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    • 1 hour, 3 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 hours, 54 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 2 hours, 59 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 3 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 1 minute ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 3 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 3 hours, 11 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 17 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 3 hours, 18 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 19 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 36 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 3 hours, 36 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 3 hours, 36 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 3 hours, 37 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 37 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 3 hours, 37 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 37 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 56 minutes ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 3 hours, 56 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 3 hours, 59 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 29 minutes ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
    • 4 hours, 43 minutes ago
      Janis Senungetuk likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 51 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 5 to 6 hours, with maybe 20min. of that time ordering G6 sensors and tSlim supplies. The remaining time was finding Novolog I could afford.
    • 4 hours, 53 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 5 hours, 17 minutes ago
      Katrina Mundinger likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
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    How many days in the past week have you had at least one blood glucose reading below 70 mg/dl (3.9 mmol/l)?

    Home > LC Polls > How many days in the past week have you had at least one blood glucose reading below 70 mg/dl (3.9 mmol/l)?
    Previous

    Health care providers may prescribe medications for other illnesses or indications (like type 2 diabetes medications) that might be helpful for a person’s concern or problem with T1D - commonly called 'off-label use'. Does your provider prescribe you any type 2 diabetes medications 'off-label'? Select all that apply.

    Next

    Which foods/drinks do you prefer to use to treat a low? Share your favorites in the comments!

    Sarah Howard

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    22 Comments

    1. mbulzomi@optonline.net

      Doing some heavy lifting and house restoration work. However, I gave up using the Exercise mode (Control IQ) on my Tandem X2 pump. Tandem unlike Medtronic, you cannot set a long duration Temp. Basel percentage.

      7 months ago Log in to Reply
      1. Joan McGinnis

        Can start exercise.mode earlier and leave on a lot longer

        1
        7 months ago Log in to Reply
      2. Bonnie Lundblom

        I’ve been able to set my Tandem Tslimx2 pump with a lower basal rate for 6-8 hours on days where I’m doing lots of physically hard work. I wonder you can’t and maybe you can reach out to Tandem to discuss this in an effort to stay safe and healthy!

        7 months ago Log in to Reply
    2. Lawrence S.

      I have highs and lows everyday. But, a large majority of the time, I’m between 70 -180. I usually go low during and after exercise, sometimes before meals, sometimes while working around the house and in the yard.

      7 months ago Log in to Reply
      1. sweet charlie

        It has been the same for me with the CGM readings and probably before going back 70 years..

        1
        7 months ago Log in to Reply
    3. Sherolyn Newell

      I picked 2 for this week. Last week, it was a lot more. I believe I happened upon a particularly good spot for insulin absorbtion. It took me about a day and a half to figure it out and use a little less insulin. Normally, the opposite happens.

      1
      7 months ago Log in to Reply
    4. Jane Cerullo

      According to FSL but it is always wrong. Just started my Dexcom G6 today. Hope better accuracy. Of course my range is on low side

      2
      7 months ago Log in to Reply
    5. Daniel Bestvater

      I use a Tandem X2 pump with control IQ. The problem I have is that it will make me hypoglycemic during the day if I’m moving around to any degree. I usually need to turn off CIQ during the day if I’m walking, biking or doing yard work. I usually just start a 50% basal rate starting one hour before I do any type of activity. The CIQ exercise mode seems to make almost no difference to me. Great program but it needs to allow for basal reductions and stopping the auto bolus function. Sleep mode during the day with a reduce basal program running can sometimes help for shorter duration activities.

      1
      7 months ago Log in to Reply
      1. Marty

        I had a similar problem with lows during exercise even with control IQ in exercise mode. I fixed it by setting up a special exercise profile that reduced my basal rate by 90% and set a 1:500 correction ratio to avoid those awful stealth boluses. Now I just have to remember to turn it on and off. I understand the next Control IQ version will have a better exercise options.

        1
        7 months ago Log in to Reply
      2. Lawrence S.

        I completely disconnect myself from my pump an hour before I run, and during my run. Sometimes I reconnect just before the end of my run, other times just after the run. I usually carbo and protein overload one to two hours before I run.

        7 months ago Log in to Reply
    6. Patricia Dalrymple

      I was pleasantly surprised to see only once. Been working on eliminating lows (not on CGM). But I was on vacation for the last two weeks and away for one, constantly eating out. Don’t ask me how many highs I had šŸ™

      1
      7 months ago Log in to Reply
    7. kflying1@yahoo.com

      Our disease is variable to each person – those that claim to have the exact programs or answers should never be trusted. Learn from yourself what works for you.

      2
      7 months ago Log in to Reply
      1. sweet charlie

        I agree with that !!!!

        7 months ago Log in to Reply
    8. Pauline M Reynolds

      After having been plagued with lows, I am now the new, proud owner of a CGM system. No BG’s below 70 in 3 weeks!!!!!

      4
      7 months ago Log in to Reply
    9. Liz Avery

      I answered 1. I currently am positive for Covid, so chose to self quarantine. Lack of activity has contributed to my answer. šŸ˜‰

      7 months ago Log in to Reply
    10. Mick Martin

      I selected “7 (every day)” though it has NOT been every day.

      I’ve just checked my records and seen that I’ve had blood glucose levels below 3.9 mmol/l [70 mg/dl] on 8 occasions over the last 7 days, but sometimes that’s been twice a day, with other days where no hypoglycaemic events occurred at all.

      7 months ago Log in to Reply
    11. Janis Senungetuk

      The past two weeks been doing a lot of heavy lifting for extended periods of time. Just two lows is really amazing and a very positive result of Dexcom and Control IQ.

      7 months ago Log in to Reply
    12. LizB

      I have had a low every day for the past week but they weren’t sustained lows or bad. Some of those days I dipped below 70 for only 5-10 minutes according to my CGM.

      1
      7 months ago Log in to Reply
    13. Wanacure

      Only 2 days as measured by One Touch blood measure. Dexcom gave false lows all day on sensor’s last day. I also got false lows when wearing Dexcom left of navel & sleeping on left side. Unless centered over navel, I must sleep on side opposite CGM site.

      7 months ago Log in to Reply
    14. Bonnie Lundblom

      I said 5, but my Dexcom 6 isn’t always accurate. I’m looking forward to the Dexcom CGM 7 hoping it will improve the accuracy of my readings.

      7 months ago Log in to Reply
    15. Karen Brady

      I would’ve answered 1 or 2, but I’m currently pregnant so maintaining much tighter control than usual

      7 months ago Log in to Reply
    16. Steven Gill

      Upon diagnosis it was preached repeatedly the risk of complications from high glucose levels. Through the years than was told “a little higher” is better than the extreme low level, although at what point is the risk of neuropathy eliminated?

      I’m working harder to lower my a1C, learning to use my Continuous Glucose Monitor to it’s fullest. That means in the last 5-6 weeks my CGM shows my average at 110, the level over “150” is a rarity (my last a1C was 7.3, impatient for the doc visit this week), but am alerted almost daily to “60-65” levels. Very small amounts of fast acting carbs, reducing my basal dose, and paying attention to the glycemic scale brings these levels up a little.

      Used to panic over lower levels but gaining confidence with this cgm working for more “normal” glucose levels. But likewise I’d never try this without a continuous monitor.

      7 months ago Log in to Reply

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