Nicole Jewell

        I was diagnosed with type 1 in 2000

        4 years ago Log in to Reply
    16. AnitaS

      I got hypothyroidism a few years after being diagnosed T1-diabetic

      4 years ago Log in to Reply
    17. Kathy Morison

      I have more than one other autoimmune disease. I was first diagnosed with hyperthyroid because of a goiter, they killed that with radioactive iodine and then I became hashimoto. Lupus was happening but it wasn’t truly diagnosed until later in my life but then diabetes came after that.

      4 years ago Log in to Reply
    18. Ms Cris

      *Hashimoto’s Thyroiditis
      *Raynaud’s disease
      *Undifferentiated Connective Tissue Disease (with symptoms and blood markers of Sjogrens, RA, SLE)
      *Rosacea (they now know it’s autoimmune, but I’ve had it treated since teens)

      4 years ago Log in to Reply
    19. Carl Robertson

      Addison’s disease 12 years prior to T1D

      4 years ago Log in to Reply
    20. Melinda Lipe

      I’m not sure. Always T1D, but also frozen shoulder and arthritis.

      4 years ago Log in to Reply
    21. ellencherry

      I said T1D, but I was actually DX with both T1 and Hashimotos at the same time.

      4 years ago Log in to Reply
    22. Lynn Smith

      Hashimoto’s 31 years after T1D and then Celiac disease 15 years after that.

      4 years ago Log in to Reply
    23. Lauren Carey

      Celiac

      4 years ago Log in to Reply
    24. Kathryn Keller

      Celiac about 6 months after T1D

      4 years ago Log in to Reply
    25. Dan Diehl

      Hashimoto’s thyroiditis

      4 years ago Log in to Reply
      1. Marsha Miller

        Do you take med for this? I am approaching that.

        4 years ago Log in to Reply
    26. pru barry

      Graves disease after 68 years as a T1D. I almost immediately asked to have my overactive thyroid removed, and now I’m back to just one autoimmune abnormality (that I know of), short of having to take a daily dose of levothyroxine in pill form. No diet restrictions! Such an easy disease, it’s almost lovable :^) !!!

      1
      4 years ago Log in to Reply
    27. Wanacure

      Are food allergies autoimmune? Before I was diagnosed w/ T1D, thru skin tests I was found allergic (stuffy nose, sore throats, hay fever) to walnuts, pollens, cat dander, etc. But by then our beloved pet cat was treated as a family member & allergy was regarded as “sketchy” medicine, so my brother & I got by with gargling hot dilute salt water (+ smidgen baking soda) and antihistamine capsules at bedtime. My little brother’s symptoms were so bad he had to go thru the trauma of
      a tonsillectomy (a then accepted medical practice). Decades after T1D onset, my bro’ and I were diagnosed with celiac disease. Before celiac diagnosis I was diagnosed with arthritis, and then a persistent but controllable itchy skin rash and a few melanoma. (I see a great dermatologist yearly.) Our mom was asthmatic, our pop bothered by psoriasis, died of colon cancer. I was long ignorant that cancer and arthritis were autoimmune diseases. Some environmental factors we can’t control, some we can (smoking, alcohol, exercise, job environment, diet, sun exposure, nuclear radiation from bomb tests/reactor leaks). Was your pregnant mom’s shared blood filled with stress hormones while you were a fetus? Was she financially and emotionally secure? Epigenetic trauma, like slavery? Bondage? Poverty? Intermarriage? War refugee? Racism? High cancer and diabetes diagnoses among South Pacific Islanders often blamed on US nuclear bomb tests. Remember Bikini Island? Hiroshima? Nagasaki? Now think Chernobyl? Three Mile Island? Fukushima?

      4 years ago Log in to Reply
      1. sweet charlie

        OMG!!!

        4 years ago Log in to Reply
    28. Don (Lucky) Copps

      Hypothyroidism

      4 years ago Log in to Reply
    29. Andrew Seville

      I was diagnosed with Coeliac disease first.
      I’m told celiac and diabetes go hand in hand.

      4 years ago Log in to Reply
    30. Kristine Warmecke

      T1D 1982
      Moyamoya Disease (officially diagnosed) 2012
      Hashimoto’s 2021

      4 years ago Log in to Reply
    31. Sherolyn Newell

      About a year after the T1D, I started having joint pain. When my annual blood draw showed very low WBC, my PCP was doing every test in the book to figure out why. At that time, I asked him to throw in the rheumatoid arthritis test as well. It came back positive.

      4 years ago Log in to Reply
    32. Becky Hertz

      I was diagnosed with rheumatoid arthritis after my T1D diagnosis, however, I haven’t had any sequelae from the ra diagnosis.

      4 years ago Log in to Reply
      1. Pam Taylor

        Sjoghgrens

        4 years ago Log in to Reply
    33. Lawrence S.

      I said T1D first, which was diagnosed when I was 23. But, I’ve had asthma, since age 8. I also had Irritable Bowel and food allergies since age 19, (not diagnosed). Since T1D, I’ve had Celiac disease, hypothyroid, and frozen shoulders (not chronologically.

      4 years ago Log in to Reply
    34. karolinamalecki7@gmail.com

      I have hashimotos. I’ve had hashimotos for about 11 years and type 1 for 1 year. I have been euthyroid (normal thyroid levels with no thyroid medications) since then but had many auto antibodies for hashimotos.

      4 years ago Log in to Reply
    35. Yaffa Steubinger

      My 4 autoimmune diseases came in this order: Hashimoto’s Thyroiditis, Pernicious Anemia, Autoimmune Hepatitis, and T1. Lucky me

      4 years ago Log in to Reply
    36. Carrolyn Barloco

      I have vitiligo, does that count?

      1
      4 years ago Log in to Reply
    37. Jane Cerullo

      First LADA
      20 years later graves ds
      Then TED

      4 years ago Log in to Reply
    38. Sharon Gerdik

      I was diagnosed with T1D several years after surviving Thyroid Storm.

      4 years ago Log in to Reply
    39. Donna Condi

      At my first appointment with my endocrinologist I had bloodwork which showed I had Hashimoto’s thyroid disease.

      4 years ago Log in to Reply
    40. Lisa Ann Felton

      Rheumatoid arthritis

      4 years ago Log in to Reply
    41. Bea Anderson

      Hashimotos thyroid at 24 yrs.
      Suspected Autiomune Inner Ear Disease at 9 yrs. Deafness. Inner ear damaged. 3 surgeries to keep it healthy, but no hearing.

      4 years ago Log in to Reply
    42. Bruce and Audrey Coleman

      Psoriatic arthritis

      1
      4 years ago Log in to Reply
    43. jo

      I was diagnosed with Celiac disease first, then I was diagnosed with Type-1, then I was diagnosed with Autoimmune leukopenia. I hope I’m done with autoimmune diseases
      .

      4 years ago Log in to Reply
    44. Trisha Oldenkamp

      I had Graves Disease about 5 years prior to my T1 diagnosis.

      4 years ago Log in to Reply
    45. Molly Jones

      Epilepsy at 19. Hypothyroidism at 22. T1D at 31.
      After diabetes diagnosis and looking at my family’s love of autoimmune diseases I eventually asked to be tested for any autoimmune causes of epilepsy and it was found that I had extremely high GAD antibodies, above 25,000 U/mL, which showed my epilepsy also has a possible autoimmune cause as those antibodies interfere with the balance of my excitatory and inhibitory neurochemistry.

      4 years ago Log in to Reply
    46. Patricia H

      Rheumatoid Arthritis was diagnosed 6 months after my T1D diagnosis.

      4 years ago Log in to Reply
    47. Kelly Wilhelm

      Hashimotos/thyroid

      4 years ago Log in to Reply
    48. Andrea Hultman

      Hypothyroidism (not sure if it’s Hashimoto’s) and plaque psoriasis. ME/cfs, if it turns out to be an autoimmune disease. And I believe endometriosis and adenomyosis will eventually be categorized as autoimmune as well; I had surgeries to deal with both of them.

      4 years ago Log in to Reply
    49. ConnieT1D62

      Hypothyroid.

      4 years ago Log in to Reply
    50. kathy Granzow

      psoriasis/psoriatic arthritis – diagnosed with gestational diabetes while pregnant, after also getting psoriasis while pregnant.

      thanks, kids.

      3 years ago Log in to Reply

    If you live with autoimmune disease other than T1D, which were you diagnosed with first, T1D or your other autoimmune disease? Share in the comment what your other autoimmune disease is if you have one! Cancel reply

    You must be logged in to post a comment.




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