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    • 4 hours, 46 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 4 hours, 47 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 4 hours, 48 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 4 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 1 hour ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 2 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 2 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 3 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 4 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 5 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 21 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 2 days, 21 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 13 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 14 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 3 days, 21 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 3 days, 21 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
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    How easy or difficult do you find the overall process of re-filling your insulin prescription?

    Home > LC Polls > How easy or difficult do you find the overall process of re-filling your insulin prescription?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    42 Comments

    1. Molly Jones

      Very easy as it is an automatic refill and I receive a notice on when to come and get it.

      11 months ago Log in to Reply
    2. Ahh Life

      Rx refill? Easy peasy.

      Actual pharmacy transaction? Dante’s 17 levels of hell. ♨️👊

      6
      11 months ago Log in to Reply
      1. Mary Dexter

        17?
        9 circles of hell:
        1. Limbo: virtuous pagans and unbaptized children
        2. The Carnal
        3. The Gluttonous
        4. Hoarders and Wasters
        5. Wrathful and Sullen
        6. Heretics
        7. Violent and Bestial (Against neighbors; against self; and against God, Art,and Nature)
        8. Simple Fraud
        9. Compound Fraud (treachery)
        The last three rings have 3, 10, and 4 levels, respectively.
        I am reading Canto XXII. Not sure whether they would be in Circle 4 or 8.

        1
        11 months ago Log in to Reply
      2. Ahh Life

        Mary Dexter — My typo error. It just feels like 17.

        11 months ago Log in to Reply
    3. Jane Cerullo

      Used to get all prescriptions from Walmart. Have a great relationship with the pharmacist and staff. Recently switched to humalog cartridges for the InPen. They don’t have them so I get them from mail order. So far all working well.

      11 months ago Log in to Reply
    4. Louise Robinson

      Loaded question. I use an insulin pump and became Medicare-eligible over 7 years ago. Insulin, when used in a pump is covered under Medicare Part B under Durable Medical Equipment (DME) rather than under Medicare Part D Prescription Drug Coverage. Because of Medicare reimbursement practices, providers are paid different amounts for the very same insulin depending upon where Medicare covers it. Because providers receive a greater amount under Part D, many providers will refuse to cover insulin under Part B. (I had this experience with Publix Pharmacy here in Florida). Walmart has been covering my insulin under Part B but sometimes tries to cover it under Part D which would result in a much higher co-pay for me. For the past few years, it’s been pretty smooth sailing for me to get my insulin under Part B via Walmart….not so, several years ago. After I pay my annual Part B Medicare DME deductible ($230 in 2022) my insulin OOP is $0.

      2
      11 months ago Log in to Reply
      1. Lawrence S.

        I’m still using Part D, $55 every 3 months.

        11 months ago Log in to Reply
    5. Lawrence S.

      My insulin comes from CVS/Caremark in the mail every 90 days. The only time I have problems is when the prescription has to be refilled after all the prescriptions run out. Sometimes it takes a while for the communication between my doctor’s office and CVS. But, overall it is “somewhat easy.”

      1
      11 months ago Log in to Reply
    6. Jeanne McMillan-Olson

      I get mine through Walgreens because they will bill Medicare for part B insulin. Sometimes getting Medicare approval for the prescription can take quite a while. Same with the Dexcom G6 sensors and transmitters.

      2
      11 months ago Log in to Reply
      1. Vivian Moon

        I used to get mine through Walgreens until Covid and loss of pharmacists and techs. Then they were unable to take the time it takes to get approval every three months from Medicare—by phone, and so long wait times. There is still a shortage where I live so I just pay no more than $105 every 3 months.

        1
        11 months ago Log in to Reply
    7. Joan Benedetto

      Insurance requires that we use Express Scripts for our son’s insulin. We get a ninety day supply auto shipped , but we do have to stay on top of it. “Auto ship” is not always so automatic.

      11 months ago Log in to Reply
    8. Eva

      Obtaining a refill from the Dr. is easy. I send a request via My Charts.
      Having Walmart pharmacist fill it correctly at the right price is close to an 1 hour or more waiting at the counter. They never ever get it right.

      1
      11 months ago Log in to Reply
      1. MT

        Same. Getting script or refill from md is easy. Getting it filled correctly at the right price at CVS is near impossible😡

        1
        11 months ago Log in to Reply
    9. Joan Fray

      Kaiser sends me six bottles in cold pack box when I request it. $20. No problemo.

      11 months ago Log in to Reply
    10. Karen Taylor

      I put other because it depends on the situation. When I was working I had no problem at all. Since I’ve moved and with my new endocrinologist sometimes he will not refill my expired prescription until I see him. This can be quite frustrating. And also since I’ve been on Medicare it has gotten more challenging with cost

      1
      11 months ago Log in to Reply
    11. Tom Caesar

      It’s difficult in that when they charge over $250 per vial! Hopefully the $35 cap will become a reality.

      2
      11 months ago Log in to Reply
    12. Merry Woolsey

      It’s easy as far as my provider goes. It’s always the insurance portion.

      11 months ago Log in to Reply
    13. Marty

      Getting insulin during my first year on Medicare was exhausting until I found a mail order supplier capable of dealing with Medicare Part B. Now the only major hassle is coping with the requirement for endo visits every 90 days in order to have Medicare coverage. With endos in such short supply, I’m very sorry to have to waste their time.

      3
      11 months ago Log in to Reply
    14. Bob Durstenfeld

      I said somewhat easy, but I have found it nearly impossible to find a pharmacy will to provide insulin under Medicare Part B. Under Part D it is costing me more than $150 per month.

      11 months ago Log in to Reply
    15. cynthia jaworski

      The only problem I encounter (except for price) is that the insurance company keeps changing po.icy on how much can be dispensed at a time. Instead of the 3 months specified in the prescription, I am often allowed only 6 weeks worth of insulin (I was told this is because it is so expensive) and I have to return and hope that I am allowed a second dispersal in the same 3 month time frame. It always works out, but takes considerable effort energy and angst.

      11 months ago Log in to Reply
    16. Mary Dexter

      Filling an insulin prescription should be as easy as buying milk, once one is correctly diagnosed ( a process that still takes too long for many who develop autoimmune diabetes as adults). What makes the process difficult reflects the increasing stigma and misinformation. The worst is the mistaken belief that T1 is little kids and everyone else is T2 which can be reversed with diet and exercise. So doctors cancel or refuse to renew insulin prescriptions. Attempts are made to micromanage down to the last drop. Pharmacies don’t keep enough in stock. Paperwork isn’t filed in a timely manner.

      1
      11 months ago Log in to Reply
      1. Mig Vascos

        So sad that there is still misinformation about adults developing T1D. That’s why I always say that diabetes should be treated by an endocrinologist and not a general physician. Hope is not an endocrinologist that gives you a hard time.

        11 months ago Log in to Reply
    17. Karen Mason

      Yearly I have to make my dr and druggist get the right information and then usually not a problem just time consuming depending on how fast they get together.

      11 months ago Log in to Reply
    18. Kristine Warmecke

      Getting the prescription isn’t a problem, getting my insurance to cover it under Part B or D is impossible.
      Does anyone understand the insulin act? Is Medicare Advantage plans supposed to cover ANY insulin for $25 a month? Even if it’s not on their formulary?

      11 months ago Log in to Reply
    19. Sherrie Johnson

      Easy once you find a pharmacy that understands DME billing.

      11 months ago Log in to Reply
    20. dave hedeen

      Being old & using pump, it is free & EZ. Use CVS at Target

      11 months ago Log in to Reply
    21. Keith LeMar

      Refilling it is easy; paying for it not so much!

      1
      11 months ago Log in to Reply
    22. Janis Senungetuk

      What for years was automatic has now become more difficult because my endo is so overwhelmed with patients. Getting the prescription billed correctly is a completely different story. For 7 years I was getting my insulin thru a nearby Walgreen’s because that specific pharmacy had a tech who handled Medicare Part B billing. Medicare is my secondary insurance, so it took knowledge + attention to detail to file the claims correctly. All of that changed 5 months ago when that pharmacy had a complete staff turnover and that knowledgeable tech no longer worked there. The pharmacists who had learned from her how to file the Part B claims were also gone. Very fortunately I had extra insulin and was able to search for another pharmacy. After being turned down by several independent pharmacies who don’t do Medicare Part B billing, I asked the small pharmacy at a grocery we shop at. The pharmacist said she was willing to learn the billing process as long as I was patient, Since I’m not desperate for insulin I was able to do that. In addition to insulin I switched my other 4 prescriptions and my spouse transferred 6 prescriptions. Since then, as long as the pharmacy has the time to order the Novolog, no problems. I’m grateful that pharmacist was willing to learn how to use Part B billing and was permitted to do so by her employer.

      11 months ago Log in to Reply
    23. Daniel Bestvater

      Very easy. I live in Canada so no prescription is needed. I buy it at any pharmacy.

      1
      11 months ago Log in to Reply
    24. Linda Zottoli

      Another Medicare recipient here. Have been using Walgreens for years, now, after striking out with CVS and all independent pharmacies about billing to Part B. Each 90 days, first order refill, then call the Walgreens medicare number, confirm what pump and date of last endo visit, wait for them to say they’ve overwritten the order, and then call pharmacy to say to bill to medicare part B. Always a problem when a new pharmacist.

      11 months ago Log in to Reply
    25. Becky Hertz

      Expensive (Part B) but easy

      11 months ago Log in to Reply
      1. mbulzomi@optonline.net

        I at a loss for you comment about Medicare Part: B” (I’m on an Insulin Pump for over 55 years). For me is Zero dollars. Can’t get any cheaper.

        11 months ago Log in to Reply
    26. Linda Pease

      The hard part is getting to and from a site that can fill it the nearest location is 25 miles one way and they do not ship and in the winter the roads aren’t always driveable for a car

      11 months ago Log in to Reply
    27. Mig Vascos

      I’ve been getting my insulin from a CVS at Target for quite a few years. The pharmacist and all the rest of the staff knows we’ll how to process my claims thru part B.
      If you use a pump it is the way they should do it.
      I have Medicare and a secondary enhanced insurance plan that covers the Copayment. . My nurse practitioner is very good about writing the prescriptions so that I get enough insulin. CVS texts me when it’s time for a refill.
      It took me a couple of years to get the right pharmacy but it works fine now.

      11 months ago Log in to Reply
    28. Carol Meares

      I get it through mail order. Sometimes the address can be difficult because we move between two different places.

      11 months ago Log in to Reply
    29. sweet charlie

      None needed for Wallmart Relion Novolin 70/30….

      11 months ago Log in to Reply
    30. Kristen Clifford

      Right now it’s easier than before because I’m using the generic brand of insulin, which is considerably cheaper and easier to refill, but I’ve had my share of troubles in the past.

      11 months ago Log in to Reply
    31. T1D4LongTime

      CVS Caremark’s mail order app makes it easy. They notify me it’s ready for refill, I click Refill and Confirm. Done!

      11 months ago Log in to Reply
    32. mbulzomi@optonline.net

      My only refill problem I have is when the pharmacist/doctor doesn’t put the Medicare Part “B” code on the refill. The Bill is almost $3000 dollars.

      11 months ago Log in to Reply
    33. lis be

      I chose neither, but what I really mean is- annoying! If our life depends on insulin, and they haven’t found a cure, shouldn’t it just automatically auto-renew unless a doctor raises the prescribed amount?

      11 months ago Log in to Reply
    34. Kim Murphy

      When I used Novolog it wasn’t an issue, but now that I use Fiasp the pharmacy never has it in stock and I usually have to wait a week to get a refill. Sometimes that is cutting it pretty close.

      11 months ago Log in to Reply
    35. Emily Meister

      Insulin is filled through Part B Medicare. Had difficulty when using Walgreens, switched back to Walmart, no issues now, easy to refill.

      11 months ago Log in to Reply

    How easy or difficult do you find the overall process of re-filling your insulin prescription? Cancel reply

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