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    • 4 hours, 46 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 4 hours, 46 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 6 hours, 42 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 6 hours, 58 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 18 hours, 9 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 57 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 22 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 42 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 22 hours, 42 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ‘delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 22 hours, 44 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 22 hours, 49 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 50 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 22 hours, 52 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 22 hours, 52 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 22 hours, 52 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 23 hours, 28 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 23 hours, 39 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 23 hours, 51 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 23 hours, 52 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 1 hour ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 3 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 3 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 3 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 3 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
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    Health care providers may prescribe medications for other illnesses or indications (like type 2 diabetes medications) that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply.

    Home > LC Polls > Health care providers may prescribe medications for other illnesses or indications (like type 2 diabetes medications) that might be helpful for a person’s concern or problem with T1D - commonly called 'off-label use'. Does your provider prescribe you any type 2 diabetes medications 'off-label'? Select all that apply.
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    39 Comments

    1. ConnieT1D62

      My endo provider prescribes a very small dose of Victoza (0.8u) daily to address stress eating, weight management and better post meal BG control. I have been on it for 6 years now.

      Originally she prescribed Symlin but it caused too many unpredictable episodes of hypoglycemia even though it did help with satiety. She suggested Victoza and through trial and error, we adjusted the dose by titrating up slowly from one click of the pen (0.1 u) to 6 clicks (0.6 u) which is normally the recommended starting dose for most people, but was WAY TOO MUCH for me and caused nausea and GI issues when she first prescribed it and followed the recommended dosing titration schedule. It took 6 months of slow titration to reach the 0.6 dose and I remained on that for quite a while until we moved it up another click of the pen notch after a year and a half, and gradually up to a dose of 0.8u .

      It really helps with satiety and tendencies to overeat. I was able to curb emotional stress eating habits and to gradually lose 20 lbs of stubborn excess weight. I am petite boned and 5’0″ tall. Using a GLP-1 has helped with me personally with overall BG control and lifestyle improvement.

      3
      7 months ago Log in to Reply
      1. Joan Fray

        Good for you, Connie! Btw, I used to be 5’7, but now I’m 5’4”!

        2
        7 months ago Log in to Reply
      2. ConnieT1D62

        Correction about titrating low dose of Victoza:

        Each 10 clicks of pen = 0.6u (typical starting dose)
        12 clicks = 0.8u (which is what I use)
        20 clicks = 0.12u (typical mid-range dose)
        30 clicks = 1.8u (typical full dose)

        7 months ago Log in to Reply
    2. Mary Dexter

      I have enough trouble keeping them from arbitrarily changing my diagnosis to Type 2 because I don’t look like a little kid. Getting my insulin prescriptions renewed is difficult enough.

      4
      7 months ago Log in to Reply
      1. kristina blake

        “Not looking like a little kid” is why I like to remind HCP’s that 40% of new T1D Dx’s are adults and if a person is Dx’d with T1D as a child and gets access to the care, Rx’s and supplies they need, they get to grow up to be an adult with T1D.

        1
        7 months ago Log in to Reply
    3. Larry Martin

      #BigPharma at work it sounds like!! Doctors being paid to prescribe medicine NOT needed because they get a kickback when a patient sees a TV ad. There is only ONE medication for Type 1 Diabetes, Insulin. We are the only country on this planet that allows TV ads for prescriptions. It is why we pay so much for meds. We are paying for their advertising and they get a 100% write off for the cost. $$$ instead of healthcare.

      5
      7 months ago Log in to Reply
      1. JuJuB

        @Larry – doctors absolutely 100% do NOT receive kickbacks. Look up “The Sunshine Act”. Every financial gain your physician earns from a pharmaceutical company is reported, and made public information. Right down to the pens and the little finger stick thingies Eli Lilly leaves behind.

        PAYERS receive a rebate based on the number of their patients who fill a prescription. The value of the rebate varies by plan and by drug (and, therefore, by manufacturer). While there is a lot of money changing hands, it is NOT getting to the doctors.

        1
        7 months ago Log in to Reply
      2. Jneticdiabetic

        There are legitimate reasons for a doctor to prescribe a medication off-label if they think its mechanism of action could benefit their patient. A lot of T1Ds also struggle with insulin resistance and might benefit from T2D meds that specifically addresses that. There are some good examples on the comments here.
        There are federal and state laws in place to avoid physician conflicts of interest. Nothing is full proof, but the risk of million dollar lawsuits and felony charges are pretty effective disincentives. I like to believe most MDs are decent folks.
        Agree that the TV ads are disturbing. “Ask your doctor if ‘medication x’ is right for you!”. Sometimes the commercial doesn’t even mention what condition the medication is for. I often wonder who’s going to their doctor to ask “I saw an ad about a medication that may cause death but the people looked very happy. Can I try it?”

        1
        7 months ago Log in to Reply
      3. ConnieT1D62

        Sometimes PWDs with T1 need other hormone replacement medications besides just insulin to enhance better outcomes. Everyone’s body mechanics and metabolism is slightly different and unique. A lot is influenced by environment & culture, habitual patterns and life style choices.

        7 months ago Log in to Reply
    4. Robert Wilson

      Lisinopril

      7 months ago Log in to Reply
      1. AimmcG

        Me too

        7 months ago Log in to Reply
      2. cynthia jaworski

        this is a drug for blood pressure. I would assume this is not being prescribed “off-label.”

        7 months ago Log in to Reply
      3. lis be

        They actually told me to take lisinopril to protect my kidneys, even though, at the time, my blood pressure was fine. Same with a statin to protect my heart, even though my cholesterol is fine.

        7 months ago Log in to Reply
    5. mojoseje

      I was on Trulicity which really helped tame my appetite. I was using a lot less insulin but, then, my new insurance wouldn’t cover it. So I’ve had to stop using it.

      7 months ago Log in to Reply
    6. CindyGoddard

      Yes Farxiga

      7 months ago Log in to Reply
    7. Ernie Richmann

      Used metformin for awhile but stopped after having chest discomfort- a rare side effect.

      7 months ago Log in to Reply
    8. Jim Cobbe

      My answer probably should be just no, but for many years I’ve been prescribed a cholesterol lowering drug although I have never ever had normal, let alone high, cholesterol, it has always been below ‘normal.’

      3
      7 months ago Log in to Reply
    9. Patricia Dalrymple

      I probably wouldn’t take it even if he prescribed it. I only take humalog. I prefer homeopathic medicine but don’t like the lack of knowledge that doctors have about it. For example, I know turmeric works for my joint pain because when I take it, pain goes away and when I don’t it returns. However, friends doctor told her it increases your blood pressure. I backed off how much I take. Her doctor said take magnesium citrate. A side affect helps you sleep and I now sleep through the night where before, I would wake up. But I worry about what it will do long term. And my doctor did suggest red yeast rice or red rice yeast (can’t remember how the words go) for my slightly elevated cholesterol instead of a statin which is real progress. That worked for my dad. But my husband says it can damage your liver. My doctor said nope, your liver is fine try it. Now that’s progress.

      7 months ago Log in to Reply
      1. sweet charlie

        WOW!!!!

        7 months ago Log in to Reply
    10. Louise Robinson

      I was dx’d Type 1 in 1976. I was letting my PCP handle my diabetes after retiring permanently to Florida in 2005. I had been experiencing more frequent hypoglycemic episodes with increasing A1c’s (from low 6’s into the low 7’s.) My PCP’s approach was initially to prescribe Avandia (generic name: rosiglitazone) since he suspected that I had developed insulin resistance. After 2 weeks on Avandia (along with my MDI of Lantus and NovoLog) and having experienced 2 severe hypos when I lost consciousness, I advised him I would not take the Avandia. (I had misgivings about taking it to begin with.) He then told me to increase my Lantus and eliminate my meal-time NovoLog. (????? This is when I seriously doubted he knew what he was doing.) This was in 2010. Shortly afterward, my husband and I left for vacation in Idaho. During our first night in Pocatello Idaho, I again suffered a sever hypoglycemic episode. My husband injected me with glucagon and drove me to the hospital (I had become ambulatory but not very coherent.) I was admitted to the hospital for multiple tests and scans because they feared I’d suffered a stroke. I was discharged the next day after multiple tests revealed nothing but hypoglycemia. We cancelled our vacation and returned to Florida where I sought an appointment with my PCP. When he advised me to continue with what he had previously recommended (increased Lantus dosage and elimination of NovoLog), I realized following his advice would kill me. I self-referred to an endocrinologist in Tampa (about 80 minutes drive away from where I live). That endo immediately reduced my Lantus dosage by 25% and re-educated me about carb to insulin ratios for meal-time insulin. I had resisted using an insulin pump when I had previously been under an endo’s care up north but, within 6 months of seeing this new endo, I began using my first insulin pump. (Sorry now I’d waited so long.) I learned to trust my gut about doctors and realized that my former PCP was either too arrogant or ignorant to realize treating my diabetes was beyond his skill set. I was lucky to survive his “care”. (He is still practicing in my community.)

      7
      7 months ago Log in to Reply
      1. Bonnie Lundblom

        Wow, I’m glad your story had a happy ending! The medical incompetence of a few MD’s when trying to manage Type 1 diabetic patients is scary.

        3
        7 months ago Log in to Reply
      2. Rafaela

        I had a similar experience with an endo who negligently recommended an extremely high dose of Lantau, which I’d never used before. It sent me into an unconscious low. I never went back to him, nor did I try Lantus again. He too is still practicing and I can’t imagine how.

        7 months ago Log in to Reply
    11. Anthony Harder

      I am currently not taking any medications “off label.” (I answered “No”.) However, my doctor has discussed the possibility of doing this. He mentioned success doing this with other patients.

      2
      7 months ago Log in to Reply
    12. Bonnie Lundblom

      No, my A1C’s have been good for many years now and this subject has never once been discussed with me. The list of “Adverse Reactions” that comes with so many medications and many of them being severe I’d never take any of the medications listed in this question.

      7 months ago Log in to Reply
    13. LizB

      I’ve thought about talking to my endo about something to help with weight loss but I haven’t. I have been able to lose 70 pounds over the last 13 months by watching my calories and while I still have a way to go I think I can do it without extra medications that my insurance won’t cover anyway. Even though I am overweight (still obese actually) I don’t have insulin resistance so reducing the amount I take isn’t something I need to do. Currently use around 24 units a day in my pump, eating an average of 150g of carbs daily.

      1
      7 months ago Log in to Reply
      1. Tina Roberts

        I take Wegovy which is the same as ozempic. I’ve maintained an 80 pound weight loss now for 4 years. I also took Saxenda. It works!

        1
        7 months ago Log in to Reply
      2. Tina Roberts

        I might add that my endocrinologist prescribed it for me. My insurance covers it as Wegovy, but not Ozempic. Hint hint 😁

        7 months ago Log in to Reply
    14. Henry Renn

      Many years ago a T2 dx was added to my life long T1 dx. I was prescribed a med given to T2s. It did stabilize my bgs. Then it was taken off the market by the FDA.

      7 months ago Log in to Reply
    15. Bob Durstenfeld

      Yes, due insulin resistance and weight gain, my endo put me on Acadbose, Metformin, and Slgt-2 Jardiance. It cut my daily insulin usage by 25% and my weight came back to my normal and has held steady.

      3
      7 months ago Log in to Reply
    16. Lawrence S.

      No, I don’t take any type 2, off-label medications.
      Once, I saw an Endocrinologist for the first time. After he told me he deals with thyroid patients, and doesn’t know much about diabetes, he wanted me to start taking Lipitor as a preventive medication. I told him no thank you. My lipids have always been excellent, I exercise regularly (aerobic), have very good blood pressure reading, and maintain my weight very well.

      7 months ago Log in to Reply
    17. persevereT1D52

      My doctor gave me Farxiga to level out post meal BG. It helped a lot but insurance wouldn’t approve it and can’t use pay card if you have Medicare so I can’t afford it. It’s not right.

      1
      7 months ago Log in to Reply
    18. Rafaela

      I did ask once about a Type 2 medication to help with kidney deterioration, but my doctor dismissed it, saying it was for Type 2. That left me thinking it couldn’t be done, but plan to check into it further.

      7 months ago Log in to Reply
    19. Tina Roberts

      GLP1 for weight control. Works fantastic. I’ve maintained an 80 lb weight loss using it in the last 4 years. Still on it and doing great.

      4
      7 months ago Log in to Reply
      1. KarenM6

        *high five!
        That’s fantastic, Tina! 🙂

        1
        7 months ago Log in to Reply
    20. Jillkdubois

      I was prescribed Metformin, I’ve been taking it for about a year to get my PCOS under control and high testosterone down, which after a few dosage increases it finally did. I also take significantly less insulin, I was taking 45 units of LANTUS every day, now I’m at 20, and insulin resistance is gone.

      1
      7 months ago Log in to Reply
    21. Amanda Barras

      My Endo prescribed Ozempic but I had too much intestinal distress and only moderate insulin changes and no weight loss in 2 months so I discontinued it.
      Also, I asked for and received an Rx of U-200 Humalog that I use in my pump in place of reg Novolog/Humalog U-100 because I’m highly insulin resistant.

      7 months ago Log in to Reply
    22. Francisco Varea

      I take trulicity and actos. My glucose would not be under control without it.

      7 months ago Log in to Reply
    23. Becky Hertz

      “No”, however I took Victoza (GLP-1″ for several years for insulin resistance.

      7 months ago Log in to Reply
    24. mbulzomi@optonline.net

      As we all have learned, let them try on somebody else first. (A lot of somebody’s first)

      2
      7 months ago Log in to Reply

    Health care providers may prescribe medications for other illnesses or indications (like type 2 diabetes medications) that might be helpful for a person’s concern or problem with T1D - commonly called 'off-label use'. Does your provider prescribe you any type 2 diabetes medications 'off-label'? Select all that apply. Cancel reply

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