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    • 1 hour, 26 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 1 hour, 26 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 1 hour, 29 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I was shocked that so many people haven't heard about it. It is all over social media. It looks promising to me. Of course the trial participants need to be followed for awhile as no drug gets approved by the FDA in short time, but so far all of the first 12 trial participants are insulin free and the 1st participant has been insulin free for over 1-1/2 years with no complications that I've heard of.
    • 3 hours, 33 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 3 hours, 33 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 4 hours, 15 minutes ago
      Ahh Life likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      This question is an advertisement. In my opinion it is a misleading advertisement. Tegoprupart is an immunosuppressant. A trial investigating using the drug with islet cell recipients has barely gotten started. 90-ish percent of all phase 3 drug trials fail. Drug development is hard. I wish them luck at the same time I wish they weren't misleading people about the investigational use of their drug.
    • 5 hours, 18 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 5 hours, 18 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 6 hours, 58 minutes ago
      Gerald Oefelein likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      AI Overview Tegoprubart, an anti-CD40L antibody, is generally safe and well-tolerated, with a cleaner safety profile than traditional calcineurin inhibitors (like tacrolimus) in early trials, specifically showing lower risks of kidney toxicity and diabetes. Common side effects reported include fatigue, headaches, muscle spasms, and potential infections. National Institutes of Health (.gov) National Institutes of Health (.gov) +4 Common Side Effects and Adverse Events In clinical trials, the most frequent treatment-emergent adverse events (TEAEs) observed included: National Institutes of Health (.gov) National Institutes of Health (.gov) +2 Fatigue (approx. 25.9%) Falls (approx. 22.2%) Headaches (approx. 20.4%) Muscle spasms (approx. 11.1%) Upper respiratory tract infections Sleepiness Key Safety Advantages Over Standard Care (Tacrolimus) Tegoprubart aims to avoid the, often, severe, long-term side effects of standard anti-rejection meds like tacrolimus
    • 6 hours, 59 minutes ago
      Lawrence S. likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      No thanks.
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      If it requires immunosuppressive medication I have no interest. I'll continue to manage with insulin.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely, especially if stem-cell generated islet cells are transplanted without the need for immunosuppressants. If tegoprubart is needed and is found safe after the trials are complete, then likely.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely. Although the simplicity of spifflicating is often overrated. 🤓☝️
    • 1 day, 2 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
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    In addition to T1D, how many other autoimmune diseases do you have?

    Home > LC Polls > In addition to T1D, how many other autoimmune diseases do you have?
    Previous

    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Next

    Health care providers may prescribe medications for other illnesses or indications (like type 2 diabetes medications) that might be helpful for a person’s concern or problem with T1D - commonly called 'off-label use'. Does your provider prescribe you any type 2 diabetes medications 'off-label'? Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    34 Comments

    1. LizB

      I also have Hashimoto’s, which seems to be pretty common among those with Type 1.

      4
      4 years ago Log in to Reply
    2. Britni

      Hashimoto’s and celiac

      4 years ago Log in to Reply
    3. mbulzomi@optonline.net

      One is enough!

      4 years ago Log in to Reply
    4. Louise Robinson

      Thyroid disease—diagnosed about 10 years after 1976 Type 1 diagnosis. Have been taking levothyroxine ever since.

      4 years ago Log in to Reply
    5. Lori Lorsch

      4

      4 years ago Log in to Reply
    6. Don P

      65+ a few years T1 without any other issues.

      2
      4 years ago Log in to Reply
      1. sweet charlie

        70

        1
        4 years ago Log in to Reply
    7. Lawrence S.

      At least 4 autoimmune diseases, plus T1D. It’s good to be alive.

      1
      4 years ago Log in to Reply
    8. Trisha Oldenkamp

      I’m surprised others don’t tend to have more! I have had 4 autoimmune diseases but fortunately T1 is the only major one currently. Two could be treated successfully. I have Scandinavian heritage which I know is prone to autoimmune issues.

      4 years ago Log in to Reply
    9. Rob Smith

      Celiac

      4 years ago Log in to Reply
    10. Karen Newe

      0. But I test positive for 1 of 2 genes tested that are associated with celiac.

      1
      4 years ago Log in to Reply
    11. Karen DeVeaux

      Celiac

      4 years ago Log in to Reply
    12. Jane Cerullo

      Graves’ disease with TED
      Skin lupus

      4 years ago Log in to Reply
    13. jo

      I have Celiac Disease, Autoimmune Leukopenia, Alopecia, and the way my thyroid blood test are going I’m sure Hashimoto’s Disease soon. And of course the pièce de résistance Type 1

      4 years ago Log in to Reply
    14. Valentina Potempa

      Graves Disease

      4 years ago Log in to Reply
    15. Mark Schweim

      I said 0 because “How would I know” wasn’t an answer option.
      I was diagnosed with IBSDC (Irritable Bowel Syndrome with Diarrhea and Constipation) in 2017 and I have been told both that it IS another autoimmune disease and that it ISN’T anything autoimmune related, so I have been unable to get any definite answer whether my autoimmune disease count stands at 1 or if it should be increased to 2.

      4 years ago Log in to Reply
    16. pru barry

      One IS enough, but my second one, now that the thyroid has been removed, just means one pill a day, and no diet circus involved :*) ! Hard not to love Graves Disease!

      4 years ago Log in to Reply
    17. Kim Davis

      Fibromyalgia, autoimmune hepatitis, T1D, hypothyroid, IGA~, psoriasis, kidney disease.

      4 years ago Log in to Reply
    18. Lynn Green

      In addition to
      T1D, just dx with psoriatic arthritis and fibromyalgia.

      4 years ago Log in to Reply
    19. Janis Senungetuk

      No others that I’m aware of. The low thyroid I was dx with in 2005 was not considered autoimmune.

      4 years ago Log in to Reply
      1. Jneticdiabetic

        1 more = Hashimoto’s thyroiditis

        4 years ago Log in to Reply
    20. Pauline M Reynolds

      Hashimoto’s thyroiditis and enteropathic arthritis.

      4 years ago Log in to Reply
    21. AnitaS

      I have been on levothyroxine for about 47 years for my low thyroid which came on about 2-3 years after being diagnosed with T1. Not sure if I have ever heard of Hiroshimoto disease being mentioned for me though. I’ll have to check my medical records to see if my low thyroid is Hiroshimotos or not.

      4 years ago Log in to Reply
      1. AnitaS

        All my medical records say hypothyroidism, not Hashimoto disease

        4 years ago Log in to Reply
    22. sweet charlie

      Old age !!

      2
      4 years ago Log in to Reply
    23. Jan Masty

      Hypothyroid, rheumatoid arthritis, vitiligo. Doing fine

      1
      4 years ago Log in to Reply
    24. Ahh Life

      Dang! With so many mortality and comorbidities associated with the diabetic condition, I scored zero on this one. ╮(╯_╰)╭

      I feel like I just swung the sledge hammer and rang the bell. Whoo-hoo! c( O.O )ɔ

      5
      4 years ago Log in to Reply
    25. Bekki Weston

      I had a goiter removed when I was 15 or so (am 65 now), and been on thyroid pills ever since. Was Dx’d w/T1D when I was 58. Tried to get my goiter records, but learned they had been destroyed long ago. Might not have been called Hashimoto’s back then, but those are my symptoms.

      4 years ago Log in to Reply
    26. Molly Jones

      I have been diagnosed with Hashimoto’s, microscopic colitis, epilepsy due to extremely high GAD 65 antibodies. Autoimmune conditions run in my mother’s family, and I am grateful not to have more of them.

      4 years ago Log in to Reply
    27. Sherolyn Newell

      Rheumatoid arthritis.

      4 years ago Log in to Reply
    28. PamK

      Within the last 10 years I have been diagnosed with two other autoimmune diseases. First, Ulcerative Colitis and more recently, Psoriasis.

      4 years ago Log in to Reply
    29. Wanacure

      An endoscopy revealed I have gluten intolerance.

      4 years ago Log in to Reply
      1. Wanacure

        Gluten intolerance = celiac disease. And I forgot my minor arthritis is also auto-immune. If you count occasional pollen allergies as autoimmune, then I’ve got 3 autoimmune diseases in addition to T1D.

        4 years ago Log in to Reply
    30. Chiharu

      Graves’ disease
      I was diagnosed with Graves’disease and T1D almost at the same time in 1995 and now don’t need any medicine for Graves’disease.

      4 years ago Log in to Reply

    In addition to T1D, how many other autoimmune diseases do you have? Cancel reply

    You must be logged in to post a comment.




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