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    • 59 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 12 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    How easy or difficult do you find the overall process of re-filling your insulin prescription?

    Home > LC Polls > How easy or difficult do you find the overall process of re-filling your insulin prescription?
    Previous

    If you use a CGM that does not require regular calibrations, on average, how often do you choose to calibrate your CGM with a blood glucose meter reading?

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    If you use a CGM, how important is it to you that you are able to view your CGM readings on a smartphone?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    42 Comments

    1. Molly Jones

      Very easy as it is an automatic refill and I receive a notice on when to come and get it.

      3 years ago Log in to Reply
    2. Ahh Life

      Rx refill? Easy peasy.

      Actual pharmacy transaction? Dante’s 17 levels of hell. ♨️👊

      6
      3 years ago Log in to Reply
      1. Mary Dexter

        17?
        9 circles of hell:
        1. Limbo: virtuous pagans and unbaptized children
        2. The Carnal
        3. The Gluttonous
        4. Hoarders and Wasters
        5. Wrathful and Sullen
        6. Heretics
        7. Violent and Bestial (Against neighbors; against self; and against God, Art,and Nature)
        8. Simple Fraud
        9. Compound Fraud (treachery)
        The last three rings have 3, 10, and 4 levels, respectively.
        I am reading Canto XXII. Not sure whether they would be in Circle 4 or 8.

        1
        3 years ago Log in to Reply
      2. Ahh Life

        Mary Dexter — My typo error. It just feels like 17.

        3 years ago Log in to Reply
    3. Jane Cerullo

      Used to get all prescriptions from Walmart. Have a great relationship with the pharmacist and staff. Recently switched to humalog cartridges for the InPen. They don’t have them so I get them from mail order. So far all working well.

      3 years ago Log in to Reply
    4. Louise Robinson

      Loaded question. I use an insulin pump and became Medicare-eligible over 7 years ago. Insulin, when used in a pump is covered under Medicare Part B under Durable Medical Equipment (DME) rather than under Medicare Part D Prescription Drug Coverage. Because of Medicare reimbursement practices, providers are paid different amounts for the very same insulin depending upon where Medicare covers it. Because providers receive a greater amount under Part D, many providers will refuse to cover insulin under Part B. (I had this experience with Publix Pharmacy here in Florida). Walmart has been covering my insulin under Part B but sometimes tries to cover it under Part D which would result in a much higher co-pay for me. For the past few years, it’s been pretty smooth sailing for me to get my insulin under Part B via Walmart….not so, several years ago. After I pay my annual Part B Medicare DME deductible ($230 in 2022) my insulin OOP is $0.

      2
      3 years ago Log in to Reply
      1. Lawrence S.

        I’m still using Part D, $55 every 3 months.

        3 years ago Log in to Reply
    5. Lawrence S.

      My insulin comes from CVS/Caremark in the mail every 90 days. The only time I have problems is when the prescription has to be refilled after all the prescriptions run out. Sometimes it takes a while for the communication between my doctor’s office and CVS. But, overall it is “somewhat easy.”

      1
      3 years ago Log in to Reply
    6. Jeanne McMillan-Olson

      I get mine through Walgreens because they will bill Medicare for part B insulin. Sometimes getting Medicare approval for the prescription can take quite a while. Same with the Dexcom G6 sensors and transmitters.

      2
      3 years ago Log in to Reply
      1. Vivian Moon

        I used to get mine through Walgreens until Covid and loss of pharmacists and techs. Then they were unable to take the time it takes to get approval every three months from Medicare—by phone, and so long wait times. There is still a shortage where I live so I just pay no more than $105 every 3 months.

        1
        3 years ago Log in to Reply
    7. Joan Benedetto

      Insurance requires that we use Express Scripts for our son’s insulin. We get a ninety day supply auto shipped , but we do have to stay on top of it. “Auto ship” is not always so automatic.

      3 years ago Log in to Reply
    8. Eva

      Obtaining a refill from the Dr. is easy. I send a request via My Charts.
      Having Walmart pharmacist fill it correctly at the right price is close to an 1 hour or more waiting at the counter. They never ever get it right.

      1
      3 years ago Log in to Reply
      1. MT

        Same. Getting script or refill from md is easy. Getting it filled correctly at the right price at CVS is near impossible😡

        1
        3 years ago Log in to Reply
    9. Joan Fray

      Kaiser sends me six bottles in cold pack box when I request it. $20. No problemo.

      3 years ago Log in to Reply
    10. Karen Taylor

      I put other because it depends on the situation. When I was working I had no problem at all. Since I’ve moved and with my new endocrinologist sometimes he will not refill my expired prescription until I see him. This can be quite frustrating. And also since I’ve been on Medicare it has gotten more challenging with cost

      1
      3 years ago Log in to Reply
    11. Tom Caesar

      It’s difficult in that when they charge over $250 per vial! Hopefully the $35 cap will become a reality.

      2
      3 years ago Log in to Reply
    12. Merry Woolsey

      It’s easy as far as my provider goes. It’s always the insurance portion.

      3 years ago Log in to Reply
    13. Marty

      Getting insulin during my first year on Medicare was exhausting until I found a mail order supplier capable of dealing with Medicare Part B. Now the only major hassle is coping with the requirement for endo visits every 90 days in order to have Medicare coverage. With endos in such short supply, I’m very sorry to have to waste their time.

      3
      3 years ago Log in to Reply
    14. Bob Durstenfeld

      I said somewhat easy, but I have found it nearly impossible to find a pharmacy will to provide insulin under Medicare Part B. Under Part D it is costing me more than $150 per month.

      3 years ago Log in to Reply
    15. cynthia jaworski

      The only problem I encounter (except for price) is that the insurance company keeps changing po.icy on how much can be dispensed at a time. Instead of the 3 months specified in the prescription, I am often allowed only 6 weeks worth of insulin (I was told this is because it is so expensive) and I have to return and hope that I am allowed a second dispersal in the same 3 month time frame. It always works out, but takes considerable effort energy and angst.

      3 years ago Log in to Reply
    16. Mary Dexter

      Filling an insulin prescription should be as easy as buying milk, once one is correctly diagnosed ( a process that still takes too long for many who develop autoimmune diabetes as adults). What makes the process difficult reflects the increasing stigma and misinformation. The worst is the mistaken belief that T1 is little kids and everyone else is T2 which can be reversed with diet and exercise. So doctors cancel or refuse to renew insulin prescriptions. Attempts are made to micromanage down to the last drop. Pharmacies don’t keep enough in stock. Paperwork isn’t filed in a timely manner.

      1
      3 years ago Log in to Reply
      1. Mig Vascos

        So sad that there is still misinformation about adults developing T1D. That’s why I always say that diabetes should be treated by an endocrinologist and not a general physician. Hope is not an endocrinologist that gives you a hard time.

        3 years ago Log in to Reply
    17. Karen Mason

      Yearly I have to make my dr and druggist get the right information and then usually not a problem just time consuming depending on how fast they get together.

      3 years ago Log in to Reply
    18. Kristine Warmecke

      Getting the prescription isn’t a problem, getting my insurance to cover it under Part B or D is impossible.
      Does anyone understand the insulin act? Is Medicare Advantage plans supposed to cover ANY insulin for $25 a month? Even if it’s not on their formulary?

      3 years ago Log in to Reply
    19. Sherrie Johnson

      Easy once you find a pharmacy that understands DME billing.

      3 years ago Log in to Reply
    20. dave hedeen

      Being old & using pump, it is free & EZ. Use CVS at Target

      3 years ago Log in to Reply
    21. Keith LeMar

      Refilling it is easy; paying for it not so much!

      1
      3 years ago Log in to Reply
    22. Janis Senungetuk

      What for years was automatic has now become more difficult because my endo is so overwhelmed with patients. Getting the prescription billed correctly is a completely different story. For 7 years I was getting my insulin thru a nearby Walgreen’s because that specific pharmacy had a tech who handled Medicare Part B billing. Medicare is my secondary insurance, so it took knowledge + attention to detail to file the claims correctly. All of that changed 5 months ago when that pharmacy had a complete staff turnover and that knowledgeable tech no longer worked there. The pharmacists who had learned from her how to file the Part B claims were also gone. Very fortunately I had extra insulin and was able to search for another pharmacy. After being turned down by several independent pharmacies who don’t do Medicare Part B billing, I asked the small pharmacy at a grocery we shop at. The pharmacist said she was willing to learn the billing process as long as I was patient, Since I’m not desperate for insulin I was able to do that. In addition to insulin I switched my other 4 prescriptions and my spouse transferred 6 prescriptions. Since then, as long as the pharmacy has the time to order the Novolog, no problems. I’m grateful that pharmacist was willing to learn how to use Part B billing and was permitted to do so by her employer.

      3 years ago Log in to Reply
    23. Daniel Bestvater

      Very easy. I live in Canada so no prescription is needed. I buy it at any pharmacy.

      1
      3 years ago Log in to Reply
    24. Linda Zottoli

      Another Medicare recipient here. Have been using Walgreens for years, now, after striking out with CVS and all independent pharmacies about billing to Part B. Each 90 days, first order refill, then call the Walgreens medicare number, confirm what pump and date of last endo visit, wait for them to say they’ve overwritten the order, and then call pharmacy to say to bill to medicare part B. Always a problem when a new pharmacist.

      3 years ago Log in to Reply
    25. Becky Hertz

      Expensive (Part B) but easy

      3 years ago Log in to Reply
      1. mbulzomi@optonline.net

        I at a loss for you comment about Medicare Part: B” (I’m on an Insulin Pump for over 55 years). For me is Zero dollars. Can’t get any cheaper.

        3 years ago Log in to Reply
    26. Linda Pease

      The hard part is getting to and from a site that can fill it the nearest location is 25 miles one way and they do not ship and in the winter the roads aren’t always driveable for a car

      3 years ago Log in to Reply
    27. Mig Vascos

      I’ve been getting my insulin from a CVS at Target for quite a few years. The pharmacist and all the rest of the staff knows we’ll how to process my claims thru part B.
      If you use a pump it is the way they should do it.
      I have Medicare and a secondary enhanced insurance plan that covers the Copayment. . My nurse practitioner is very good about writing the prescriptions so that I get enough insulin. CVS texts me when it’s time for a refill.
      It took me a couple of years to get the right pharmacy but it works fine now.

      3 years ago Log in to Reply
    28. Carol Meares

      I get it through mail order. Sometimes the address can be difficult because we move between two different places.

      3 years ago Log in to Reply
    29. sweet charlie

      None needed for Wallmart Relion Novolin 70/30….

      3 years ago Log in to Reply
    30. Kristen Clifford

      Right now it’s easier than before because I’m using the generic brand of insulin, which is considerably cheaper and easier to refill, but I’ve had my share of troubles in the past.

      3 years ago Log in to Reply
    31. T1D4LongTime

      CVS Caremark’s mail order app makes it easy. They notify me it’s ready for refill, I click Refill and Confirm. Done!

      3 years ago Log in to Reply
    32. mbulzomi@optonline.net

      My only refill problem I have is when the pharmacist/doctor doesn’t put the Medicare Part “B” code on the refill. The Bill is almost $3000 dollars.

      3 years ago Log in to Reply
    33. lis be

      I chose neither, but what I really mean is- annoying! If our life depends on insulin, and they haven’t found a cure, shouldn’t it just automatically auto-renew unless a doctor raises the prescribed amount?

      3 years ago Log in to Reply
    34. Kim Murphy

      When I used Novolog it wasn’t an issue, but now that I use Fiasp the pharmacy never has it in stock and I usually have to wait a week to get a refill. Sometimes that is cutting it pretty close.

      3 years ago Log in to Reply
    35. Emily Meister

      Insulin is filled through Part B Medicare. Had difficulty when using Walgreens, switched back to Walmart, no issues now, easy to refill.

      3 years ago Log in to Reply

    How easy or difficult do you find the overall process of re-filling your insulin prescription? Cancel reply

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