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      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 16 hours, 25 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 16 hours, 27 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 16 hours, 28 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 16 hours, 29 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 16 hours, 37 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 18 hours, 29 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 18 hours, 30 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 18 hours, 32 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 33 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 1 hour ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 2 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 14 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 16 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 16 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    How easy or difficult do you find the overall process of re-filling your insulin prescription?

    Home > LC Polls > How easy or difficult do you find the overall process of re-filling your insulin prescription?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    42 Comments

    1. Molly Jones

      Very easy as it is an automatic refill and I receive a notice on when to come and get it.

      3 years ago Log in to Reply
    2. Ahh Life

      Rx refill? Easy peasy.

      Actual pharmacy transaction? Dante’s 17 levels of hell. ♨️👊

      6
      3 years ago Log in to Reply
      1. Mary Dexter

        17?
        9 circles of hell:
        1. Limbo: virtuous pagans and unbaptized children
        2. The Carnal
        3. The Gluttonous
        4. Hoarders and Wasters
        5. Wrathful and Sullen
        6. Heretics
        7. Violent and Bestial (Against neighbors; against self; and against God, Art,and Nature)
        8. Simple Fraud
        9. Compound Fraud (treachery)
        The last three rings have 3, 10, and 4 levels, respectively.
        I am reading Canto XXII. Not sure whether they would be in Circle 4 or 8.

        1
        3 years ago Log in to Reply
      2. Ahh Life

        Mary Dexter — My typo error. It just feels like 17.

        3 years ago Log in to Reply
    3. Jane Cerullo

      Used to get all prescriptions from Walmart. Have a great relationship with the pharmacist and staff. Recently switched to humalog cartridges for the InPen. They don’t have them so I get them from mail order. So far all working well.

      3 years ago Log in to Reply
    4. Louise Robinson

      Loaded question. I use an insulin pump and became Medicare-eligible over 7 years ago. Insulin, when used in a pump is covered under Medicare Part B under Durable Medical Equipment (DME) rather than under Medicare Part D Prescription Drug Coverage. Because of Medicare reimbursement practices, providers are paid different amounts for the very same insulin depending upon where Medicare covers it. Because providers receive a greater amount under Part D, many providers will refuse to cover insulin under Part B. (I had this experience with Publix Pharmacy here in Florida). Walmart has been covering my insulin under Part B but sometimes tries to cover it under Part D which would result in a much higher co-pay for me. For the past few years, it’s been pretty smooth sailing for me to get my insulin under Part B via Walmart….not so, several years ago. After I pay my annual Part B Medicare DME deductible ($230 in 2022) my insulin OOP is $0.

      2
      3 years ago Log in to Reply
      1. Lawrence S.

        I’m still using Part D, $55 every 3 months.

        3 years ago Log in to Reply
    5. Lawrence S.

      My insulin comes from CVS/Caremark in the mail every 90 days. The only time I have problems is when the prescription has to be refilled after all the prescriptions run out. Sometimes it takes a while for the communication between my doctor’s office and CVS. But, overall it is “somewhat easy.”

      1
      3 years ago Log in to Reply
    6. Jeanne McMillan-Olson

      I get mine through Walgreens because they will bill Medicare for part B insulin. Sometimes getting Medicare approval for the prescription can take quite a while. Same with the Dexcom G6 sensors and transmitters.

      2
      3 years ago Log in to Reply
      1. Vivian Moon

        I used to get mine through Walgreens until Covid and loss of pharmacists and techs. Then they were unable to take the time it takes to get approval every three months from Medicare—by phone, and so long wait times. There is still a shortage where I live so I just pay no more than $105 every 3 months.

        1
        3 years ago Log in to Reply
    7. Joan Benedetto

      Insurance requires that we use Express Scripts for our son’s insulin. We get a ninety day supply auto shipped , but we do have to stay on top of it. “Auto ship” is not always so automatic.

      3 years ago Log in to Reply
    8. Eva

      Obtaining a refill from the Dr. is easy. I send a request via My Charts.
      Having Walmart pharmacist fill it correctly at the right price is close to an 1 hour or more waiting at the counter. They never ever get it right.

      1
      3 years ago Log in to Reply
      1. MT

        Same. Getting script or refill from md is easy. Getting it filled correctly at the right price at CVS is near impossible😡

        1
        3 years ago Log in to Reply
    9. Joan Fray

      Kaiser sends me six bottles in cold pack box when I request it. $20. No problemo.

      3 years ago Log in to Reply
    10. Karen Taylor

      I put other because it depends on the situation. When I was working I had no problem at all. Since I’ve moved and with my new endocrinologist sometimes he will not refill my expired prescription until I see him. This can be quite frustrating. And also since I’ve been on Medicare it has gotten more challenging with cost

      1
      3 years ago Log in to Reply
    11. Tom Caesar

      It’s difficult in that when they charge over $250 per vial! Hopefully the $35 cap will become a reality.

      2
      3 years ago Log in to Reply
    12. Merry Woolsey

      It’s easy as far as my provider goes. It’s always the insurance portion.

      3 years ago Log in to Reply
    13. Marty

      Getting insulin during my first year on Medicare was exhausting until I found a mail order supplier capable of dealing with Medicare Part B. Now the only major hassle is coping with the requirement for endo visits every 90 days in order to have Medicare coverage. With endos in such short supply, I’m very sorry to have to waste their time.

      3
      3 years ago Log in to Reply
    14. Bob Durstenfeld

      I said somewhat easy, but I have found it nearly impossible to find a pharmacy will to provide insulin under Medicare Part B. Under Part D it is costing me more than $150 per month.

      3 years ago Log in to Reply
    15. cynthia jaworski

      The only problem I encounter (except for price) is that the insurance company keeps changing po.icy on how much can be dispensed at a time. Instead of the 3 months specified in the prescription, I am often allowed only 6 weeks worth of insulin (I was told this is because it is so expensive) and I have to return and hope that I am allowed a second dispersal in the same 3 month time frame. It always works out, but takes considerable effort energy and angst.

      3 years ago Log in to Reply
    16. Mary Dexter

      Filling an insulin prescription should be as easy as buying milk, once one is correctly diagnosed ( a process that still takes too long for many who develop autoimmune diabetes as adults). What makes the process difficult reflects the increasing stigma and misinformation. The worst is the mistaken belief that T1 is little kids and everyone else is T2 which can be reversed with diet and exercise. So doctors cancel or refuse to renew insulin prescriptions. Attempts are made to micromanage down to the last drop. Pharmacies don’t keep enough in stock. Paperwork isn’t filed in a timely manner.

      1
      3 years ago Log in to Reply
      1. Mig Vascos

        So sad that there is still misinformation about adults developing T1D. That’s why I always say that diabetes should be treated by an endocrinologist and not a general physician. Hope is not an endocrinologist that gives you a hard time.

        3 years ago Log in to Reply
    17. Karen Mason

      Yearly I have to make my dr and druggist get the right information and then usually not a problem just time consuming depending on how fast they get together.

      3 years ago Log in to Reply
    18. Kristine Warmecke

      Getting the prescription isn’t a problem, getting my insurance to cover it under Part B or D is impossible.
      Does anyone understand the insulin act? Is Medicare Advantage plans supposed to cover ANY insulin for $25 a month? Even if it’s not on their formulary?

      3 years ago Log in to Reply
    19. Sherrie Johnson

      Easy once you find a pharmacy that understands DME billing.

      3 years ago Log in to Reply
    20. dave hedeen

      Being old & using pump, it is free & EZ. Use CVS at Target

      3 years ago Log in to Reply
    21. Keith LeMar

      Refilling it is easy; paying for it not so much!

      1
      3 years ago Log in to Reply
    22. Janis Senungetuk

      What for years was automatic has now become more difficult because my endo is so overwhelmed with patients. Getting the prescription billed correctly is a completely different story. For 7 years I was getting my insulin thru a nearby Walgreen’s because that specific pharmacy had a tech who handled Medicare Part B billing. Medicare is my secondary insurance, so it took knowledge + attention to detail to file the claims correctly. All of that changed 5 months ago when that pharmacy had a complete staff turnover and that knowledgeable tech no longer worked there. The pharmacists who had learned from her how to file the Part B claims were also gone. Very fortunately I had extra insulin and was able to search for another pharmacy. After being turned down by several independent pharmacies who don’t do Medicare Part B billing, I asked the small pharmacy at a grocery we shop at. The pharmacist said she was willing to learn the billing process as long as I was patient, Since I’m not desperate for insulin I was able to do that. In addition to insulin I switched my other 4 prescriptions and my spouse transferred 6 prescriptions. Since then, as long as the pharmacy has the time to order the Novolog, no problems. I’m grateful that pharmacist was willing to learn how to use Part B billing and was permitted to do so by her employer.

      3 years ago Log in to Reply
    23. Daniel Bestvater

      Very easy. I live in Canada so no prescription is needed. I buy it at any pharmacy.

      1
      3 years ago Log in to Reply
    24. Linda Zottoli

      Another Medicare recipient here. Have been using Walgreens for years, now, after striking out with CVS and all independent pharmacies about billing to Part B. Each 90 days, first order refill, then call the Walgreens medicare number, confirm what pump and date of last endo visit, wait for them to say they’ve overwritten the order, and then call pharmacy to say to bill to medicare part B. Always a problem when a new pharmacist.

      3 years ago Log in to Reply
    25. Becky Hertz

      Expensive (Part B) but easy

      3 years ago Log in to Reply
      1. mbulzomi@optonline.net

        I at a loss for you comment about Medicare Part: B” (I’m on an Insulin Pump for over 55 years). For me is Zero dollars. Can’t get any cheaper.

        3 years ago Log in to Reply
    26. Linda Pease

      The hard part is getting to and from a site that can fill it the nearest location is 25 miles one way and they do not ship and in the winter the roads aren’t always driveable for a car

      3 years ago Log in to Reply
    27. Mig Vascos

      I’ve been getting my insulin from a CVS at Target for quite a few years. The pharmacist and all the rest of the staff knows we’ll how to process my claims thru part B.
      If you use a pump it is the way they should do it.
      I have Medicare and a secondary enhanced insurance plan that covers the Copayment. . My nurse practitioner is very good about writing the prescriptions so that I get enough insulin. CVS texts me when it’s time for a refill.
      It took me a couple of years to get the right pharmacy but it works fine now.

      3 years ago Log in to Reply
    28. Carol Meares

      I get it through mail order. Sometimes the address can be difficult because we move between two different places.

      3 years ago Log in to Reply
    29. sweet charlie

      None needed for Wallmart Relion Novolin 70/30….

      3 years ago Log in to Reply
    30. Kristen Clifford

      Right now it’s easier than before because I’m using the generic brand of insulin, which is considerably cheaper and easier to refill, but I’ve had my share of troubles in the past.

      3 years ago Log in to Reply
    31. T1D4LongTime

      CVS Caremark’s mail order app makes it easy. They notify me it’s ready for refill, I click Refill and Confirm. Done!

      3 years ago Log in to Reply
    32. mbulzomi@optonline.net

      My only refill problem I have is when the pharmacist/doctor doesn’t put the Medicare Part “B” code on the refill. The Bill is almost $3000 dollars.

      3 years ago Log in to Reply
    33. lis be

      I chose neither, but what I really mean is- annoying! If our life depends on insulin, and they haven’t found a cure, shouldn’t it just automatically auto-renew unless a doctor raises the prescribed amount?

      3 years ago Log in to Reply
    34. Kim Murphy

      When I used Novolog it wasn’t an issue, but now that I use Fiasp the pharmacy never has it in stock and I usually have to wait a week to get a refill. Sometimes that is cutting it pretty close.

      3 years ago Log in to Reply
    35. Emily Meister

      Insulin is filled through Part B Medicare. Had difficulty when using Walgreens, switched back to Walmart, no issues now, easy to refill.

      3 years ago Log in to Reply

    How easy or difficult do you find the overall process of re-filling your insulin prescription? Cancel reply

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