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    • 4 hours, 58 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 4 hours, 58 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 5 hours, 1 minute ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I was shocked that so many people haven't heard about it. It is all over social media. It looks promising to me. Of course the trial participants need to be followed for awhile as no drug gets approved by the FDA in short time, but so far all of the first 12 trial participants are insulin free and the 1st participant has been insulin free for over 1-1/2 years with no complications that I've heard of.
    • 7 hours, 4 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 7 hours, 5 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 7 hours, 47 minutes ago
      Ahh Life likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      This question is an advertisement. In my opinion it is a misleading advertisement. Tegoprupart is an immunosuppressant. A trial investigating using the drug with islet cell recipients has barely gotten started. 90-ish percent of all phase 3 drug trials fail. Drug development is hard. I wish them luck at the same time I wish they weren't misleading people about the investigational use of their drug.
    • 8 hours, 50 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 8 hours, 50 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 10 hours, 29 minutes ago
      Gerald Oefelein likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      AI Overview Tegoprubart, an anti-CD40L antibody, is generally safe and well-tolerated, with a cleaner safety profile than traditional calcineurin inhibitors (like tacrolimus) in early trials, specifically showing lower risks of kidney toxicity and diabetes. Common side effects reported include fatigue, headaches, muscle spasms, and potential infections. National Institutes of Health (.gov) National Institutes of Health (.gov) +4 Common Side Effects and Adverse Events In clinical trials, the most frequent treatment-emergent adverse events (TEAEs) observed included: National Institutes of Health (.gov) National Institutes of Health (.gov) +2 Fatigue (approx. 25.9%) Falls (approx. 22.2%) Headaches (approx. 20.4%) Muscle spasms (approx. 11.1%) Upper respiratory tract infections Sleepiness Key Safety Advantages Over Standard Care (Tacrolimus) Tegoprubart aims to avoid the, often, severe, long-term side effects of standard anti-rejection meds like tacrolimus
    • 10 hours, 31 minutes ago
      Lawrence S. likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      No thanks.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      If it requires immunosuppressive medication I have no interest. I'll continue to manage with insulin.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely, especially if stem-cell generated islet cells are transplanted without the need for immunosuppressants. If tegoprubart is needed and is found safe after the trials are complete, then likely.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely. Although the simplicity of spifflicating is often overrated. 🤓☝️
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
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    How many days in the past week have you had at least one blood glucose reading below 70 mg/dl (3.9 mmol/l)?

    Home > LC Polls > How many days in the past week have you had at least one blood glucose reading below 70 mg/dl (3.9 mmol/l)?
    Previous

    Health care providers may prescribe medications for other illnesses or indications (like type 2 diabetes medications) that might be helpful for a person’s concern or problem with T1D - commonly called 'off-label use'. Does your provider prescribe you any type 2 diabetes medications 'off-label'? Select all that apply.

    Next

    Which foods/drinks do you prefer to use to treat a low? Share your favorites in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. mbulzomi@optonline.net

      Doing some heavy lifting and house restoration work. However, I gave up using the Exercise mode (Control IQ) on my Tandem X2 pump. Tandem unlike Medtronic, you cannot set a long duration Temp. Basel percentage.

      4 years ago Log in to Reply
      1. Joan McGinnis

        Can start exercise.mode earlier and leave on a lot longer

        1
        4 years ago Log in to Reply
      2. Bonnie Lundblom

        I’ve been able to set my Tandem Tslimx2 pump with a lower basal rate for 6-8 hours on days where I’m doing lots of physically hard work. I wonder you can’t and maybe you can reach out to Tandem to discuss this in an effort to stay safe and healthy!

        4 years ago Log in to Reply
    2. Lawrence S.

      I have highs and lows everyday. But, a large majority of the time, I’m between 70 -180. I usually go low during and after exercise, sometimes before meals, sometimes while working around the house and in the yard.

      4 years ago Log in to Reply
      1. sweet charlie

        It has been the same for me with the CGM readings and probably before going back 70 years..

        1
        4 years ago Log in to Reply
    3. Sherolyn Newell

      I picked 2 for this week. Last week, it was a lot more. I believe I happened upon a particularly good spot for insulin absorbtion. It took me about a day and a half to figure it out and use a little less insulin. Normally, the opposite happens.

      1
      4 years ago Log in to Reply
    4. Jane Cerullo

      According to FSL but it is always wrong. Just started my Dexcom G6 today. Hope better accuracy. Of course my range is on low side

      2
      4 years ago Log in to Reply
    5. Daniel Bestvater

      I use a Tandem X2 pump with control IQ. The problem I have is that it will make me hypoglycemic during the day if I’m moving around to any degree. I usually need to turn off CIQ during the day if I’m walking, biking or doing yard work. I usually just start a 50% basal rate starting one hour before I do any type of activity. The CIQ exercise mode seems to make almost no difference to me. Great program but it needs to allow for basal reductions and stopping the auto bolus function. Sleep mode during the day with a reduce basal program running can sometimes help for shorter duration activities.

      1
      4 years ago Log in to Reply
      1. Marty

        I had a similar problem with lows during exercise even with control IQ in exercise mode. I fixed it by setting up a special exercise profile that reduced my basal rate by 90% and set a 1:500 correction ratio to avoid those awful stealth boluses. Now I just have to remember to turn it on and off. I understand the next Control IQ version will have a better exercise options.

        1
        4 years ago Log in to Reply
      2. Lawrence S.

        I completely disconnect myself from my pump an hour before I run, and during my run. Sometimes I reconnect just before the end of my run, other times just after the run. I usually carbo and protein overload one to two hours before I run.

        4 years ago Log in to Reply
    6. Patricia Dalrymple

      I was pleasantly surprised to see only once. Been working on eliminating lows (not on CGM). But I was on vacation for the last two weeks and away for one, constantly eating out. Don’t ask me how many highs I had 🙁

      1
      4 years ago Log in to Reply
    7. kflying1@yahoo.com

      Our disease is variable to each person – those that claim to have the exact programs or answers should never be trusted. Learn from yourself what works for you.

      2
      4 years ago Log in to Reply
      1. sweet charlie

        I agree with that !!!!

        4 years ago Log in to Reply
    8. Pauline M Reynolds

      After having been plagued with lows, I am now the new, proud owner of a CGM system. No BG’s below 70 in 3 weeks!!!!!

      4
      4 years ago Log in to Reply
    9. Liz Avery

      I answered 1. I currently am positive for Covid, so chose to self quarantine. Lack of activity has contributed to my answer. 😉

      4 years ago Log in to Reply
    10. Mick Martin

      I selected “7 (every day)” though it has NOT been every day.

      I’ve just checked my records and seen that I’ve had blood glucose levels below 3.9 mmol/l [70 mg/dl] on 8 occasions over the last 7 days, but sometimes that’s been twice a day, with other days where no hypoglycaemic events occurred at all.

      4 years ago Log in to Reply
    11. Janis Senungetuk

      The past two weeks been doing a lot of heavy lifting for extended periods of time. Just two lows is really amazing and a very positive result of Dexcom and Control IQ.

      4 years ago Log in to Reply
    12. LizB

      I have had a low every day for the past week but they weren’t sustained lows or bad. Some of those days I dipped below 70 for only 5-10 minutes according to my CGM.

      1
      4 years ago Log in to Reply
    13. Wanacure

      Only 2 days as measured by One Touch blood measure. Dexcom gave false lows all day on sensor’s last day. I also got false lows when wearing Dexcom left of navel & sleeping on left side. Unless centered over navel, I must sleep on side opposite CGM site.

      4 years ago Log in to Reply
    14. Bonnie Lundblom

      I said 5, but my Dexcom 6 isn’t always accurate. I’m looking forward to the Dexcom CGM 7 hoping it will improve the accuracy of my readings.

      4 years ago Log in to Reply
    15. Karen Brady

      I would’ve answered 1 or 2, but I’m currently pregnant so maintaining much tighter control than usual

      4 years ago Log in to Reply
    16. Steven Gill

      Upon diagnosis it was preached repeatedly the risk of complications from high glucose levels. Through the years than was told “a little higher” is better than the extreme low level, although at what point is the risk of neuropathy eliminated?

      I’m working harder to lower my a1C, learning to use my Continuous Glucose Monitor to it’s fullest. That means in the last 5-6 weeks my CGM shows my average at 110, the level over “150” is a rarity (my last a1C was 7.3, impatient for the doc visit this week), but am alerted almost daily to “60-65” levels. Very small amounts of fast acting carbs, reducing my basal dose, and paying attention to the glycemic scale brings these levels up a little.

      Used to panic over lower levels but gaining confidence with this cgm working for more “normal” glucose levels. But likewise I’d never try this without a continuous monitor.

      4 years ago Log in to Reply

    How many days in the past week have you had at least one blood glucose reading below 70 mg/dl (3.9 mmol/l)? Cancel reply

    You must be logged in to post a comment.




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