Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 5 hours, 8 minutes ago
      lis be likes your comment at
      Have you ever looked for information or read about islet cell transplantation?
      Yes, and looked at participating in research, but not willing to take the anti rejection drugs.
    • 5 hours, 8 minutes ago
      lis be likes your comment at
      Have you ever looked for information or read about islet cell transplantation?
      Of course I read everything about research about T1D
    • 7 hours, 53 minutes ago
      Amanda Barras likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      I got an Apple Watch for Christmas in 2024. The only times I take it off are to sleep or to shower.
    • 8 hours, 31 minutes ago
      Patricia Dalrymple likes your comment at
      How familiar are you with recent developments in islet cell transplantation aimed at eliminating the need for insulin?
      The question is, will insurance pay for this for the elderly. What would be their cutoff.
    • 1 day, 3 hours ago
      Anita Stokar likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      I'm cheap and go for the off brands. Saves a lot of money and it does what I need. No I can't give myself insulin through my watch, but it does notify me when my blood sugar is out of range.
    • 1 day, 3 hours ago
      Anita Stokar likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      Pump and CGM 99.9% of the time.
    • 1 day, 8 hours ago
      Karen Bowlby likes your comment at
      Have you ever looked for information or read about islet cell transplantation?
      There are several interesting trials going on now. VERTEX, and Elodon are two US trials, their is also a Swedish trial the uses gene editing to eliminate the need for immunosuppressive drugs.
    • 1 day, 9 hours ago
      John Barbuto likes your comment at
      Have you ever looked for information or read about islet cell transplantation?
      No one is interested in immune suppression drugs- most of us are coping by now. Most of us would also be willing to try paths that don’t require additional drugs, but we’re rejected because we’re coping.
    • 1 day, 9 hours ago
      John Barbuto likes your comment at
      Have you ever looked for information or read about islet cell transplantation?
      I agree totally. Antirejection protocol would be worse than just pumping insulin. I don't see any advantage
    • 1 day, 9 hours ago
      John Barbuto likes your comment at
      Have you ever looked for information or read about islet cell transplantation?
      Yes, and looked at participating in research, but not willing to take the anti rejection drugs.
    • 1 day, 9 hours ago
      John Barbuto likes your comment at
      Have you ever looked for information or read about islet cell transplantation?
      Of course I read everything about research about T1D
    • 1 day, 10 hours ago
      Kathy Hanavan likes your comment at
      Have you ever looked for information or read about islet cell transplantation?
      Of course I read everything about research about T1D
    • 1 day, 10 hours ago
      Eve Rabbiner likes your comment at
      Have you ever looked for information or read about islet cell transplantation?
      Of course I read everything about research about T1D
    • 1 day, 11 hours ago
      Steve Rumble likes your comment at
      Have you ever looked for information or read about islet cell transplantation?
      I agree totally. Antirejection protocol would be worse than just pumping insulin. I don't see any advantage
    • 1 day, 11 hours ago
      Daniel Bestvater likes your comment at
      Have you ever looked for information or read about islet cell transplantation?
      Yes, and looked at participating in research, but not willing to take the anti rejection drugs.
    • 1 day, 11 hours ago
      TEH likes your comment at
      Have you ever looked for information or read about islet cell transplantation?
      Yes, and looked at participating in research, but not willing to take the anti rejection drugs.
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None.
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      Other for the lacking answer of none of these. It took a while to get used to wearing my pump and CGM. I HATE the feeling of attachments to my skin and can't wear jewelry or watches.
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      Pump and CGM 99.9% of the time.
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 2 days, 9 hours ago
      Steve Rumble likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      Pump and CGM 99.9% of the time.
    • 2 days, 10 hours ago
      lis be likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      No one wants me. I am eighty four years old.
    • 2 days, 10 hours ago
      lis be likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      I can find research studies that pertain to my medical problems but I do not always have the prerequisites needed for the study.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    If you live with autoimmune disease other than T1D, which were you diagnosed with first, T1D or your other autoimmune disease? Share in the comment what your other autoimmune disease is if you have one!

    Home > LC Polls > If you live with autoimmune disease other than T1D, which were you diagnosed with first, T1D or your other autoimmune disease? Share in the comment what your other autoimmune disease is if you have one!
    Previous

    If you have moved away from your T1D care provider, how challenging was it to find a new T1D care provider who was accepting new patients?

    Next

    Have you ever used a breath ketone meter?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

    Related Stories

    Meet the Expert

    Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D 

    Jewels Doskicz, 11 hours ago 7 min read  
    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 2 weeks ago 6 min read  
    2026 Publications

    Persistent Burden of Severe Hypoglycemia and Impaired Awareness of Hypoglycemia Among People With Type 1 Diabetes Despite Technology Use: A Follow-up Survey 

    T1D Exchange, 3 weeks ago 1 min read  
    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 3 weeks ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 1 month ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 1 month ago 5 min read  

    54 Comments

    1. Leigh French

      Giant cell arteritis

      4 years ago Log in to Reply
    2. Robin Melen

      Systemic lupus erythematosus

      4 years ago Log in to Reply
    3. Shannon Barnaby

      Celiac, hypothyroidism

      4 years ago Log in to Reply
    4. Pauline M Reynolds

      Hashimoto’s thyroiditis diagnosed about five years after T1D. Polymyalgia Rheumatica about 15 years after T1D. Enteropathic arthritis 25 yrs after T1D.

      4 years ago Log in to Reply
    5. Eva

      hypothyroidism – 20 years after T1D diagnoses

      4 years ago Log in to Reply
    6. Kelly Steiner

      Hashimotos

      4 years ago Log in to Reply
    7. Phyllis Lewis

      Thyroid disease

      4 years ago Log in to Reply
    8. Amanda Barras

      1988 – T1
      2001 – Hypothyroidism

      4 years ago Log in to Reply
    9. Jneticdiabetic

      Hashimoto’s thyroid disease about 14 yrs after T1D diagnosis (& following birth of my 2nd child).

      4 years ago Log in to Reply
    10. Kathleen Juzenas

      Hypothyroidism
      Rheumatoid arthritis 22 yrs after T1d diagnosis

      4 years ago Log in to Reply
    11. kilupx

      I answered BEFORE though the real answer is before and after. I had hypothyroidism and mild psoriasis for decades before I developed LADA. Five years after that I got rheumatoid arthritis.

      4 years ago Log in to Reply
    12. Lori Lehnen

      Psoriasis-1972
      T1D-2021

      4 years ago Log in to Reply
    13. Chrisanda

      Hashimoto’s disease a few years after T1D.

      4 years ago Log in to Reply
    14. Natalie Daley

      Hashimoto’s Syndrome and genital scleroderma, both after T1D

      4 years ago Log in to Reply
    15. Drina Nicole Jewell

      Chronic Urticaria (chronic hives)
      Ive had this for as long as I can remember. My dad said they started shortly after he brought me home from the hospital as an infant.

      4 years ago Log in to Reply
      1. Drina Nicole Jewell

        I was diagnosed with type 1 in 2000

        4 years ago Log in to Reply
    16. AnitaS

      I got hypothyroidism a few years after being diagnosed T1-diabetic

      4 years ago Log in to Reply
    17. Kathy Morison

      I have more than one other autoimmune disease. I was first diagnosed with hyperthyroid because of a goiter, they killed that with radioactive iodine and then I became hashimoto. Lupus was happening but it wasn’t truly diagnosed until later in my life but then diabetes came after that.

      4 years ago Log in to Reply
    18. Ms Cris

      *Hashimoto’s Thyroiditis
      *Raynaud’s disease
      *Undifferentiated Connective Tissue Disease (with symptoms and blood markers of Sjogrens, RA, SLE)
      *Rosacea (they now know it’s autoimmune, but I’ve had it treated since teens)

      4 years ago Log in to Reply
    19. Carl Robertson

      Addison’s disease 12 years prior to T1D

      4 years ago Log in to Reply
    20. Melinda Lipe

      I’m not sure. Always T1D, but also frozen shoulder and arthritis.

      4 years ago Log in to Reply
    21. ellencherry

      I said T1D, but I was actually DX with both T1 and Hashimotos at the same time.

      4 years ago Log in to Reply
    22. Lynn Smith

      Hashimoto’s 31 years after T1D and then Celiac disease 15 years after that.

      4 years ago Log in to Reply
    23. Lauren Carey

      Celiac

      4 years ago Log in to Reply
    24. Kathryn Keller

      Celiac about 6 months after T1D

      4 years ago Log in to Reply
    25. Dan Diehl

      Hashimoto’s thyroiditis

      4 years ago Log in to Reply
      1. Marsha Miller

        Do you take med for this? I am approaching that.

        4 years ago Log in to Reply
    26. pru barry

      Graves disease after 68 years as a T1D. I almost immediately asked to have my overactive thyroid removed, and now I’m back to just one autoimmune abnormality (that I know of), short of having to take a daily dose of levothyroxine in pill form. No diet restrictions! Such an easy disease, it’s almost lovable :^) !!!

      1
      4 years ago Log in to Reply
    27. Wanacure

      Are food allergies autoimmune? Before I was diagnosed w/ T1D, thru skin tests I was found allergic (stuffy nose, sore throats, hay fever) to walnuts, pollens, cat dander, etc. But by then our beloved pet cat was treated as a family member & allergy was regarded as “sketchy” medicine, so my brother & I got by with gargling hot dilute salt water (+ smidgen baking soda) and antihistamine capsules at bedtime. My little brother’s symptoms were so bad he had to go thru the trauma of
      a tonsillectomy (a then accepted medical practice). Decades after T1D onset, my bro’ and I were diagnosed with celiac disease. Before celiac diagnosis I was diagnosed with arthritis, and then a persistent but controllable itchy skin rash and a few melanoma. (I see a great dermatologist yearly.) Our mom was asthmatic, our pop bothered by psoriasis, died of colon cancer. I was long ignorant that cancer and arthritis were autoimmune diseases. Some environmental factors we can’t control, some we can (smoking, alcohol, exercise, job environment, diet, sun exposure, nuclear radiation from bomb tests/reactor leaks). Was your pregnant mom’s shared blood filled with stress hormones while you were a fetus? Was she financially and emotionally secure? Epigenetic trauma, like slavery? Bondage? Poverty? Intermarriage? War refugee? Racism? High cancer and diabetes diagnoses among South Pacific Islanders often blamed on US nuclear bomb tests. Remember Bikini Island? Hiroshima? Nagasaki? Now think Chernobyl? Three Mile Island? Fukushima?

      4 years ago Log in to Reply
      1. sweet charlie

        OMG!!!

        4 years ago Log in to Reply
    28. Don (Lucky) Copps

      Hypothyroidism

      4 years ago Log in to Reply
    29. Andrew Seville

      I was diagnosed with Coeliac disease first.
      I’m told celiac and diabetes go hand in hand.

      4 years ago Log in to Reply
    30. Kristine Warmecke

      T1D 1982
      Moyamoya Disease (officially diagnosed) 2012
      Hashimoto’s 2021

      4 years ago Log in to Reply
    31. Sherolyn Newell

      About a year after the T1D, I started having joint pain. When my annual blood draw showed very low WBC, my PCP was doing every test in the book to figure out why. At that time, I asked him to throw in the rheumatoid arthritis test as well. It came back positive.

      4 years ago Log in to Reply
    32. Becky Hertz

      I was diagnosed with rheumatoid arthritis after my T1D diagnosis, however, I haven’t had any sequelae from the ra diagnosis.

      4 years ago Log in to Reply
      1. Pam Taylor

        Sjoghgrens

        4 years ago Log in to Reply
    33. Lawrence S.

      I said T1D first, which was diagnosed when I was 23. But, I’ve had asthma, since age 8. I also had Irritable Bowel and food allergies since age 19, (not diagnosed). Since T1D, I’ve had Celiac disease, hypothyroid, and frozen shoulders (not chronologically.

      4 years ago Log in to Reply
    34. karolinamalecki7@gmail.com

      I have hashimotos. I’ve had hashimotos for about 11 years and type 1 for 1 year. I have been euthyroid (normal thyroid levels with no thyroid medications) since then but had many auto antibodies for hashimotos.

      4 years ago Log in to Reply
    35. Yaffa Steubinger

      My 4 autoimmune diseases came in this order: Hashimoto’s Thyroiditis, Pernicious Anemia, Autoimmune Hepatitis, and T1. Lucky me

      4 years ago Log in to Reply
    36. Carrolyn Barloco

      I have vitiligo, does that count?

      1
      4 years ago Log in to Reply
    37. Jane Cerullo

      First LADA
      20 years later graves ds
      Then TED

      4 years ago Log in to Reply
    38. Sharon Gerdik

      I was diagnosed with T1D several years after surviving Thyroid Storm.

      4 years ago Log in to Reply
    39. Donna Condi

      At my first appointment with my endocrinologist I had bloodwork which showed I had Hashimoto’s thyroid disease.

      4 years ago Log in to Reply
    40. Lisa Ann Felton

      Rheumatoid arthritis

      4 years ago Log in to Reply
    41. Bea Anderson

      Hashimotos thyroid at 24 yrs.
      Suspected Autiomune Inner Ear Disease at 9 yrs. Deafness. Inner ear damaged. 3 surgeries to keep it healthy, but no hearing.

      4 years ago Log in to Reply
    42. Bruce and Audrey Coleman

      Psoriatic arthritis

      1
      4 years ago Log in to Reply
    43. jo

      I was diagnosed with Celiac disease first, then I was diagnosed with Type-1, then I was diagnosed with Autoimmune leukopenia. I hope I’m done with autoimmune diseases
      .

      4 years ago Log in to Reply
    44. Trisha Oldenkamp

      I had Graves Disease about 5 years prior to my T1 diagnosis.

      4 years ago Log in to Reply
    45. Molly Jones

      Epilepsy at 19. Hypothyroidism at 22. T1D at 31.
      After diabetes diagnosis and looking at my family’s love of autoimmune diseases I eventually asked to be tested for any autoimmune causes of epilepsy and it was found that I had extremely high GAD antibodies, above 25,000 U/mL, which showed my epilepsy also has a possible autoimmune cause as those antibodies interfere with the balance of my excitatory and inhibitory neurochemistry.

      4 years ago Log in to Reply
    46. Patricia H

      Rheumatoid Arthritis was diagnosed 6 months after my T1D diagnosis.

      4 years ago Log in to Reply
    47. Kelly Wilhelm

      Hashimotos/thyroid

      4 years ago Log in to Reply
    48. Andrea Hultman

      Hypothyroidism (not sure if it’s Hashimoto’s) and plaque psoriasis. ME/cfs, if it turns out to be an autoimmune disease. And I believe endometriosis and adenomyosis will eventually be categorized as autoimmune as well; I had surgeries to deal with both of them.

      4 years ago Log in to Reply
    49. ConnieT1D62

      Hypothyroid.

      4 years ago Log in to Reply
    50. kathy Granzow

      psoriasis/psoriatic arthritis – diagnosed with gestational diabetes while pregnant, after also getting psoriasis while pregnant.

      thanks, kids.

      4 years ago Log in to Reply

    If you live with autoimmune disease other than T1D, which were you diagnosed with first, T1D or your other autoimmune disease? Share in the comment what your other autoimmune disease is if you have one! Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]