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    • 9 hours, 31 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 9 hours, 31 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 9 hours, 34 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I was shocked that so many people haven't heard about it. It is all over social media. It looks promising to me. Of course the trial participants need to be followed for awhile as no drug gets approved by the FDA in short time, but so far all of the first 12 trial participants are insulin free and the 1st participant has been insulin free for over 1-1/2 years with no complications that I've heard of.
    • 11 hours, 38 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 11 hours, 38 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 12 hours, 20 minutes ago
      Ahh Life likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      This question is an advertisement. In my opinion it is a misleading advertisement. Tegoprupart is an immunosuppressant. A trial investigating using the drug with islet cell recipients has barely gotten started. 90-ish percent of all phase 3 drug trials fail. Drug development is hard. I wish them luck at the same time I wish they weren't misleading people about the investigational use of their drug.
    • 13 hours, 23 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 13 hours, 23 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 15 hours, 3 minutes ago
      Gerald Oefelein likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      AI Overview Tegoprubart, an anti-CD40L antibody, is generally safe and well-tolerated, with a cleaner safety profile than traditional calcineurin inhibitors (like tacrolimus) in early trials, specifically showing lower risks of kidney toxicity and diabetes. Common side effects reported include fatigue, headaches, muscle spasms, and potential infections. National Institutes of Health (.gov) National Institutes of Health (.gov) +4 Common Side Effects and Adverse Events In clinical trials, the most frequent treatment-emergent adverse events (TEAEs) observed included: National Institutes of Health (.gov) National Institutes of Health (.gov) +2 Fatigue (approx. 25.9%) Falls (approx. 22.2%) Headaches (approx. 20.4%) Muscle spasms (approx. 11.1%) Upper respiratory tract infections Sleepiness Key Safety Advantages Over Standard Care (Tacrolimus) Tegoprubart aims to avoid the, often, severe, long-term side effects of standard anti-rejection meds like tacrolimus
    • 15 hours, 4 minutes ago
      Lawrence S. likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      No thanks.
    • 1 day, 10 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 10 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 10 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 10 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 10 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 10 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 10 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      If it requires immunosuppressive medication I have no interest. I'll continue to manage with insulin.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely, especially if stem-cell generated islet cells are transplanted without the need for immunosuppressants. If tegoprubart is needed and is found safe after the trials are complete, then likely.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely. Although the simplicity of spifflicating is often overrated. 🤓☝️
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
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    Do you do anything special to acknowledge the anniversary of your diabetes diagnosis?

    Home > LC Polls > Do you do anything special to acknowledge the anniversary of your diabetes diagnosis?
    Previous

    In the past 5 years, have you participated in a research study that was unrelated to T1D?

    Next

    In the past 5 years, have you participated in a T1D research study that tested out a potential new device, drug, process, or other intervention?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    62 Comments

    1. LizB

      Not most years but I think every 5 years deserves something I don’t usually eat. This year (35th) was cheesecake and it was worth it!

      4
      4 years ago Log in to Reply
      1. Joan Fray

        Good idea! I’ll have a hot fudge sundae when I hit 65 years…at least a few bites!

        4 years ago Log in to Reply
    2. Molly Jones

      The Christmas season marks the anniversary of my epilepsy, previous cancer and diabetes dx along with many family members deaths.
      I mark this as anniversary as a time to enjoy my limited time in a decaying body on Earth!

      1
      4 years ago Log in to Reply
      1. sweet charlie

        I am so sorry Molly !!! my heart is with you !!

        4 years ago Log in to Reply
    3. Britni

      I chose “other.” My diagnosis was close enough to my birthday that I kind of lump the two together.

      4 years ago Log in to Reply
    4. Robert Kovalik

      I just passed 48 years, hope to pass 50.

      2
      4 years ago Log in to Reply
      1. Joan Fray

        You go girl!

        4 years ago Log in to Reply
      2. Joan Fray

        Oops. You go guy!

        4 years ago Log in to Reply
      3. sweet charlie

        you will, and more!!

        1
        4 years ago Log in to Reply
    5. Janice Bohn

      Diagnosis date is not a special date for me.

      4 years ago Log in to Reply
    6. john36m

      I do not even know the exact date. It was October 1964. (I think?) My doctor (GP) is long since deceased. I contacted the hospital, and if they had any records left they would have been in boxes in some offsite storage facility.

      1
      4 years ago Log in to Reply
      1. sweet charlie

        Joslin wanted proof ofmy diag. of 1953… my Docs were all dead….

        4 years ago Log in to Reply
      2. Joan Fray

        I sent for my file from the clinic where I was diagnosed. (1962), They sent it to me in about a month. Used it for the 50 year medal.

        4 years ago Log in to Reply
    7. Danele Smith

      It’s not a celebration… just an extra day to let our daughter do fun things she wants to do.. to make it a positive.. not a negative. She deserves an additional special day for all her frustrations and stresses through the year.

      7
      4 years ago Log in to Reply
      1. StPetie

        Now THAT is how a good Mom thinks. I freakin’ loved that comment. Good for you, Ms. Smith.

        2
        4 years ago Log in to Reply
    8. Vivian Moon

      I guess I have missed something! Why would it be something to celebrate? Do you celebrate a cancer diagnosis or any other disease diagnosis? And promote it?

      4
      4 years ago Log in to Reply
    9. cynthia jaworski

      I said “no.” However, I celebrate each birthday as a milestone of survival and an excuse to have fun.

      1
      4 years ago Log in to Reply
    10. Kevin McCue

      This anniversary is not one to celebrate

      3
      4 years ago Log in to Reply
    11. Lawrence S.

      I’m proud that I’ve survived another year. But, I’m sorry folks, having Diabetes is not something to celebrate. It’s a disease.

      3
      4 years ago Log in to Reply
    12. Nevin Bowman

      No. I know the year, but other than that I have no idea on what date I became a diabetic.

      1
      4 years ago Log in to Reply
    13. Liz Avery

      I too had a Christmas season diagnosis; 66 years ago. Makes me melancholy.

      4 years ago Log in to Reply
      1. sweet charlie

        Liz, at what age ??

        4 years ago Log in to Reply
    14. Joan Fray

      I usually have a glass of champagne and toast my parents. My dad had Type1, but he still got married, became a pediatrician, had two kids and lived a very active , but short, life. I thank them for having me. T1d be damned!

      9
      4 years ago Log in to Reply
    15. mbulzomi@optonline.net

      It was 55 years ago. I would rather forget “Period”.

      3
      4 years ago Log in to Reply
    16. RegMunro

      I’m not even certain of the date, just know it was between 15 December 1965 and 15 January 1966

      1
      4 years ago Log in to Reply
    17. Bea Anderson

      Special meaning it is automatically announced on computer calendar like a birthday.

      4 years ago Log in to Reply
    18. Jim Andrews

      Being 55 years ago, I do not know the exact date, only that it was probably in January of 1967. I do not celebrate it but I do take pause to be thankful that I suffer no complications.

      3
      4 years ago Log in to Reply
      1. sweet charlie

        Celebrate by passing this info to newly diagnosed..

        1
        4 years ago Log in to Reply
    19. E24murph@gmail.com

      I haven’t had an anniversary yet and I am not sure if I am going to acknowledge it or not yet.

      4 years ago Log in to Reply
    20. Modee

      “No” only because there wasn’t a “hell no” option.

      6
      4 years ago Log in to Reply
    21. Ken Raiche

      I remember it well Dec 13 1973 and honestly it’s really not something I celebrate.

      2
      4 years ago Log in to Reply
    22. Tom Caesar

      I acknowledge by dressing completely in black! Ha!

      3
      4 years ago Log in to Reply
    23. Sue Martin

      I think about it and note the passing years. It’s also my dad’s birthday.

      4 years ago Log in to Reply
    24. Barb Robertson

      I was diagnosed on my 10th birthday…so yes I do celebrate both my birthday and how many years I’ve been diabetic—-60 this year with no complications 🙂

      5
      4 years ago Log in to Reply
      1. sweet charlie

        Yes me also 90/69… no complicatations.. why not others HOPE..

        3
        4 years ago Log in to Reply
      2. Joan Fray

        Me too! 72/60. Woo hoo forall of us!

        1
        4 years ago Log in to Reply
    25. Carol Meares

      I was dx’d the day before my birthday so I celebrate my birthday.

      1
      4 years ago Log in to Reply
    26. Bob Durstenfeld

      No, but I do celebrate each day of life.

      7
      4 years ago Log in to Reply
    27. persevereT1D52

      I’ve never understood why people acknowledged their diagnosis date. Are they celebrating? Maybe it’s a negative perspective but even if it’s a “yay I made it one more year” feels off to me.

      3
      4 years ago Log in to Reply
      1. sweet charlie

        I broadcast my age [90] and T1D years [69] to give HOPE to any Newbees… and it has helped !!

        4
        4 years ago Log in to Reply
    28. marge slater

      Heck NOOOOO!!

      1
      4 years ago Log in to Reply
    29. Natalie Daley

      It was my 40th birthday present. Maybe that’s why I’m not fond of birthday celebrations.

      1
      4 years ago Log in to Reply
    30. Amanda Barras

      I was 4, I don’t know the date only a month range where I was dx, and I don’t find it anything to celebrate.

      2
      4 years ago Log in to Reply
    31. Becky Hertz

      I was diagnosed and I’d may/beginning of June. I don’t even know what day I would acknowledge.

      1
      4 years ago Log in to Reply
    32. Patricia Dalrymple

      Nope – I don’t celebrate things I would rather forget, like the 7 operations due to a benign tumor when they removed my right nostril or my hysterectomy 😏

      1
      4 years ago Log in to Reply
    33. Maurine Bowser

      I celebrate milestone anniversaries -50 yrs with diabetes and will in 3 yrs for my 60th year with the diabetes. I am proud I am still around. It is something to celebrate.

      6
      4 years ago Log in to Reply
      1. sweet charlie

        YES!!!

        2
        4 years ago Log in to Reply
    34. Tina Roberts

      To me, it is not something to celebrate. It stinks! I’m not happy about it one bit. Jeez.

      4 years ago Log in to Reply
      1. sweet charlie

        Tina, I celebrate that I have surived [now 69 years] with this monkey in my life of 90 years!!!

        6
        4 years ago Log in to Reply
    35. Tina Roberts

      I’m pretty disgusted this question was even asked.

      4 years ago Log in to Reply
    36. KarenM6

      This year I hit the 50-year mark.
      I don’t “celebrate”… But, I do think having some sort of mental self-high-five for surviving this long is in order.
      Celebrate might be the wrong word… what about “acknowledgment” or “memorialize”?
      I don’t normally acknowledge such a thing (which was a life and brain-changing traumatic event for me), but this was a special year. I have been more vocal in telling people how long I’ve been diabetic… almost like a stereotypical parent who shows their kids’ photos to all and sundry. ;p
      That is my “celebration”… that I’ve survived! No party or balloons or oddly-specific Hallmark cards… but the congratulations all of us deserve for dealing with diabetes!!

      3
      4 years ago Log in to Reply
      1. KarenM6

        Sorry, t1dexchange! I picked up “celebrate” from other posts and didn’t re-read the question.

        Here’s how I see it: It’s not an acknowledgment of getting the disease, it’s an acknowledgement of survival.
        (And, that crazy “positive” for me… I’m usually the downer in the room! LOL)

        4
        4 years ago Log in to Reply
    37. Jmmattco@gmail.com

      No, but I wish my sister Happy Birthday that day, lol. I really spoiled her special 10th birthday dinner going into DKA and being diagnosed/hospitalized.

      4 years ago Log in to Reply
    38. ConnieT1D62

      Not really. However, I did celebrate when I hit year 50 in December 2012 with the Joslin bronze medal and a Lilly Silver medal. My thoughts and feelings were that I deserved to be awarded recognition for living with diabetes for 50 years! And this year I will pass the 60 year diaversary mark!

      6
      4 years ago Log in to Reply
      1. Christina Trudo

        Me too Connie, 60 years in July. cheers.

        4 years ago Log in to Reply
    39. Steven Gill

      Every curse has a blessing. I was diagnosed TYPE 2 May 28, 1998. My older sister passed away from cancer May 23, 1998. She had a good attitude, worried for her boys, brought us boys (her 5 brothers) closer.

      I watched my mother and brothers mourn, made me work harder, read everything I could, to live through diabetes. So my “anniversary ” isn’t so much about me. But yeah I’ll remember it.

      4 years ago Log in to Reply
    40. Phyllis Biederman

      Since it’s on July 4th, there’s always a toast to being here to enjoy the fireworks, with a heartier celebration on more significant years (ie, half century). This year I’ll celebrate 56 years with amazing challenges and opportunities to beat the odds!

      1
      4 years ago Log in to Reply
    41. Mary Ann Sayers

      No, but I did receive the 50 year medal at Joslin Clinic for living with type 1 diabetes for 50 years. That was 18 years ago.

      4 years ago Log in to Reply
    42. Janis Senungetuk

      In 2015 on my 60th yr. living w T1 I attended my first diabetes conference with 90+ other adults. It was a very significant experience, enabling long lasting friendships with others I had only met online. I congratulate others who announce their “diaversaries” on social media because I think each day is a victory of survival. Perhaps in 3 years, if I’m able, I’ll do something to celebrate 70 years of life w T1.

      1
      4 years ago Log in to Reply
    43. Christina Trudo

      Since my mid 20’s when my therapist encouraged me to think of ways my diabetes has been a positive force, to celebrate. Got my ears pierced the first year (doctors had always discouraged that) but soon ran out of safer acts of rebellion and now I just try to do something fun and maybe different. It’s 60 years on July 19, I’ll have to come up with something special.

      1
      4 years ago Log in to Reply
    44. Jim Cobbe

      I’m not even sure of the month it happened, let alone the date. It was on a Friday evening in late southern hemisphere autumn, that I know, but more precisely I don’t believe I could figure out (and any records were long ago lost). St Joseph’s Hospital, Roma, Lesotho, in 1975.

      4 years ago Log in to Reply
    45. Cheryl Seibert

      No, I spend too much time dealing with my 56 years of T1D, so the anniversary is a non-event.

      4 years ago Log in to Reply

    Do you do anything special to acknowledge the anniversary of your diabetes diagnosis? Cancel reply

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