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    • 1 hour, 24 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 1 hour, 30 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 1 hour, 36 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 1 day, 19 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 19 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 20 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 22 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 2 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 3 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 4 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 4 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 4 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 4 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 4 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 5 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 5 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 20 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 20 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 22 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 23 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 2 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 2 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.

    Home > LC Polls > If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
    Previous

    During your most recent appointment, about how much time did you spend with your main T1D health care provider?

    Next

    If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    40 Comments

    1. jo

      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).

      2
      3 years ago Log in to Reply
    2. Lawrence S.

      I have never known anyone to give extra supplies to. I’m also a little leery of getting in trouble with the insurance companies that paid for the supplies., Or the legal ramifications of giving medical equipment or supplies to someone without a prescription.

      2
      3 years ago Log in to Reply
    3. Julie Blehm

      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage

      1
      3 years ago Log in to Reply
    4. Mick Martin

      I gave “leftover supplies” to the Diabetes Centre that I attend as it is they, via our NHS (National Health Service), which pays for them. I KNOW that they use them as I’ve been approached by DSNs (Diabetes Specialist Nurses) when I’ve attended clinic to see if I have “extra supplies” with me as I normally carry a few set changes, etc. with me.

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        This is the way it should be. Your system is so far ahead of ours in many ways.

        1
        3 years ago Log in to Reply
      2. Mick Martin

        @Lawrence S.

        That’s very debateable, sir. Supplies have to be paid for by someone. i.e. via our NHS (National Health Service) in the UK (United Kingdom of Great Britain and Northern Ireland), which is financed via direct taxation of all working people, or by individuals, either ‘out of pocket’ or via your Health System, which I grant you, DOES leave some people at a disadvantage. (SOME might argue that our system ‘goes against’ fit and healthy people who MIGHT resent having to pay to keep others alive. Sadly, I’ve written to people in the United States in the past, via email, that are no longer with us as they couldn’t afford insulin.)

        1
        3 years ago Log in to Reply
      3. Lawrence S.

        Mick,
        It’s not a debate for me. For example, I live in a community with lots of amenities, 95% of which I do not use. I still have to pay my monthly HOA fees, and annual CDD fees. I don’t mind a bit paying for those amenities that I don’t use. It’s just part of our community. Regarding taxes. We Americans regard paying taxes as negative, hurtful thing. I do not see it that way. I see taxes as a contribution toward making our society better (including healthcare). While I do not use most of those benefits, I get some of those benefits.

        3 years ago Log in to Reply
    5. Kris Sykes-David

      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?

      2
      3 years ago Log in to Reply
    6. George Lovelace

      Check with your Endo aas they can accept and distribute Supplies legally

      3 years ago Log in to Reply
    7. T1diabetic

      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.

      1
      3 years ago Log in to Reply
    8. LizB

      I just switched from Medtronic 770g to Tandem/Dexcom and I was amazed at how many Medtronic supplies I had when I was trying to get them out of the way. I don’t want to just throw them away but it’s hard finding someone to give them to. Most social media groups won’t allow you to post about them and I understand why that is. I definitely will hold onto some just in case I have an issue with my current pump and need to go back to my old one while waiting for a replacement, but I don’t need as much as I have.

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        A familiar story. I’ve been holding onto my old Medtronic supplies for ten to twenty years. They’re still sitting in the closet.

        1
        3 years ago Log in to Reply
    9. Eva

      I sent them back to the manufacturer to let them dispose of it.

      3 years ago Log in to Reply
    10. Sue Martin

      I’m still looking for someone to give them to.

      1
      3 years ago Log in to Reply
    11. Carl Robertson

      Took them to my CDE’s office to hand out as samples or spares

      3 years ago Log in to Reply
    12. Jane Cerullo

      I give them to my Endo and they give to patients who need them

      3 years ago Log in to Reply
    13. Keira Thurheimer

      I often take extra supplies to my endocrinologist’s office. They use them for educational purposes.

      3 years ago Log in to Reply
    14. fletchina

      I would love to learn of places to give/donate supplies!

      2
      3 years ago Log in to Reply
    15. Janis Senungetuk

      First I asked my CDE if she could find patients who needed them. She said she wasn’t permitted to do that. I asked on several Facebook groups and connected with people who paid for shipping. Just did that with the last of my Animus pump supplies. I’ve also sent supplies to Insulin for Life in Florida, but the shipping costs are very high, can’t do that anymore.

      1
      3 years ago Log in to Reply
    16. GLORIA MILLER

      I gave supplies to the homeless shelter in town once and the last time I gave my supplies to my endo’s office to give to the poor who can’t afford such things.

      3 years ago Log in to Reply
    17. rick phillips

      I have decided to give them to my endo’s office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.

      3
      3 years ago Log in to Reply
    18. Steve Rumble

      I have not had significant amounts of extra supplies, so it hasn’t really been an issue.

      3 years ago Log in to Reply
    19. Bob Durstenfeld

      InsulinPumpers.com does a great job of distributing supplies to those in need.

      3
      3 years ago Log in to Reply
      1. TS

        I tried to find this website but it says it doesn’t exist?

        3 years ago Log in to Reply
      2. Sasha Wooldridge

        Found it! http://www.insulin-pumpers.org/

        3 years ago Log in to Reply
    20. Amanda Barras

      If can’t can’t find someone online to take them I keep them until they expire and then throw them. Just in case.

      3 years ago Log in to Reply
    21. Karen Tay

      My other was gave them to the Endocrinologist office to give to people who needed them

      1
      3 years ago Log in to Reply
    22. William Bennett

      My personal Zombie Apocalypse Emergency Stash has never met an oversupply it didn’t like. Even for stuff I don’t use anymore. Because you never know…..

      3 years ago Log in to Reply
    23. Jennifer Wilson

      I gave them to my endocrinologist office to offer to patients in need.

      3 years ago Log in to Reply
    24. Samantha Hunter

      I have a whole big box of Medtronic supplies I wasn’t able to donate because I switched to omniPod during the pandemic, including a pump. If anyone needs it please contact me!

      3 years ago Log in to Reply
    25. StPetie

      Tried to give them to a local support group but couldn’t get a call back. So I kept them as back ups.

      3 years ago Log in to Reply
    26. Patricia Van Fleet

      I gave mine to a friend for her cat.

      3 years ago Log in to Reply
    27. Chris Albright

      Donated some to my endo (all unopened and currently still shipping by mfg) and kept some in the event my current pump fails and I need a temp ‘stand-in’ until warranty replacement is received

      3 years ago Log in to Reply
    28. TS

      I have a whole slew of old Medtronic pump supplies and have no idea what to do with them. I have asked my endos and they don’t know either. I would love to see any suggestions!

      3 years ago Log in to Reply
    29. Becky Hertz

      Donated to my endos office.

      3 years ago Log in to Reply
    30. Donna Condi

      I was going to a support group run by a nurse in the endocrinologist department at one of the hospitals and I gave them to her to pass along to patients who could use them.

      3 years ago Log in to Reply
    31. Diana L.

      When I changed to Tslim after using Medtronics pump,. I had a lot of extras. I gave some to a local TD! group but I could not find a place to donate the rest. After a few months I just put them in the garbage.

      3 years ago Log in to Reply
    32. T1D4LongTime

      I donated supplies to CR3 Diabetes Association.

      3 years ago Log in to Reply
    33. PamK

      I probably should have checked both “Donated to an organization,” and “Gave them to a friend…” because I did give some items to family/friends who could use them.

      3 years ago Log in to Reply
    34. Bea Anderson

      Kept. Recently I had trouble with prescription for Omnipod 5 from provider. Got rejection from pharmacy/Medicare. Ran out of pods and prepared to fire up Medtronic pump in desperation. He inadvertently did refill for Omnipod 5 starter kit. I was desperate, worried, sad. Pharmacy didn’t say what mistake was. Dr office nurse didn’t catch difference and defended all was ok on there end. Finally provider got involved and realized his mistake. Horrible situation. I did ask provider to call me and apologize. Nurse said it was just a human mistake. I replied when humans make mistakes they apologize. He did call and I was grateful for resolution. I really need to learn how and have on hand injection method to give shots in emergency, and that’s on me!!

      3 years ago Log in to Reply

    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply. Cancel reply

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